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PostPosted: Mon Jun 13, 2005 3:31 pm 
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Over 100 Posts!

Joined: Wed Feb 23, 2005 9:18 am
Posts: 134
Location: Pennsylvania
I had a lower right lobectomy in April of this year and I too have(not sure though when I read the definition of acid reflux) stomach problems. My interpetation of acid reflux is the esophagus area and not the stomach??? My problem is the stomach. No constipation either. Feels upset all the time. I can eat ok but not as much as I used to. Dr has me on Nexium for about a week now and still no change??
He didn't seem to concerned since I do not have to see him until July 5. I actually forgot to ask him if he thought it could be from the surgery but my stomach was fine before the surgery.

Anyone else experience this problem??

Bill in PA

_________________
2/15/2005 Routine Cat Scan
2/17/2005 Dr Called....small nodule lower right lung (2.5 cm)
2/22/2005 PET SCAN
3/01/2005 Pulmonologist confirmed it is LC
3/07/2005 Bronchoscopy/Biopsy
3/10/2005 Inconclusive...could not get enough due to bleeding. Will try and schedule the needle biopsy early next week.
3/11/2005 Bone Scan
3/14/2005 Pulmonary Function Tests
Brain Scan (MRI)
3/18/2005 Needle Biopsy completed today. No problems. Got enough tissue for analysis.
3/22/2005 Call from Dr this morning. Stage 1a or 1b, no mets. Will schedule surgery within the next two weeks.
3/29/2005 Met with surgeon at Fox Chase in Philadelphia. He thinks nodule may be somewhat bigger than originally diagnosed. Surgery scheduled for 4/14/04 with possible chemo afterwards. Won't know until surgery is completed. Very scared and nervous.
04/14/05 Surgery cancelled. AGHHHH. Surgeon's father stricken ill and he had to cancel his surgeries for the week.. Re-scheduled for Wed April 20th...Agony is unbearable. This is my second setback. Just want it out and hopefully a clean report..
4/20/05 Surgery completed. Right lower lobectomy. Surgeon said he took a 'bunch' of lymph nodes. Released from hospital after 6 day stay.
4/28/05 Call from surgeon today. Good News...no lymph node involvement, tumor very small, staged 1a. Surgeon sees no need for follow up chemo or radiation. Thank GOD...these last 1.5 months have been the worst of my entire life.
4/28/05 Recovering at home for 6-8 weeks.
5/10/2005 Follow up surgeon visit. Everything good. Schedule chest x-ray every three months and cat scan every six months. Thank God and all the good people on this site.
10/19/2005 Follow up Chest X-ray. Everything good.
4/18/2006 First CatScan since surgery one year ago on 4/20/05. Dr called...stable and no change. WHAT A RELIEF.
Octoer 2006...chest x-ray...stable.
May 2007 two year cat scan; Stable/NED

Bill in PA


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 Post subject: acid reflux follow up
PostPosted: Mon Jun 13, 2005 6:12 pm 
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Over 100 Posts!

Joined: Wed Feb 23, 2005 9:18 am
Posts: 134
Location: Pennsylvania
Kasy, if you read this you owe me a PM???????

_________________
2/15/2005 Routine Cat Scan
2/17/2005 Dr Called....small nodule lower right lung (2.5 cm)
2/22/2005 PET SCAN
3/01/2005 Pulmonologist confirmed it is LC
3/07/2005 Bronchoscopy/Biopsy
3/10/2005 Inconclusive...could not get enough due to bleeding. Will try and schedule the needle biopsy early next week.
3/11/2005 Bone Scan
3/14/2005 Pulmonary Function Tests
Brain Scan (MRI)
3/18/2005 Needle Biopsy completed today. No problems. Got enough tissue for analysis.
3/22/2005 Call from Dr this morning. Stage 1a or 1b, no mets. Will schedule surgery within the next two weeks.
3/29/2005 Met with surgeon at Fox Chase in Philadelphia. He thinks nodule may be somewhat bigger than originally diagnosed. Surgery scheduled for 4/14/04 with possible chemo afterwards. Won't know until surgery is completed. Very scared and nervous.
04/14/05 Surgery cancelled. AGHHHH. Surgeon's father stricken ill and he had to cancel his surgeries for the week.. Re-scheduled for Wed April 20th...Agony is unbearable. This is my second setback. Just want it out and hopefully a clean report..
4/20/05 Surgery completed. Right lower lobectomy. Surgeon said he took a 'bunch' of lymph nodes. Released from hospital after 6 day stay.
4/28/05 Call from surgeon today. Good News...no lymph node involvement, tumor very small, staged 1a. Surgeon sees no need for follow up chemo or radiation. Thank GOD...these last 1.5 months have been the worst of my entire life.
4/28/05 Recovering at home for 6-8 weeks.
5/10/2005 Follow up surgeon visit. Everything good. Schedule chest x-ray every three months and cat scan every six months. Thank God and all the good people on this site.
10/19/2005 Follow up Chest X-ray. Everything good.
4/18/2006 First CatScan since surgery one year ago on 4/20/05. Dr called...stable and no change. WHAT A RELIEF.
Octoer 2006...chest x-ray...stable.
May 2007 two year cat scan; Stable/NED

Bill in PA


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 Post subject:
PostPosted: Mon Jun 13, 2005 7:55 pm 
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Joined: Tue Oct 21, 2003 8:31 pm
Posts: 4668
Location: VALENCIA,PA.
Bill,I had my left lung removed in 06/03 and I have had trouble with reflux ever since.

I take medicine for it but it is still bothersome even after this long.

_________________
dianosed 04/29/2003 nsclc***left lung removed 06/18/2003***two checkups NED *** cancer back 10/10/03 mets to right lung *** 7 rounds chemo carboplatin & taxol at same time with 7 weeks of daily radiation***01/04/04 shrinkage***04/04/ still stable***07/04/04 stable***10/04/04 no change***03/04/05 cancer spread to windpipe blocking 80% of airway and also bottom r. lung and stump where l.lung was removed***03/24/05 had laser surgery to open windpipe & stent put in***03/24/05 chemo and radiation again same type and amount***07/20/05 tumors shrunk but not gone and new tumor in top r.lung***remaining lung in bad shape with lots of scar tissue***10/20/05 no evidence of more spreading***01/31/2006 scans stable***03/13/06 increased cancer in middle of chest and airway***06/22/06 no change***06/05/06 prostate trouble and catheter from 06/06/06 until 09/14/06 when surgery on prostate (no cancer)***10/08/06 spread again 3.5cm tumor on brain and 6.5 cm tumor back in middle of chest again***have done 14 WBR tx's and waiting for 1 x-knife tx upcoming***more chemo upcoming***12/20/06 no more chemo or radiation to chest area***placed on pallitive care***they will do as possible as anything arises***follow up mri in late january for brain tumors***also may need stent in esophogus for severe reflux and restricted size of esophogus***only two options left,treat and be very ill with almost no chance of getting or feeling better or maintain maximum quality of life as long as possible and be treated for comfort as problems occur.I am at the stage of this where I CHOOSE QUALITY.

I have a great wife,3 daughters and son-in-laws,5 grand daughters,1 grandson,and 1 great grand son.My goal in life is my 100th birthday as it always has been.

----------------------------------

picture is of me and my great grand son.
Image


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PostPosted: Tue Sep 20, 2005 10:39 pm 
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Joined: Tue Sep 20, 2005 10:22 pm
Posts: 6
Location: Florida
Hi all - this sounds very close to what my Dad is experiencing after a left pneumonectomy. He always liked fine food before the surgery, but most days since he has had what he terms "no appetite". He says he just can't taste food at all, or it tastes bad to him. Certain foods sound good to him, but he tries to eat and there's no taste (or bad taste) and no enjoyment so he is hardly eating anything, which zaps him of energy, and he is discouraged at his slow progress. Doctor prescribed Remerol to stimulate appetite, but that's an anti-depressant (!!) causing a lot of wacky problems for him, though doesn't appear connected to the appetite. Does that sound familiar to those of you with acid reflux? We are looking for the root of the problem so it can be adequately treated, and so far the doctors don't seem to investigate much before they start prescribing. My Dad is 81, but very active before surgery, walking 18 holes of par-3 golf at least twice a week. O2 saturation levels are great, and doctors are impressed with the "numbers". Thanks a million - I'm glad I found you!


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 Post subject: acid reflux
PostPosted: Wed Sep 21, 2005 6:06 am 
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Over 100 Posts!

Joined: Wed Feb 23, 2005 9:18 am
Posts: 134
Location: Pennsylvania
I had some problems eating when I had the acid reflux and stomach problems all the time. It lasted at least two months. Dr put me on the Little Purple Pill (NEXIUM) and it worked after about four weeks.
It is now 5 months since my surgery and I can eat anything and it all tastes good.

_________________
2/15/2005 Routine Cat Scan
2/17/2005 Dr Called....small nodule lower right lung (2.5 cm)
2/22/2005 PET SCAN
3/01/2005 Pulmonologist confirmed it is LC
3/07/2005 Bronchoscopy/Biopsy
3/10/2005 Inconclusive...could not get enough due to bleeding. Will try and schedule the needle biopsy early next week.
3/11/2005 Bone Scan
3/14/2005 Pulmonary Function Tests
Brain Scan (MRI)
3/18/2005 Needle Biopsy completed today. No problems. Got enough tissue for analysis.
3/22/2005 Call from Dr this morning. Stage 1a or 1b, no mets. Will schedule surgery within the next two weeks.
3/29/2005 Met with surgeon at Fox Chase in Philadelphia. He thinks nodule may be somewhat bigger than originally diagnosed. Surgery scheduled for 4/14/04 with possible chemo afterwards. Won't know until surgery is completed. Very scared and nervous.
04/14/05 Surgery cancelled. AGHHHH. Surgeon's father stricken ill and he had to cancel his surgeries for the week.. Re-scheduled for Wed April 20th...Agony is unbearable. This is my second setback. Just want it out and hopefully a clean report..
4/20/05 Surgery completed. Right lower lobectomy. Surgeon said he took a 'bunch' of lymph nodes. Released from hospital after 6 day stay.
4/28/05 Call from surgeon today. Good News...no lymph node involvement, tumor very small, staged 1a. Surgeon sees no need for follow up chemo or radiation. Thank GOD...these last 1.5 months have been the worst of my entire life.
4/28/05 Recovering at home for 6-8 weeks.
5/10/2005 Follow up surgeon visit. Everything good. Schedule chest x-ray every three months and cat scan every six months. Thank God and all the good people on this site.
10/19/2005 Follow up Chest X-ray. Everything good.
4/18/2006 First CatScan since surgery one year ago on 4/20/05. Dr called...stable and no change. WHAT A RELIEF.
Octoer 2006...chest x-ray...stable.
May 2007 two year cat scan; Stable/NED

Bill in PA


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 Post subject:
PostPosted: Wed Sep 21, 2005 8:33 am 
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Legacy Member

Joined: Sun Mar 14, 2004 7:44 pm
Posts: 4713
jnikiel..

doesn't really sound like acid reflux to me at all. It does sound like depression. I don't know anything about the drug that they have your dad on. Besides his appetite, is he showing any other signs of depression? Sleep disturbances ...too much or too little? Hopelessness. Withdrawl from normal activities?

Sometimes it takes awhile for the med to kick in. Some meds have too many adverse side effects that cannot be tolerated. Hope you find the answers you need. He does need to eat!

Take care! Glad you found us!

Cindi o'h

_________________
Cindi NSCLC lllB Dx:11/02 at age 47
squamous cell carcinoma. T4N3M0 poorly differentiated (grade 3)

Aggressive, Curative Treatment:
Chemo (carboplatin/taxol weekly) and 8 weeks of daily radiation.
then taxotere 3 cycles
tx ended 6/03

NED every 3 months
Moderate Asthma
11/03 heart attack and stent
transient pleural/pericardial effusions
hypothyroidism
significant radiation pneumonitis
1/05 pneumonia
interstitial fibrosis
9/05 pleurodesis (talc procedure)VATS procedure to resolve chylothorax and effusions. Now loculated effusions.
ll/05 PET/CT clear/NED
10/06 CT Clear again!
12/06 heart/lung troubles
Biggest problem remains shortness of breath. (SOB)


Celebrating FOUR years since diagnosis: 11/02
2 brothers lost to lung Ca. Dick died at 37 from nsclc. John died at 42 from sclc


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 Post subject:
PostPosted: Wed Sep 21, 2005 11:37 pm 
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Joined: Tue Sep 20, 2005 10:22 pm
Posts: 6
Location: Florida
Thanks, Cindi -- he doesn't seem hopeless, just discouraged. He doesn't talk about giving up, just that he wants to get better quicker. The more we get him doing everyday activities like he used to (writing checks to pay the bills, watching a football game, keeping notes about his progress), the less depressed he seems to me. He still jokes around in a good way, so hopefully he'll keep improving, though somewhat slowly.

Thanks again for replying!


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