hello, my name is Jodi Page, i am 29 years old. i was diagnoised with Mesothelioma in December of 1999, at the age of 26. i had surgery, a left thoracotomy; radical extrapleural pneumonectomy. i recently found out i have asthma, and am having trouble finding the right meds for that. i would like to talk to and get to know more people dealing with Mesothelioma. why do they always give such long names to cancer?

Hi Jodi,
I just wanted to welcome you to the boards...good people here.

_________________
"Pain is temporary. Quitting lasts forever." Lance Armstrong

"Every moment is a breath-taking, transitory experience, never to be repeated again." - Don Juan Matus

Tiny
Age 58 at dx; lifelong non-smoker
12/01 dx NSCLC bronchoalveolar-type adenocarcinoma (BAC), Stage IIA
2/02 Lobectomy RLL; no chemo or rad
6/03 MRI = "empty"
3/05 Bone Scan = negative
2/08 CT = "No Evidence for Metastases or Recurrence"
Enjoyed 6+ years of NED
1/09 CT/PET:Recurrent disease: multiple new nodules in both lungs, mediastinal lymph nodes, and spot on liver.
2/3/09 Bone Scan: Degenerative arthritis (hooray!)
2/4/09 Started Tarceva
~~ picture: Temple of Poseidon, Greece 4/08 ~~

Hi Jodi

Margie Levine who wrote "Surviving Cancer" (a great book) is a survivor of mesothelioma. She has a web site (www.margielevine.com) where you can contact her. She may be able to give you somee guidance. Good Luck!

i want to thank those of you who have welcomed me and for giving me helpful hints. the question has come up in regards to what mesothelioma is. well, it's cancer of the cells lining the lung, between the lung and the rib cage and also can be found in the diaphragm. on February 22nd of this year i celebrated my 3 year mark of being cancer free. i just found out that on top of asthema, i am allergic to just about everything. on a good note, i am not allergic to any foods!! thanks again for the warm welcome. jodi

Jodi:

Connie has told me all about you and how you are an intragal part of the support group in the Twin Cities. The way Connie explains (Connie, of course, has her own way of explaining things, as you well know ) it, you are much the same as she is: bubbly, enthusiastic, and can't stop talking . The first question I have: Is this true?

I look forward to learning more about Meso, and hope that others who have meso will join us here. Like NSCLC and SCLC, Mesothelioma has it's stigma as well. With the entire realm of Lung Cancer there is much to be overcome, but we are rapidly making headway. We're not there yet, as much more work is desperately needed, as you and all others well know.

Hi Jodi, (Sunshine)!

So glad to see you share your story with everyone. Your the sunshine in many people lives! And of course you give HOPE to those that never thought there was any! And of course you know I hole you near and dear to my heart!!

But also keep in mind, we're here for you too!! I know you haven't had the easiest time the last year, so, remember we are here to walk with you too!!! You know I am just thrilled by your 3 year survival and I am blessed to have you a part of our very own Support Group here in Minnesota, not to mention in my life!!

Jodi has GREAT knowledge when it comes to Mesothelioma. She will be a wonderful asset to this wonderful group.

Love with Warm and Gentle Hugs,

_________________
Warm and Gentle Hugs,
Connie B
Date Dx.d, 7/21/1995, Age 43, Adenocarcinoma, Stage IIIB, had 3.4cm tumor and three cancerous lymph nodes.
7/25/1995 had Left Lung Removed along with several lymph nodes.
9/9/95 Started Chemo (VP-16/Cisplatin), & Radiation (36 treatments). Cancer Free.
8/11/2003 CT Scan found 4mm Nodule Right Upper Lung. Did PET scan & Nodule Lite up. Also found a Tumor in my Left Atrium (Heart)
8/21/03 Open Heart Sugery for Myxoma Tumor in Left Atrium. During heart surgery (3) surgeons checked 4mm nodule & agreed it did not appear to be cancerous.
11/2004-CT & PET scan, nodule still there 6mm will watch.
4/2005-CT, Nodule still there and has grown to 8mm will do another CT in 9/2005. Waiting & watching nodule.
9/2005 CT Nodule has shrunk to 5mm. Doctor's feel nodule could be scar tissue.
2/2006 Having Shortness of Breath problems.
4/2006 CT, nodule 5mm No Change.
11/2006 CT scan no change in Nodule.
4/26/07 Results of CT scan shows I have another Noudule. Now have two nodules, one is 6-7mm & the new one is about 3mm.
9/2007 CT shows 3 nodules all mm in size. First 2 have no change in them. New one is very small. Repeat CT in 6 months.
12/11/07 Still NED
5/7/08 CT (right lung) (nodules watch) two new nodules I now have 5 nodules. Will watch via CT scans.
10/08 CT Scan showed 1 nodule 6mm has grown to 1.2cm.
5/22/09 CT Scan (awaiting results)
7/4/09 PET Scan (3 nodules in left lung are now 1.4c.m in sizes.
8/13/09 Did Bronhcoscopy
8/18/09 NOT Cancer, no cancer found.
Next PET Scan Oct 2009.

READ MY STORY @ http://www.lungevity.org/l_community/vi ... hp?t=13224

Lost my Father age 56(1970), Mother age 66 (1987), and Sister age 43 (1988) all to Lung Cancer
AVATAR is in Iowa @ the Presidential Cancer Forum

Hi Jodi. I just talked to Sandy last Sunday. Her CT the Doctors were making her worry about was no change.
We bothe had talked about how long it has been since we were to the Lung cancer support group in St Paul.
I miss Connie so much.

Take care of that Asthma!

Donna G

Woops! I thought Jodi posted recently! THis was from years ago!

_________________
NSCLC, 4 cm Pancoast tumor, diag. 12/3/97 Cisplatin and VP 16, Radiation, R upper lobectomy, more Cisplatin and VP 16. Celebrating 16 yrs of survival ! Click here and read MY STORY

http://lungevity.org/l_community/viewtopic.php?f47&t=9092