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 Post subject: eric the red-my story
PostPosted: Sun Feb 21, 2010 1:18 pm 
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Joined: Sat Feb 20, 2010 5:53 am
Posts: 1316
Location: Airdrie north Lanarkshire
Big Hello to my American Cousins,
Relax my name is not a statement of my political persuasion but a nickname one of my work colleagues gave
me years ago.My name is Eric Byrne I am Scottish, 60 years young,
married to Sally with a grown up daughter Jennifer,who is an actress(check out her web site in google,shes the one from Glasgow)
In October 2008 I developed a slight cough I also would find traces
of blood in my handkerchief after blowing my nose,I ignored this,but my
daughter, unknown to me made an appointment for me to attend my doctor,she found my chest a s clear as a bell,but just to please my daughter,she arranged
for me to have a chest x-ray.Following my x-ray,I was requested to
attend my doctors surgery,for feedback on my results,standard
procedure thought I,nothing to concern me.Entering the doctors surgery
he told me that my upper right lung had deflated,collapsed,totally
puzzled I enquired,what could cause this?Do you smoke? he asked.
No need for further conversation,I had been struck with a
thunderbolt,a thousand questions flooded into my brain,Lung Cancer ?
a death sentence ,why me? I didnt even smoke until my late twenties,
not even cigarettes,just small cigars of the mild variety.I looked at the
doctor,he was so relaxed, so at ease with himself,so lacking in empathy,
you would have thought he was talking to a turnip.He suggested further
tests,this may take some time,desparation creeping in on me,would going
private, speed things up I asked,yes he said but it could be expensive.
I drove home in a dream,broke the bad news to my wife and
daughter,I still had some hope that the tests may come up with some
less serious reason for my collapsed lung.Alas no,following my tests
my results confirmed I had a cancerous tumour in my upper right lung.
My treatment consisted of four cycles of neo-adjuvant chemotherapy ,a
cocktail they dont serve in any bar, called sysplatin and vinorobean,this
was fed into me intraveneously over a twelve hour period.Thanks to
the conversations I shared with other patients,this time passed quicky,
in fact I started to look forward to my chemo sessions.It always amazed
me,how many patients whose situation was worse than mine,are able
to look at the world and smile,when I compared myself to them,I always
came up short.
My wife worked full time,and would leave me some household chores to do,it was not enough to fill my day,I did go for walks,but I
was missing human company,Ineed to get back to work,so I went to
my doctor tell him my intentions,he asked me if my work is being covered,yes I replied,well let them get on with it and spend some
quality time with your wife,since you only have two years left(better get on with this letter)he added he had one prior patient who survived five years with lung cancer,what a character,but you are not him .When I recounted this to my oncologist,he was visibly shocked and said why would your doctor say this ,there are sometimes I despair for my
medical colleagues.
I sailed through the chemo without any side effects,not even
nausea.Feedback from my oncologist,that in all his years dealing with
lung cancer he had never seen such shrinkage in a tumour,and that
after only two cycles,he confirmed my suitability for sugery.
Dr Lumsden then went on to tell me that another hot spot
was identified by my pet scan,it was in my bowel,probably innocuous
he said,dont worry about it we will deal with this after your operation
in January 2009.However unknown to him,I was requested to attend
hospital on 23rd December for a colonoscapy,following the procedure
the doctor leaned over me and announced I cancer of the bowel.Panic,
that cannot be true my oncologist said lung cancer dosnt spread to the bowel,unless its another primary,well thats true but you do have another
primary its rare but it does happen,I will not operate on you until I am
convinced your lung operation was successful,I dont want to waste my
time.I left the hospital in a cloud,myself and family spent the worst Christmas you ever you could imagine.Early in January I received news
from the hospital that my bowel biopsy showed no cancer cells.Boy did
that cheer me up and in good time for my operation.
The operation was deemed successful,the surgeon did not
remove all my lung,just less than half, also one nearest lymph node.
My lung nurse came to my home a explained to me how the operation went ,to my wifes horror I asked her about buying a new
pair of black shoes,was it worth it in view of the time I have left.Eric
she said,I expect to come back in ten years to visit you.
The hospital requested my appearance with the bowel
surgeon,who described his intention to open me up on my left side
cut my bowel either side of the polyp remove it and rejoin my bowel,
if the cancer has sread he may have to exercise more of the bowel.
I woke after the operation,to feel my left side,nothing! no dressings?
surgeon arrives to tell me he was able to exercise my polyp from my
back passage,and how lucky I was,it was the size of a golf ball and if
left for anthor year I would have probably killed me.Thanks to my
lung cancer and having that pet scan-who knows?.Subsequent
tests of my polyp confirmed it was the most benign of the benign.
I returned to my work in March 2009,as a Senior Lecturer
in Design and Construction in a College of Further Education.On
arriving in my classroom my third year students were present and
asked me if have returned,I said Iam back for good,they burst into
a round of applause,which I can still hear to-day.
I am now back at work almost a year,I am blessed with good
health,and hoping to prove to my doubting doctor I am staying put
not for two years or five years,I think Ill stay for twenty, god willing.
Thank you if youve read this far,
Kind Regards,
Eric Byrne.

_________________
Regards,
Eric Byrne

To read my story, please follow the link : http://lungevity.org/l_community/viewtopic.php?t=43268


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 Post subject:
PostPosted: Sun Feb 21, 2010 2:54 pm 
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Joined: Tue Oct 07, 2003 11:05 am
Posts: 5392
Location: Montgomery Twnshp PA
Eric, your story alone is enough for you to be here. Success like yours is so important to the people here.

A hearty congratulations.

_________________
Ginny
Please use gdecoursey@aol.com for email.

Earl born 1/28/42 - dx 9/21/02 - died 8/18/04. He was the sunshine of my life.


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 Post subject:
PostPosted: Sun Feb 21, 2010 3:20 pm 
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Joined: Sun Sep 10, 2006 6:26 am
Posts: 2542
Location: Hawaii
Quote:
It always amazed me how many patients whose situation was worse than mine are able to look at the world and smile...when I compared myself to them, I always came up short.

Many of us have had the same feeling.

Welcome to LCSC, Eric, and congratulations on your success! Now, could you do us one more favor? Watch the board for new members and give them a note of encouragement as they begin their own cancer journey. You can create a link to your story in a "profile" that will automatically attach to every message you post, something I and others have done. Your link would be:

http://lungevity.org/l_community/viewto ... highlight=

Best wishes and Aloha,

Ned

_________________
Ned is just my nickname, though it would be nice to merge it with the other meaning eventually...

Aloha means "Hello, goodbye, love, compassion, welcome, good wishes." It means belonging to others with a common humanity. It's defined better as a feeling in the heart than by words.

Dx NSCLC adenocarcinoma IIIb Sep 2006, now stage IV. Taxol+Carboplatin+Avastin 4 mo., Avastin 8 mo., Tarceva 16 mo., Alimta 12 mo. (sometimes combined with Cisplatin or Carboplatin), Navelbine since Feb 2010, 10 sessions of WBR in March 2011. See My Cancer Journey: viewtopic.php?p=351369#p351369 — UPDATED 03/05/2011.

Above left: Our golden retriever Rosie, who joined the family on 3/5/08 at the playful age of 2.

Below: Hannah, our golden companion 1994-2007.

Image


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 Post subject:
PostPosted: Sun Feb 21, 2010 5:43 pm 
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Joined: Fri Sep 19, 2008 6:08 pm
Posts: 1422
Location: Crowley, Texas
Welcome, Eric! What a great story! Here's wishing your continued good health.

_________________
Bud

Long distance cyclist and lung cancer survivor
56 years old at time of diagnosis in 2007, now live in Crowley, Tx
Nov 2007 - Tentatively diagnosed as NSCLC stage I from CT scan
Dec 2007 - Upper left lobectomy, biopsy showed one cancerous lymph node, changing the diagnosis to stage II (squamous cell)
Feb to Apr 2008 - Three rounds of cisplatin and gemcitabine
Apr 2008 - chest x-ray, NED
May 2008 - brain mri, clear
Jul 2008 - CT scan, NED
Dec 2008 - CT scan, NED
June 2009 - CT scan, NED
Jan 2010 - CT scan, NED
July 2010 - CT scan, NED
June 2011 - CT scan, NED
May 2012 - CT scan, NED
December 2012 - CT scan, NED. I am now a 5 year survivor!

June 2009 - Wife Rose diagnosed with breast cancer
Stage III IDC
Sept 2009 - Finished 4 rounds of chemo (AC)
Nov 2009 - Surgery
March 2010 - Finished 12 weeks of weekly Taxol
August 2010 - CT scan, NED
August 2011 - Checkup, NED
August 2012 - Checkup, NED
The rest of my story is at:

http://www.lungevity.org/l_community/vi ... hp?t=38841

My blog - uneasy-rider.com


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 Post subject:
PostPosted: Sun Feb 21, 2010 7:48 pm 
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Joined: Thu Jan 27, 2005 7:10 am
Posts: 8424
Location: Greensboro North Carolina
Kudos on success and congrats on ordeal! Glad your here to share this with us!!

_________________
April/03 My Wife Deborah, age 46, diagnosed adenocarcinoma NSCLC
1/20/2006 Admitted to hospital Respiratory distress
1/23/2006 Ran to the light and is waiting for us to be rejoined in the Kingdom Of Heaven Her journey is Over but mine lingers on for Now!!!
4/23/07 DEb is joined in Peace by her Puppy Dawg Daisy from Cancer
8/30/07 Got new Pup named Mocha!!

"No matter hnow much it hurts, No matter how alone you feel, Your friends will help you get through anything!!"
Scrubs!!!!Yes the comedy show!!!

The Reason I advocate
If you would like to see our family photos Click on this link!
http://deborah-wallin.memory-of.com/

My memory-of Link is good to go now if you want to see it!!


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 Post subject:
PostPosted: Sun Feb 21, 2010 9:02 pm 
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Joined: Fri Dec 28, 2007 6:32 pm
Posts: 4769
Location: Key West, FL
All guys posting before me. Interesting lol. Eric I did read every word all the way to the end. All our stories are similar and unique at the same time. Unfortunately, the crass physician who suggested you had little time is not that unusual. Fortunately for you and most of us, there is a compasionate one to balance it out. Congratulations on the success of your journey. I love Ned's suggestion to share it with new people who come on board. Most of the time, dx'd with cancer or caretakers of loved ones with cancer, they come looking for hope. That's what keeps oldtimer survivors posting on the site, to offer hope.

Judy

_________________
Cytology report on fluid removed from lung after pleural effusion and pneumonia Sep 07 showed adenocarcinoma cells. Dx IIIb NSCLC Oct '07 at MDACC, Orlando. Fol 6 rounds Taxol/Carboplatin/Avastin and 2 Avastin, CT/PET 4/1/08 pleural thickening gone and no active cancer cells. 11/3/08 STILL NEVD. CT/PET/MRI 5/4/09 Cancer back, still in the pleura and chest wall, small amt of fluid, all in left lung.
5/11/09 Start on Alimta every three weeks.
7/13/10 Had Alimta on road in Corning NY.
8/24/09 Scans show some improvement. Continue on Alimta.
9/14/09 Chemo on road in Mt Holly NJ.
10/6/09 Started regular Alimta infusions in Key West.
11/3/09 CT and PET scans showed significant improvement. Some issues already resolved.
2/3/2010 No evidence of residual or recurrent disease. NED! Stay on Alimta.
5/6/10 Am considering myself still NED until/unless proven otherwise in July. Rabid radiologist thinks he sees something suggestive of similar to some abdominal cancer. No light up on the PET. Am hoping for the best. Stay on Alimta and scan in 9 wks instead of 3 mos.
7/8/10 Chest CT unchanged (NED Feb '10). Infiltration in the region of the omentum is probably slightly more prominent than before. Diverticulosis requiring antibiotics.
Jul, Aug, Sep, continued Alimta in Corning NY, Portsmouth OH and Mt Holly NJ.
10/14/10 Chest CT unchanged from Feb '10. Findings likely representing progressive nodular peritonal carcinomatosis in the midabdomen. Treatment changed to Tarceva started in Nov.
12/15/10 Chest CT unchanged. Abdomen changes compatible with peritoneal carcinomatosis again identified with mild progression noted.
3/16/11 CT chest unchanged. CT abdomen progression ascites (fluid). Progression of soft tissues nodularity on the peritoneal surface anteriorly with diffuse omental involvement.
4/13-15/11 Hospitalized at MDA. Removed 4 1/2 litres (8-9 lbs) of fluid from abdomen 4/14. Started on taxotere before release on 4/15.
5/16/11 Hospitalized for fever, neutropenic. Treated with intravenous antibiotic and antiviral. Given blood transfusion. Note that KW Cancer Center did not give me my Neulasta shot after my chemo on May 6. Onc had me cancel my 5/26 chemo until after my scan on Jun 6. Was discharged on oxygen. Test w/Dr Gerth 5/26 indicated I could go off sitting and sleeping O. Will do walking test 6/2.
6/2 Did not get requisite numbers on walking test. Left for Orlando 6/5 still on oxygen.
6/6/11 MRI normal; CT stable. Taxotere and Neulasta at MDA 6/7 and 6/8.
6/13/11 Appointment with Dr Olham in KW. Off oxygen week of 6/16.
8/8/11 CT scan showed stable with perhaps some lessening of fluid. Stay on Taxotere.
10/10/11 CT chest still clear, CT abdominal lining stable. Stay on taxotere.
12/19/11 CT chest clear, CT abdominal lining stable, MRI clear. Stay on taxotere.


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 Post subject: eric byrne61
PostPosted: Mon Feb 22, 2010 1:55 am 
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Joined: Wed Jun 01, 2005 5:30 pm
Posts: 3015
Location: CA
Fantastic story Eric. I had a doctor that told me that there was not much that could be done for me. I fired her! My oncologist, radiologist and surgeon were wonderful. July 1st will be the five year annivrsary of my surgery and by the Grace of God I have had clean scans since. I taught high school history, it was wonderful to get back to my students. I have since retired as I had always planned, after 35 years of teaching. You just keep on keeping on!!!

Carol

_________________
Carol
64 Year old former smoker
1/4/05 at age 56 DX NSCLC, upper right lobe.
Staged IIA by PET Scan.
Restaged to IIIA by surgeon prior to surgery, after he examined PET and CT Scan results.
4/7/05 Completed 6 weeks of radiation and chemotherapy (taxol/carboplatin).
4/29/05 CT Scan.
5/21/05 PET Scan.
5/31/05 Met with surgeon, PET Scan showed nodule in left lung lit up that never lit up before.
6/9/05 Biopsy=OK nodule is scar tissue.
7/1/05 BRONCHOSCOPY,
MEDIASTINOSCOPY, THORACOTOMY SURGERY=ALL MARGINS CLEAN, 20 LYMPH NODES REMOVED. PLUS ONE RIB BONE. ALL NEGATIVE FOR CANCER.
8/9/05 & 9/1/05 ADJUVANT CHEMO. 10/4/05 1ST CT SCAN="Defined patchy density at the superior segment of the right lower lobe. Findings are most likely related to recent surgery and/or posttreatment change, however, this should be followed on subsequent studies".
1/3/06 Brain CT=Clear;Chest CT=Scar Tissue.
1/4/06 ONE YEAR SINCE DIAGNOSIS
4/1/06 Brain & Chest CT=NED. 6/13/06 XRAY=NERD.
7/1/06 ONE YEAR SINCE SURGERY.
10/25/06 CT=NED.
1/4/07 TWO YEARS SINCE DIAGNOSIS
5/3/07 CT=NED.
7/1/07 TWO YEARS SINCE SURGERY.
11/6/07 CT=NED
PLEASE continue to keep me in your prayers.WHEN PRAISES GO UP, BLESSINGS COME DOWN.[/size]
1/4/08 THREE YEARS SINCE DIAGNOSIS
3/20/08 CT=NED
6/20/08 X-RAY=NED
7/1/08 THREE YEARS SINCE SURGERY.
10/27/08 CT=NED
1/4/09 FOUR YEARS SINCE DIAGNOSIS
3/26/09 X-RAY=NED
7/1/09 FOUR YEARS SINCE SURGERY.
9/17/09 CHEST X-RAY CEA BLOOD TEST=NED
1/4/10 FIVE YEARS SINCE DIAGNOSIS
3/29/10 X-RAY=NED
10/5/10 CT=NED
4/1/11 X-RAY=NED
7/1/11 SIX YEARS SINCE SURGERY
10/10/11 X-RAY=NED
4/15/12 CT/PET=NED
4/18/13 CT=NEW 3MM NODULE FOUND ON UPPER LEFT LOBE


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 Post subject:
PostPosted: Mon Feb 22, 2010 10:34 am 
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OVER 500 POSTS !
OVER 500 POSTS !
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Posts: 825
Location: Connecticut
Eric - Thank you so much for sharing your story - it was filled with such truths about how this journey has gone for many of us - the "did you smoke" question that hit like a knife, the doctor who talks to us with such a lack of empathy he might as well be talking to "a turnip" (I loved that line!) and the worst - the doctor giving us an expiration date.
AND, it has a great ending - good health!
I agree with Ned, your story will be such a great help and hope for other newcomers to this board - it gave me a much needed smile this morning and a renewed sense that we CAN beat this!
Wishing you peace and many many more years of good health -
Janet

_________________
Diagnosed at 47 years old - never smoked
3 amazing children, now 27, 25, and 24
Married 30 years

12/22/06 Diagnosed NSCLC Stage IV - Adnocarcinoma
Tumor in Rt Lung, 3 on Spine, one on the Pons of the brain
Radiation to the spine
Fractionated Linac Stereotactic Radiotherapy to the Pons of the brain

2/15/07 Start Tarceva 150 mg
4 1/2 years of "no progression of disease"

4/11/11 New mets on brain, Gamma Knife Radiation
Probable Leptomeningeal Disease.
Start "pulsing Tarceva" 1500mg 1xweek

7/11 - Brain mets swelling as an after effect of Gamma Knife, put on anti seizure meds, steroids.
New mets on spine and lung - watching.

9/11 - No new growth in Brain - more growth on spine and ribs. Back to Tarceva 100mg daily, adding Avastin every 3 weeks.

12/11 - Scans show no new growth, some mets stable, others have shrunk!

12/22/11 - 5 year survivor!!!!!

7/20/12 - scans show new growth in lungs and spine. Staying on Tarceva and Avastin and adding Alimta and Carboplatin.

10/12 Taken off Alimta and Carboplatin due to extreme side effects, continuing on Tarceva and Avastin - scans stable

Winter/13. Scans show growth again. Bones, lungs, lymph nodes, spleen. Time to look into clinical trials

4/13. Started clinical trial at Yale AP26113 by ARIAD, a "second generation Tarceva", side effects so far, diarrhea and nausea.

My story - http://lungevity.org/l_community/viewtopic.php?f=47&t=46162


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 Post subject:
PostPosted: Mon Feb 22, 2010 12:44 pm 
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Joined: Sat Jan 17, 2009 1:00 pm
Posts: 1070
Location: Seattle
And they say architects and engineers are introverts! Perhaps you come from the Project Management side of the equation?

Your daughter - a lovely lass! And watching out for her old Dad too.

Best of health to you.

_________________
(photo: me in '61)
Female never smoked, 52 at diagnosis, otherwise healthy
09/08: false cardiac event = finding of 3 cm tumor upper right lobe plus two .5 cm nodes elsewhere on chest x-ray at ER
09/08: CTScan with IV contrast confirms.
10/08: Pulmonary referral for EBUS - bronchoscopy - confirms NSCLC - adenocarcinoma, with bronchoalveolar features
10/08: PetScan - further confirmation, classified T1N0MX (false negative) VATS scheduled.
11/08: full open surgery - revised to T4N2MX with positive spread to 2 lymph nodes, removed upper lobe with 3 cm tumor and partial mid lobe with (1) .5 cm tumor, 3 lymph nodes on trachea - 1 lymph node and margins negative.
5 night hospital stay.
12/08: Port-a-cath implanted
12/08: Brain MRI and hearing test - good other than minor high end loss in left ear
12/08: start (4) 21 day cycles of chemo - day 1 cisplatin and gemcitabine, day 8 gemcitabine alone, day 15 off - tolerated it pretty well - a little hair thinning and follicle inflammation, some ringing in ears and vertigo, much fatigue, and nausea. Kept my taste-buds almost intact.
02/27/09: completed 4 cycles of chemo!
03/03/09: removed port-a-cath
03/27/09: tattooed for radiation
03/30/09: start radiation (IMRT) 5x/wk for 6 weeks - fatigue, moderate esophagitis
5/08/09: completed treatment
6/22/09: NED
9/18/09: Recurrance in the liver and scattered in lungs. No symptoms. Rx Tarceva.
9/25/09: start Tarceva
11/20/09: clear lungs, shrinkage in liver.
2/24/10: still good on Tarceva
6/3/10: graduated to 6 month scan
12/9/10: new 6 cm tumor in liver
12/28/10: stop Tarceva
1/10/11: carbo/alimta/avastin
3/11/11: scan after 3 cycles 72%ish met reduction, stay the course
5/26/11: scan after 6 cycles, stable.
5/31/11: begin Avastin maintenance.
8/17/11: met growth, stop Avastin. Start Alimta.
10/25/11: met growth, stop Alimta. Wondering what to do next?
1/24/11: start hospice


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 Post subject:
PostPosted: Sat Apr 03, 2010 9:43 pm 
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Joined: Fri Apr 02, 2010 10:49 am
Posts: 2004
Location: W. Michigan
I'm new here and not sure how to go about this forum, but most eager to learn. I loved your story. Thank you for sharing your story of hope. I am being quiet here until I figure things out but am finding hope in your amazing story.


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PostPosted: Fri Nov 05, 2010 2:56 pm 
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Posts: 20
Wow Eric, I had not read your story until just now, saw it after reading Tony's post. You are certainly an inspiration, as is everyone here, but for your doctor to have actually said that to you and yet you are prevailing is an inspiration to us all. So glad to be on this forum and see all of you, I am also on cancergrace and I can't think of any better places to get support right now.

_________________
DX NSCLC Adenocaricoma 10/14/2010.
Started Altima/Carbo 11/8/2010 every 21 days.


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PostPosted: Mon Jan 31, 2011 4:06 am 
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Posts: 2
It is nice to see your success story of the life. Hope all the people who have lost there confidence and hope must read this and try to fight as much as they can. I am so happy after studying your success stories. Thank you for sharing it.

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Medical Alert


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