I am so glad to hear your doing so well for all you have been through. This isn't a cake walk that's for sure!!!
I knew of a couple people that had a pancoast tumor, but I'm sorry to say, they are no longer with us. This was a few years ago though. Another lung cancer that is not all that common is BAC (Bronchial Alveolar Cancer), this is a form of Adenocarcinoma, and not easy to treat either. Little is known about BAC like Pancoast Tumors.
I had my left lung removed, along with two ribs, and two cancerous lymph nodes and a few extra's to be on the safe side 7+ years ago. I still have numbness in that area and from what I am told I will forever!!! (small price to pay to be here)!
I agree with you as well, that you wouldn't know to look at me that I was a lung cancer survivor of Stage IIIA-B.
I hope you will find some information here that might help you and if not, I know you'll find a lot of wonderful people that will be very supportive and understanding to your concerns.
Warm and Gentle Hugs,
Warm and Gentle Hugs,
Date Dx.d, 7/21/1995, Age 43, Adenocarcinoma, Stage IIIB, had 3.4cm tumor and three cancerous lymph nodes.
7/25/1995 had Left Lung Removed along with several lymph nodes.
9/9/95 Started Chemo (VP-16/Cisplatin), & Radiation (36 treatments). Cancer Free.
8/11/2003 CT Scan found 4mm Nodule Right Upper Lung. Did PET scan & Nodule Lite up. Also found a Tumor in my Left Atrium (Heart)
8/21/03 Open Heart Sugery for Myxoma Tumor in Left Atrium. During heart surgery (3) surgeons checked 4mm nodule & agreed it did not appear to be cancerous.
11/2004-CT & PET scan, nodule still there 6mm will watch.
4/2005-CT, Nodule still there and has grown to 8mm will do another CT in 9/2005. Waiting & watching nodule.
9/2005 CT Nodule has shrunk to 5mm. Doctor's feel nodule could be scar tissue.
2/2006 Having Shortness of Breath problems.
4/2006 CT, nodule 5mm No Change.
11/2006 CT scan no change in Nodule.
4/26/07 Results of CT scan shows I have another Noudule. Now have two nodules, one is 6-7mm & the new one is about 3mm.
9/2007 CT shows 3 nodules all mm in size. First 2 have no change in them. New one is very small. Repeat CT in 6 months.
12/11/07 Still NED
5/7/08 CT (right lung) (nodules watch) two new nodules I now have 5 nodules. Will watch via CT scans.
10/08 CT Scan showed 1 nodule 6mm has grown to 1.2cm.
5/22/09 CT Scan (awaiting results)
7/4/09 PET Scan (3 nodules in left lung are now 1.4c.m in sizes.
8/13/09 Did Bronhcoscopy
8/18/09 NOT Cancer, no cancer found.
Next PET Scan Oct 2009.
READ MY STORY @ http://www.lungevity.org/l_community/vi ... hp?t=13224
Lost my Father age 56(1970), Mother age 66 (1987), and Sister age 43 (1988) all to Lung Cancer
AVATAR is in Iowa @ the Presidential Cancer Forum