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 Post subject: me and mine
PostPosted: Sun Jun 08, 2008 6:47 pm 
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Joined: Fri Dec 28, 2007 6:32 pm
Posts: 4769
Location: Key West, FL
Dominick (grandson) and a visiting manatee in our canal.

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Ian and Logan in Nonnie's & PopPop's RV

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PopPop and his boys

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Nonnie and Dom fooling around

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P.S. Ned, you're a genius!

_________________
Cytology report on fluid removed from lung after pleural effusion and pneumonia Sep 07 showed adenocarcinoma cells. Dx IIIb NSCLC Oct '07 at MDACC, Orlando. Fol 6 rounds Taxol/Carboplatin/Avastin and 2 Avastin, CT/PET 4/1/08 pleural thickening gone and no active cancer cells. 11/3/08 STILL NEVD. CT/PET/MRI 5/4/09 Cancer back, still in the pleura and chest wall, small amt of fluid, all in left lung.
5/11/09 Start on Alimta every three weeks.
7/13/10 Had Alimta on road in Corning NY.
8/24/09 Scans show some improvement. Continue on Alimta.
9/14/09 Chemo on road in Mt Holly NJ.
10/6/09 Started regular Alimta infusions in Key West.
11/3/09 CT and PET scans showed significant improvement. Some issues already resolved.
2/3/2010 No evidence of residual or recurrent disease. NED! Stay on Alimta.
5/6/10 Am considering myself still NED until/unless proven otherwise in July. Rabid radiologist thinks he sees something suggestive of similar to some abdominal cancer. No light up on the PET. Am hoping for the best. Stay on Alimta and scan in 9 wks instead of 3 mos.
7/8/10 Chest CT unchanged (NED Feb '10). Infiltration in the region of the omentum is probably slightly more prominent than before. Diverticulosis requiring antibiotics.
Jul, Aug, Sep, continued Alimta in Corning NY, Portsmouth OH and Mt Holly NJ.
10/14/10 Chest CT unchanged from Feb '10. Findings likely representing progressive nodular peritonal carcinomatosis in the midabdomen. Treatment changed to Tarceva started in Nov.
12/15/10 Chest CT unchanged. Abdomen changes compatible with peritoneal carcinomatosis again identified with mild progression noted.
3/16/11 CT chest unchanged. CT abdomen progression ascites (fluid). Progression of soft tissues nodularity on the peritoneal surface anteriorly with diffuse omental involvement.
4/13-15/11 Hospitalized at MDA. Removed 4 1/2 litres (8-9 lbs) of fluid from abdomen 4/14. Started on taxotere before release on 4/15.
5/16/11 Hospitalized for fever, neutropenic. Treated with intravenous antibiotic and antiviral. Given blood transfusion. Note that KW Cancer Center did not give me my Neulasta shot after my chemo on May 6. Onc had me cancel my 5/26 chemo until after my scan on Jun 6. Was discharged on oxygen. Test w/Dr Gerth 5/26 indicated I could go off sitting and sleeping O. Will do walking test 6/2.
6/2 Did not get requisite numbers on walking test. Left for Orlando 6/5 still on oxygen.
6/6/11 MRI normal; CT stable. Taxotere and Neulasta at MDA 6/7 and 6/8.
6/13/11 Appointment with Dr Olham in KW. Off oxygen week of 6/16.
8/8/11 CT scan showed stable with perhaps some lessening of fluid. Stay on Taxotere.
10/10/11 CT chest still clear, CT abdominal lining stable. Stay on taxotere.
12/19/11 CT chest clear, CT abdominal lining stable, MRI clear. Stay on taxotere.


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 Post subject:
PostPosted: Sun Jun 08, 2008 9:48 pm 
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Director of Support & Advocacy, LUNGevity
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Joined: Thu Jan 09, 2003 11:09 am
Posts: 14986
Location: Texas
I love the pics and that manatee in your canal is the COOLEST!
xoxo

_________________
- Katie Brown, Co-Founder and Director of LCSC-

15 yr cancer survivor.

"Any of us who have experienced the cancer journey- and survived it-
have an obligation to make the path clearer and aid those that come after us."
- Lance Armstrong


In memory of Jessee Dewey, SCLC
December 29, 1938 - September 6, 2003
Lisa Dewey- Jan. 22, 2007

my parents are together in heaven
ImageImage

facebook www.facebook.com/lungevity


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 Post subject:
PostPosted: Mon Jun 09, 2008 8:55 am 
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MODERATOR
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Joined: Fri Sep 29, 2006 2:32 pm
Posts: 2158
Location: CT
A MANATEE!!!!

Also, the 65 was put on the cake backwards :lol:

_________________
Mom's timeline

[size=75]1996 - dx w/ Breastcancer
Bi lateral Mastechtomy. 17 lymphnodes removed and clear.
Aug 2006 - weakness and poor coordination in left hand and weak left leg.
Dr runs al types of blood tests.
Gets Nerologist appt for Mid OCTOBER!!
Sept 5 - Mom goes to ER to get tests done today. Multiple Brain lesions discovered
Sept 6 - Appt with GP who suspects breast or lung cancer
Sept 7 - Radio Onco wants to Radiate starting Sept 11, Mom begins taking Decadron
Sept 8 - Mom tells primary onco she is waiting until she knows everything before she treats.
September 9 & 10 a great weekend with mom and wife and mom's boyfriend. Mom makes eggplant parm!
Tues Sept 12 - Full body CAT shows Lung tumor with spots on liver and bones
Sept 14 - Pulminary dr walks through all cat scans with us. Shows the brain tumors...this was worse than I thought. Schedules lung Biopsy.
Sept 15 - Bone scan shows definite signs of lung cancer which had spread to the bones,
September 16 & 17 - Mom goes to Beach with my wife Keri and talks about being a parent. I build a railing for her to get up and down steps in the back yard for when she needs it. A fantastically fun weekend. Mom postpones biopsy. She says if she picks radiation, she'll do the biopsy then, because she'll already be in the hospital
Sept 22 Oncologiist is told mom will make a decision that weekend on treatment.
Sept 23-24 Mom decides to radiate but no chemo. Wants to treat the mind but chose to have her body go first. And then we got on with a great weekend and mom and Keri get there nails done and massages.
Sept 25 - mom gets mask for radiation done
Sept 26 - mom does radiation #1. Her word "piece of cake"
Sept 28 - My birthday, mom has a cake waiting for me, we brought her filet mignon. A great night.
Sept 29 - Oncologist says mom makes him laugh.
Oct 1 King crab legs for moms birthday, she's tired but enjoyed!
October 2 - Moms birthday, she is very weak and sleepy. But we spent it with her
Oct 3 - Mom is officially to tired to function. I tell her no more car. Tough conversation. But she agreed.
Oct 4 9:30 - Called mom, woke her up, told her I'd see her at 12:30 for appt.
Oct 4 12:30 - I arrive mom is confused and having trouble breathing.
Oct 4 5:30 - Mom is in Critical Care
Oct 5 7:00 - Sun shines on moms face during a sunrise one last time and she leaves us. Only 56 years old.

Today - we are not 100% and won't be tomorrow either. But notice, mom wasn't about focusing on the disease only, she was primarily about the good times!

2/25/08 Mom's granddaughter, Sophia Randilyn is born. Mom, I've already told her so much about you.[/size]

[img]http://www.freewebs.com/beansprouts2005/Nicksignature.jpg[/img]

2/11/11 Mom's grandson, Nicholas Thomas IV is born. We've already talked about how his Grammy would have just loved her little man.


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 Post subject:
PostPosted: Mon Jun 16, 2008 2:01 am 
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MODERATOR
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Joined: Sun Jun 15, 2008 2:48 am
Posts: 144
Location: St. Francisville, LA
Must be pretty cool having sea critters in the yard.


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