* Login   * Register * FAQ    * Search
It is currently Tue Jun 18, 2013 4:04 pm

All times are UTC - 6 hours


Post new topic Reply to topic  [ 8 posts ] 
Author Message
 Post subject: New member
PostPosted: Sun Jul 15, 2012 8:19 am 
Offline

Joined: Sat Jul 14, 2012 9:49 pm
Posts: 4
Hello everyone. Im really glad to find this board. I am well over my run in with cancer...for now, hopefully forever. I had a tumor in my RML found on an incidental xray 6/11. My RML was removed in 8/11 and the path report said it was poorly undifferentiated adenocarcinoma, but the tumor was contained to the lobe. Biggest concern was that 5 of 5 lymph nodes were infected. I had 4 cycles of cisplatin/etoposide after surgery finishing the beginning of November. I had a PET in 12/11 and another in 6/12 and both were NED. Just started a brand new job last week. So, I wish I could say I feel free and clear but I dont. There is that dark cloud in my mind, because of the lymph's that it will be back, but for now, I choose to enjoy each day as it comes to the best of my ability. I love all the posts and support here and look forward to being a part of this community.


Top
 Profile  
 
 Post subject: Re: New member
PostPosted: Sun Jul 15, 2012 10:48 am 
Offline
Senior Member
Senior Member
User avatar

Joined: Thu Jan 09, 2003 6:22 pm
Posts: 3573
Location: Minnesota (grew up Massachusetts)
Welcome Sandy. I had that chemo and radiation before surgery and more chemo after. I will celebrate 15 yrs of survival this year. Wishing you responded as well!! Keep us posted.

Donna G

_________________
NSCLC, 4 cm Pancoast tumor, diag. 12/3/97 Cisplatin and VP 16, Radiation, R upper lobectomy, more Cisplatin and VP 16. Celebrating 16 yrs of survival ! Click here and read MY STORY

http://lungevity.org/l_community/viewtopic.php?f47&t=9092


Top
 Profile  
 
 Post subject: Re: New member
PostPosted: Sun Jul 15, 2012 4:01 pm 
Offline
OVER 1000 POSTS !
OVER 1000 POSTS !
User avatar

Joined: Sat Nov 24, 2007 6:54 pm
Posts: 1019
Location: Yellowknife, Canada
Welcome aboard Sandy
Like you, I had surgery and my upper left lobe was removed in September 2007. I followed that with Cisplatin/Vinerolbine for 4 rounds. I just got my results back on Friday and still NED. Each time you hear those 3 letter's, you are getting further away from a reoccurance so just keep adding to your last 2 results. Enjoy that new job.

_________________
02/07 spot showed on chest x-ray
04/07 ct scan confirmed spot
07/07 pet scan could not confirm cancerous
09/07 had lobectomy of upper lobe on left lung.tumour was 2.1cm
10/07 lymph node samples were negative. classified as stage 1b.
12/07 Begin 4 rounds of adjuvant chemotherapy. Cisplatin and Vinerolbine on a 21 day cycle.
01/08 First 3 month chest x-ray was all clear.
03/08 After 3 rounds, cisplatin wil be replaced by carbo for the last round. Ringing in the ears is a side effect of cisplatn.
03/08/08 Had treatment yesterday of Carboplatin/Vinerolbine. So far feeling alot better than when I received the Cisplatin. Treatment lasted 2 hours compared to 5 hours for Cisplatin.
04/08 Chest x-ray. All clear.
06/08 chest CT Scan. All clear
09/08 Chest x-ray. All clear
11/08 Chest x-ray. All clear
02/09 Chest and abdomen CT Scan. All clear
04/09 Chest x-ray. All clear
06/09 Chest x-ray and abdominal ultrasound All clear
01/10 Chest x-ray. All clear


Top
 Profile  
 
 Post subject: Re: New member
PostPosted: Mon Jul 16, 2012 10:24 am 
Offline
OVER 500 POSTS !
OVER 500 POSTS !
User avatar

Joined: Fri Feb 08, 2008 4:24 pm
Posts: 831
Location: Connecticut
Welcome Sandy! I am so glad you found us, this is a great site for support and friendships!
good luck in your new job - cheers for new beginnings!!

Peace


Top
 Profile  
 
 Post subject: Re: New member
PostPosted: Mon Jul 16, 2012 5:22 pm 
Offline
MODERATOR
User avatar

Joined: Fri Sep 19, 2008 6:08 pm
Posts: 1422
Location: Crowley, Texas
Welcome, Sandy! My story is similar, not that large a tumor, but a cancerous lymph node made it stage 2, so I had chemo after surgery.

I've been cancer free for over four and a half years now, so my dark cloud is getting smaller. Here's wishing you many cancer free years, too!

_________________
Bud

Long distance cyclist and lung cancer survivor
56 years old at time of diagnosis in 2007, now live in Crowley, Tx
Nov 2007 - Tentatively diagnosed as NSCLC stage I from CT scan
Dec 2007 - Upper left lobectomy, biopsy showed one cancerous lymph node, changing the diagnosis to stage II (squamous cell)
Feb to Apr 2008 - Three rounds of cisplatin and gemcitabine
Apr 2008 - chest x-ray, NED
May 2008 - brain mri, clear
Jul 2008 - CT scan, NED
Dec 2008 - CT scan, NED
June 2009 - CT scan, NED
Jan 2010 - CT scan, NED
July 2010 - CT scan, NED
June 2011 - CT scan, NED
May 2012 - CT scan, NED
December 2012 - CT scan, NED. I am now a 5 year survivor!

June 2009 - Wife Rose diagnosed with breast cancer
Stage III IDC
Sept 2009 - Finished 4 rounds of chemo (AC)
Nov 2009 - Surgery
March 2010 - Finished 12 weeks of weekly Taxol
August 2010 - CT scan, NED
August 2011 - Checkup, NED
August 2012 - Checkup, NED
The rest of my story is at:

http://www.lungevity.org/l_community/vi ... hp?t=38841

My blog - uneasy-rider.com


Top
 Profile  
 
 Post subject: Re: New member
PostPosted: Tue Jul 17, 2012 6:35 pm 
Offline

Joined: Sat Jul 14, 2012 9:49 pm
Posts: 4
Thank you all so much for the welcome. Ill cruise around and jump in as I find time this week. And thanks Bud for sharing your sucess!!! I hope to follow in your shoes, oh and also catch a beautiful fish like that as soon as it cools down a little and I can breath.....lol


Top
 Profile  
 
 Post subject: Re: New member
PostPosted: Tue Jul 17, 2012 8:14 pm 
Offline
MODERATOR
User avatar

Joined: Sat Feb 20, 2010 5:53 am
Posts: 1319
Location: Airdrie north Lanarkshire
Hi Sandy,
Welcome to LCSC,looking forward to getting to know you,I had a upper right lobectomy and the removal of an infected lymph node,that was in January 2009 and I have had no further treatments since.I suppose the feeling of "what if",remains with all lung cancer survivors,as Bud mentions,this dark cloud does diminish with the passing of time.My buddy Robert Lowe was dxd with SCLC in 1993,given only 2 months to live by his doctors,which he ignored and carried on living anyway,then in 2007 he is then dxd with NSCLC,has surgery and chemo,is alive and well today and at 72 years old, he has the enegry and a lust for life of people half his age.
Theres a saying I recently discovered,Worry-its like sitting in a rocking chair-it gives you something to do,but it dos'nt get you anywhere.Robert has survived almost 20 years now,imagine the waste of his time if he had to worry every day of these past years that his cancer might have returned.My advice,get on with your life and seek out all the things you enjoy doing.

_________________
Regards,
Eric Byrne

To read my story, please follow the link : http://lungevity.org/l_community/viewtopic.php?t=43268


Top
 Profile  
 
 Post subject: Re: New member
PostPosted: Wed Jul 18, 2012 1:08 pm 
Offline
Director of Support & Advocacy, LUNGevity
User avatar

Joined: Thu Jan 09, 2003 11:09 am
Posts: 15009
Location: Texas
Welcome Sandy!
Looking forward to getting to know you.

_________________
- Katie Brown, Co-Founder of LCSC- Director of Support & Advocacy

18 yr cancer survivor.
Certified Patient Navigator
www.iamkatiebrown.com


In memory of Jessee Dewey, SCLC
December 29, 1938 - September 6, 2003
Lisa Dewey- Jan. 22, 2007

my parents are together in heaven
ImageImage

facebook http://www.facebook.com/lungevity


Top
 Profile  
 
Display posts from previous:  Sort by  
Post new topic Reply to topic  [ 8 posts ] 

All times are UTC - 6 hours


Who is online

Users browsing this forum: No registered users and 1 guest


You cannot post new topics in this forum
You cannot reply to topics in this forum
You cannot edit your posts in this forum
You cannot delete your posts in this forum
You cannot post attachments in this forum

Search for:
Jump to:  
Powered by phpBB® Forum Software © phpBB Group
[ Time : 0.271s | 13 Queries | GZIP : Off ]