Wow. You really are going through a double whammy right now. Having to deal with this diagnosis is hard enough, but from what I have been told shingles are terribly painful. I am so sorry you have to deal with both at once. Please keep us posted about the surgery, The fact that you are eligible for it is a good thing!
Diagnosed at 47 years old - never smoked
3 amazing children, now 27, 25, and 24
Married 30 years
12/22/06 Diagnosed NSCLC Stage IV - Adnocarcinoma
Tumor in Rt Lung, 3 on Spine, one on the Pons of the brain
Radiation to the spine
Fractionated Linac Stereotactic Radiotherapy to the Pons of the brain
2/15/07 Start Tarceva 150 mg
4 1/2 years of "no progression of disease"
4/11/11 New mets on brain, Gamma Knife Radiation
Probable Leptomeningeal Disease.
Start "pulsing Tarceva" 1500mg 1xweek
7/11 - Brain mets swelling as an after effect of Gamma Knife, put on anti seizure meds, steroids.
New mets on spine and lung - watching.
9/11 - No new growth in Brain - more growth on spine and ribs. Back to Tarceva 100mg daily, adding Avastin every 3 weeks.
12/11 - Scans show no new growth, some mets stable, others have shrunk!
12/22/11 - 5 year survivor!!!!!
7/20/12 - scans show new growth in lungs and spine. Staying on Tarceva and Avastin and adding Alimta and Carboplatin.
10/12 Taken off Alimta and Carboplatin due to extreme side effects, continuing on Tarceva and Avastin - scans stable
Winter/13. Scans show growth again. Bones, lungs, lymph nodes, spleen. Time to look into clinical trials
4/13. Started clinical trial at Yale AP26113 by ARIAD, a "second generation Tarceva", side effects so far, diarrhea and nausea.
My story - http://lungevity.org/l_community/viewtopic.php?f=47&t=46162