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PostPosted: Thu Aug 25, 2005 2:33 pm 
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Location: Anaheim Hills, CA (Orange County)
Hi. I believe (but I could be wrong) that bypass surgery is similar to lung surgery if you don't have it with the VATS minimally invasive procedure.

My mom can't get comfortable laying down, she had to sleep last night in the recliner. Did that happen to anyone else after surgery? If so, what did you do to get comfortable?

Thanks!

_________________
[size=84]Mom diagnosed 11/03; age 58; NSCLC IIIA
Carboplatin/Gemzar
3/4/04--lobectomy
5/04--completed radiation
5/05--coiling for brain anyerusm found on routine brain MRI
8/05--triple bypass
10/06--PET, brain MRI, CT clear
8/07--NED
Currently in remission/NED
2/12--Stage IV squamous cell, a new beast
4/9/12--My mom passed away

Dad diagnosed 9/06; age 65 (asymptomatic); adenocarcinoma with BAC features
9/06--Wedge resection of 1.4cm tumor
Lots of little nodules remain and a small thing on brain maybe
11/06--Stable
5/18/10--Dx with Macroglobenemia (indolent lymphoma) & nodule growth
6/10--IT'S BACK! Tarceva time
[/size]


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PostPosted: Thu Aug 25, 2005 3:14 pm 
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hey lady. my mom used a ton of pillows. she had more trouble laying down with the pericardial effusion and the pneumonia than her pneumonectomy, but for both she just pilled on the pillows. once her ribs healed from the lung surgery, on her side ('that' side) became the position of choice.

love to both of you.
xoxo
amie

_________________
62 y.o. mom w. NSCLC, 54 at dx
10/2000 - lobectomy for stage 2 (4 lymph nodes) non-small cell adenocarcinoma, after detection by chest x-ray for another surgery
2002 - spot #1 appears near lymph nodes in resected lung, unreachable for biopsy, watch and wait
5/2005 - spot #2 appears on PET/CT 6 months after last check
6/2005 - spot #2 is confirmed NSCLC, AC (same as '00) after needle biopsy
6/24/05 - right intrapericardial pneumonectomy, clear margins
6/29/05 - home from the hospital!
7/13/05 - post-op visit, 5 of 7 nodes involved and 2 tumors with BAC features and ltd. nerve involvement, adjuvent chemo recommended, onc. appt. 7/26/05
7/15/05 - back in hospital with PE, slight pericardial effusion, and UTI.
7/20/05 - home from the hospital on tinzaparin injections
7/26/05 - 1st onc. appt., too sick from post-op complications for chemo right now, recheck in 2 weeks
7/27/05 - surgeon appt. - ambulance to hospital, emergency surgery to place pericardial window
7/28/05 - vena cava filter for blood clots placed, A-fib controlled by cardizem
7/29/05 - pericardium treated to prevent further effusions
8/2/05 - home from the hospital!
8/9/05 - onc. appt., positive for marker for Tarceva, wait & see re: chemo
8/11/05 - readmitted to hospital with pneumonia and pleural effusion
8/18/05 - home again!
9/1/05 - onc. appt., no chemo. but will start Tarceva in 1 month
9/7/05 - surgeon appt., lung and heart look good, scans in 3 months
9/29/05 - onc. appt. - begin Tarceva!
11/1/05 - onc. appt., all is well, increase dose, track by phone until Jan.
12/5/05 - surgeon appt., all is well
12/6/05 - per onc., increase Tarceva to 100mg
12/8/05 - admitted to hosp. with bleed in brain (stroke, no clot no mets!) discontinue blood thinners and Tarceva for now
12/11/05 - home from hospital, no right side peripheral vision...
12/27/05 - onc. appt., back on Tarceva, no more blood thinners (duh!)
2/3/06 - per MRI, hematoma on brain 'greatly reduced', driving limits, etc., removed
3/8/06 - NED
3/21/06 - onc. appt., Tarceva lowered to 75mg. because rash is worse
7/11/06 - NED (I think); we learn mom was staged at IIIB, scans in 6 months
10/17/06 - liver sonogram, after elevated enzymes in routine bloodwork, liver NED/normal
1/16/07 - onc. appt. and scan results - ALL CLEAR! continue 75mg of Tarceva daily, recheck in 6 mos.
7/07 - NED again. onc. discusses taking mom off Tarceva in 6 months
12/20/07 NED! just a little inflammation in her lung. no more Tarceva.
3/2008 - pulmonologist recommends supplemental O2 24/7 due to very low sat rates upon exertion
11/25/08 - mass on brain diagnosed, referred to MSKCC for treatment and follow up
11/27/08 - final tally: large tumor on right lateral ventricle, 3 small lesions on cerebellum, 1 lesion on spine
12/2/08 - surgery to remove largest brain tumor
12/22/08 - met with oncologist and rad. oncologist, directed to 14 treatments of WBR and referred to neurologist
12/26/08 - neurologist recommends RT to spine as well as WBR, for "tiny pockets of disease"
12/31/08 - commences 14 RT treatments to brain and spine
1/1/09 - hospitalized overnight for vomiting attributed to too low a dose of steroids after 1st RT treatment
1/21/09 - finishes 14 treatments of WBR and spinal RT
1/26/09 - CT scan of lung
1/29/09 - met with onc., CT shows disease in lymph node in lung, recommends Tarceva-based chemo
3/6/09 - with bladder and bowel incontinence and rapidly declining mental status due to progressing leptomeningeal mets, the doctors tell us there is nothing more they can do 3/10/09 - Mom is transferred to Calvary palliative care hospital in the Bronx
4/20/09 - Mom dies surrounded by love and light

mom also had a thyroid malignancy in 1993, immediately after losing her sister to renal cell cancer. I am 37 y.o. daughter, also have a brother, 33.


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PostPosted: Thu Aug 25, 2005 3:44 pm 
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I bought a wedge at a surgical supply store. I slept on the couch (reclining couch with room for the dog) for almost three weeks before I could attempt the wedge and six pillows. I used one of the pillows under my knees - it seemed to help. The pillows were to "prop" my body in some kind of comfortable position.

If she wants to sleep in the chair, make sure it's comfy and just toss a blanket or two on her (I used one for upper body, one for lower because both "zones" weren't always needing the same thing). If Dad's worried about her being alone in the living room, purchase a futon mattress and he can sleep on the floor next to her... Mark slept in his recliner in the living room with me to begin with - but he snores when sleeping in his chair and I made him go to bed. :wink:

_________________
Courage is being scared to death - and saddling up anyway. ~John Wayne

Surviving is important. Thriving is elegant. ~ Maya Angelou


Keep your fears for yourself, but share your courage with others. ~Robert Louis Stevenson

*Picture was drawn by son at age six (he's now NINETEEN) - see the little blonde knight in the corner? That's him...my "Dragon Slayer"

34 y/o (on diagnosis) NON-SMOKER
1/28/03: DX NSCLC Adenocarcinoma-Stage I or II
2/10/03: surgery to remove lower 2 lobes of rt. lung w/7 nodes (3 +)
2/12/03: new DX: Stage IIIa (T2N2M0)
3/11/03: MD Anderson - not impressed
4/1/03: Began 5 1/2 wks rad
5/9/03: Began Iressa (1 yr)
7/23/03: Ended Iressa - too many side effects
10/04/04: Turned 36 and still NED!
12/28/04: Clear CT scan
1/28/05: Two year anniversary of diagnosis
3/28/05: Clear
6/27/05: Clear
8/26/05: Clear
12/07/05: Clear
12/16/05: Brain CT - clear
1/28/06: Three year anniversary of diagnosis
4/17/06: Clear
8/21/06: Clear
9/27/06: Brain MRI - clear
1/28/07: Four year anniversary of diagnosis
2/21/07: Clear
08/22/07: Clear
02/10/08: Technically, five years cancer free.
02/27/08: All clear! Could it be "cured?"
02/25/09: Clear
01/25/10: X-ray and blood work
01/29/10: Clear (7 years!)
05/26/10: Son graduates from high school - never thought I'd see it!
10/16/10: Married Mr. Right
1/24/11: Clear (8 years)
Currently watching...and wondering.


My story: viewtopic.php?f=47&t=8192


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 Post subject: bypass
PostPosted: Thu Aug 25, 2005 3:57 pm 
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Andrea
My mom did not have lung surgery so I cannot compare her experiences, but she did have bypass about 3 years ago. I had to stay with her awhile to help out. I remember her not being able to get comfortable, we got a hospital bed brought in and that helped some, but I think this to be expected. I do remember at that time Mom would not take a pin pill to save her life, and believe me after these quit giving her IV pain meds at the hospital she never had another thing. I'll never know how she did it. I am sure it will get better for your Mom, get her lots of soft pillows and one to hold over her chest when she moves or coughs.

Take care
Kim

_________________
Kim Daughter of Ron, my second parent to be DX woth LC

9/10-DX Stage 4, NSCLC, both lungs,liver and possible sholder mets. Will start Chemo in 3 weeks

[size=84]Kim, daughter of DeAnne
Dx: 6/29 nsclc Stage 111a-b, Tumor in trachea inoperable. CT & Bone Scan show cancer has not spread
6/30 Taxol/Carboplatin 6 wks once a wk low dose
7/1 Rad, 33 tx
8/26 High dose chemo, taxol/carboplatin once every 3 wks. Bad side effects after 3rd day, but much better after 5 days
9/14 Rad doc says all is well, next scans 6 wks after chemo.
11/4 All chemo finished. Hosp. because of debilitating pain. Scans show NED!!
11/15 Colonoscopy and endoscopy, esophagus stretched
11/18 Kyphoplasty surgery for compression fracture in back. Osteoporosis. Helped back pain, still pain in abdomen
12/15 Better. Only Neurontin for pain. No strength, moves slowly, breathing compromised. Docs have no reason. "In her head" - thinks she has to have oxygen when she doesn’t. Will start exercise program in January.
2/1 full head to toe ct scan shows NED.
2/17 Shingles. Hopefully we got the meds in her quick enough for a easy time with this.[/size]
1/06 Still NED, although has more worrisome problems with COPD.

Although the cancer never returned my mom passed away 10/20/2006 peacefully in her sleep. That was the biggest blessing she received as there was no suffering. No Autopsy was done, but doctor signed off on DC saying heart disese as the cause of death, I think it was a broken heart as Mom never really got thru the death of my son and she was ready to be with him. May they both rest in peace and watch over me. I love you Mom and Jaybird...


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PostPosted: Thu Aug 25, 2005 5:35 pm 
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Andrea,

Just going to add what everyone else said.. PILLOWS! Lots and lots of them. I think I had like 8 of them in my bed, you couldn't even see me.

As I got better, I got rid of them one at a time...

_________________
Debi
50 years old
Stage 1a-nsclc,1.3 centimeter, adenocarcinoma
Surgery June 16, 2003-upper & mid lobe removed
17 lymph nodes removed - all clear
No chemo or radiation


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PostPosted: Thu Aug 25, 2005 5:51 pm 
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I slept on the recliner or on the couch for the first week when I got home. The recliner was better actually for breathing.

Cindy

_________________
age 57
surgery 6/20/03, stage 1B, upper left lobectomy
started adjuvant chemo on 08/14/03
3 cycles--cisplatin/gemzar
finished chemo 11/6/03
now 10 years post-lobectomy, annual x-ray and follow-up with surgeon
follow-up with oncologist every year/bloodwork and clinical exam

2001 early stage breast cancer/surgery and radiation only, no chemo needed. Mammograms once a year,

Just passed 12 year mark for the breast cancer and 10 year mark for the lung


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PostPosted: Thu Aug 25, 2005 6:11 pm 
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I slept in a recliner the first few nights, then I slept sitting up in bed. It was a couple of weeks before I felt comfortable sleeping lying down flat.

_________________
Jan

46 years old at diagnosis
2/20/05 - ER CT scan for unrelated pain - detected small "mass" in upper left lung
2/28/05 - PETSCAN - confirmed mass in lung
3/21/05 - PFT - Normal
3/22/05 - CT Needle Biopsy - dx nsclc Stage 1a
4/6/05 - Bronchoscopy/Mediascopy - lymph nodes all clear
4/20/05 - Lobectomy (upper left lobe)- Still Stage 1A - lymph nodes clear
5/20/05 - Dr. says no chemo needed
8/22/05 - Follow up visit to surgeon - NED
12/23/05 - Follow up visit to surgeon - Still NED
4/25/06 - Follow up with surgeon - Still NED!!!!
11/10/06 - Follow up visit to surgeon - Still Cancer FREE
4/07 - Still Cancer Free!!
4/08 - Still Cancer Free!!
4/09 - Dr. found a nodule on left lung and many very small areas on right lung. Went for a lung biopsy and the nodule had shrunk by 90% so they don't think it is cancer. Have to go back in 4 months for another CT scan to be sure.
8/09 - CT scan normal, back to NED
4/10 - Follow up with surgeon - Still Cancer Free!
4/11 - Follow up with surgeon - Still Cancer Free!!
4/12 - Follow up with surgeon - Still Cancer Free!!!

Lost cousin/friend Kathi to SCLC (1957-2003)

Picture is of me with my cousin Kathi at her wedding in August 2003, four months before she passed away.


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PostPosted: Thu Aug 25, 2005 6:47 pm 
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My mpom had to sleep in recliner and sometimes she coulde not get comfortable anywhere but walking around. Best wishes

_________________
My mom is 45 and a lung cancer patient Stage IIIA
Dx 11-17-04, 45 yrs. old.
Chest X-Ray
CT Scan
Pet Scan
Lung Biopsy (Superior Sulcus Tumor of Right upper lobe squamous cell)
Lymph node of neck biopsied (Negative)
Chemo and Radiation started 12-20-04
First week of Chemo finished 12-28-04 has three weeks off!
Started chemo on Jan 17th will hopefully finish on Monday the 24th and finishes radiation on Tues the 25th. Praying that this works!
Surgery March 1st. Successful Tumor was all dead Doc. says NED but has had no scans.
Chemo Etoposide/Cisplatin started again Beg. of April
Doc changed last round of Chemo to Carbo/Etoposide due to hearing problems and last round was postponed because of low blood counts
May 9th, 10th, and 11th last of the chemo!
Scans scheduled for Aug. 15th Praying for NED!
Scans show NED is with us! Appt. with radiation doc 10/23 and oncologist 12/19
12/27 Mom had appt. Doc ordered bone scan is to return in 4 months
12/02/2006 Mom had appt with Oncologis in November everything is going good. Scans to be scheduled not sure when I think in three months. Mom is doing great and unfortunately still smoking =( Dr said to stay away from sick people

3/13/2007 Mom is 22 months from last treatment and doing fantastic
9/25/2008 Mom turned 49!
10/27/2008 Mom still dong well. Ned is still our very best friend and we will keep him =)


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PostPosted: Thu Aug 25, 2005 8:14 pm 
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I slept in the recliner for a few weeks after I got home.Used pillows for comfort and coughing.

_________________
dianosed 04/29/2003 nsclc***left lung removed 06/18/2003***two checkups NED *** cancer back 10/10/03 mets to right lung *** 7 rounds chemo carboplatin & taxol at same time with 7 weeks of daily radiation***01/04/04 shrinkage***04/04/ still stable***07/04/04 stable***10/04/04 no change***03/04/05 cancer spread to windpipe blocking 80% of airway and also bottom r. lung and stump where l.lung was removed***03/24/05 had laser surgery to open windpipe & stent put in***03/24/05 chemo and radiation again same type and amount***07/20/05 tumors shrunk but not gone and new tumor in top r.lung***remaining lung in bad shape with lots of scar tissue***10/20/05 no evidence of more spreading***01/31/2006 scans stable***03/13/06 increased cancer in middle of chest and airway***06/22/06 no change***06/05/06 prostate trouble and catheter from 06/06/06 until 09/14/06 when surgery on prostate (no cancer)***10/08/06 spread again 3.5cm tumor on brain and 6.5 cm tumor back in middle of chest again***have done 14 WBR tx's and waiting for 1 x-knife tx upcoming***more chemo upcoming***12/20/06 no more chemo or radiation to chest area***placed on pallitive care***they will do as possible as anything arises***follow up mri in late january for brain tumors***also may need stent in esophogus for severe reflux and restricted size of esophogus***only two options left,treat and be very ill with almost no chance of getting or feeling better or maintain maximum quality of life as long as possible and be treated for comfort as problems occur.I am at the stage of this where I CHOOSE QUALITY.

I have a great wife,3 daughters and son-in-laws,5 grand daughters,1 grandson,and 1 great grand son.My goal in life is my 100th birthday as it always has been.

----------------------------------

picture is of me and my great grand son.
Image


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PostPosted: Thu Aug 25, 2005 9:06 pm 
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Thank you :) She feels better knowing she is not alone. I just read her your responses.

_________________
[size=84]Mom diagnosed 11/03; age 58; NSCLC IIIA
Carboplatin/Gemzar
3/4/04--lobectomy
5/04--completed radiation
5/05--coiling for brain anyerusm found on routine brain MRI
8/05--triple bypass
10/06--PET, brain MRI, CT clear
8/07--NED
Currently in remission/NED
2/12--Stage IV squamous cell, a new beast
4/9/12--My mom passed away

Dad diagnosed 9/06; age 65 (asymptomatic); adenocarcinoma with BAC features
9/06--Wedge resection of 1.4cm tumor
Lots of little nodules remain and a small thing on brain maybe
11/06--Stable
5/18/10--Dx with Macroglobenemia (indolent lymphoma) & nodule growth
6/10--IT'S BACK! Tarceva time
[/size]


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PostPosted: Thu Aug 25, 2005 9:11 pm 
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Please add my dad to the list too. Many nights in the recliner after surgery.

gail p-m

_________________
Dad dx. Stage 1 Lung Cancer -- Aug. 2000 -- lobectomy -- no other treatments; follow-up every 6 months with CT scan

Recurrance April 2003 -- Stage 4 with mets to bones (Adenocarcinoma with BAC features); Received 3 rounds of Carbo/Taxol --- very little change from chemo

Re-staged to Stage 3b-4 Sept. 2003

Received 35 radiation treatments; shrinkage of most spots; however, something "else" which wasn't there is now there and they're not sure what; another PET and CT in May

Aug. 2004 -- CT and PET -- STABLE; scans at 3 month intervals --- STABLE

May 2005 --- a new spot in the lung found when coughing up a bit of blood; spot showed on PET but not on CT; bronchoscopy confirmed recurrance but also seemed to stop the coughing up blood; oncologist decided to watch and wait

July 2005 -- coughing up blood again; put on Tarceva in late July

Aug. 2005-- many problems with Tarceva and it was discontinued; feeling better now

Spring 2006 -- rapid decline in weight though May 25 scan showed things essentially stable; feeling very weak, tired and unsteady on feet

Aug. 1, '06 - Dad passed away while fighting valiantly to the very end; he was still so strong physically and emotionally; an amazing 82 year old man; I miss him so much

**** Picture is of myself, Dad, and sister celebrating Dad's 80th birthday in Feb. 2004


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PostPosted: Thu Aug 25, 2005 10:33 pm 
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I slept in a recliner for a month. Used pillows for coughing and my knees. Then we went out to Las Vegas and I had no choice but to sleep laying down. I ordered some extra pillows for the bed and made it fine.
Hope she feels better soon. Glad she is home!
Nina

_________________
[size=75]I am 59 years old. Was diagnosed with adenocarcinoma of the left upper lung in Feb 2003. Have had surgery, chemo (carboplatin and vp16) and radiation therapy on the mediastinum. My first set of scans was done Oct 2003 and were clear. My latest screening was a chest film in Jan 2004...so far I am clear. I have a husband, Chuck, who has been wonderful and two children...each of them has a 4 year old boy.
April 19,2004, clean CT of the chest!
July 16th, 2004 clean MRI of the brain and clean chest xray.
Oct 22, 2004..clean CT/PET...yea!
Feb1, 2005 Clear chest x-ray and MRI of the thorasic and lumbar spine. Well, clear x-ray and almost clear MRI. The actual report sees a blip on the T7 vertebral space. If pain increases we will rescan early, otherwise wait til May, 2005
June 1, 2005..had CT/PET scan and all is still clear. Next scans are scheduled for December.CT/PET combo done on Dec 5, 2005. Still NERD. The word infinitesimal was used to describe my chances of reoccurrence. YEA!
6/14/06 Oncologist released me. Said to have my PCP continue annual checks and x-rays. Its been almost 3 years since any treatment. Yea!
8/7/06 3 1/2 years since any treatment.
12/06-Chest xray reads NED...released from my radiation oncologist. I am suppose to make sure my PCP follows me carefully.
2/8/07 MRI Brain...NED [/size]7/23/07 PET/CT NED
3/18/08 MRI Brain...NED
11/12/11 I am now 67 years old and still NED.


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PostPosted: Fri Aug 26, 2005 2:12 am 
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It helped (triple by-pass) me to sleep sitting up in a bed or recliner. Used a pillow like mentioned, coughing is very important. Also they encouraged me to get up and move, walk etc asap which helped a lot. Make sure she stays on top with her pain meds, really helps. I think (memory is getting bad) it was about a week or so before I started to feel better. Of course everyone is different and under different circumstances. Tell mom to hang in there, just a matter of time and she will feel better. Hope this helps. Prayers for the best.

_________________
TO READ ABOUT MY PROFILE (MY JOURNEY WITH LUNG CANCER - AS THE CHEMO DRIPS!) WITH STAGE IV LUNG (BAC) CANCER, DIAGNOSED MAY, 2002 / PROGNOSES TWO YEARS AND MY STORY PLEASE CLICK LINK BELOW.
http://lungevity.org/l_community/viewto ... 2155#72155

QUESTIONS TO ASK YOUR DOCTOR / HELPFUL LINKS:
http://lungevity.org/l_community/viewto ... 585#163585

You must, on your own, make the commitment that you will do everything in your power to fight your disease. -Advanced stage lung cancer survivor RA Block-

Let us rise up and be thankful, for if we didn't learn a lot today, at least we learned a little, and if we didn't learn a little, at least we didn't get sick, and if we got sick, at least we didn't die; so, let us all be thankful.
-Buddhist Quote On Gratitude-

It's only when we truly know and understand that we have a limited time on earth -- and that we have no way of knowing when our time is up, we will then begin to live each day to the fullest, as if it was the only one we had.
-Dr. Elisabeth Kubler-Ross-

We have no right to ask when sorrow comes, "Why did this happen to me?" unless we ask the same question for every moment of happiness that comes our way. -Author Unknown-

Top Ten Reasons Why I’m A Lung Cancer Survivor

10. Not going into funeral mode the day I was diagnosed. I never once thought this was it, that life was over or why bother. Lung Cancer is not a death sentence and one can be cured of it or still have a life living with it for many years.
9. Not dwelling on it. How I got it, why me, what if I did this/that or the blame game etc. It’s counter productive and wasted energy.
8. RESEARCH, RESEARCH and more RESEARCH. Knowledge is the key! The more one knows the better one can make decision with their doctor and better fight. Keeping it simple, does not really matter to me every little word on a report. Try to get down to the chase of what is going on and what needs to be done.
7. Living life to the fullest by making the best of it every day and by keeping busy. Life is short enough so why let a day go by.
6. I appreciate everything my family/friends do for me. I let them (especially Kathy and Tina) know how much it means to me and how much I love them.
5. Not making my disease about me. It affects my family/friends just as much if not more. My life has changed and I have to learn to adjust to the new normal. If I can’t do things or go places does not mean they can’t. It’s very important they have a life and go about it.
4. Keeping an open mind about treatments. Don’t know unless you try. Laughter, it’s the best medicine, does not have to be all doom and gloom. Exercise, it’s good for overall health and a great stress reliever. Healthy (common sense) diet, this one I need to improve on. I can eat in a coma.
3. Staying positive and having a good attitude. YES it does make a difference regardless of what adversity one faces. Have my days like anyone else but they are few and far in between.
2. All my doctors/nurses. I’m very blessed/fortunate to have a great medical team and great health coverage.
1. My wife.my daughter and my closest friend I love them the most and they mean the most to me. I owe it to them, there the ones who have stood by my no matter what and showed me the true meaning of family, life and love is all about. You can lead a horse to water but can’t get it to drink. Bottom line it’s up to me to be pro-active, to keep trying and to never never never give up!


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PostPosted: Fri Aug 26, 2005 9:50 pm 
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That happened with my mom...she slept in her chair for over a week. But my mom could fall asleep standing. :)

Thinking of you and your mom.

_________________
Beloved 66 yr old Mom dx'd with stage IIIB NSCLC - 3/03
Completed 33 daily radiation treatments -6/3/03
Carbo/Taxol/Taxotere all unsuccessful - 10/03
Cancer has spread further in right lung - 11/03
Began Iressa - 11/03
Mets to Liver -2/04
Iressa not working - 3/04
Numerous new mets to liver, new met to right and left lung - 3/04
GVAX vaccine not an option - 3/04
Brain Scan Negative - 4/04
Begun Navelbine - 4/04
Hospice called in - 4/04

Heaven gained an angel on April 11, 2004
I love and miss you mom, with every breath of my being.
In loving memory:
Lillian Marie Ostlund
January 11, 1938 - April 11, 2004

Photo is of my 4 year old and my 6 month old daughters. My mom watches over both, I know.


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PostPosted: Sun Aug 28, 2005 7:38 pm 
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Joined: Sat Jun 26, 2004 8:30 pm
Posts: 382
Location: South Dakota
How about 9 months in the recliner..? Thats what I did after pnuemonectomy...just wasnt comfortable even looking a t the bed. Finally got to bed tho..in the spring. Still cant sleep on surg. side tho..(used to be my fav. side).

So dont feel alone if its some time before u wanna lay down in bed. heh.
k...take care....Rich B.

_________________
06/28...Broncoscopy Mon....suspicious mass in left lung per ct scan...wish me luck...much anxiety, and yes, fear.
06/30...Needle biopsy, due to bronch. being inconclusive
07/02...dx is adenocarcinmoma...NSCLC

07/15...Surgery, entire left lung removed, No lymph node involvement or metasis yet discovered, so...hopeful prognosis
07/21 Home after sufficient recovery in hosp., slow recuperation, awaiting appt. with oncologist to determine if any additional treatment, screening, etc..
08/17/04 Oncologist appt....recomends more scans, CT bone, MRI, Pet etc. Also recomends one round of chemo...

9/17/o4 Good news, scans are all clear..NO evidence of disease detected...hopeful it remains that way. Remaining cautious tho, one more MRI to go and some adjuvant chemo....so waiting, healing, still doing med. appts for awhile. Then regular xrays ea. 3 mos.

Whoops...detour, the MRI/spine turned up a small lesion of unknown type. Off to the orthopedic specs. to investigate, get options. Chemo delayed briefly pending opinion from ortho guys.

Opinion is "not cancer" on spine...apparently just my arthritic joints...so, becomes a pain management issue..appt. made. On to adjuvant chemo on Monday. Finally.

Mon./10/27...o4 started adjuvant chemo finally; Taxotere first , then Cisplatin, I think...fatigued knocked me flat the 3rd day after...dozing, trying to catch my breath every time I move...sigh
Fri...emergency room, oxygen...Pneumonia-like inflammation of remaining lung...week of IV antibios and steroids...finally recovering, but...chemo ceased...end of that notion. Bad react. to taxotere. Now on to just screening scans for future. Continuing pain management consultations for back and surg. pain.

10/10/05 CT and PET scans; NED, clear, normal..1yr. out from treatment...cool.

2 yr. scans clear...wheww! SOB and easily fatigued tho, continues. Perm. I guess.


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