Our stories are almost indentical, and do I ever understand the worry that goes along with watching these new li'l suckers develop. As you'll see from my profile, my "count" has gone from 3 in three lobes, to 7 in all lobes...
Some are lobulated (the largest, for one), some are spiculated...most are tiny, and under 5mm. So we watch....every three months...and wait....
I, like you, struggle with finding a middle ground - I've almost become OCD-like
in my quest for information
but knowledge IS power, as long as we don't let the knowledge freak us out too much, huh?
Feel free to PM if ya ever need more info - I have PLENTY
Hang in there, and keep us posted!!
Yours in HOPE! (& watch
In Loving Memory of my Dad, "Eddie" Jan. 26, 1940 - June 8, 1996. Gone fishin' and holding my pole 'til I get there...
Adenocarcinoma of the lung.
Father in Law dx'd Sept. 04 Stage IIIb Squamous Cell LC...May 31, 2006 - On to Heaven, and the BEST cup of coffee...Love you, Pappy!
I'm a 41 year old married mom of five beautiful kids. Lost my Dad, Grandma, Great-Uncle, FIL, and many others to LC. Quit smoking in 2002 when a 5mm nodule in R lung was seen on Xray.
1/2005: Follow-up xray shows NO nodules, but...
2/2005: CT scan shows new/changed lobulated, non-calcified nodule in L lung (only 7mm x 10mm), three tiny (3-5mm), non-calcified nodules in R lung and nodular pleural thickening in both lungs...still too small for biopsy. We wait & watch w/ CT scans every 3 mos...next one in Aug.
May 05 - Dx'd w/moderate to severe asthma.
CT Scan Aug. 05 - "Essentially stable". L lung nodule grew to 11mm. R lung nodules are unchanged. No new nodules. Scan again in Feb.
8/05: Consult with Mayo Clinic Scottsdale. Mayo wants to rescan in Nov. 05.
11/05: CT shows "some" new noncalcified nodules in the R lower lobe, (now they are in all three lobes of the R lung...what a bummer) all tiny (<5mm) and some mild pericardial thickening (??). Otherwise, all other nodules are unchanged. No new ones in the L lung. Hmmm...now what...?? Still too small for biopsy - Next scans in Feb. 06.
Feb. 06 - CT shows a new subpleural nodule in L upper lobe, <5mm. Dominant nodule is relatively unchanged. The count appears to be 4 in the R, 2 in the L - now "it" is in all lobes.
May 06 - On to Mayo Clinic. New scans, labs, PFT's scheduled for June 2nd. The current nodule count is 7.
June 06 - Insurance denies Mayo claim, "not one of their providers" and "their" pulmonologist refuses to see me anymore because I went to Mayo!!! Sends me a certified letter to that effect.
Aug. 06 - 43 years old!! New doc orders CT. Nodules stable (yeah!!!)
Sept. 06: Pulmonologist wants another PET scan since I've had slight progression over the past year.
October 06 - PET/CT scheduled ~ results show new teeny spiculated nodule in RLL, as well as enlarged axillary nodes, but NO significant uptake except in the throat area (I talk too much...heehee) Scan again 1st week of January '07.
Jan. 07 - Nodules, mediastinal & axillary nodes stable!! Rescan in March.
Mar. 07 - EEEK!! Another new nodule!!! 4mm in LUL... 3 months fever of unknown orgin, and very high CRP levels...all else is stable.
4/07 - US and CT show enlarged liver & biliary duct dilatation. 2 lymph nodes in neck - one in armpit.
6/07 - Oncologist ordering a bone marrow biopsy, another PET/CT, and more liver/abdominal imaging. Maybe lymphoma...???
8/07 - 44 years old!! WOOHOO!!! Bone marrow biopsy shows no metastatic lymphoma, but shows iron depletion, and abnormal red calls... PET/CT shows another new nodule in LUL. Neck/axillary nodes increase. Neck dissection scheduled. Still thinking lymphoma...
10/07 - 3 enlarged nodes removed from neck. Prelim. shows no lymphoma present. Re-scan lungs this month to check on new nodule.
CT shows numerous blebs in left apex, but NO NEW nodules!!
12/07: Breast MRI for armpit/axillary node - negative
2/08: 3 years since this began. Mayo for follow-up CT. Doc is only concerned with 4 of the nodules and has finally graduated me to CT annually with xray at 6 months, barring any new symptoms/complications!!! YAY!! Started on pulmo. rehab. for COPD
A CANDLE FOR A CURE!!! 25% of proceeds will be donated to LUNGevity!!! Visit: http://www.candle4acure.com/
Pictured: Cassidy & Mommy ~ My youngest of five! May, 2008