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PostPosted: Tue Nov 23, 2010 7:26 pm 
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Director of Support & Advocacy, LUNGevity
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Joined: Thu Jan 09, 2003 11:09 am
Posts: 14986
Location: Texas
Lori Hope, author of "Help Me Live: 20 Things People With Cancer Want You To Know," which Jimmie Holland, MD calls "superb," is compiling further confidential data from individuals with different forms of cancer by asking them to complete a survey. The survey has been reviewed by Stanford University's David Spiegel, MD and other respected experts.

Lori is looking to women and men with different forms of cancer to take the survey, but mens' responses are particularly welcomed since their response rate to date has been lower than women's.

If you are a person with cancer and are interested in participating in this survey, or if you are reading this e-mail and know anyone with cancer who would like to take the survey, please click on the link below (or copy and paste it in your browser). It will take 5 to 10 minutes to complete, depending on how much information survey takers choose to share, and responses are needed prior to December 13th.
Thanks very much for your interest and participation:

http://www.surveygizmo.com/s3/367413/Help-Me-Live

If you would also like to see what other authorities say about her book, please visit http://lorihope.com/?page=whatpeoplesaying. Lori Hope's other work has been featured in media worldwide, including Newsweek and the Oprah show, and she has spoken at dozens of conferences of the American Cancer Society and other professional and consumer organizations. Her tips have been offered in Time Magazine and the Wall Street Journal, and can be seen on her website, www.lorihope.com.


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PostPosted: Fri Nov 26, 2010 11:23 am 
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Joined: Fri Apr 02, 2010 10:49 am
Posts: 2004
Location: W. Michigan
Katie, I will take this survey, and I will forward this over to Gilda's Club to see if they will offer it to their patrons.

As always, thank you for helping the world hear our voices.

Judy in MI

_________________
6/07 DX NSCLC, Left Upper Lobe wedge resection: Stage 2.3/4, (2B?) Adenocarcinoma, measures 2.5x1.5x1.1cm. Involving visceral pleura but not through it. 5 rounds chemo, carboplatin and Taxol. Subsequent scans NED.

1/11 3.5 mm node found. 10/11 CT node now 8 mm, and new 6 mm node. 11/11 CT Pet shows slight uptake. 1/4/12 Biopsy - Pneumothorax complication. 1/14/12 Lobectomy of upper rt. lobe. NSCLC Adenocarcinoma in situ, nonmucinous (bronchioloalveolar carcinoma) 1.4cm involves pulmonary parenchyma.
3/14/12 Begin 4 cycles of Cisplatin/Navelbein, with Neulasta shot
4/6/12 Chemo changed to Carboplatin/Navelbine without Neulasta shot. Reduced chemo by 50% due to intolerance.
7/5/12 CT scan is clean, NED for lung cancer! There are issues with liver and stomach that will be investigated but not believed to be because of cancer. Wait and see!

*Avatar was taken 7/3/12 on our way out to see the Fireworks on a friends boat on their lake!

Mom dx SCLC 1/96, passed 10/19/96, age 62
Dad dx Brain cancer 4/87, passed 6/87, age 57
Sister dx Brain cancer 4/83, passed 12/83, age 25


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