My name is Nova and I was an every day visiter here a few years ago. You'll find the people here very helpful and kind.
I'm so sorry that your husband has been diagnosed with SCLC.
It's very scary in the beginning.
Thinking back, I'd say it's important that you have a doctor that is really willing to take the time to talk and explain everything to you. If you don't feel comfortable with him/her, don't be afraid to find another one.
I made the mistake of reading too much info on SCLC. It's good to be informed, but not to overwhelm yourself with too much, as every case is different, as are the side effects of the treatments, etc.
If there's anything at all I can help with, please let me know.
You're in my thoughts,
My Husband's battle with SCLC.....Picture is of Harry before diagnosis.....
January 07-Doctor ordered a Cat Scan due to cough and pain in ribs. Sent us to the Pulmonologist.
Late January- Biopsy taken. Results show SCLC, inoperable.
Sent to Moffit Cancer Center in Tampa.
End of January '07 -started first chemo treatment. Ended up in ER after about 5 days with dehydration.
Feb 23rd '07 - second round of chemo, ended up IN the hospital for 2 days with a bladder infection.
March-'07 Third round of chemo. Also started radiation twice a day, 5 days a week.
Harry is in the hospital with a very bad infection in his heart valve. On liquid diet now because radiation has burnt his esophagus.
May 11th, '07- new scan and MRI results were good. Cancer/tumor has shrunk about 60%. Head is still clear.
June 8th, '07
Harry started first infusion of Carboplatin.
June 15th, 07..... Harry is in the hospital again. Has an abscess on the wall of his intestines. He's lost 7 more pounds. Blood counts are terrible.
June 27th, 07
Harry remained in the hospital for 7 days, (once again).
He is now passing out when he stands. He's been put on a new medication to raise his BP a little, plus help him retain fluids. Hoping it works, because he's bruised and cut from falling.
July 26th, 07- New Cat Scan results show that the original tumor has grown, and there are also new areas involved near ribs and higher in the left lung.. Will start Taxol, to "control" growth.
MRI came out clean. Thank you, Lord.
Lung tumor has some shrinkage, but some new growth in different areas. Mixed bag of results.
2nd dose of Taxol given.
Cat scan results were fairly stable.
He will continue on the Taxol, another 4 rounds. Blood counts were good.
Harry had his last dose of Taxol. He won't get the 6th dose, due to numbness and tingling in his feet.
New scan done on Jan. 7th, '08
Shows Mets to liver in several spots. New tumor in lung, and more fluid.
Started Cpt-11 once a week.
Doctor mentioned Hospice. It was declined. Harry went fishing the next day. :O)
Harry now has Mets in his liver, ribs,shoulder, arm and more nodes.
He's on strong pain medication. Mostly sits in his chair and sleeps. His fighting spirit still remains, and he chooses to continue treatment.
April 8th, 08
Radiation doctor states that there isn't much more they can do. Harry has been given a "6 months or less" prognosis .
Harry has chosen to have Hospice involved. Says he's "kind of tired of sitting in doctor's offices".
I'm not sure yet how I feel about it , but it's his choice.
June 7th, 08
Harry passed away at 1:05 am, a few hours after being taken to the Hospice Care Center .
I miss him SO much. My heart is broken.