Hi there! My mom had 6 months of topecatan and did not have any itching. She had mild symptoms, the worst of which was nausea and fatigue.
I hope you get some feedback from the onc this week. Good luck to you and your mom. You are in my prayers.
Mom was a 2 pack a day smoker. 65 years old. Persistent cough, stomach ache and back pain lead her a new doc..
Aug 2007- Lung x-ray shows large tumor on left lung.
Sept 07- attempt broncoscopy, but mom won't tolerate.
Needle biopsy is done to get lung sample. Lung collapses. Tests show it's small cell lung cancer, limited. Moms quits smoking. Mom is 65. Inoperable because it's on an artery. Lung was partly collapsed for a while!!.
Oct 07 starts concurrent radiation to lung and chemo. Cistplatin and episotope. 3 days on, 4 weeks off.
Side effects- low wbc. Needed shots to boost. Hair loss. Nausea, fatigue.
35 doses of radiation.
Nov 2007- Another round of cistplatin and epistope
Side effects-low wbc, fatigue and nausea. Mom's scalp seems burnt. Onc switches chemo to carboplatin.
Nov Ct Scan shows tumor shrunk 50%.
Dec 2007-Carboplatin and etoposide. Mom seems better with the new chemo. No infections, no hospitalization.
Wbc 2. CT scan finds no cancer. Mom goes camping!
Jan-March 2008- finish up chemo and Ct scan shows no cancer.
April 2008 PCI for 4 weeks (20 doses).
March 2008 ALL DONE!!
Mom tolerates all treatment well. Has some hearing loss due to PCI.
April 2008 Pet/Ct Scan confirms Complete responder.
(Mom celebrates by starting to smoke again.)
May- Mom was there to see the birth of my third child! Mom turns 68.
May/June 2008 Cough develops
July 08- Pet/CT Scan shows some cloudiness on left lung. (original problem spot) Onc thinks it's iradiation pneumoitis. prescribes steroids. Refers to Pulmonary doctor.
Pulmonary doctor thinks we need to do a broncoscopy to see if there is residual cancer cells. Says there is cloudiness and hypermetabolic activity. Mom refuses.
Aug 2008- Onc prescribes steroids to see if coughing symptoms go away.Also prescribes Lexapro for depression. Works good!
Oct 2008- Mom is still taking low dose steroids. Still coughs a little. Waiting for new CT scan in Dec. Halloween is one year since first chemo. Her hair is growing back nicely. Se is doing well.
Dec 2008- mom's CT scan showed a "shadow" on the original lung, in the same spot. Here we go again. Depression sets in big time.
Jan 2009- PET scan w/ contrast. Waiting on results.
Jan 22,2009 Broncoscopy. Results are negative.
July- Ct scan and Pet show some new activity. Needle biopsy to the lung show small cell.
July 16th, 2009 Mom starts new chemo -Topeketan . Once a week.
She feels sick and nauseated, no other side effects so far.
November 20th, 2009-Stopped taking chemo. Side effects include nausea, hair thinning, weight gain, muscle weakness.
CT scans shows no growth or shrinkage. Taking a break from chemo over the holidays.
Jan 2010-mom stops Topectan for three weeks. Has Pulmonary Embolism, admitted to hospial for three days. Blood thinners and leg filter inserted for futers clots.
Feb 2010- CT scan shows growth. Taxotere to start next week. happy Valentines Day.