I hope this works. Jan (jang) and I got to see these guys play this song live in Austin. It is an amazing song about survivorship. It was the grand finale to the 3-day LiveSTRONG summit and as they played this for us live, we were all in tears.

http://www.youtube.com/watch?v=VRf3kCEz-ac


or this one

http://www.livestrong.org/site/apps/nl/ ... ct=3214571

Lyrics:

Maybe Tonight, Maybe Tomorrow Lyrics

I heard the news today. It came out of nowhere.
I wish I could run away,
but where would I go?
Is this my destiny? Something so unfair... What will become of me?
God only knows.

And they say the road to heaven might lead us back through hell.
Maybe tonight, maybe tomorrow, we will win this fight and bury this sorrow.
We're so alive, still holding on, not ready to die, so we LIVESTRONG.

My pride is left for dead, as my world gets shaken.
The thoughts inside my head are so hard to control.
I am staring down the unknown, but one thing is certain.
You could break my body, but you will never break my soul.

And they say the road to heaven might leads us back through hell, but we're holding on for more
than stories to tell.

Maybe tonight, maybe tomorrow, we will win this fight and bury this sorrow.
We're so alive, still holding on, not ready to die, so we LIVESTRONG.

_________________
- Katie Brown, Co-Founder and Director of LCSC-

15 yr cancer survivor.

"Any of us who have experienced the cancer journey- and survived it-
have an obligation to make the path clearer and aid those that come after us."
- Lance Armstrong

In memory of Jessee Dewey, SCLC
December 29, 1938 - September 6, 2003
Lisa Dewey- Jan. 22, 2007
my parents are together in heaven


facebook www.facebook.com/lungevity

Katie,

"Amazing" doesn't begin to describe how powerful this song is. Thanks for posting. Sis

I wish I hadn't listened to it. I can't stop crying now.
But it really was very beautiful.

_________________
Husband Age 31 Dx 3/19/03 Small Cell LC Second Opinion Mayo Clinic Dx 4/9/03 - Atypical Carcinoma (A.K.A. poorly differentiated neuroendocrine carcinoma with small cell features) w/ Mets to Lymph Nodes and Liver

4/19/03 Cisplatin & Irinetecan
6/19 Scan results show no change
6/23 one round of Cisplatin and VP 16 then changed to Carboplatin and VP-16.
7/16 started 10 rounds Radiation
8/19 Test Results showed slight shrinkage to all areas YEAH!!! Continuing on with Carboplatin and VP-16
10/14 Scan results show no change. Oncologist wants to stop treatment. Where do we go from here?
11/14 Liver Biopsy confirmed Atypical Carcinoid, Liver now looks clean. Hired new Doctor and are looking into Alternative Treatments.
12/23 CT scan shows cancer to be relatively stable. One lymph node grew, but rest stayed the same. Still waiting to determine next step.
1/7 Started Sandostatin injections 3X daily
1/26 Visited LSU Dr. Anthony in New Orleans about clinical Trial of Octreotide Accepted, but wants us to try low dose chemo first.
2/7 Changed to Sandostatin once a month time released injection
4/6 CT scan shows that primary tumor between lungs grew from 2.2 CM to 3.3 CM. Starting Radiation to primary tumor 4/15 to 6/15. Expecting two rounds of low dose chemo to follow.
7/23 two week hospital stay for pancreatitis showed new lesions in pancreas and liver.
8/31 Started new Trial in New Orleans - Indium III.
9/14 MRI of the brain shows 13 lesions in the brain and meninges. Starting 15 rounds WBR 9/27/04
11/5/04 Started 2 rounds of Cytoxin Doxirubicin and Vichristin
3/18/05 CT scan shows no change; Keith to get a break from Chemo
5/6/05 CT Scan shows that cancer progressing; greater than 25% growth in all areas
5/25/05 Visited a Dr. O'Dirisio at University of Iowa about Ytrium Trial. Keith did not qualify but Starting Sandostatin again to try and boost receptors to qualify in future.
starting Taxotere 6/10/05
9/13/05 Scans show stable disease, no growth or shrinkage. Starting 6 more weeks of Taxotere.
10/27/05 CT & MRI taken; MRI Results show Brain Stable CT Scan shows slight increase to Liver lesions, but overall stable.
12/15/05 CT Scans show return of large tumor in lymph node under his collarbone at the curve of his neck plus advancement of disease in the liver from 4 small lesions to more than can be counted mid sized tumors. Starting Alimta on 12/30/05 HAPPY NEW YEAR 12/23/5 MRI shows size growth on several brain lesions, new tumor to Thyriod gland, new tumor to 6th Vertibrae. Tomotherapy on the neck started 2/13/06.
Scan 2/14/06 shows rapid progression of lesions in liver. Alimta stopped and starting back on Irinetecan (AKA CPT-11) on 2/17/06
4/6/06 scans show growth on all tumor sites. Nothing suggested for tx, as onc wants to check around and get other opinions.
4/19/06 Spent the day in ER because of severe side pain. CT shows Significant growth from scan taken just 3 weeks earlier plus new pleural effusion. Pain most likely from many Liver mets growing and pushing on liver casing. Starting trial of Temodar and Thalidomide 5/24/06
5/29/06 Spent 2 days in hospital with pain in left side, swelling in right arm. CT shows significant tumor growth. Lymph nodes in Mediastanim wrapped around Superior Vena Cava vein compressing vein, lymph node in neck compressing same vein. Swelling cause of SVCS. Pleural Effusion greatly increased in right lung. Pain in side possibly from increase in pancreas tumor, increase in liver tumors and size, compression to vein feeding spleen and enlarge spleen plus constipation. Temodar Thalidomide stopped. No more treatment.
6/2/06 Thoreocentisis drained 1+ liters of fluid from right lung. Stints not put into SVC because of location and thrombosis surrounding the catheter from port blocking vein would require removal of port.
6/7/06 Experienced swelling in the groin and phallus; cause could not be determined.
6/26/06 Hospitalized for severe pain in shoulder. Stayed for 2 nights to get pain meds to control pain.
Released home 6/28/06 passed away surrounded by family and friends on 6/29/06.

The light of my life has been extinguished and I live forever in darkness. But my love lives eternally now in the glorious radiance of God.

I will Love you FOREVER & ALWAYS!!!!

Katie,

Thankyou.... just Thankyou....

Much Love, Sharon

_________________
Sharon R.
Lost my Daddy go NSCLC he fought a vailant battle for 4 years... HE IS MY HERO
Picture is my grandson Gavin
PLEASE VISIT MY WEBSITE FOR CUSTOM SUPPORT/MEMORY BRACELET. A PORTION OF EACH SALE GOES DIRECTLY TO LUNGEVITY
www.ilovinglyremember.com

Absolutely beautiful. Thank you.

_________________
Terrie
Diagnosed 7/02 squamous cell carcinoma. Attempted surgery 8/02, sent home for chemo/rad. Began Carbo/taxol once a week for 4 weeks - rad. once a week at that time. Second surgery attempt 11/02 - sent home because of infection in good lung. January 2003 right pneumonectomy, on oxygen for six months. Final pathology - neuroendecrine carcinoma - carcinoid tumor. Currently NED. Mom, age 75 recently diagnosed with nslc lung cancer scheduled for surgery 6/13. Left upper lobe removed, follow-up chemo to begin 07/05.

Tears are flowing. My world is shaken indeed. But I will go on. Today -- tomorrow. I have worn the yellow Livestrong bracelet all four years Lucie was fighting LC and I will continue to do so for a time. Maybe today -- maybe tomorrow -- the pain will lessen. Don

_________________
72-yr old, married 47 yrs. Wife Lucie diag. 10/02 NSCLC (adeno carcinoma) w. multiple bone mets (skull, rib, upper spine, left hip and right fibula); non-smoker.

Radiation: 10-12/02 (spine, fibula); 03-04/03 (hip); 06/03 (sacrum); 07/04 (rib); 12/04 (skull); 04-05/05 (right fibula - recurrence).

Chemo: (Carboplatin/Taxotere), 02-05/03 - effective in reducing tumors; 07-12/04 (Navelbine) to treat recurrence in other lung, lymph nodes, rib - effective in reducing tumors; 08-12/05 (Navelbine/Gemzar) to treat recurrence in hip sacrum, spine, rib, shoulder, and liver - held everything stable; Alimta 2-4/06 - no effect; Carboplatin/Taxol/Avastin,5-9/06 - effective in reducing tumors.
Zometa monthly for bone strength.

Staph infection, systemic, 12/02 - second port-a-cath installed. Bilateral pneumonia, 08/03. Septic staff infection, congestive heart failure, 09/06 - deceased

I am 11-yr. prostate cancer survivor, Stage II (two bouts). Also 9 yr. heart bypass surgery survivor.

Avatar Pic: Don & Lucie, 02/06

I haven't been able to get this song out of my head from the moment I heard the band sing it.

It's been out since May- it's debut was at the LiveSTRONG Gala held then. This band has a dear friend who was dx. with cancer, and this song was written for him and given to LAF.

The band came and played it live for us all at the LiveSTRONG summit during closing ceremonies yesterday afternoon and there wasn't a dry eye.

It was awesome. I thought of each and every one of you and wished you were with me.

_________________
- Katie Brown, Co-Founder and Director of LCSC-

15 yr cancer survivor.

"Any of us who have experienced the cancer journey- and survived it-
have an obligation to make the path clearer and aid those that come after us."
- Lance Armstrong

In memory of Jessee Dewey, SCLC
December 29, 1938 - September 6, 2003
Lisa Dewey- Jan. 22, 2007
my parents are together in heaven


facebook www.facebook.com/lungevity

I listened to the song. It helped me feel some empathy for the people who have suffered a lot more than me from this disease. I think many others here have suffered a lot more than me... but if you add up all the stuff I have gone through in the last 3 years, it looks like a lot. I am still alive and living.

Thanks Katie

Don M

_________________
10-31-03 CT. My profile was getting too long so I moved it to my story.

http://www.lungevity.org/l_community/vi ... hp?t=37417

Thank you for sharing.

Anaïs

I've searched for the videoclip (really touching):

http://www.youtube.com/watch?v=VRf3kCEz-ac

Thank you so much I didn't even think to do that!!

I'm going to change the url to the utube url.

_________________
- Katie Brown, Co-Founder and Director of LCSC-

15 yr cancer survivor.

"Any of us who have experienced the cancer journey- and survived it-
have an obligation to make the path clearer and aid those that come after us."
- Lance Armstrong

In memory of Jessee Dewey, SCLC
December 29, 1938 - September 6, 2003
Lisa Dewey- Jan. 22, 2007
my parents are together in heaven


facebook www.facebook.com/lungevity

wow... just beautiful. Thank you, Katie.
I'll have to get this on cd for mom.
C.

_________________
[size=10]And we know that in ALL things God works for the good of those who love Him, who have been called according to His purpose. Romans 8:28

Mom, my inspiration, Dx 4/00
at Age 51
NSCLC adenocarcinoma
stage IIIb inoperable
chemo radiation at dx
clear scans
PET results 1-18-05 shows some lit up areas
lymph biopsy (on clavicle bone) positive for cancer 1-27-05
clear brain MRI 2-3-05
bronchoscopy shows no tumors 2-10-05
2-16-05 Started chemo, Carbo Taxol
scheduled once a month treatment
Mom is so strong and brave!

6-16-05 PET, CT, MRI, XRAY
6-21-05 Results show gone, shrunk, and stable!
New chemo started on 21st:
lomustine (pill) and cytoxan
cancer markers went up, that combo didn't work.
Started Tarceva on July 29th.

Tarceva didn't work.
Started radiation (tomotherapy)on
October 25, 2005.
Five days a week for five weeks.
Also, chemo once a week of gemzar and cytoxan.
finished radiation in Jan '06 and still going strong as of 5-30-06!
Being still and letting God be God!

'07 has been a rough year, with gastro problems, which have still not been resolved as of today (11/1/07).

10-31-07 PET results show cancer is back in lung, no tumor as of yet. Going to start Tarceva.

Mom passed away august 29, 2008.
My heart has a hole that can't be filled. I miss her so very much. She was the best mom ever.

Thank you very much Katie for all that you do.

God Bless and prayers,
Karen

_________________

God Bless and Praying for a "Cure" for all of us.
<*}}}><
By His stripes, I am healed, I claim His healing
I believe in "Miracles"
Dx'd 3-03, nsclc 3a-b
Radiation 3-25-03 to 5-15-03 (38) treatments
Taxol/carbo 4-1-03 to 5-20-03
Taxol/carbo 7-23-03 to 10-27-03 (every 3 wks)
Pneumonia 9-16-03 in Hosp 4 days
Bronc 10-16 - Pulm Doc can't find tumor & NED
Biopsy 10-16 - test back "NEGATIVE"
Last chemo 10-27-03, PET looks good
CEA <.5 Nov .6 in Jan .9 in March.6 April .7 July
CT & MRI March 04, one 1" tumor brain. Surgery 4-6-04 remove brain tumor successful, cured - Rad Stereotactic 4-04 - NOT WBR
Possible radiation Necrosis 11-05
PET/CT Cking for Necrosis
New pic is Bob & I @ X-mas party 12-13-03

Katie,

I can't imagine listening to that song and not having tears flowing. Tears for all of those fighting and tears for all those that we wish still could.
It is a very touching song. Thank you for sharing.

Warm Hugs,
Melinda

_________________
Mother diagnosed with NSCLC in September 04.
Radiation to the right chest wall because of bony involvement and chest discomfort.
Weekly Taxol plus carboplatin 11/03/2004-04/04-2004
Alimta 04/18/2005-06/03/05 discontinued because of progressive disease
June 22, 05 started Tarceva. Response for 4 months. Discontinued 10/14/2005
Monday October 24 to start Avastin/Taxotere
2nd round of avastin/taxotere showing DRASTIC Results
80% shrinkage in large tumor
50% shrinkage in two others
CT Scan scheduled 2/13. More great scan results.
Another round of chemo given on 2/15/06.
Pet scan scheduled 3/06/06. Praying for NED!
3/08/06..........NED!!!!!
7/12/06 New spot on PET scan.
Back to Avastin/Taxotere.
8/06/06 After two treatments of Avastin/Taxotere-seizure
8/09/06 Doctor appointment. Stopped Avastin
Not sure what is next....
8/10/06 Brain MRI
8/16/06 doctor appointment for results and options.
Doctor said Mom is too weak to continue treatments.
8/18/06 Hospice called
8/29/06 Getting weaker, eating less, mental confusion
09/07/06 Mom is now in heaven.
I miss her so much.

Thank you Katie. Sometimes I need something like this to listen to when I'm alone and feeling sorry for myself.

_________________
mayos...female 57...former smoker (6 yrs)
7/03......incidental finding...chest xray/ct/pet scans point to malignant tumor
9/03...... rt up lobectomy
final dx:...... 3.7cm nsclc...IB mod-diff adeno w/BAC features
11/03 to 1/04...... adjuvent chemo...cisplatin/navelbine 3-4 rounds
1/04...... clean chest/abdomen scans
5/04...... clean bone/liver scans and mri of spine...I feel very lucky today
9/27/04...... EGD negative...finally 1yr cancer-free...NED and I are having an affair
3/05....new testing shows NED is still with me
6/05....Stage 4...6cm plus adenocarcinoma tumor removed from right brain...w/o treatment was told I would have been gone in 2 wks
7/05...Facing 15 WBRs and oral chemo...Temodar.....
Back on steroids for headache
7/11/05...whole body bone scan, chest, abd, pelvis clear of cancer
...SO THIS IS ONLY IN MY HEAD??!!??
8/16/05...Finished 15 WBR w/Temodar (stopped Temodar after 2nd wk due to drop in O2)
...Started Carbo/Taxol for 4 mths
8/05...Full body Pet shows no CA anywhere
9/05....Blood clots in legs bring on 2 hospitalizations
10/05...am considering foregoing treatment for a few months

WOW...

Maryane

_________________
"Life is not measured by the number of breaths we take...but by the moments that takes our breath away"
[size=75]
Husband Joel, 58 dx 10/18/04 Smoker since age 15 stopped when diagnosed
Adenocarcinoma- stage 1B
Lobectomy Left upper lobe on 12/15/04
biopsy on lymph nodes - negative NED
1/13/04 Oncologist appt.to see about preventive Chemo.
Cancelled due to chronic fatigue
1/12 fentynal patch for pain
1/14 discontinued Fentynal patch bad reaction
1/15 Blood test showed high T levels
2/1 Endoconrinologist visit diagnosed over-active thyroid
2/8/05 took Radioactive Iodine to kill thyroid
2/16/05 appetite back, fatigue leaving
2/24/05 visit with Pulmonary Doc. Breathing at 96% capacity,
Next visit 3 mos.
3/9/05 Endocrinologist visit -T levels went from 25 down to 5.
3/30 started Synthoid(thyroid med)
3/31 Oncologist. appt. CT results NED...
4/14 starting adjunctive Chemo (carbo/taxol) 4 treatments
3 weeks apart.
6/15/05 Joel finished chemo, chest X-ray clear, Next CT in August
9/01/05 1st CT since Chemo.. NED
11/17/05 CT - small nodule found 4 or 5 mil. in his good lung
1/10/06 CT - nodule Stable
7/2006 CT/ Nodule stable
10/2006 CT Nodule seem to have grown from 4 to 7 mil.
10/2006 Pet- showed some uptake
10/2006- operation- wedge section right upper lobe turned out to be cancerous 2 nodules next to each other. 2 different types of cancer. 1 squamous cell carcinoma (new primary)2- adenocarcinoma-(not sure if new primary or metastasis)
May be restaged to IIIB
11/07/2006 will start 4 rounds of taxotere. 3 weeks apart. Will take Decadron before, day of and day after. Will get a shot of Leunesta the day after. Here we go again.. Joel's attitude.... great as usual
Horrible reaction to the neulasta shots. One night(New Years eve) went to ER. Spent 3 days in hosptal.
Feb 2007 finished chemo.
March 2007 had his CT .. as expected right now all is clear.
June 2007 NED!!!
Sept 07- CT- small nodule 3.5 mm
Going to do another CT in 6 weeks.
October 07- CT done, results STABLE...YEA
Jan. 2008... STABLE!!!
April 2008 little growth but still called stable
July 17 208 nodule doubled in size to 9mm. Needs Pet Scan, tests, hopefully cyberknife...
July 29 met with his surgeon... said Cyberknife is the way to go.
August 1- Cyberknife visit... Joel is a canidate, its a go...Happy B-day Joel...
Sept 22, 2008 finshed up the last of 3 cyberknife procedures
Nov. had CT scan
Nov. 9th results of CT from Cyberknife..... Tumor completely gone... right now NED!!!
Feb. 09- Pet/CT results. . . NEd!!!
May 09 Pet/CT results. . . NED!!!
Sept. 09 Pet/CT results.....NED!!
Jan. 2010--- NED!! Pet now will be every 6 months.
June 8,2010 Pet scan on our Anniversary... hope thats a good sign..
June 17, NED!!!
Dec. 30,2010... NED!!!
June 20,2011... NED!!!
March 2012....NED!!!

pic of Joel and our daughter Nicole at walk NOV. 07

[img]http://www.freewebs.com/beansprouts2005/nik_and_dad_1LC_walk.jpg[/img]

http://www.babababies.com

Sorry it has taken me a while to post. I just got home last night, and then with Halloween, I've been a little busy. It was GREAT getting to finally meet Katie. We had such a great time and met so many great people. (And don't believe everything she says about me) The whole summit was very inspirational. There were a lot of tears, but also a lot of promise. To see hundreds of other people there fighting for the same thing that we are fighting for was amazing. I can't wait to get started. I've already started writing to all the media in my local area about LC Awareness month. I want to see some publicity.

I will post a link to my pictures as soon I can figure it out! (And Katie I promised not to post any pictures that might embarrass us)

_________________
Jan

46 years old at diagnosis
2/20/05 - ER CT scan for unrelated pain - detected small "mass" in upper left lung
2/28/05 - PETSCAN - confirmed mass in lung
3/21/05 - PFT - Normal
3/22/05 - CT Needle Biopsy - dx nsclc Stage 1a
4/6/05 - Bronchoscopy/Mediascopy - lymph nodes all clear
4/20/05 - Lobectomy (upper left lobe)- Still Stage 1A - lymph nodes clear
5/20/05 - Dr. says no chemo needed
8/22/05 - Follow up visit to surgeon - NED
12/23/05 - Follow up visit to surgeon - Still NED
4/25/06 - Follow up with surgeon - Still NED!!!!
11/10/06 - Follow up visit to surgeon - Still Cancer FREE
4/07 - Still Cancer Free!!
4/08 - Still Cancer Free!!
4/09 - Dr. found a nodule on left lung and many very small areas on right lung. Went for a lung biopsy and the nodule had shrunk by 90% so they don't think it is cancer. Have to go back in 4 months for another CT scan to be sure.
8/09 - CT scan normal, back to NED
4/10 - Follow up with surgeon - Still Cancer Free!
4/11 - Follow up with surgeon - Still Cancer Free!!
4/12 - Follow up with surgeon - Still Cancer Free!!!

Lost cousin/friend Kathi to SCLC (1957-2003)

Picture is of me with my cousin Kathi at her wedding in August 2003, four months before she passed away.

Thanks Jan...I posted some in the Scrapbook Forum already, I hope you don't mind!!

This song dedicated to Cancer Survivors just won the international songwriting competition for best song!!!

Scott Ledger sends his thanks to everyone who voted and to everyone who has helped this song in it's mission to inspire and raise awareness!!

Congratulations to Scott and Wideawake!!!!

2007 GRAND PRIZE WINNER
INTERNATIONAL SONGWRITING COMPETITION
Maybe Tonight, Maybe Tomorrow
Scott Leger
Austin, TX, USA

Upon learning of a friend’s cancer diagnosis,
Scott wrote this song both as a personal coping mechanism and
as a way to honor cancer survivors across the world.
According to Leger, the song is dedicated not only to his friend
but also to the millions of people affected by cancer.
His hope is that the song will encourage people everywhere
to live life to its fullest,
whether they are dealing with cancer or any other challenge.
The song was debuted at the
Lance Armstrong Foundation Gala
in front of a room full of VIP's
including former President Bill Clinton.
In addition to its lyrical content,
the song's memorable chorus and strong pop sensibility
resonated with the ISC judges,
culminating in it being awarded this year's Grand Prize.

I just heard it... absolutely amazing. Thank you so much for sharing it!

_________________
Saltn Peppa

David (58 years old)

09/06/06 – Visit family doctor complaining of strong upper left back pain and frequent night sweats. Sent for X-Rays. Results show a mass in the apex of the right lung. Referred to a Respirologist/Internist
09/14/06 – Ultrasound guided needle biopsy of the lung. Results will show Adenocarcinoma of the lung. CT scan will show a 4 – 5 cm mass in the right lung. No other areas appear compromised, except maybe for the rib the tumor is latched to. Appointment made with the surgeon for a lymph node biopsy. Appointment made for a bone scan.
09/20/06 – Bone scan. Results will come back ok.
10/06/06 – David goes under: Mediastinoscopy and bronchoscopy done. Results from biopsy will show lymph nodes clear, bronchia clear. The lung wall appears intact; the cancer has not spread outside of the lung. Treatment proposed: concurrent radiation/chemo therapy for 25 days. Daily radiation. Combination of Cis-Platin and VP-16. Type of tumor: Pancostal tumor.
10/31/06 – Blood work reveals acute anemia. Receives 2 units of blood and the doctor performs a bone marrow biopsy to ensure cancer has not spread to the bone. Results will come back clean.
11/13/06 to 12/18/06 – Radiation/chemo treatment. No major reactions to either except for hair loss, tiredness/complete lack of energy, alarming weight loss –went from 80kg to 65kg-
12/29/06 – CT scan, X-Rays. Results will come back showing a reduction of the size of the tumor from 5cm to approx 1.5cm. All other areas appear clean. Approved as a candidate for surgery.
1/22/07 – After gaining back 5 kilos, David goes under for his lobectomy. Surgery is a success; tumor appears well contained within the lung. All lymph nodes removed during surgery are clear.
2/27/07 - Starts “clean-upâ€

Wow! Great song! Neat video too! I will pass this one on!

Jen

_________________
[size=75]Loving Daughter, with three siblings, praying for a Dad with SCLC, superior vena cava syndrome.

3/16/06 DX Mass and/or adenopathy within the right hilum..consistent with bronchogenic carcinoma. May also be subcarinal adenopathy. Small right pleural effusion.
3/17/06 MRI head with/out contrast. Biopsi-lung, right middle lobe bronchus. Small Cell Carcinoma of the right lung with SVC syndrome
3/21/06 Bone scan. No evidence for skeletal metastases
3/21/06 Etoposide and Carboplatin chemotherapy (3 days)
4/12/06 Chest XRay - Obvious shrinking of tumor
4/12/06 Etoposide and Carboplatin (3 days)
5/2/06 CScan - again, obvious shrinking of tumor
5/5/06 Meet with Radiologist to determine radiology plan
5/9/06 Day one of Radiation
5/10/06 Chemo (?) (3 days)
6/4/06 In the middle of radiation, going EXTREMELY well, aside from sore eating, and tired, tired, tired. Dad is hopeful, sure that he is coughing up tumor every day, and spirited. Thank you God!
6/18/06 Went into local hospital for infusion. Chest X for possible pneumonia.
6/20/-6 Went to local hospital for infustion. DX with pneumonia in both lungs. O2 levels low, and irregular heart beat. He does not feel heart beating 140 and above. Meds for regulation not working. Made it to Mayo 6/25...back in the hands of the amazing!
6/29 Radiation Graduation! Dad is now home, and regaining strength every day. He is tired, tired, tired, but again, getting stronger every day. Will return to Mayo on 7/30 for all new tests.
7/30 "There is nothing in your noggin but a brain, Keith!" Amazing words to hear! "I would give your chest a clean bill."
8/1 "Keith, you are in remission." We don't consider a cure until you are clear for five years.
8/7 Began 15 rounds PCI brain radiation treatments. This was a difficult decision to make as we were given the side affects, and quite honestly it does sound scary. However, most all SCLC survivors appear to have some form of brain radiation at some time throughout their treatments. Dad figures that mom does the money books, organizes the meds, and keeps the house going already, so what the heck. "I don't want to die from cancer," he says!

August 25, 2006 Mom and Dad return after PCI. Dad feels great, has a tan, bald head, and got out onto the boat on day 1 of his return! Thank you God!

11/29/06 3 month Check Up...Still in remission. Lung scarring from radiation occuring. Dad feels great. Depression and low activity are going away!

2/25/07 Another check up shows no progression...however a slight pleural effusion that has grown since November. Could be one of three things...1. Infection 2. Scar Tissue 3. Cancer. Must go back to Mayo next week to have it drained and checked.

3/1/07 Drained pleural effusion yesterday. However, when they got in there, there wasn't enough fluid to drain and check...this means it probably wasn't cancer, and more than likely was the tail end of some kind of infection. She decides she wants him back in two months instead of three, just to be safe. Heart doc gives dad the clean bill of health. Go home, enjoy life!

5/11/07 Dad had a standard chest CT, which showed nothing new. He feels great and again was given a clean bill! Yeah! Doc will do a "big" check-up in August...complete with chest CT, bone scan, and brain scan...all because at that point he will be one year in remission! Yeah...I pray every day for these years to be granted!
8/21/07 Dad had a full body scan yesterday and results today were very "boring!" We LOVE boring. There was one nodule, in the lung area, that she could see, but it is smaller than small, and leaves no reason to be concerned. Dad will return for a check-up after Christmas. When mom said, "So, do we not need to be worried anymore" she answered with, "Your new normal will be that you are always worried." Yuck...but oh so true. Thank you God for the gift of healing, and may you continue with that wonderful gift. I pray in thanksgiving.

1/21/08 "I am going to call you my miracle man! Keith, I still don't see any evidence of cancer in your body." Wow! Blessed again!

5/19/08 "Keith there is no change. I see no evidence of any cancer." Wow! We are so blessed to be given another clean report. "Every day is a gift," my dad said. Isn't that the truth!

Sept. 08 Still Cancer Free

4/8/09 All evidence of the small cell is still gone. She believes Dad is cured. However, a dot on the CT almost a year ago has turned into an eraser sizes spot. This could just be a product of his recent bronchitis or could be when he breathed during the scan. She DOES NOT think we have anything to worry about. Scans will be in 3 months now, instead of 6 months...I am happy for that!

7/20/09 CT shows growth in spot on opposite lung than original cancer. They do not want to leave it alone. Will have PET and surgical consult next week with the hopes for simple removal.

8/2009 Removed spot. Biopsy showed trace of NSCLC. No SCLC found.

11/2009 All clear
3/2010 All clear
7/2010 All clear
11/2010 All clear. We really are so very blessed to continue to be cancer free. Thank you God.
8/23/11 - Still clear. Thank God!



Picture at left is my husband and I, October 2007. Below is Dad crossing the line during the survivor lap at the Relay. The other pic is just one of my faves!

[img]http://lchelp.org/picfiles/jen2.jpg[/img][img]http://lchelp.org/picfiles/ztweb3.jpg[/img]
[/size]

Wow!, I log on every day ------How did I miss this post! So glad I finally found it. Thanks so much for sharing.
Donna G

_________________
NSCLC, 4 cm Pancoast tumor, diag. 12/3/97 Cisplatin and VP 16, Radiation, R upper lobectomy, more Cisplatin and VP 16. Celebrating 16 yrs of survival ! Click here and read MY STORY

http://lungevity.org/l_community/viewtopic.php?f47&t=9092

Katie,

Just checked in after a long time absent - hadn't heard the song before. Still wearing my livestrong bracelet for Ada - going on four years since she has been gone. Hope all is well with you.

Jim

_________________
Ada, my wife and best friend for 32 years. Fought the good fight for 26 months. The bravest and most compassionate person I ever knew. I love you and miss you. Gone to heaven September 20, 2003.

Have been eyeballing this topic for a couple of days. I finally went in today and read the post but didn't copy the link and listen to the song. Hope it stays on the site for awhile because I'll get to it. It's just that I finally stopped crying (again) a couple of days ago. I feel good and am not ready to go there yet.

Judy in Key West

_________________
Cytology report on fluid removed from lung after pleural effusion and pneumonia Sep 07 showed adenocarcinoma cells. Dx IIIb NSCLC Oct '07 at MDACC, Orlando. Fol 6 rounds Taxol/Carboplatin/Avastin and 2 Avastin, CT/PET 4/1/08 pleural thickening gone and no active cancer cells. 11/3/08 STILL NEVD. CT/PET/MRI 5/4/09 Cancer back, still in the pleura and chest wall, small amt of fluid, all in left lung.
5/11/09 Start on Alimta every three weeks.
7/13/10 Had Alimta on road in Corning NY.
8/24/09 Scans show some improvement. Continue on Alimta.
9/14/09 Chemo on road in Mt Holly NJ.
10/6/09 Started regular Alimta infusions in Key West.
11/3/09 CT and PET scans showed significant improvement. Some issues already resolved.
2/3/2010 No evidence of residual or recurrent disease. NED! Stay on Alimta.
5/6/10 Am considering myself still NED until/unless proven otherwise in July. Rabid radiologist thinks he sees something suggestive of similar to some abdominal cancer. No light up on the PET. Am hoping for the best. Stay on Alimta and scan in 9 wks instead of 3 mos.
7/8/10 Chest CT unchanged (NED Feb '10). Infiltration in the region of the omentum is probably slightly more prominent than before. Diverticulosis requiring antibiotics.
Jul, Aug, Sep, continued Alimta in Corning NY, Portsmouth OH and Mt Holly NJ.
10/14/10 Chest CT unchanged from Feb '10. Findings likely representing progressive nodular peritonal carcinomatosis in the midabdomen. Treatment changed to Tarceva started in Nov.
12/15/10 Chest CT unchanged. Abdomen changes compatible with peritoneal carcinomatosis again identified with mild progression noted.
3/16/11 CT chest unchanged. CT abdomen progression ascites (fluid). Progression of soft tissues nodularity on the peritoneal surface anteriorly with diffuse omental involvement.
4/13-15/11 Hospitalized at MDA. Removed 4 1/2 litres (8-9 lbs) of fluid from abdomen 4/14. Started on taxotere before release on 4/15.
5/16/11 Hospitalized for fever, neutropenic. Treated with intravenous antibiotic and antiviral. Given blood transfusion. Note that KW Cancer Center did not give me my Neulasta shot after my chemo on May 6. Onc had me cancel my 5/26 chemo until after my scan on Jun 6. Was discharged on oxygen. Test w/Dr Gerth 5/26 indicated I could go off sitting and sleeping O. Will do walking test 6/2.
6/2 Did not get requisite numbers on walking test. Left for Orlando 6/5 still on oxygen.
6/6/11 MRI normal; CT stable. Taxotere and Neulasta at MDA 6/7 and 6/8.
6/13/11 Appointment with Dr Olham in KW. Off oxygen week of 6/16.
8/8/11 CT scan showed stable with perhaps some lessening of fluid. Stay on Taxotere.
10/10/11 CT chest still clear, CT abdominal lining stable. Stay on taxotere.
12/19/11 CT chest clear, CT abdominal lining stable, MRI clear. Stay on taxotere.

Hey Judy...
It's am empowering song too. Listen when your ready.
(((hug)))

_________________
- Katie Brown, Co-Founder and Director of LCSC-

15 yr cancer survivor.

"Any of us who have experienced the cancer journey- and survived it-
have an obligation to make the path clearer and aid those that come after us."
- Lance Armstrong

In memory of Jessee Dewey, SCLC
December 29, 1938 - September 6, 2003
Lisa Dewey- Jan. 22, 2007
my parents are together in heaven


facebook www.facebook.com/lungevity

Not that I needed anything to make me cry, but that sure helped flush the tear ducts. And appropriately enough for me to see this thread revived today, as I just finished signing up my team, Kelly's Posse (get it, my sister Kelly has a whole Posse behind her!) and of course signing myself up to ride in the 2008 Livestrong Challenge bike ride in Philly. Three of us rode last year and I'm aiming for a bigger team this year, as I think I have nephew and a couple nieces interested. It was a wonderful experience and definitely a real challenge!

Thanks for sharing the song and video, they are wonderful.

_________________
My sister Kelly was diagnosed with 3b NSCLC in May of 2007. A nodule on her adrenal gland has at times been thought to also be involved, but I, her surgeon, her radiation oncologist, and many oncologists I work with don't think it is. So we're going with that. She completed 5 rounds of carbo/taxol on a weekly schedule with concurrent radiation for 37 days. CT and PET showed nodes were clean but still residual activity in the tumor, which was reduced in size from 8x5 cm to 3x2cm. She attempted a lobectomy on 22 January 08 but the tumor resides a bit in the lower lobe in addition to the upper lobe, and the surgeon would not remove the entire left lung. She started Tarceva on 27 February 08. Her first scan showed decreased activity in the tumor and yet again, nothing new outside of that tumor. Her Dr. and I were actually kind of shocked! June '08 she had a total of 48 Gy of radiation via cyberknife. Her PET from 10 Sept '08 showed nothing new, the tumor size not really changed, but the SUV went down again, from 3.9 in May to 3.1, down from about 19 when this all started. She took a bit of a Tarceva holiday as we had some electrolyte issues due to not eating anything. She is currently back on it and taking 50 mg with tolerable toxicity. December '08 scan showed stable disease and yet again, less activity than before. April '09 scan actually said "area of hypermetabolic activity previously noted is not visualized today"! I could hardly believe my eyes and read it over and over. August and December '09 scans nearly identical! Now the June 2010 scan is just like the last ones - no uptake in the tumor, no new sites! Scan in January 2011 showed something on a rib on the contralateral side. Everyone in agreement that she broke a rib when she took a really bad fall a couple months ago. No one seems to think it is cancer, since the PET showed nothing in the lung or lymph nodes! Not moving to yearly scans yet though, so back in July! Our family really needed that good news as a month before we buried our 26 yr old nephew and are all still reeling from the shock and pain. July 2011 scan showed nothing new and she and the dr agreed to give her a drug break, so she went off Tarceva and so he wants to scan again in 3 months. There was a 3 mm nodule in the other lung and he didn't want to wait too long to scan given that and the no drug status. Scan in October of 2011 again showed nothing new, no growth, all is stable. The nodule in the other lung still listed as 2-3 mm. February 2012 scan was same as it ever was. :) Next scan is in August and she'll have gone one year without any treatment at that point. On May 19th it was 5 yrs from the day we heard she had lung cancer and we marked the occasion with a big party full of family and friends! She had a scan on Aug 24th and the results were more of the same, and marching orders from her oncologist that he doesn't need to see her for another year!

There is a very good quality recording of it here.

http://www.wideawake.com/www/wa_main.html

My daughter purchased it through the itunes link.

Just wanted to add that the proceeds benefit the Lance Armstrong Foundation.

_________________
Dad is 70 yrs old - was a light smoker for a few years and quit almost 40 years ago. He's also had diabetes for almost 40 years.

Jan 2007 - Visited ER with shortness of breath and mild chest/shoulder pain. X-rays showed spot on right lung.
Feb 2007 - Ultrasound, CT and PET scans show activity in lung and thyroid.
Feb 23 - Surgery to remove right middle lobe of lung. Diagnosed as NSCLC adenocarcinoma. Tumor invaded the visceral pleura and one of four lymph nodes examined was positive. Stage 2B or 3A. A rib was fractured during surgery for even more pain.
Mar 06 - Because of malignancy in lung, surgery to remove right lobe of thyroid. (Lit up on PET scan) Not cancerous!
Mar 22 - Meeting to discuss treatment. Starting chemo, Gemcitabine (Gemzar) and Cisplatin (Platinol) next week.
Mar 29 - Started chemo, day 1 and 8 with 15 days off. Plan is to do 4 cycles.
Apr 26 - Two cycles have been completed. Side effects have included hiccups, nausea, vomiting, and fatigue. Arm at infusion site became red and painful. White blood count was low - Neulasta injection given. Steroid anti-nausea medicine caused severe side effects.(extremely high blood sugar and mental turmoil)
May - Dad took chemo on the first day of cycle 3 and then decided he wanted to stop. Side-effects were too much. IVs were taking 1+ hours to get started each time. Fatigue, nausea, anxiety, blood sugar control problems,... Dr. had wanted at least 3, but prefered 4 cycles. *I'm a bit worried about this and wish he had tolerated the chemo better.
Jun 29 - CT scan was done. All clear!!
Oct 12 - CT scan; awaiting results. Check out clear.
March 14, 2008 CT scan; still clear!
2011-12 Elevated CEA; new (small) spots on lung. Keeping close watch.

They have that song on the livestrong site where you can make your own videos, with their pics/videos and your own pics and videos. I made one for our 2007 ride, though I didn't find it real user friendly, or else I really am that dumb. I plan to find a program that will give me more flexibility, including saving it as a video which I can't do from this program. And this year I have to be more aware of getting some good pics and some videos of my own, which I didn't last year.

The link was too long and this was the only way I could get it clickable.

http://tiny.cc/ONtUm

_________________
My sister Kelly was diagnosed with 3b NSCLC in May of 2007. A nodule on her adrenal gland has at times been thought to also be involved, but I, her surgeon, her radiation oncologist, and many oncologists I work with don't think it is. So we're going with that. She completed 5 rounds of carbo/taxol on a weekly schedule with concurrent radiation for 37 days. CT and PET showed nodes were clean but still residual activity in the tumor, which was reduced in size from 8x5 cm to 3x2cm. She attempted a lobectomy on 22 January 08 but the tumor resides a bit in the lower lobe in addition to the upper lobe, and the surgeon would not remove the entire left lung. She started Tarceva on 27 February 08. Her first scan showed decreased activity in the tumor and yet again, nothing new outside of that tumor. Her Dr. and I were actually kind of shocked! June '08 she had a total of 48 Gy of radiation via cyberknife. Her PET from 10 Sept '08 showed nothing new, the tumor size not really changed, but the SUV went down again, from 3.9 in May to 3.1, down from about 19 when this all started. She took a bit of a Tarceva holiday as we had some electrolyte issues due to not eating anything. She is currently back on it and taking 50 mg with tolerable toxicity. December '08 scan showed stable disease and yet again, less activity than before. April '09 scan actually said "area of hypermetabolic activity previously noted is not visualized today"! I could hardly believe my eyes and read it over and over. August and December '09 scans nearly identical! Now the June 2010 scan is just like the last ones - no uptake in the tumor, no new sites! Scan in January 2011 showed something on a rib on the contralateral side. Everyone in agreement that she broke a rib when she took a really bad fall a couple months ago. No one seems to think it is cancer, since the PET showed nothing in the lung or lymph nodes! Not moving to yearly scans yet though, so back in July! Our family really needed that good news as a month before we buried our 26 yr old nephew and are all still reeling from the shock and pain. July 2011 scan showed nothing new and she and the dr agreed to give her a drug break, so she went off Tarceva and so he wants to scan again in 3 months. There was a 3 mm nodule in the other lung and he didn't want to wait too long to scan given that and the no drug status. Scan in October of 2011 again showed nothing new, no growth, all is stable. The nodule in the other lung still listed as 2-3 mm. February 2012 scan was same as it ever was. :) Next scan is in August and she'll have gone one year without any treatment at that point. On May 19th it was 5 yrs from the day we heard she had lung cancer and we marked the occasion with a big party full of family and friends! She had a scan on Aug 24th and the results were more of the same, and marching orders from her oncologist that he doesn't need to see her for another year!

KatieB: Forgot to tell you I did listen a couple of days after your post. You are right, it is very inspiring. Beautiful, too.

Judy

_________________
Cytology report on fluid removed from lung after pleural effusion and pneumonia Sep 07 showed adenocarcinoma cells. Dx IIIb NSCLC Oct '07 at MDACC, Orlando. Fol 6 rounds Taxol/Carboplatin/Avastin and 2 Avastin, CT/PET 4/1/08 pleural thickening gone and no active cancer cells. 11/3/08 STILL NEVD. CT/PET/MRI 5/4/09 Cancer back, still in the pleura and chest wall, small amt of fluid, all in left lung.
5/11/09 Start on Alimta every three weeks.
7/13/10 Had Alimta on road in Corning NY.
8/24/09 Scans show some improvement. Continue on Alimta.
9/14/09 Chemo on road in Mt Holly NJ.
10/6/09 Started regular Alimta infusions in Key West.
11/3/09 CT and PET scans showed significant improvement. Some issues already resolved.
2/3/2010 No evidence of residual or recurrent disease. NED! Stay on Alimta.
5/6/10 Am considering myself still NED until/unless proven otherwise in July. Rabid radiologist thinks he sees something suggestive of similar to some abdominal cancer. No light up on the PET. Am hoping for the best. Stay on Alimta and scan in 9 wks instead of 3 mos.
7/8/10 Chest CT unchanged (NED Feb '10). Infiltration in the region of the omentum is probably slightly more prominent than before. Diverticulosis requiring antibiotics.
Jul, Aug, Sep, continued Alimta in Corning NY, Portsmouth OH and Mt Holly NJ.
10/14/10 Chest CT unchanged from Feb '10. Findings likely representing progressive nodular peritonal carcinomatosis in the midabdomen. Treatment changed to Tarceva started in Nov.
12/15/10 Chest CT unchanged. Abdomen changes compatible with peritoneal carcinomatosis again identified with mild progression noted.
3/16/11 CT chest unchanged. CT abdomen progression ascites (fluid). Progression of soft tissues nodularity on the peritoneal surface anteriorly with diffuse omental involvement.
4/13-15/11 Hospitalized at MDA. Removed 4 1/2 litres (8-9 lbs) of fluid from abdomen 4/14. Started on taxotere before release on 4/15.
5/16/11 Hospitalized for fever, neutropenic. Treated with intravenous antibiotic and antiviral. Given blood transfusion. Note that KW Cancer Center did not give me my Neulasta shot after my chemo on May 6. Onc had me cancel my 5/26 chemo until after my scan on Jun 6. Was discharged on oxygen. Test w/Dr Gerth 5/26 indicated I could go off sitting and sleeping O. Will do walking test 6/2.
6/2 Did not get requisite numbers on walking test. Left for Orlando 6/5 still on oxygen.
6/6/11 MRI normal; CT stable. Taxotere and Neulasta at MDA 6/7 and 6/8.
6/13/11 Appointment with Dr Olham in KW. Off oxygen week of 6/16.
8/8/11 CT scan showed stable with perhaps some lessening of fluid. Stay on Taxotere.
10/10/11 CT chest still clear, CT abdominal lining stable. Stay on taxotere.
12/19/11 CT chest clear, CT abdominal lining stable, MRI clear. Stay on taxotere.

Bump because I can and want to!! I feel strangely better today!

_________________
April/03 My Wife Deborah, age 46, diagnosed adenocarcinoma NSCLC
1/20/2006 Admitted to hospital Respiratory distress
1/23/2006 Ran to the light and is waiting for us to be rejoined in the Kingdom Of Heaven Her journey is Over but mine lingers on for Now!!!
4/23/07 DEb is joined in Peace by her Puppy Dawg Daisy from Cancer
8/30/07 Got new Pup named Mocha!!

"No matter hnow much it hurts, No matter how alone you feel, Your friends will help you get through anything!!"
Scrubs!!!!Yes the comedy show!!!

The Reason I advocate
If you would like to see our family photos Click on this link!
http://deborah-wallin.memory-of.com/

My memory-of Link is good to go now if you want to see it!!

Randy: I'm so glad you're feeling better today but feel bad I didn't know you weren't! Been away for infusion and got out of touch, but please, tell a newcomer the history of "bump." Inquiring minds want to know!

Judy in Key West

_________________
Cytology report on fluid removed from lung after pleural effusion and pneumonia Sep 07 showed adenocarcinoma cells. Dx IIIb NSCLC Oct '07 at MDACC, Orlando. Fol 6 rounds Taxol/Carboplatin/Avastin and 2 Avastin, CT/PET 4/1/08 pleural thickening gone and no active cancer cells. 11/3/08 STILL NEVD. CT/PET/MRI 5/4/09 Cancer back, still in the pleura and chest wall, small amt of fluid, all in left lung.
5/11/09 Start on Alimta every three weeks.
7/13/10 Had Alimta on road in Corning NY.
8/24/09 Scans show some improvement. Continue on Alimta.
9/14/09 Chemo on road in Mt Holly NJ.
10/6/09 Started regular Alimta infusions in Key West.
11/3/09 CT and PET scans showed significant improvement. Some issues already resolved.
2/3/2010 No evidence of residual or recurrent disease. NED! Stay on Alimta.
5/6/10 Am considering myself still NED until/unless proven otherwise in July. Rabid radiologist thinks he sees something suggestive of similar to some abdominal cancer. No light up on the PET. Am hoping for the best. Stay on Alimta and scan in 9 wks instead of 3 mos.
7/8/10 Chest CT unchanged (NED Feb '10). Infiltration in the region of the omentum is probably slightly more prominent than before. Diverticulosis requiring antibiotics.
Jul, Aug, Sep, continued Alimta in Corning NY, Portsmouth OH and Mt Holly NJ.
10/14/10 Chest CT unchanged from Feb '10. Findings likely representing progressive nodular peritonal carcinomatosis in the midabdomen. Treatment changed to Tarceva started in Nov.
12/15/10 Chest CT unchanged. Abdomen changes compatible with peritoneal carcinomatosis again identified with mild progression noted.
3/16/11 CT chest unchanged. CT abdomen progression ascites (fluid). Progression of soft tissues nodularity on the peritoneal surface anteriorly with diffuse omental involvement.
4/13-15/11 Hospitalized at MDA. Removed 4 1/2 litres (8-9 lbs) of fluid from abdomen 4/14. Started on taxotere before release on 4/15.
5/16/11 Hospitalized for fever, neutropenic. Treated with intravenous antibiotic and antiviral. Given blood transfusion. Note that KW Cancer Center did not give me my Neulasta shot after my chemo on May 6. Onc had me cancel my 5/26 chemo until after my scan on Jun 6. Was discharged on oxygen. Test w/Dr Gerth 5/26 indicated I could go off sitting and sleeping O. Will do walking test 6/2.
6/2 Did not get requisite numbers on walking test. Left for Orlando 6/5 still on oxygen.
6/6/11 MRI normal; CT stable. Taxotere and Neulasta at MDA 6/7 and 6/8.
6/13/11 Appointment with Dr Olham in KW. Off oxygen week of 6/16.
8/8/11 CT scan showed stable with perhaps some lessening of fluid. Stay on Taxotere.
10/10/11 CT chest still clear, CT abdominal lining stable. Stay on taxotere.
12/19/11 CT chest clear, CT abdominal lining stable, MRI clear. Stay on taxotere.

Very inspirational and moving. Thank you, as ever, Katie.

_________________
"Pain is temporary. Quitting lasts forever." Lance Armstrong

"Every moment is a breath-taking, transitory experience, never to be repeated again." - Don Juan Matus

Tiny
Age 58 at dx; lifelong non-smoker
12/01 dx NSCLC bronchoalveolar-type adenocarcinoma (BAC), Stage IIA
2/02 Lobectomy RLL; no chemo or rad
6/03 MRI = "empty"
3/05 Bone Scan = negative
2/08 CT = "No Evidence for Metastases or Recurrence"
Enjoyed 6+ years of NED
1/09 CT/PET:Recurrent disease: multiple new nodules in both lungs, mediastinal lymph nodes, and spot on liver.
2/3/09 Bone Scan: Degenerative arthritis (hooray!)
2/4/09 Started Tarceva
~~ picture: Temple of Poseidon, Greece 4/08 ~~

Katie, I want to let you know that after I read the posts concerning "Emotions...," my eye caught the tag at the top of the page.

The Livestrong tape now plays softly in my mind - just beautiful.

My favorite line, I am staring down the unknown, but one thing is certain.
You could break my body, but you will never break my soul.

Thank you, Katie, for all of your warm and caring ways,

Barbara

_________________
Bill died peacefully on March 25, 2010. He was very much loved, and will be sorely missed.

Link to "Bill's Story," and more detailed list of treatment regimens:

http://www.lungevity.org/l_community/viewtopic.php?t=37269

Photo: Barbara and Great Granddaughter KayMarie taken January 2010 at Rehab where Bill was gaining strength.

Katie thanks for sharing the UTube link and Barb for directing me back to it. It was a great way to start my morning--moving and inspirational.

Judy in Key West

_________________
Cytology report on fluid removed from lung after pleural effusion and pneumonia Sep 07 showed adenocarcinoma cells. Dx IIIb NSCLC Oct '07 at MDACC, Orlando. Fol 6 rounds Taxol/Carboplatin/Avastin and 2 Avastin, CT/PET 4/1/08 pleural thickening gone and no active cancer cells. 11/3/08 STILL NEVD. CT/PET/MRI 5/4/09 Cancer back, still in the pleura and chest wall, small amt of fluid, all in left lung.
5/11/09 Start on Alimta every three weeks.
7/13/10 Had Alimta on road in Corning NY.
8/24/09 Scans show some improvement. Continue on Alimta.
9/14/09 Chemo on road in Mt Holly NJ.
10/6/09 Started regular Alimta infusions in Key West.
11/3/09 CT and PET scans showed significant improvement. Some issues already resolved.
2/3/2010 No evidence of residual or recurrent disease. NED! Stay on Alimta.
5/6/10 Am considering myself still NED until/unless proven otherwise in July. Rabid radiologist thinks he sees something suggestive of similar to some abdominal cancer. No light up on the PET. Am hoping for the best. Stay on Alimta and scan in 9 wks instead of 3 mos.
7/8/10 Chest CT unchanged (NED Feb '10). Infiltration in the region of the omentum is probably slightly more prominent than before. Diverticulosis requiring antibiotics.
Jul, Aug, Sep, continued Alimta in Corning NY, Portsmouth OH and Mt Holly NJ.
10/14/10 Chest CT unchanged from Feb '10. Findings likely representing progressive nodular peritonal carcinomatosis in the midabdomen. Treatment changed to Tarceva started in Nov.
12/15/10 Chest CT unchanged. Abdomen changes compatible with peritoneal carcinomatosis again identified with mild progression noted.
3/16/11 CT chest unchanged. CT abdomen progression ascites (fluid). Progression of soft tissues nodularity on the peritoneal surface anteriorly with diffuse omental involvement.
4/13-15/11 Hospitalized at MDA. Removed 4 1/2 litres (8-9 lbs) of fluid from abdomen 4/14. Started on taxotere before release on 4/15.
5/16/11 Hospitalized for fever, neutropenic. Treated with intravenous antibiotic and antiviral. Given blood transfusion. Note that KW Cancer Center did not give me my Neulasta shot after my chemo on May 6. Onc had me cancel my 5/26 chemo until after my scan on Jun 6. Was discharged on oxygen. Test w/Dr Gerth 5/26 indicated I could go off sitting and sleeping O. Will do walking test 6/2.
6/2 Did not get requisite numbers on walking test. Left for Orlando 6/5 still on oxygen.
6/6/11 MRI normal; CT stable. Taxotere and Neulasta at MDA 6/7 and 6/8.
6/13/11 Appointment with Dr Olham in KW. Off oxygen week of 6/16.
8/8/11 CT scan showed stable with perhaps some lessening of fluid. Stay on Taxotere.
10/10/11 CT chest still clear, CT abdominal lining stable. Stay on taxotere.
12/19/11 CT chest clear, CT abdominal lining stable, MRI clear. Stay on taxotere.

Wow. What a song. Sure will bring tears to your eyes. Thanks.

_________________
Bruce
-------

03/03 CT Scan showed a 7 cm mass on left lung as well as a spot less than 1cm on 2 lymph nodes. Biopsy was done and was Dx with NSCLC Squamous Type.
03/03 Bone, PET, Pelvis and CT of Brain showed no Mets outside of Left Lung (except on the lymph nodes).Surgeon said he did not know if he could get it once he got in there. After 25 Radiation treaments and 5 weeks of Carbo/Taxol. Surgeon took another look at CT and was well pleased with results. I was never given a Stage
6/03 Complete Pneumonectomy of left lung.
CT and Chest x-ray ever 3 months (rotated each 3 months).
12/03 CT showed small cysts on liver. Onc is not worried about them.
3/04 CT shows cysts are the same. Also a hiatel hernia. Onc is very pleased with my progress.
12/04 to Present
Scans continue to show show NED.
11/05 PFT shows some improvement as compared to 12/04 PFT
1/06 Small nodule (1 mm) on right lung
5/06 Nodule is gone from CT
8/06 Still NED
12/06 Still NED
12/07 Still NED. Doctor says he will discharge me in 6 months if I remain clear
6/2008 Doctor released me and said he considers me cured
6/2009 Pneumonia. WBC elevated
7/2009 Dx with Chronic Leukemia (CLL)

This is beautiful!

I still love this song!!

_________________
Jan

46 years old at diagnosis
2/20/05 - ER CT scan for unrelated pain - detected small "mass" in upper left lung
2/28/05 - PETSCAN - confirmed mass in lung
3/21/05 - PFT - Normal
3/22/05 - CT Needle Biopsy - dx nsclc Stage 1a
4/6/05 - Bronchoscopy/Mediascopy - lymph nodes all clear
4/20/05 - Lobectomy (upper left lobe)- Still Stage 1A - lymph nodes clear
5/20/05 - Dr. says no chemo needed
8/22/05 - Follow up visit to surgeon - NED
12/23/05 - Follow up visit to surgeon - Still NED
4/25/06 - Follow up with surgeon - Still NED!!!!
11/10/06 - Follow up visit to surgeon - Still Cancer FREE
4/07 - Still Cancer Free!!
4/08 - Still Cancer Free!!
4/09 - Dr. found a nodule on left lung and many very small areas on right lung. Went for a lung biopsy and the nodule had shrunk by 90% so they don't think it is cancer. Have to go back in 4 months for another CT scan to be sure.
8/09 - CT scan normal, back to NED
4/10 - Follow up with surgeon - Still Cancer Free!
4/11 - Follow up with surgeon - Still Cancer Free!!
4/12 - Follow up with surgeon - Still Cancer Free!!!

Lost cousin/friend Kathi to SCLC (1957-2003)

Picture is of me with my cousin Kathi at her wedding in August 2003, four months before she passed away.