wf; well, Im 10 months out from surg...pain is down to mostly just discomfort now....I just found out I can ride the lawnmower, if only about half speed. hehe. Still not able to do much tho, beyond lifting a half-gallon of milk, upper bod is easily aggravated by heavy lifting, work. Durn rib cage muscles are involved in every movement, it seems...even walking to some degree. Also, run outa breath soon as I exert a little. (Like carry the groceries up the stairs.) Guess its gonna take me more time to get back to any projects...sigh. Just getting to sleep in bed, on my sides a little, the last month or so too.
Debi; Yea, my surg. cut me off the narco pain pills about same as you, but I was still in pain, so I asked onc. at first visit..he doled em out freely, said addiction was a myth really, but some docs are nervous about it, I guess. Anyway, pain eventually decreased, about 5mos. out, and I didnt miss the pills at all, long as I didnt need em. (And I didnt enjoy the constipation much. hehe) I keep a little darvocet around..(not narco), for mostly my back pain days...but dont use much. Dunno...all docs and peeps are diff., I guess...but Im addicted to nicotine still...so not like Im not a "personality". hehe. Anyway, ...good luck to us all...Rich B.
06/28...Broncoscopy Mon....suspicious mass in left lung per ct scan...wish me luck...much anxiety, and yes, fear.
06/30...Needle biopsy, due to bronch. being inconclusive
07/02...dx is adenocarcinmoma...NSCLC
07/15...Surgery, entire left lung removed, No lymph node involvement or metasis yet discovered, so...hopeful prognosis
07/21 Home after sufficient recovery in hosp., slow recuperation, awaiting appt. with oncologist to determine if any additional treatment, screening, etc..
08/17/04 Oncologist appt....recomends more scans, CT bone, MRI, Pet etc. Also recomends one round of chemo...
9/17/o4 Good news, scans are all clear..NO evidence of disease detected...hopeful it remains that way. Remaining cautious tho, one more MRI to go and some adjuvant chemo....so waiting, healing, still doing med. appts for awhile. Then regular xrays ea. 3 mos.
Whoops...detour, the MRI/spine turned up a small lesion of unknown type. Off to the orthopedic specs. to investigate, get options. Chemo delayed briefly pending opinion from ortho guys.
Opinion is "not cancer" on spine...apparently just my arthritic joints...so, becomes a pain management issue..appt. made. On to adjuvant chemo on Monday. Finally.
Mon./10/27...o4 started adjuvant chemo finally; Taxotere first , then Cisplatin, I think...fatigued knocked me flat the 3rd day after...dozing, trying to catch my breath every time I move...sigh
Fri...emergency room, oxygen...Pneumonia-like inflammation of remaining lung...week of IV antibios and steroids...finally recovering, but...chemo ceased...end of that notion. Bad react. to taxotere. Now on to just screening scans for future. Continuing pain management consultations for back and surg. pain.
10/10/05 CT and PET scans; NED, clear, normal..1yr. out from treatment...cool.
2 yr. scans clear...wheww! SOB and easily fatigued tho, continues. Perm. I guess.