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 Post subject: Just had surgery
PostPosted: Sun Mar 16, 2003 2:04 am 
I was diagnosed with stage IIIa adenocarcinoma in October 2002. The tumor was over 10 centimeters long. After twelve weeks of Taxol then Cisplatinin the tumor shrank....tremendously. I had a lobectomy last month and the pathology report is totally negative! I am so grateful I can't stand it! I am hoping this tinnitus will go away. I will be doing radiation and more chemo as a preventative measure starting next week. Glad to find this message board. :D


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 Post subject:
PostPosted: Sun Mar 16, 2003 8:49 am 
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Joined: Mon Jan 13, 2003 7:40 pm
Posts: 466
Location: Redford Township, Michigan
Sanjooo,
Welcome to this board. You'll find great people here.
Glad to hear the good news. :D
Rosanne

_________________
57 yr husband diag. 10-24-02,
NSCLC-IV-adeno, mets-brain-liver
10 all brain radiation, 4 rounds of carboplatin/gemzar
5-19 liver mets grew, new mets-pelvic bone
tried clinical trial 6-2, stopped-low platelets
July 10 passed away at home with family
He is missed more everyday!


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 Post subject: News
PostPosted: Sun Mar 16, 2003 9:12 am 
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Posts: 9879
Location: Houston, TX
Wonderful news, Sanjo! Welcome! Don

_________________
72-yr old, married 47 yrs. Wife Lucie diag. 10/02 NSCLC (adeno carcinoma) w. multiple bone mets (skull, rib, upper spine, left hip and right fibula); non-smoker.

Radiation: 10-12/02 (spine, fibula); 03-04/03 (hip); 06/03 (sacrum); 07/04 (rib); 12/04 (skull); 04-05/05 (right fibula - recurrence).

Chemo: (Carboplatin/Taxotere), 02-05/03 - effective in reducing tumors; 07-12/04 (Navelbine) to treat recurrence in other lung, lymph nodes, rib - effective in reducing tumors; 08-12/05 (Navelbine/Gemzar) to treat recurrence in hip sacrum, spine, rib, shoulder, and liver - held everything stable; Alimta 2-4/06 - no effect; Carboplatin/Taxol/Avastin,5-9/06 - effective in reducing tumors.
Zometa monthly for bone strength.

Staph infection, systemic, 12/02 - second port-a-cath installed. Bilateral pneumonia, 08/03. Septic staff infection, congestive heart failure, 09/06 - deceased

I am 11-yr. prostate cancer survivor, Stage II (two bouts). Also 9 yr. heart bypass surgery survivor.

Avatar Pic: Don & Lucie, 02/06


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 Post subject:
PostPosted: Sun Mar 16, 2003 11:20 am 
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Joined: Mon Jan 20, 2003 3:39 pm
Posts: 1083
Location: Indiana
Welcome Sanjo!

It's sooooooooo good to read success stories! Thanks for sharing!

Peg

_________________
husband NSCLC stage IV Nov 2002. Mets to brain and bones. Radiation to bones/stereotactic radiosurgery to brain. Taxol/carbo, Iressa, and clinical trial of TLK286 and Taxotere unsuccessful. Gemzar started 8/26. 12/23 Gemzar worked for 5 months. Progression of disease 3/2. Beloved husband is gone 4/22/04.


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 Post subject:
PostPosted: Sun Mar 16, 2003 12:57 pm 
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Joined: Fri Jan 10, 2003 11:40 am
Posts: 22
Location: Connecticut
Welcome to this board.
I found that my tinnitus slowly lessened to the point that I now rarely have it. Hope yours completely disappears! :D

Nancy


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 Post subject:
PostPosted: Sun Mar 16, 2003 6:27 pm 
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Joined: Thu Jan 09, 2003 11:09 am
Posts: 14986
Location: Texas
WELCOME! Your story is fantastic! It is so good to hear GREAT news! Sending prayers for a quick recovery and total remission!

_________________
- Katie Brown, Co-Founder and Director of LCSC-

15 yr cancer survivor.

"Any of us who have experienced the cancer journey- and survived it-
have an obligation to make the path clearer and aid those that come after us."
- Lance Armstrong


In memory of Jessee Dewey, SCLC
December 29, 1938 - September 6, 2003
Lisa Dewey- Jan. 22, 2007

my parents are together in heaven
ImageImage

facebook www.facebook.com/lungevity


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 Post subject:
PostPosted: Sun Mar 16, 2003 9:10 pm 
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Location: Victoria, B.C. Canada
Hey Sanjo.
We all know that size doesn't count, but 10 cm's - that's pretty big! Wonderful news to hear that it shrunk drastically, and if there's any good news in any sort of lung removal, then it's nice to hear you "just" had a lobectomy. I would really like to hear the rest of your story; your entire story, from just before diagnosis, to now (if you're comfortable with that).
Stories like yours are simply a joy to read. Many people see lung cancer as a death sentence - when those same people read about a cancerous 10 cm tumor, a lobectomy, and a totally negative pathology report six months later - well dear Sanjo, it just don't get much better! The "Inspiration" forum would be an appropriate place for such an inspiring story (if you're comfortable with that). Looking forward to hearing more from you Sanjo,
David P.

_________________
Left Pneumonectomy 1977.
No chemo, no rad.
Positive attitude, exercise, social responsibility, and hope for the future are all things I believe in which helps me be a stronger person.

Photo of me wearing the 2007 Canadian Cancer Society Cops for Cancer Tour de Rock cycling jersey


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 Post subject:
PostPosted: Mon Mar 17, 2003 7:02 am 
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Location: MA
That is really encouraging news!!! :D

_________________
Dad: Stage IV NSCLC with Met to bones dx 1/06.


4/18/03 Liver Met. and Adrenal Gland BUT lung mass shrunk considerably.


5/17/03 Brain Met.

mouth/throat cancer survivor for over 10 years.
#1 Dad passed away 5/25/03 at 12:55 am

Picture of all, Me (green monster), my sister Kim on big wheels and Sandy and my dad on my bike in June 1981


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 Post subject:
PostPosted: Mon Mar 17, 2003 8:41 am 
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Joined: Tue Jan 28, 2003 9:02 am
Posts: 47
It's GREAT to hear such wonderful & encouraging news!!!! Welcome! :P

_________________
Dad dx 1/03 Stage IV NSCLC...squamous cell...primary in left lung...right lung & lymph involvement...1 Brain Met treated w/ Radiosurgery...Chemo
Beloved Father went home to God on 6/5/03

Beloved Father went to be with God on 6/5/2003


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 Post subject: HI
PostPosted: Mon Mar 17, 2003 11:11 am 
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Joined: Thu Jan 09, 2003 12:54 pm
Posts: 2362
Location: Yakima, Washington
Sanjo,
Welcome and keep the good news coming! Hope you stay with us and let us share as you continue your recovery. I'm excited for you too!!!

_________________
"Pain is temporary. Quitting lasts forever." Lance Armstrong

"Every moment is a breath-taking, transitory experience, never to be repeated again." - Don Juan Matus

Tiny
Age 58 at dx; lifelong non-smoker
12/01 dx NSCLC bronchoalveolar-type adenocarcinoma (BAC), Stage IIA
2/02 Lobectomy RLL; no chemo or rad
6/03 MRI = "empty"
3/05 Bone Scan = negative
2/08 CT = "No Evidence for Metastases or Recurrence"
Enjoyed 6+ years of NED
1/09 CT/PET:Recurrent disease: multiple new nodules in both lungs, mediastinal lymph nodes, and spot on liver.
2/3/09 Bone Scan: Degenerative arthritis (hooray!)
2/4/09 Started Tarceva
~~ picture: Temple of Poseidon, Greece 4/08 ~~


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 Post subject:
PostPosted: Tue Mar 18, 2003 6:24 pm 
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Joined: Tue Jan 14, 2003 5:54 pm
Posts: 548
Location: Tucson, AZ
Sanjo,
10 cm. Wow! So good they could get it all out!!!!!! Way to go go!!!!! :lol: :lol: :lol: :lol: JudyB

_________________
DX 10/17/01 (4 days after 60th B'day) NSCLC Stage IIIB* squamous & adenocarcinoma, chemo(carbo & taxol) and radiation for six weeks, surgery removed upper left lobe 2/12/02, 2 more chemos in Apr & May 02.
*Drs misdiagnosed

9/16/03 Neurosurgery removed some of the squamous tumor in spine (grew back from original. Original thoracic surgeon said he got it all. He didn't.
Cyber-Knife in Phoenix finished 11/20/03.

Navelbine and Gemzar for 5 or 6 cycles, beginning Nov 3, 2003.

Photo is with my husband on daughter's wedding day 10/99


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 Post subject:
PostPosted: Tue Mar 18, 2003 8:04 pm 
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Joined: Wed Jan 15, 2003 10:48 am
Posts: 5701
Location: Minnesota
Dear Sonjo,

You really are an INSPIRATION!!! David P said it best when he said it would be great to hear your entire story, from before dx.s to now. Please consider sharing your story on the Inspiration Forum. It's people like you, David P. Dave G. Judy B and even me, and many many more that give hope to those that thought there was NO HOPE! I am So Very Happy for you! Congratulations!!! And Continued Good Health to You!

Warm and Gentle Hugs,

_________________
Warm and Gentle Hugs,
Connie B
Date Dx.d, 7/21/1995, Age 43, Adenocarcinoma, Stage IIIB, had 3.4cm tumor and three cancerous lymph nodes.
7/25/1995 had Left Lung Removed along with several lymph nodes.
9/9/95 Started Chemo (VP-16/Cisplatin), & Radiation (36 treatments). Cancer Free.
8/11/2003 CT Scan found 4mm Nodule Right Upper Lung. Did PET scan & Nodule Lite up. Also found a Tumor in my Left Atrium (Heart)
8/21/03 Open Heart Sugery for Myxoma Tumor in Left Atrium. During heart surgery (3) surgeons checked 4mm nodule & agreed it did not appear to be cancerous.
11/2004-CT & PET scan, nodule still there 6mm will watch.
4/2005-CT, Nodule still there and has grown to 8mm will do another CT in 9/2005. Waiting & watching nodule.
9/2005 CT Nodule has shrunk to 5mm. Doctor's feel nodule could be scar tissue.
2/2006 Having Shortness of Breath problems.
4/2006 CT, nodule 5mm No Change.
11/2006 CT scan no change in Nodule.
4/26/07 Results of CT scan shows I have another Noudule. Now have two nodules, one is 6-7mm & the new one is about 3mm.
9/2007 CT shows 3 nodules all mm in size. First 2 have no change in them. New one is very small. Repeat CT in 6 months.
12/11/07 Still NED
5/7/08 CT (right lung) (nodules watch) two new nodules I now have 5 nodules. Will watch via CT scans.
10/08 CT Scan showed 1 nodule 6mm has grown to 1.2cm.
5/22/09 CT Scan (awaiting results)
7/4/09 PET Scan (3 nodules in left lung are now 1.4c.m in sizes.
8/13/09 Did Bronhcoscopy
8/18/09 NOT Cancer, no cancer found.
Next PET Scan Oct 2009.

READ MY STORY @ http://www.lungevity.org/l_community/vi ... hp?t=13224

Lost my Father age 56(1970), Mother age 66 (1987), and Sister age 43 (1988) all to Lung Cancer
AVATAR is in Iowa @ the Presidential Cancer Forum


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 Post subject:
PostPosted: Tue Mar 18, 2003 9:21 pm 
I can only echo what everyone else has to say here. When I had my second surgery, last September, the doctors and I were totally convinced that I had another malignant tumor. A lobectomy was planned, and when they woke me after the surgery, and told me the tumor was benign and they saved my lower lobe, I cried.

When one goes in expecting the worse, and then come out as well as you did, it is something to be happy about. The two most horrible words are Lung Cancer, but the the two most beautiful words are CANCER FREE. Isn't it great to hear those words!!! :D :D :D


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