Hello Everyone!

My surgeon has moved up the date for a bronchoscopy. I'm going into surgery in a few weeks, but she wants to go in and look at the tumour, see it's location more precisely, see how much of my lung she can save!

Was supposed to be Feb.11, but she just called me saying it's TOMORROW! so excited!

I'll let you know what she sees tomorrow!

Sincerely Melanie

_________________
*23 years old
*Dec. 23, 2009 - Biopsy results show
Neuro-endocrine carcinoid tumour (RML). Does not respond to chemo/radiation.
*Jan. 2, 2010 - first CT
*Jan. 11, 2010 - met surgeon, RML collapsed, found questionable lymphnode RUL.
*Jan. 22, 2010 - 2nd bronchoscopy shows only middle lobe needs to come out with all lymphnodes.
*Feb. 4, 2010 - Pre-op assessment and tests
*Feb. 8, 2010 - Thoracic surgery to remove right middle lobe and all lymphnodes in lung.
*Feb. 12, 2010 - Home and recovering!
*Feb. 19, 2010 - drain tube stitches come out
*Feb. 26, 2010 - xray and follow up appointment with surgeon:

10 lymphnodes out: 0 with cancer!
Margins: cancer free!
Follow up and scan every 6 months!

Good luck, Melanie! Let us know how it goes.

_________________
Bud

Long distance cyclist and lung cancer survivor
56 years old at time of diagnosis in 2007, now live in Crowley, Tx
Nov 2007 - Tentatively diagnosed as NSCLC stage I from CT scan
Dec 2007 - Upper left lobectomy, biopsy showed one cancerous lymph node, changing the diagnosis to stage II (squamous cell)
Feb to Apr 2008 - Three rounds of cisplatin and gemcitabine
Apr 2008 - chest x-ray, NED
May 2008 - brain mri, clear
Jul 2008 - CT scan, NED
Dec 2008 - CT scan, NED
June 2009 - CT scan, NED
Jan 2010 - CT scan, NED
July 2010 - CT scan, NED
June 2011 - CT scan, NED
May 2012 - CT scan, NED
December 2012 - CT scan, NED. I am now a 5 year survivor!

June 2009 - Wife Rose diagnosed with breast cancer
Stage III IDC
Sept 2009 - Finished 4 rounds of chemo (AC)
Nov 2009 - Surgery
March 2010 - Finished 12 weeks of weekly Taxol
August 2010 - CT scan, NED
August 2011 - Checkup, NED
August 2012 - Checkup, NED
The rest of my story is at:

http://www.lungevity.org/l_community/vi ... hp?t=38841

My blog - uneasy-rider.com

Hope all goes well tomorrow!!

Hugs - Pattti B.

_________________
My personal war against cancer:
Stage IV at diagnosis 9/29/06- told 12 months tops.......yeah, right!!!
5 rounds of radiation R hip
15 Whole brain radiation txs 7/20 - 8/7/09
8 weeks on oral Tarceva
To date, 80 IV chemo sessions and still counting
Chemos have consisted of:
Carbo/Taxol/Avastin
Avastin alone
Alimta
weekly Navalbine
weekly Gemzar, now on Gemzar every other week due to blood counts
All my veins have become inaccessible - port installed 12/30/09
Put on Alimta/Avastin as a combo
Currently on Taxotere, on 3 weeks off one

Whew Melanie - I can finally uncross my legs and walk properly now ! I am so-o-o excited for you - the pace is picking up - that is great!!!

Can't wait to hear the update Melanie.

Luv,

Linda

_________________
46 years old at diagnosis
Lucky mom of a 16 year old boy and 15 year old girl

Mar-May 2006-3 CXR's performed; eagle eyed radiologist caught something not quite right-F/U done
May 24, 2006-CT scan-suspicious for lung cancer
June 1, 2006-Went to Vancouver for private PET scan-SUV 1.4; ? bronchioalveolar carcinoma or carcinoid
June 5, 2006-Met with surgeon-thinks 1A-surgery soon
June 20, 2006-Left lower lobectomy via VATS
July 5, 2006-Pathology back-stage 1A, pure non-mucinous bronchioalveolar carcinoma, 1.8 cm, well differentiated
Oct 13, 2006-CXR, good
Jan 16, 2007-CXR, good
April 17, 2007-CXR, good
May 4, 2007-CT scan-good
Sept 18, 2007-CXR, good
Dec 18, 2007-CXR, good
March 18, 2008-CXR, good
May 30, 2008-CT scan-good
Oct 21, 2008-CXR, good-graduated to 6 month visits!
June 5th, 2009-CT scan-good!!!
December 3rd, 2009-CXR-good
May 27, 2010-CT scan-good-moved to once/year CT scan & visit!

4 1/2 years from surgery-so happy to be here!!!

Everything crossed for you! Prayers on the way!

Dana

_________________
Mar. '08-Routine xray found Spot tip of upper left lung.
Dr orders CAT. growth confirmed.
Sent to Pulmonolgist who orders PET.
Pet results-my spot lights up like a Christmas tree.
Can't reach spot for biopsy referred to surgeon.
Surgical Biopsy scheduled for Apr. 28th '08
Apr. '08-Surgeon found SCLC, removed upper left lobe and surronding lymph nodes.
Everything biopsied no other cancer found, declaired NED by surgeon on Apr.28th '08
ONC wants me to start adjuvant therapy.
June '08-MRI brain scan and CAT NED
Chemo cisplatin/vp16 3 days every 3 weeks 4 sessions ended Aug. '08
Partial hearing loss due to Cisplatin
Sept. '08 1st CAT after treatment NED
Dec. '08-2nd CAT after treatment NED
Apr. '09-MRI (brain) and CAT NED
Aug. '09-CAT NED
Dec. '09-CAT and MRI NED
Apr. '10-CAT and MRI NED
Oct. '10-CAT and MRI NED
Jan. '11-XRay NED
Oct. '11-CAT NED

Will be thinking of you sweetie and pray all goes well. So glad they were able to move it up to tomorrow.

Maryanne

_________________
"Life is not measured by the number of breaths we take...but by the moments that takes our breath away"
[size=75]
Husband Joel, 58 dx 10/18/04 Smoker since age 15 stopped when diagnosed
Adenocarcinoma- stage 1B
Lobectomy Left upper lobe on 12/15/04
biopsy on lymph nodes - negative NED
1/13/04 Oncologist appt.to see about preventive Chemo.
Cancelled due to chronic fatigue
1/12 fentynal patch for pain
1/14 discontinued Fentynal patch bad reaction
1/15 Blood test showed high T levels
2/1 Endoconrinologist visit diagnosed over-active thyroid
2/8/05 took Radioactive Iodine to kill thyroid
2/16/05 appetite back, fatigue leaving
2/24/05 visit with Pulmonary Doc. Breathing at 96% capacity,
Next visit 3 mos.
3/9/05 Endocrinologist visit -T levels went from 25 down to 5.
3/30 started Synthoid(thyroid med)
3/31 Oncologist. appt. CT results NED...
4/14 starting adjunctive Chemo (carbo/taxol) 4 treatments
3 weeks apart.
6/15/05 Joel finished chemo, chest X-ray clear, Next CT in August
9/01/05 1st CT since Chemo.. NED
11/17/05 CT - small nodule found 4 or 5 mil. in his good lung
1/10/06 CT - nodule Stable
7/2006 CT/ Nodule stable
10/2006 CT Nodule seem to have grown from 4 to 7 mil.
10/2006 Pet- showed some uptake
10/2006- operation- wedge section right upper lobe turned out to be cancerous 2 nodules next to each other. 2 different types of cancer. 1 squamous cell carcinoma (new primary)2- adenocarcinoma-(not sure if new primary or metastasis)
May be restaged to IIIB
11/07/2006 will start 4 rounds of taxotere. 3 weeks apart. Will take Decadron before, day of and day after. Will get a shot of Leunesta the day after. Here we go again.. Joel's attitude.... great as usual
Horrible reaction to the neulasta shots. One night(New Years eve) went to ER. Spent 3 days in hosptal.
Feb 2007 finished chemo.
March 2007 had his CT .. as expected right now all is clear.
June 2007 NED!!!
Sept 07- CT- small nodule 3.5 mm
Going to do another CT in 6 weeks.
October 07- CT done, results STABLE...YEA
Jan. 2008... STABLE!!!
April 2008 little growth but still called stable
July 17 208 nodule doubled in size to 9mm. Needs Pet Scan, tests, hopefully cyberknife...
July 29 met with his surgeon... said Cyberknife is the way to go.
August 1- Cyberknife visit... Joel is a canidate, its a go...Happy B-day Joel...
Sept 22, 2008 finshed up the last of 3 cyberknife procedures
Nov. had CT scan
Nov. 9th results of CT from Cyberknife..... Tumor completely gone... right now NED!!!
Feb. 09- Pet/CT results. . . NEd!!!
May 09 Pet/CT results. . . NED!!!
Sept. 09 Pet/CT results.....NED!!
Jan. 2010--- NED!! Pet now will be every 6 months.
June 8,2010 Pet scan on our Anniversary... hope thats a good sign..
June 17, NED!!!
Dec. 30,2010... NED!!!
June 20,2011... NED!!!
March 2012....NED!!!

pic of Joel and our daughter Nicole at walk NOV. 07

[img]http://www.freewebs.com/beansprouts2005/nik_and_dad_1LC_walk.jpg[/img]

http://www.babababies.com

Thanks everyone!

Haha, Linda, You're a hoot!! I'm glad you can walk now too!! hahaha

Love, Melanie

_________________
*23 years old
*Dec. 23, 2009 - Biopsy results show
Neuro-endocrine carcinoid tumour (RML). Does not respond to chemo/radiation.
*Jan. 2, 2010 - first CT
*Jan. 11, 2010 - met surgeon, RML collapsed, found questionable lymphnode RUL.
*Jan. 22, 2010 - 2nd bronchoscopy shows only middle lobe needs to come out with all lymphnodes.
*Feb. 4, 2010 - Pre-op assessment and tests
*Feb. 8, 2010 - Thoracic surgery to remove right middle lobe and all lymphnodes in lung.
*Feb. 12, 2010 - Home and recovering!
*Feb. 19, 2010 - drain tube stitches come out
*Feb. 26, 2010 - xray and follow up appointment with surgeon:

10 lymphnodes out: 0 with cancer!
Margins: cancer free!
Follow up and scan every 6 months!

Good luck Melanie

_________________
My mom is 45 and a lung cancer patient Stage IIIA
Dx 11-17-04, 45 yrs. old.
Chest X-Ray
CT Scan
Pet Scan
Lung Biopsy (Superior Sulcus Tumor of Right upper lobe squamous cell)
Lymph node of neck biopsied (Negative)
Chemo and Radiation started 12-20-04
First week of Chemo finished 12-28-04 has three weeks off!
Started chemo on Jan 17th will hopefully finish on Monday the 24th and finishes radiation on Tues the 25th. Praying that this works!
Surgery March 1st. Successful Tumor was all dead Doc. says NED but has had no scans.
Chemo Etoposide/Cisplatin started again Beg. of April
Doc changed last round of Chemo to Carbo/Etoposide due to hearing problems and last round was postponed because of low blood counts
May 9th, 10th, and 11th last of the chemo!
Scans scheduled for Aug. 15th Praying for NED!
Scans show NED is with us! Appt. with radiation doc 10/23 and oncologist 12/19
12/27 Mom had appt. Doc ordered bone scan is to return in 4 months
12/02/2006 Mom had appt with Oncologis in November everything is going good. Scans to be scheduled not sure when I think in three months. Mom is doing great and unfortunately still smoking =( Dr said to stay away from sick people
3/13/2007 Mom is 22 months from last treatment and doing fantastic
9/25/2008 Mom turned 49!
10/27/2008 Mom still dong well. Ned is still our very best friend and we will keep him =)

Best of luck Melanie! We'll be praying for you.

Paulette

_________________
04/02/09 family doctor found spot on upper left lung on chest x-ray.
04/03/09 CT scan with contrast - shows 5cm tumor in left upper lobe.
04/08/09 Met with thoracic surgeon.
04/14/09 PET scan - cancer only in tumor. Echo stress test. Cartiod ultrasound
05/01/09 Vats surgery - Upper left lobe and wedge of bottom lobe. Clean margins and no spread to lymph nodes. Staged 1b because of size of tumor. In hospital 7 days due to fluid in remainder of left lung.
06/09/09 Met with oncologist - because of size of tumor adjuvant chemo recommended. Cisplatin/Navelbine, 4 rounds. Some problems 1st round but minor ones after that. Finished chemo August 24.
09/02/09 CT scan of chest with contrast - NED
03/02/10 CT scan of chest and abdoman with contrast - NED
08/25/10 CT scan of chest and brain with contrast - NED
03/01/11 CT scan of chest and abdoman with contrast - NED
09/19/11 CT scan of chest with contrast - NED
02/24/12 CT scan of chest and brain with contrast - NED
08/21/12 CT scan of chest with contrast - NED
02/22/13 CT scan of chest with contrast - NED
_______________________________________
10/13/86 Daddy died of lung cancer after a 8 month fight. Diagnosed 2/86.

Thinking of you today Melanie. So glad they got this moved up.

_________________
Lisa
Lost Mom(41) to LC 7/13/95
Lost Grandgather to LC 6/29/96
Lost Gram (75) to LC 3/13/05[/size]
MIL now fighting this BEAST.
Lost my beautiful Mom in law 12/19/09

My thoughts and prayers will be with you. Looking forward to hearing good news!

_________________
Jan 09 husband diagnosed with stage 3 adenocarcinoma.
Oct 09 passed peacefully at home after enduring a very difficult battle. I miss him dearly.

Definitely in our thoughts and prayers, good luck girl!

_________________
Janette

Jan '08, spouse sick all thru holidays finally went to the doctor Jan 5, diagnosed with lung cancer Jan 23/08
. Up to that point he was a smoker.

Stage IIIB, initially told curable but after more testing mid-Feb advised no longer curable but treatable. 5cm x 7cm tumor, according to docs in a very bad spot on right lung.

12 straight days of radiation, CT Scan after radiation shows tumor reduced 50% - one week of -, chemo started March 17, lucky St. Patty's Day.

June16, CT scan shows a little reduction - doc says he can have extra 2 rounds of cisplatin/navelbine. Did 5th round, opted not to do 6th.

July 28, confirmed tumor back with a vengence, 10 days of radiation.

Aug 17, 2008; thru 7 days radiation, but he had to go, it just didn't work.

I hate waiting! Sending prayers!

Dana

_________________
Mar. '08-Routine xray found Spot tip of upper left lung.
Dr orders CAT. growth confirmed.
Sent to Pulmonolgist who orders PET.
Pet results-my spot lights up like a Christmas tree.
Can't reach spot for biopsy referred to surgeon.
Surgical Biopsy scheduled for Apr. 28th '08
Apr. '08-Surgeon found SCLC, removed upper left lobe and surronding lymph nodes.
Everything biopsied no other cancer found, declaired NED by surgeon on Apr.28th '08
ONC wants me to start adjuvant therapy.
June '08-MRI brain scan and CAT NED
Chemo cisplatin/vp16 3 days every 3 weeks 4 sessions ended Aug. '08
Partial hearing loss due to Cisplatin
Sept. '08 1st CAT after treatment NED
Dec. '08-2nd CAT after treatment NED
Apr. '09-MRI (brain) and CAT NED
Aug. '09-CAT NED
Dec. '09-CAT and MRI NED
Apr. '10-CAT and MRI NED
Oct. '10-CAT and MRI NED
Jan. '11-XRay NED
Oct. '11-CAT NED