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PostPosted: Wed Jun 29, 2011 8:02 am 
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Director of Support & Advocacy, LUNGevity
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Posts: 14986
Location: Texas
http://blog.lungevity.org/2011/06/28/di ... cer-at-24/

Diagnosed With Lung Cancer at 24
June 28th, 2011 - by Heather Geraghty

On December 28, 2010 I was told that I had lung cancer.

It didn’t seem possible. I was only 24 years old! According to the surgeon, the tumor had been growing for years.

On January 20, 2011 I had two-thirds of my right lung removed. I had 23 of the longest days of my life knowingly living with cancer, and when it vanished from my body the shock of knowing still remained.

After surgery everyone who had surrounded themselves around me had returned to their daily routines, but I was still left wondering “how could this happen to me?” I thought to myself over and over again “What if I never found out? Would I still have lung cancer right now?” My lung cancer seemed to come and go so quickly from my life, and when it was gone I didn’t know what to do with myself. I felt alone, I couldn’t talk to anyone because nobody could relate to me. I felt scared, not only had I gone through painful surgery but I didn’t want the cancer to come back.

My friends didn’t understand which made it difficult to talk to them about any aspect of my cancer. During this time I was surprised to see faces of people, especially those who showed their concern. I was more surprised when I didn’t see the faces of people who I thought would be the most concerned. This was the first time in my life that I felt completely helpless. Simple tasks such as sitting up in bed, walking from one room to the next, and taking a deep breathe were significantly difficult after surgery. My mom and dad were the most impacting during my recovery, and still remain my biggest supporters to this day.

At times, even now, it is still difficult for me to admit to myself as well as aloud that I am a lung cancer survivor. Many days it doesn’t seem real, and I don’t believe that it has happened to me. Lung cancer has changed my whole perspective on life, which has forced me to refuse to take anything for granted.

My first check up is in August, the first of many to come in the next 2-3 years. And I am terrified to be told that the cancer has come back. Since experiencing lung cancer, I have been horrified to find that there is little known about this cancer, however, many stereotypes exist. Recently, I met someone who told me that “anyone who gets lung cancer did something to deserve it”. At first this made me angry, but then I felt defeated because I realized many people in society feel this way about lung cancer.

I hope to change this perspective with the support of an organization called LUNGevity.

The LUNGevity Foundation raises money and awareness for lung cancer research. I have found a family within this organization that has given me hopes for my future and the future of lung cancer. Since connecting with LUNGevity I have dedicated my time to organizing the 1stannual lung cancer fundraiser for LUNGevity at Café Fontana’s in Maple Shade on September 7, 2011 from 7pm-10pm.

The objective of this event is to confront, promote, and speak freely about the many faces of lung cancer in order to begin erasing the stigmas. Proceeds will benefit LUNGevity. Tickets are $50 – food, drinks, music, 50/50 cash raffle, Chinese auction, door prizes, and more!

To purchase tickets and for more information please visit: www.heathergeraghty.blogspot.com or call (609) 330-3617


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PostPosted: Wed Jun 29, 2011 9:28 am 
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Joined: Fri Apr 02, 2010 10:49 am
Posts: 2004
Location: W. Michigan
Heather,

I read this yesterday when Katie posted it on FB. All I can say is how humbled I am to read your story, and Kathy's story. You both are so young. Our Sara here too, very young. Lung cancer is not an old person's disease anymore.

What your doing is so important. Keep up the good work. YOu inspire me.

Judy in MI

_________________
6/07 DX NSCLC, Left Upper Lobe wedge resection: Stage 2.3/4, (2B?) Adenocarcinoma, measures 2.5x1.5x1.1cm. Involving visceral pleura but not through it. 5 rounds chemo, carboplatin and Taxol. Subsequent scans NED.

1/11 3.5 mm node found. 10/11 CT node now 8 mm, and new 6 mm node. 11/11 CT Pet shows slight uptake. 1/4/12 Biopsy - Pneumothorax complication. 1/14/12 Lobectomy of upper rt. lobe. NSCLC Adenocarcinoma in situ, nonmucinous (bronchioloalveolar carcinoma) 1.4cm involves pulmonary parenchyma.
3/14/12 Begin 4 cycles of Cisplatin/Navelbein, with Neulasta shot
4/6/12 Chemo changed to Carboplatin/Navelbine without Neulasta shot. Reduced chemo by 50% due to intolerance.
7/5/12 CT scan is clean, NED for lung cancer! There are issues with liver and stomach that will be investigated but not believed to be because of cancer. Wait and see!

*Avatar was taken 7/3/12 on our way out to see the Fireworks on a friends boat on their lake!

Mom dx SCLC 1/96, passed 10/19/96, age 62
Dad dx Brain cancer 4/87, passed 6/87, age 57
Sister dx Brain cancer 4/83, passed 12/83, age 25


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PostPosted: Wed Jun 29, 2011 12:42 pm 
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Joined: Thu Jan 27, 2005 7:10 am
Posts: 8424
Location: Greensboro North Carolina
other notables include Jill Costello and also Taylor Bell!! way too young!

_________________
April/03 My Wife Deborah, age 46, diagnosed adenocarcinoma NSCLC
1/20/2006 Admitted to hospital Respiratory distress
1/23/2006 Ran to the light and is waiting for us to be rejoined in the Kingdom Of Heaven Her journey is Over but mine lingers on for Now!!!
4/23/07 DEb is joined in Peace by her Puppy Dawg Daisy from Cancer
8/30/07 Got new Pup named Mocha!!

"No matter hnow much it hurts, No matter how alone you feel, Your friends will help you get through anything!!"
Scrubs!!!!Yes the comedy show!!!

The Reason I advocate
If you would like to see our family photos Click on this link!
http://deborah-wallin.memory-of.com/

My memory-of Link is good to go now if you want to see it!!


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PostPosted: Thu Jun 30, 2011 8:34 am 
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Joined: Fri Sep 19, 2008 6:08 pm
Posts: 1422
Location: Crowley, Texas
Good luck on that August checkup, Heather! I'm betting it will be great.

_________________
Bud

Long distance cyclist and lung cancer survivor
56 years old at time of diagnosis in 2007, now live in Crowley, Tx
Nov 2007 - Tentatively diagnosed as NSCLC stage I from CT scan
Dec 2007 - Upper left lobectomy, biopsy showed one cancerous lymph node, changing the diagnosis to stage II (squamous cell)
Feb to Apr 2008 - Three rounds of cisplatin and gemcitabine
Apr 2008 - chest x-ray, NED
May 2008 - brain mri, clear
Jul 2008 - CT scan, NED
Dec 2008 - CT scan, NED
June 2009 - CT scan, NED
Jan 2010 - CT scan, NED
July 2010 - CT scan, NED
June 2011 - CT scan, NED
May 2012 - CT scan, NED
December 2012 - CT scan, NED. I am now a 5 year survivor!

June 2009 - Wife Rose diagnosed with breast cancer
Stage III IDC
Sept 2009 - Finished 4 rounds of chemo (AC)
Nov 2009 - Surgery
March 2010 - Finished 12 weeks of weekly Taxol
August 2010 - CT scan, NED
August 2011 - Checkup, NED
August 2012 - Checkup, NED
The rest of my story is at:

http://www.lungevity.org/l_community/vi ... hp?t=38841

My blog - uneasy-rider.com


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PostPosted: Thu Aug 25, 2011 10:36 am 
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Thanks UneasyRider1 for the full story you provided in the link.

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http://1stdebtmanagement.com
http://1stpetinsurance.co.uk
http://badabingbaby.com


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PostPosted: Fri Aug 26, 2011 4:25 am 
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Joined: Tue Aug 23, 2011 4:05 am
Posts: 13
You are a very inspiring story Heather...

I wish that what you are going through will be a past dream and everything will end up fortunately with good results. I wish that it will teach yo lessons about the gift of life and enjoying every minute of it.
I have wondered a thousand times why people are so inconcerned and indifferent, especially when it has to do with persons very close to them. Although I am a ceregiver, I realise how many of my friends are living in their owh world...it makes me feel so lonely but I have to move on after all and leave behind all those immature persons. I try to do things that really make me feel good and enjoy the company of many many few.
So don't let anybody make you feel guilty...

_________________
Daughter of a 55 year old man dx with SCLC
7/10:dx LCSC limited. Tumor in right lung. Cannot be operated. Chemotherapy and radiation the only cure.
6 cicles of chemotherapy etoposide/cicplatin starting from 7/10
CT scan Chest showing constant shrinkage
8-9/10 :pleural infusion and pneumonia
Spent a long time at the hospital until he recovers and then chemotherapy again.
12/10: radiation to chest,Ct scans are encouraging
2/11 : epileptic crisis lead us to hospital again. Emergent radiotherapy to brain because CT scans showed small spots and swelling.Brain metastasis
8/11: Ct scan in brain showed shrinkage of the swelling and minimum spots. CT scan also showed small mass in adrenal. Doctor suggests pet scan and probably gamma knife.
9/11: Starting chemo with Hycamptin (Topotecan)
10/11: MRI in brain showed stable
2/12:surgery for removal of the left adrenal due to growth of the adrenal tumor. Everything went good!
4/12:started chemo with cav, due to new nodule in pancreas
5/12: scans showed minimal shrinkage. Stay on the same drugs and new scans at the end of treatments.
7/12:MRI in brain showed new small spots
8/12:radiotherapy (10 visits) in brain
9/12:ct-scans showed stable results! waiting for a brain MRI


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PostPosted: Fri Aug 26, 2011 8:05 am 
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Joined: Mon Apr 25, 2011 2:50 pm
Posts: 218
Thank you Heather for an amazing story. 24 years young and this happens. As I read this I saw the comment about lung cancer patients having done "something" to deserve this. No one deserves this. Not a smoker, not a soul. All I did in my life was work in an atmosphere that was not only unsafe but also hazardous. People in my age group who have spent careers in construction, auto shops, treatment plants and a myriad of other places were and still are at huge risk. Is it our own doing or us simply trying to bring home the bacon? When you see pictures of miners with black dust covered faces, are they asking for lung cancer? No, just a decent paycheck. Sorry about getting off point, that just strikes a nerve in me. Heather's story is perfect evidence that lung cancer does not discriminate . I wish you well Heather.


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PostPosted: Sun Oct 02, 2011 1:01 am 
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Joined: Sun May 22, 2011 3:47 pm
Posts: 4
Thank you everyone for sharing some nice comments. My August scan was VERY GOOD. Recently I have been having a lot of discomfort at my incision spot, otherwise I cannot complain too much. I think that my body is still getting use to the weather changes, and maybe I can expect to have increased discomfort during the fall months. So far, I hate it. I will certainly not be looking forward to this time of year! I will be calling the surgeon's office on Monday.

Thank you all again for the kind words.


Attachments:
File comment: My first walk, September 25th at Breathe Deep Philadelphia!!
301415_2221053137289_1576523747_2091677_1612241694_n.jpg
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PostPosted: Sun Oct 02, 2011 8:20 am 
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Joined: Fri Dec 28, 2007 6:32 pm
Posts: 4769
Location: Key West, FL
Heather, congratulations on a very good scan! Am sorry I was not able to make your funraisers in Sep. Hope it was a great success.

Judy in KW

_________________
Cytology report on fluid removed from lung after pleural effusion and pneumonia Sep 07 showed adenocarcinoma cells. Dx IIIb NSCLC Oct '07 at MDACC, Orlando. Fol 6 rounds Taxol/Carboplatin/Avastin and 2 Avastin, CT/PET 4/1/08 pleural thickening gone and no active cancer cells. 11/3/08 STILL NEVD. CT/PET/MRI 5/4/09 Cancer back, still in the pleura and chest wall, small amt of fluid, all in left lung.
5/11/09 Start on Alimta every three weeks.
7/13/10 Had Alimta on road in Corning NY.
8/24/09 Scans show some improvement. Continue on Alimta.
9/14/09 Chemo on road in Mt Holly NJ.
10/6/09 Started regular Alimta infusions in Key West.
11/3/09 CT and PET scans showed significant improvement. Some issues already resolved.
2/3/2010 No evidence of residual or recurrent disease. NED! Stay on Alimta.
5/6/10 Am considering myself still NED until/unless proven otherwise in July. Rabid radiologist thinks he sees something suggestive of similar to some abdominal cancer. No light up on the PET. Am hoping for the best. Stay on Alimta and scan in 9 wks instead of 3 mos.
7/8/10 Chest CT unchanged (NED Feb '10). Infiltration in the region of the omentum is probably slightly more prominent than before. Diverticulosis requiring antibiotics.
Jul, Aug, Sep, continued Alimta in Corning NY, Portsmouth OH and Mt Holly NJ.
10/14/10 Chest CT unchanged from Feb '10. Findings likely representing progressive nodular peritonal carcinomatosis in the midabdomen. Treatment changed to Tarceva started in Nov.
12/15/10 Chest CT unchanged. Abdomen changes compatible with peritoneal carcinomatosis again identified with mild progression noted.
3/16/11 CT chest unchanged. CT abdomen progression ascites (fluid). Progression of soft tissues nodularity on the peritoneal surface anteriorly with diffuse omental involvement.
4/13-15/11 Hospitalized at MDA. Removed 4 1/2 litres (8-9 lbs) of fluid from abdomen 4/14. Started on taxotere before release on 4/15.
5/16/11 Hospitalized for fever, neutropenic. Treated with intravenous antibiotic and antiviral. Given blood transfusion. Note that KW Cancer Center did not give me my Neulasta shot after my chemo on May 6. Onc had me cancel my 5/26 chemo until after my scan on Jun 6. Was discharged on oxygen. Test w/Dr Gerth 5/26 indicated I could go off sitting and sleeping O. Will do walking test 6/2.
6/2 Did not get requisite numbers on walking test. Left for Orlando 6/5 still on oxygen.
6/6/11 MRI normal; CT stable. Taxotere and Neulasta at MDA 6/7 and 6/8.
6/13/11 Appointment with Dr Olham in KW. Off oxygen week of 6/16.
8/8/11 CT scan showed stable with perhaps some lessening of fluid. Stay on Taxotere.
10/10/11 CT chest still clear, CT abdominal lining stable. Stay on taxotere.
12/19/11 CT chest clear, CT abdominal lining stable, MRI clear. Stay on taxotere.


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PostPosted: Sun Oct 02, 2011 11:06 am 
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Joined: Fri Apr 02, 2010 10:49 am
Posts: 2004
Location: W. Michigan
Heather, good news on the scan! As for the discomfort? It took a couple of years before I didn't even feel my incision spot. Not that it hurt bad, but it did hurt. I had to remember they had to cut through muscle and ribs to get to the lobe, and that it was very invasive, and that helped me put it into perspective.

If the discomfort is really bad, ask for some pain medication!

Judy in MI

_________________
6/07 DX NSCLC, Left Upper Lobe wedge resection: Stage 2.3/4, (2B?) Adenocarcinoma, measures 2.5x1.5x1.1cm. Involving visceral pleura but not through it. 5 rounds chemo, carboplatin and Taxol. Subsequent scans NED.

1/11 3.5 mm node found. 10/11 CT node now 8 mm, and new 6 mm node. 11/11 CT Pet shows slight uptake. 1/4/12 Biopsy - Pneumothorax complication. 1/14/12 Lobectomy of upper rt. lobe. NSCLC Adenocarcinoma in situ, nonmucinous (bronchioloalveolar carcinoma) 1.4cm involves pulmonary parenchyma.
3/14/12 Begin 4 cycles of Cisplatin/Navelbein, with Neulasta shot
4/6/12 Chemo changed to Carboplatin/Navelbine without Neulasta shot. Reduced chemo by 50% due to intolerance.
7/5/12 CT scan is clean, NED for lung cancer! There are issues with liver and stomach that will be investigated but not believed to be because of cancer. Wait and see!

*Avatar was taken 7/3/12 on our way out to see the Fireworks on a friends boat on their lake!

Mom dx SCLC 1/96, passed 10/19/96, age 62
Dad dx Brain cancer 4/87, passed 6/87, age 57
Sister dx Brain cancer 4/83, passed 12/83, age 25


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PostPosted: Mon Oct 03, 2011 10:29 am 
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Joined: Sat Feb 20, 2010 5:53 am
Posts: 1316
Location: Airdrie north Lanarkshire
Hi Heather,
Fine Scottish name-ahem-sorry about being at the Coo's tail in welcoming you,dont know where I am recently.Wow what a story you have shared,despite being so unfair on so many different levels,I found it so inspirational,particularly your attitude to your new situation,you have managed to pick up the pieces and get on with your life.
I would have loved to have attended your fundraisers,but there is a small matter of the pond between us,I wish you well in all that you are doing in not only fundraising,but in bringing the subject of lung cancer to many peoples attention.
I have to say post op discomfort at my wound site did persist for a while,it was'nt particularly painful,just enough to remind you it was there,I just accepted this little bonus and got on with life,I did think this effect would be with me for the rest of my life,well what do you know,some time ago it just disapeared completely.
I wish you all the very best for a long,happy and fulfilling life.

_________________
Regards,
Eric Byrne

To read my story, please follow the link : http://lungevity.org/l_community/viewtopic.php?t=43268


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PostPosted: Tue Oct 04, 2011 4:47 pm 
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Joined: Mon Nov 10, 2008 9:37 am
Posts: 885
Location: Southern Oregon
Congratulations on your good scan results!

I think your story is amazing. I have had lung cancer twice now - but at 50 and 60, not 24. This disease is bad enough at any age, but I know at 24 I would not have been able to handle it with the grace and courage you have shown. Thank you for sharing your story with us.

I had my left lung removed in 1998, and I do remember having some discomfort from the surgery for almost 2 years. As I remember, the first 6 months was the worst, then it did get less as time went on, but it took awhile before it was totally gone.

_________________
3/98 Dx squamous cell NSCLC 2a at 50 yrs
4/98 Left lung removed, no chemo/rad
8/08 Persistent cough and shortness of breath, first appt. with pulmonary doc 11/4/08
11/08 X-ray and CT show tumor in right lung. PET scan confirms tumor, shows no apparent spread
12/08 CT/needle biopsy shows squamous cell NSCLC IIIB, doctors don't seem to agree if its a new cancer or recurrence - but onc believes it is a new one
12/08 Start concurrent radiation/chemo, Cisplatin/Etoposide
1/09 Chemo switched to Carbo/Taxol due to intolerance of Cisplatin
2/09 Radiation completed
3/09 Chemo completed
5/09 CT shows spot where tumor was likely/hopefully scar tissue
6/09 Begin Lucanix trial
9/09 CT scan - stable
12/07/09 CT scan - stable
3/1/10 CT scan - stable
6/1/10 CT scan - stable - begin 2nd year of trial
8/23/10 CT scan - stable
10/25/10 CT scan - stable
1/20/11 CT scan - stable
4/25/11 CT scan - stable - completed drug portion of trial, now follow-up with 3-mo scans
8/1/11 CT scan - stable
10/24/11 CT scan - stable. At my request, switching to 6 mo scans.
4/24/12 CT scan - stable.
10/30/12 CT scan - stable.
2/26/13 CT scan - stable

Avatar is with 10-mo-old grandson Ethan at Xmas


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PostPosted: Fri Oct 07, 2011 8:19 am 
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Joined: Fri Sep 19, 2008 6:08 pm
Posts: 1422
Location: Crowley, Texas
Great news on the scan, Heather!

Yes, like too many old injuries, that incision may tell you about weather changes from now on. But I get almost no pain from my incision area. The only exception is if I get too lax about my core muscle exercises (which I do from time to time when my back flares up). When I get back to those exercises regularly, my incision pain is gone. Of course, I have almost four years since my surgery, and I'm sure you'll keep improving.

_________________
Bud

Long distance cyclist and lung cancer survivor
56 years old at time of diagnosis in 2007, now live in Crowley, Tx
Nov 2007 - Tentatively diagnosed as NSCLC stage I from CT scan
Dec 2007 - Upper left lobectomy, biopsy showed one cancerous lymph node, changing the diagnosis to stage II (squamous cell)
Feb to Apr 2008 - Three rounds of cisplatin and gemcitabine
Apr 2008 - chest x-ray, NED
May 2008 - brain mri, clear
Jul 2008 - CT scan, NED
Dec 2008 - CT scan, NED
June 2009 - CT scan, NED
Jan 2010 - CT scan, NED
July 2010 - CT scan, NED
June 2011 - CT scan, NED
May 2012 - CT scan, NED
December 2012 - CT scan, NED. I am now a 5 year survivor!

June 2009 - Wife Rose diagnosed with breast cancer
Stage III IDC
Sept 2009 - Finished 4 rounds of chemo (AC)
Nov 2009 - Surgery
March 2010 - Finished 12 weeks of weekly Taxol
August 2010 - CT scan, NED
August 2011 - Checkup, NED
August 2012 - Checkup, NED
The rest of my story is at:

http://www.lungevity.org/l_community/vi ... hp?t=38841

My blog - uneasy-rider.com


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PostPosted: Thu Apr 12, 2012 12:04 pm 
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Joined: Wed Apr 11, 2012 1:07 am
Posts: 2
What kind of cancer did you have lclc or nsclc ???? :?


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