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PostPosted: Tue Sep 21, 2010 12:14 pm 
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Joined: Tue Sep 21, 2010 11:57 am
Posts: 3
Hi
I am a newbie here and trying to understand more about cancer since my friend was diagnosed with sdclc stage 4 couple of days ago. since she is also 6 months pregnant, we are looking for alternative treatment.
Chanced upon this site: http://www.dr-gonzalez.com/index.htm
Do you think this is worth trying ? Or is there anything else that should be tried ?
I am trying to read up as much as possible; but it is confusing and very bewildering :(
Thank u so much


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PostPosted: Tue Sep 21, 2010 1:15 pm 
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Joined: Sat Jan 17, 2009 1:00 pm
Posts: 1069
Location: Seattle
Oh my, that is really terrible and you are a good friend for trying to help. Can you clarify the type of cancer? SDCLC is unfamiliar to me, but the LC at the end might mean a type of lung cancer?

While there are people who chose to try alternative treatment, or no treatment (see the Forum: The Path Less Traveled), anything you find about the success of these options are anecdotal (not backed by clinical studies and peer review.) Doctors will tell you that you will find cases where they work, but you have to question whether the same result would have happened with no treatment. (You could also ask that with traditional chemo, but they can at least show you studies.)

Without knowing what type of cancer she is looking at, it is hard to guess what treatment is recommended. I did not start treatment for 2 months after detection. Some have gone quite a bit longer than that just getting a diagnosis. I am thinking she can carry the baby to term and then start treatment? If she has chemo, she won't be able to breast feed, but she has a chance of seeing her baby grow up.

I hope she is without symptoms and in good health overall so that she can get through this year and enjoy her future with her child.

Best.


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PostPosted: Tue Sep 21, 2010 1:41 pm 
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Joined: Tue Sep 21, 2010 11:57 am
Posts: 3
sorry, i should've been more explicit.
Friend has been diagnosed with non-small cell lung cancer.

From all that i've read so, i understand one key thing is to keep the faith and be positive.
Thank you for your wishes.


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PostPosted: Tue Sep 21, 2010 6:41 pm 
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Joined: Sat Jan 17, 2009 1:00 pm
Posts: 1069
Location: Seattle
Yes, faith and hope are very real components, but do allow her to be scared, angry, and sad. She will most likely need to grieve even if she has a great response to treatment. There are few who aren't unchanged by this diagnosis.

Please let us know if you can share her status, treatment, and outcome. We have lots of virtual support to offer.

_________________
(photo: me in '61)
Female never smoked, 52 at diagnosis, otherwise healthy
09/08: false cardiac event = finding of 3 cm tumor upper right lobe plus two .5 cm nodes elsewhere on chest x-ray at ER
09/08: CTScan with IV contrast confirms.
10/08: Pulmonary referral for EBUS - bronchoscopy - confirms NSCLC - adenocarcinoma, with bronchoalveolar features
10/08: PetScan - further confirmation, classified T1N0MX (false negative) VATS scheduled.
11/08: full open surgery - revised to T4N2MX with positive spread to 2 lymph nodes, removed upper lobe with 3 cm tumor and partial mid lobe with (1) .5 cm tumor, 3 lymph nodes on trachea - 1 lymph node and margins negative.
5 night hospital stay.
12/08: Port-a-cath implanted
12/08: Brain MRI and hearing test - good other than minor high end loss in left ear
12/08: start (4) 21 day cycles of chemo - day 1 cisplatin and gemcitabine, day 8 gemcitabine alone, day 15 off - tolerated it pretty well - a little hair thinning and follicle inflammation, some ringing in ears and vertigo, much fatigue, and nausea. Kept my taste-buds almost intact.
02/27/09: completed 4 cycles of chemo!
03/03/09: removed port-a-cath
03/27/09: tattooed for radiation
03/30/09: start radiation (IMRT) 5x/wk for 6 weeks - fatigue, moderate esophagitis
5/08/09: completed treatment
6/22/09: NED
9/18/09: Recurrance in the liver and scattered in lungs. No symptoms. Rx Tarceva.
9/25/09: start Tarceva
11/20/09: clear lungs, shrinkage in liver.
2/24/10: still good on Tarceva
6/3/10: graduated to 6 month scan
12/9/10: new 6 cm tumor in liver
12/28/10: stop Tarceva
1/10/11: carbo/alimta/avastin
3/11/11: scan after 3 cycles 72%ish met reduction, stay the course
5/26/11: scan after 6 cycles, stable.
5/31/11: begin Avastin maintenance.
8/17/11: met growth, stop Avastin. Start Alimta.
10/25/11: met growth, stop Alimta. Wondering what to do next?
1/24/11: start hospice


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PostPosted: Wed Sep 22, 2010 9:11 am 
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Joined: Fri Apr 02, 2010 10:49 am
Posts: 2000
Location: W. Michigan
If there is anything we can do to help, let us know. Knowledge is power. But the pregnancy is a complication that no one with lung cancer needs. Prayer and a positive attitude definitely will help, but she also needs that time to be open and honest with someone.

Having lung cancer is a lonely and isolating experience. Most people want to assume we smoked, therefore we "deserve" this disease, which is absolute bull....as you know with your friend.

60% of all new lung cancer diagnosis are for people that never smoked, or quit smoking years before being diagnosed. It is a frighteningly growing number of people getting lung cancer.

It is the #1 killer of all cancers, and yet it's so under funded, and the least researched cancer of all of them. It's a shame. And that is why we are here to advocate for this disease, and raise money to help with research.

Judy in MI

_________________
6/07 DX NSCLC, Left Upper Lobe wedge resection: Stage 2.3/4, (2B?) Adenocarcinoma, measures 2.5x1.5x1.1cm. Involving visceral pleura but not through it. 5 rounds chemo, carboplatin and Taxol. Subsequent scans NED.

1/11 3.5 mm node found. 10/11 CT node now 8 mm, and new 6 mm node. 11/11 CT Pet shows slight uptake. 1/4/12 Biopsy - Pneumothorax complication. 1/14/12 Lobectomy of upper rt. lobe. NSCLC Adenocarcinoma in situ, nonmucinous (bronchioloalveolar carcinoma) 1.4cm involves pulmonary parenchyma.
3/14/12 Begin 4 cycles of Cisplatin/Navelbein, with Neulasta shot
4/6/12 Chemo changed to Carboplatin/Navelbine without Neulasta shot. Reduced chemo by 50% due to intolerance.
7/5/12 CT scan is clean, NED for lung cancer! There are issues with liver and stomach that will be investigated but not believed to be because of cancer. Wait and see!

*Avatar was taken 7/3/12 on our way out to see the Fireworks on a friends boat on their lake!

Mom dx SCLC 1/96, passed 10/19/96, age 62
Dad dx Brain cancer 4/87, passed 6/87, age 57
Sister dx Brain cancer 4/83, passed 12/83, age 25


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