I really appreciate you posting this "just for me" at this time. I went from a stage 1B to a stage IV ON 6/12/12 because of a large brain tumor. i kinda, sorta knew what that meant, but didn't have time to dwell on it - had to get that tumor out before it killed me, and I could feel myself slipping every single day. It is scary to be in recovery for a lobectomy and then, in a matter of days, lose the ability to dress oneself amongst other frightening things. Now, post craniotomy, i am still not moving well, in pain, losing vision, can't be left home alone, etc. And I am really doing remarkably well under the circumstances. I keep hearing that I am young (55) and healthy (no diabetes, kidney or heart disease) BUT I heard that first radiation onc. say that I am not curable. That we will focus on my quality of life from here on out, but no cure . . . really don't think my sweet husband heard that at all, and I kept my mouth shut. Now I have seen a second rad. onc, and he is saying the same thing, but there are some new developments that don't seem very good. I will have a PET scan on Mon. to see where else this cancer may have gone, then begin WBR on Tues, the same day that my stitches will come out of my head. When I heard the urgency to get the new scan and start the treatments asap I lost it for a bit, but my 34 yr old daughter was with me and I couldn't do that to her . . . my husband practically ran away at the news, it scares him so bad. I have not asked for a "timeline", yet. I have been given a mission from God to keep my eyes on Him and be an example for my family, living each day in faith and sharing my life and love with everyone i possibly can. I have been sick for a few years, but never knew what was wrong. Now we have some answers and even though they aren't what we expected, they are answers, and I have been wanting some of those. Miracles do happen everyday but i have come to see that there are miracles in the tiniest things, and I need to share and appreciate them. I believe that this is a learning experience for each of us and we will come out of it better people. If I have to have cancer I will do it in the best way possible. I will spend quality time with my family and friends, get my ducks in a row and live as healthy a life as I can under the circumstances. I have people all over the country praying for me, and they are praying for a cure, a healing, which I appreciate so very much, but all I want to do is truly LIVE each day and God is helping me do that. Today I loaded the dishwasher for the first time in a month - what a thrill! Hahaha! No joke, it was. The fact that I can even type is a miracle. This is a miracle for me just to be able to share with you. So I HOPE this peace from above keeps my Spirit lifted the way it has been since I heard Stage IV, and I HOPE that every cancer patient can rest assured that no matter what comes, they are being loved, comforted, prayed for and God is with them through it all. I also HOPE I can spread this feeling of peace, and maintain it in my heart as well. This is not easy but I am armed and doing all I can for each one of us.
Love you all, Dani
2/29/12 Sinus CT Scan
3/07/12 Scheduled surgery for blocked front sinuses for 3/12/12. Went to hosp. for pre-op tests.
3/08/12 Chest xray showed something new. Had a Chest CT scan done right away.
3/09/12 Spot on upper left lobe of lung. Cancel sinus surgery & go to pulmonary dr. Need to get PET scan done.
3/13/12 Golf ball size mass in lung. Probably cancer. 2 spots but one is small and from an old injury (been there for 3 or so years).
3/19/12 PET Scan
3/20/12 PET scan shows cancer in both spots. Need biopsy & surgery to remove part of lung.
3/23/12 Needle biopsy through back. Lung collapsed. Admitted to hosp. (in 8 days) Stopped smoking (DUH)
3/27/12 Biopsy results, family conference. Malignant adenocarcinoma, NSCLC. Curable with surgery. Not sure about small spot - will know after surgery & path reports.
4/03/12 Met w/thoracic surgeon. Need Pulmonary functon test. Not cardiologist though.
4/10/12 PFT & Lung Scans. Lobectomy surgery set for 4/23/12 w/Scheinin at Methodist.
4/20/12 Broke out in Shingles. Postpone surgery for a week.
4/30/12 Lobectomy - remove ULL. Methodist Hospital.
5/03/12 Atrial Fibulation common because of surgery. Heart monitor on. Having trouble w/pocket.
5/05/12 Home. Got path report - adenocarcinoma & squamous (small spot) both in ULL. Cancer free. Not in the lymph nodes. Staged at IB.
5/15/12 Follow-up w/Dr. Scheinin. Need oncologist for preventative care. Cancer is gone though.
5/23/12 Birthday & Bella's kindergarten graduation. Having trouble walking, balance, moving. Brain & body not meshing at all. Pain meds? Epidural after effects? Not sure this cancer is really gone.
6/06/12 Go to PCP to do neuro check up. Failed miserably. Using cane to walk. Alien left arm syndrome
6/11/12 Brain MRI at So. Loop Imaging
6/12/12 Go to PCP for MRI results. Baseball size (6cm x 4cm) tumor in brain. Moves me to Stage IV. Need neurosurgeon. Life threatening.
6/13/12 Met Medical oncologist. Says need brain surgery.
6/15/12 Neurosurgeon. Can't do surgery until 6/27 because of privileges at MH Mem City.
6/18/12 2nd opinion neurosurgeon. Can do surgery on 6/20/12 at St. Joseph's. Losing movement each day.
6/20/12 Image Guided Craniotomy, bilateral. (Right posterior Parietal Occipital lobe)
6/24/12 Home from St. Joe. Can't be left alone. Therapists & nurses to come over. Need Radiation.
6/26/12 Met w/ radiation onc. dr. Need WBR w/Boosts.
6/29/12 CT Scan at St. Joe because of bad headaches
7/02/12 Radiology Oncologist 2nd opinion. Said same thing as 1st but at MHNW.
7/06/12 Radiation simulation set-up.
7/09/12 PET Scan - No evidence of new tumors in rest of body.
7/10/12 Radiation begins. Stitches removed at Neurosurgeons. Left a piece of tumor in there. Too dangerous to take out? 10 treatments & 5 Boosts
7/27/12 Finished WBRT