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 Post subject: Stephanie
PostPosted: Wed Feb 08, 2012 3:54 pm 
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Joined: Mon Nov 10, 2008 9:37 am
Posts: 905
Location: Southern Oregon
I have not seen a post here, although I may have missed it, and wanted to make sure that everyone here knows that Stephanie passed away. There was a message on Grace, and here is the link:

http://cancergrace.org/forums/index.php ... 98.30.html

I am too sad to even write more.

_________________
3/98 Dx squamous cell NSCLC 2a at 50 yrs
4/98 Left lung removed, no chemo/rad
8/08 Persistent cough and shortness of breath, first appt. with pulmonary doc 11/4/08
11/08 X-ray and CT show tumor in right lung. PET scan confirms tumor, shows no apparent spread
12/08 CT/needle biopsy shows squamous cell NSCLC IIIB, doctors don't seem to agree if its a new cancer or recurrence - but onc believes it is a new one
12/08 Start concurrent radiation/chemo, Cisplatin/Etoposide
1/09 Chemo switched to Carbo/Taxol due to intolerance of Cisplatin
2/09 Radiation completed
3/09 Chemo completed
5/09 CT shows spot where tumor was likely/hopefully scar tissue
6/09 Begin Lucanix trial
9/09 CT scan - stable
12/07/09 CT scan - stable
3/1/10 CT scan - stable
6/1/10 CT scan - stable - begin 2nd year of trial
8/23/10 CT scan - stable
10/25/10 CT scan - stable
1/20/11 CT scan - stable
4/25/11 CT scan - stable - completed drug portion of trial, now follow-up with 3-mo scans
8/1/11 CT scan - stable
10/24/11 CT scan - stable. At my request, switching to 6 mo scans.
4/24/12 CT scan - stable.
10/30/12 CT scan - stable.
2/26/13 CT scan - stable

Avatar is with 10-mo-old grandson Ethan at Xmas


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 Post subject: Re: Stephanie
PostPosted: Wed Feb 08, 2012 3:58 pm 
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Joined: Mon Nov 10, 2008 9:37 am
Posts: 905
Location: Southern Oregon
Here is a link to Stephanie's blog for those who may not have seen this on Grace:

http://blatherwatch.blogs.com/the_taffy_times_/

_________________
3/98 Dx squamous cell NSCLC 2a at 50 yrs
4/98 Left lung removed, no chemo/rad
8/08 Persistent cough and shortness of breath, first appt. with pulmonary doc 11/4/08
11/08 X-ray and CT show tumor in right lung. PET scan confirms tumor, shows no apparent spread
12/08 CT/needle biopsy shows squamous cell NSCLC IIIB, doctors don't seem to agree if its a new cancer or recurrence - but onc believes it is a new one
12/08 Start concurrent radiation/chemo, Cisplatin/Etoposide
1/09 Chemo switched to Carbo/Taxol due to intolerance of Cisplatin
2/09 Radiation completed
3/09 Chemo completed
5/09 CT shows spot where tumor was likely/hopefully scar tissue
6/09 Begin Lucanix trial
9/09 CT scan - stable
12/07/09 CT scan - stable
3/1/10 CT scan - stable
6/1/10 CT scan - stable - begin 2nd year of trial
8/23/10 CT scan - stable
10/25/10 CT scan - stable
1/20/11 CT scan - stable
4/25/11 CT scan - stable - completed drug portion of trial, now follow-up with 3-mo scans
8/1/11 CT scan - stable
10/24/11 CT scan - stable. At my request, switching to 6 mo scans.
4/24/12 CT scan - stable.
10/30/12 CT scan - stable.
2/26/13 CT scan - stable

Avatar is with 10-mo-old grandson Ethan at Xmas


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 Post subject: Re: Stephanie
PostPosted: Wed Feb 08, 2012 4:39 pm 
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Joined: Thu Jan 27, 2005 7:10 am
Posts: 8432
Location: Greensboro North Carolina
My Condolences thoughts prayers and positive energy for her Family and friends.

so sorry to hear of another life cut short by this disease!

_________________
April/03 My Wife Deborah, age 46, diagnosed adenocarcinoma NSCLC
1/20/2006 Admitted to hospital Respiratory distress
1/23/2006 Ran to the light and is waiting for us to be rejoined in the Kingdom Of Heaven Her journey is Over but mine lingers on for Now!!!
4/23/07 DEb is joined in Peace by her Puppy Dawg Daisy from Cancer
8/30/07 Got new Pup named Mocha!!

"No matter hnow much it hurts, No matter how alone you feel, Your friends will help you get through anything!!"
Scrubs!!!!Yes the comedy show!!!

The Reason I advocate
If you would like to see our family photos Click on this link!
http://deborah-wallin.memory-of.com/

My memory-of Link is good to go now if you want to see it!!


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 Post subject: Re: Stephanie
PostPosted: Wed Feb 08, 2012 5:19 pm 
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Joined: Tue Mar 13, 2007 11:00 am
Posts: 2604
Location: Auburn, Alabama
I am so sorry to read this. Stephanie fought hard and fought well.

Susan

_________________
76 year-old mom diagnosed with stage IV lung cancer January 5, 2007.

15 radiation treatments to the spine and four rounds of chemo, Jan-May, 2007.

Stable disease May, 2007-May, 2008.

Bone scan May, 2008 shows new mets in the spine, pelvis and ribs.

July, 2008--finished radiation and has a Quadramet treatment.

October, 2008--Scans show mild progression. Began chemo (carbo/taxol/avistin). Will have four rounds of threatment (every 21 days) and scan in January.

01/05/2009--TWO YEAR SURVIVOR!

4/2009--STABLE! No treatment. Next scan in July

7/2009--Scan shows pleural effusion. Fluid drained and malignant. Cancer has spread to other lung and a 13 mm lesion is seen on the liver. Mom to begin Alimta on 8/3

11/2009--Alimta was hard on mom and scans showed progression.

12/2009--began Tarceva, noticed almost immediate improvement.

2/25/2010--Celebrated Mom's 80th birthday!

5/15/2010--Mom watched her oldest granddaughter graduate from college and then paritied well into the night! She's still feeling great.

6/15/2010--Mom watched her youngest granddaughter graduate from high school. Still feeling great!

8/2010-10/2010--Mom begins feeling tired and stays in bed more and more. Scans reveal that the cancer is moving rapidly throughout her body.

10/13/2010--Mom wins her battle once and for all, and passes to a place where the cancer can no longer touch her.

For a more detailed timeline see:

http://www.lungevity.org/l_community/viewtopic.php?p=360385#360385


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 Post subject: Re: Stephanie
PostPosted: Wed Feb 08, 2012 5:43 pm 
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Joined: Tue Oct 07, 2003 11:05 am
Posts: 5392
Location: Montgomery Twnshp PA
There are certain souls that you do not need to know but you will grieve when they die. Stephanie you are one of those souls. Peace.

_________________
Ginny
Please use gdecoursey@aol.com for email.

Earl born 1/28/42 - dx 9/21/02 - died 8/18/04. He was the sunshine of my life.


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 Post subject: Re: Stephanie
PostPosted: Wed Feb 08, 2012 8:15 pm 
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Director of Support & Advocacy, LUNGevity
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Joined: Thu Jan 09, 2003 11:09 am
Posts: 15010
Location: Texas
My heart is broken.

I loved spending time with Stephanie when I was in Seattle, visiting her home, going to a "garden" party that was actually a birthday party in honor of her....she was a sweet and gentle lady. I am so blessed to have known her online and in real life.

My heart is broken.

My prayers for her partner--and her kitties....

My heart is broken.

_________________
- Katie Brown, Co-Founder of LCSC- Director of Support & Advocacy

18 yr cancer survivor.
Certified Patient Navigator
www.iamkatiebrown.com


In memory of Jessee Dewey, SCLC
December 29, 1938 - September 6, 2003
Lisa Dewey- Jan. 22, 2007

my parents are together in heaven
ImageImage

facebook http://www.facebook.com/lungevity


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 Post subject: Re: Stephanie
PostPosted: Wed Feb 08, 2012 8:35 pm 
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Joined: Fri Sep 19, 2008 6:08 pm
Posts: 1422
Location: Crowley, Texas
Wow, I was so not ready for this. Stephanie was one of the classiest people I've ever met. Condolences to Michael and all those who will miss her so much. I'm thinking that includes a lot of us here.

_________________
Bud

Long distance cyclist and lung cancer survivor
56 years old at time of diagnosis in 2007, now live in Crowley, Tx
Nov 2007 - Tentatively diagnosed as NSCLC stage I from CT scan
Dec 2007 - Upper left lobectomy, biopsy showed one cancerous lymph node, changing the diagnosis to stage II (squamous cell)
Feb to Apr 2008 - Three rounds of cisplatin and gemcitabine
Apr 2008 - chest x-ray, NED
May 2008 - brain mri, clear
Jul 2008 - CT scan, NED
Dec 2008 - CT scan, NED
June 2009 - CT scan, NED
Jan 2010 - CT scan, NED
July 2010 - CT scan, NED
June 2011 - CT scan, NED
May 2012 - CT scan, NED
December 2012 - CT scan, NED. I am now a 5 year survivor!

June 2009 - Wife Rose diagnosed with breast cancer
Stage III IDC
Sept 2009 - Finished 4 rounds of chemo (AC)
Nov 2009 - Surgery
March 2010 - Finished 12 weeks of weekly Taxol
August 2010 - CT scan, NED
August 2011 - Checkup, NED
August 2012 - Checkup, NED
The rest of my story is at:

http://www.lungevity.org/l_community/vi ... hp?t=38841

My blog - uneasy-rider.com


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 Post subject: Re: Stephanie
PostPosted: Wed Feb 08, 2012 9:00 pm 
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OVER 500 POSTS !
OVER 500 POSTS !
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Joined: Fri Feb 08, 2008 4:24 pm
Posts: 832
Location: Connecticut
I am so so sad. Stephanie gave me so much support and encouragement on these boards and through pms. We bonded over a similar diagnosis and crazy Tarceva side effects. I never got a chance to meet her in person, but it was obvious what a warm and caring person she was. We were looking forward to finally meeting this spring, it was the next milestone I was aiming for. I will miss this woman I never met so very much. My heart is broken. Michael, if you read this, my prayers are with you. Thank you for making our friend happy.
Peace, Janet


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 Post subject: Re: Stephanie
PostPosted: Wed Feb 08, 2012 9:42 pm 
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Joined: Fri Sep 29, 2006 2:32 pm
Posts: 2158
Location: CT
This sucks, she touched a lot of lives!

So hard to grasp.


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 Post subject: Re: Stephanie
PostPosted: Thu Feb 09, 2012 5:54 am 
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Joined: Sun Aug 07, 2005 6:26 am
Posts: 2447
Location: Memphis
So sad!! She was such a wonderful person!!! I loved meeting her last year.

She will be greatly missed!!

:(
Jamie

_________________
We are not dealt a situation we cannot handle. It is how we handle these situations, that defines who we are, and who we'll become.
Age 35 at diagnosis
[size=75]Dx December 2004 Stage IIIB
Started Tarceva June 2005(working)
Stable scans (8/2005)
Stable scans (10/2005)
Stable scans (11/2005)
Celebrating 1 year since diagnosis
1/16/06 NED--just scar tissue and/or fibrosis
4/16/06 NED--just scar tissue and/or fibrosis
7/19/06 Stability again--Thank you Lord Jesus!!
11/19/06 NED
1/19/07 NED Again!!!
4/19/07 NED Again!! God is Good!
7/21/07 NED AGAIN!! Pet was clear!!
10/25/07 NED AGAIN!!! God is Good!
01/2008 Cancer free and thanking God!!
06/2008 NED AGAIN!! Thank you God!!
10/2008 NED AGAIN!! Thank you God!!
2/2009 NED AGAIN!! Thank you God!!
6/2009 NED AGAIN! Thank you God!!
12/2009 NED AGAIN!! Thanks be to GOD!!
6/2010 NED AGAIN!!! Thanks be to GOD!!
5 1/2 Year Survivor
http://www.caringbridge.org/tn/jamie
www.memphislungcancerconnections.com
www.lungevity.org/playingforacure

[/size]


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 Post subject: Re: Stephanie
PostPosted: Thu Feb 09, 2012 6:31 am 
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Joined: Fri Apr 02, 2010 10:49 am
Posts: 2004
Location: W. Michigan
Sad. What a class act she was. I loved her quiet and yet amazing sense of humor. She was grace and dignity through it all. She will be missed.

Darn it.

Judy in MI

_________________
6/07 DX NSCLC, Left Upper Lobe wedge resection: Stage 2.3/4, (2B?) Adenocarcinoma, measures 2.5x1.5x1.1cm. Involving visceral pleura but not through it. 5 rounds chemo, carboplatin and Taxol. Subsequent scans NED.

1/11 3.5 mm node found. 10/11 CT node now 8 mm, and new 6 mm node. 11/11 CT Pet shows slight uptake. 1/4/12 Biopsy - Pneumothorax complication. 1/14/12 Lobectomy of upper rt. lobe. NSCLC Adenocarcinoma in situ, nonmucinous (bronchioloalveolar carcinoma) 1.4cm involves pulmonary parenchyma.
3/14/12 Begin 4 cycles of Cisplatin/Navelbein, with Neulasta shot
4/6/12 Chemo changed to Carboplatin/Navelbine without Neulasta shot. Reduced chemo by 50% due to intolerance.
7/5/12 CT scan is clean, NED for lung cancer! There are issues with liver and stomach that will be investigated but not believed to be because of cancer. Wait and see!

*Avatar was taken 7/3/12 on our way out to see the Fireworks on a friends boat on their lake!

Mom dx SCLC 1/96, passed 10/19/96, age 62
Dad dx Brain cancer 4/87, passed 6/87, age 57
Sister dx Brain cancer 4/83, passed 12/83, age 25


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 Post subject: Re: Stephanie
PostPosted: Thu Feb 09, 2012 6:33 am 
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Joined: Thu Aug 14, 2003 2:42 pm
Posts: 2031
Location: Illinois
Very sad news, I am honored to have met her and spent time with her last year in DC.

Cindy

_________________
age 56
surgery 6/20/03, stage 1B, upper left lobectomy
started adjuvant chemo on 08/14/03
3 cycles--cisplatin/gemzar
finished chemo 11/6/03
now 9 years post-lobectomy, annual x-ray and follow-up with surgeon
follow-up with oncologist every year/bloodwork and clinical exam

2001 early stage breast cancer/surgery and radiation only, no chemo needed. Mammograms once a year,

Just passed 11 year mark for the breast cancer and 9 year mark for the lung


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 Post subject: Re: Stephanie
PostPosted: Thu Feb 09, 2012 8:52 am 
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Joined: Fri Dec 28, 2007 6:32 pm
Posts: 4769
Location: Key West, FL
Words can't express my sorrow. I pm'd her on Grace yesterday after noticing in the past few days she'd responded with support to other people but no word on how she herself was doing.When my own health issues prevented me from being in Washington last year, not meeting Stephanie was a major disappointment. I trusted I would meet her this year. I was wrong. Another very special person gone from our family.

Judy in KW


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