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PostPosted: Mon Jun 25, 2007 4:57 pm 
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Joined: Sat Jan 08, 2005 8:13 pm
Posts: 6760
Location: Voorhees, NJ (near Philly)
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In this email:

---FREE educational video on clinical trials now available
---FREE educational booklet for newly diagnosed lung cancer patients now available
---New members area active on our website
---New Ask the Expert lung cancer blog on our website, provided by OncTalk
---Upcoming events – Save the dates!
---New NIH grant announcements
---National Lung Cancer Partnership travel & research grants available

Dear National Lung Cancer Partnership Supporters,

Our Annual Meeting, Controversies in Lung Cancer Screening, Therapy, and Advocacy, in Chicago, IL was a huge success, with nearly 300 people attending. There were great discussions about screening, advocacy, and research. At the meeting, we unveiled our new clinical trials educational DVD and booklet for lung cancer patients as well as the Members Area on our website. We hope you will take advantage of the following highlighted resources and events.

New Video Chronicles Lung Cancer Patients’ Experiences with Clinical Trials
Stories of Strength: Making the Decision to Enter a Lung Cancer Clinical Trial, produced by the National Lung Cancer Partnership, explains the clinical trials process through the eyes of patients who have participated in medical research. Four lung cancer patients discuss their initial apprehensions about joining a trial and how their actual experiences dispelled the myths surrounding participation. Dr. Joan Schiller and Dr. David Carbone, two noted thoracic oncologists, explain the structure of the phases of clinical trials and discuss the pros and cons of adding a clinical trial to patients’ treatment options. To order a copy of the DVD or to view the video on our website please visit: http://www.nationallungcancerpartnershi ... fm?l=Video

New Booklet Answers Basic Questions about Lung Cancer
Living with a Diagnosis of Lung Cancer is a 40-page booklet produced by the National Lung Cancer Partnership for newly diagnosed patients. Topics include standard treatment options for lung cancer; a description of the different members of the cancer care team; an overview of the clinical trials process and how participation expands treatment options for the patient; and how to maintain hope in the face of a lung cancer diagnosis. In addition to its message of hope, the booklet includes a place for tracking treatment progress and taking notes, space to collect business cards of healthcare providers, and additional pockets for keeping hospital orders and other important papers. To order a copy of the booklet, to download it as a PDF, or to browse a dynamic version on our website, please visit: http://www.nationallungcancerpartnershi ... ?l=Booklet

Members Area is Now Online
We are pleased to announce the availability of our Members Area online! Those who join the National Lung Cancer Partnership as members now have access to password-protected information, including a membership directory (listing your information is optional), a library of biomedical articles, and slide sets. Are you interested in becoming a member? Have you let your membership dues lapse? You can now become a member and renew your membership online! Scroll to the bottom of http://www.nationallungcancerpartnership.org/main.cfm and look to the left-hand side to access the Members Area.

New Partnership with OncTalk.com
Dr. Jack West, a medical oncologist, mediates a blog of lung cancer-specific information, and has graciously allowed access to his key expert opinions of what the latest information really means to lung cancer patients via the National Lung Cancer Partnership website. To “Ask the Expert” your questions about lung cancer treatment and care, visit: http://www.nationallungcancerpartnershi ... =AskExpert

Roseann’s Gift Charity Event – September 18 – Save the Date!
Raising money for lung cancer research has never been so much fun! Join us – with Christy Turlington Burns as a special guest - at a cocktail party at the Manhattan Penthouse, 80 Fifth Avenue, New York, NY on September 18. For more information, to volunteer, or to donate, please contact Kellie Safar Lerner at KLerner@labaton.com.

Save the Dates for our Free to BreatheTM Run/Walk Events!
For more information, to register, or to donate, please visit the Free to Breathe website: http://www.freetobreathe.org
Glastonbury, CT – September 23 (Organized by family and friends of Beth Kenny Foretic)
Raleigh, NC – November 3 (Organized by the North Carolinians Against Lung Cancer)
Philadelphia, PA – November 4
Los Angeles, CA – November 11

New NIH Grant Opportunities
The NIH Office of Research on Women’s Health (ORWH) has recently published two Program Announcements, Advancing Novel Science in Women’s Health Research (ANSWHR) using the R21 and R03 funding mechanisms:


Advancing Novel Science in Women’s Health Research (ANSWHR) [R21] PAS-07-381, http://grants1.nih.gov/grants/guide/pa- ... 7-381.html



Advancing Novel Science in Women’s Health Research (ANSWHR) [R03] PAS-07-382, http://grants1.nih.gov/grants/guide/pa- ... 7-382.html


Purpose - to promote innovative, interdisciplinary research that will advance new concepts in women’s health research and the study of sex/gender differences. Recent research reports have established the importance of studying issues specific to women, including the scientific and clinical importance of analyzing data separately for females and males. ORWH is particularly interested in encouraging extramural investigators to undertake new interdisciplinary research to advance studies on how sex and gender factors affect women's health; however, applications in all areas of women’s health and/or sex/gender research are invited.


And, for lung cancer professionals, don’t forget that we are offering travel grants to the World Conference on Lung Cancer in Seoul (applications due July 2, 2007), and lung cancer Research Grants & Career Development Awards (applications due September 4, 2007). Information on how to apply for these grants and awards is available on our website at http://www.NationalLungCancerPartnership.org

Sincerely,

Joan Schiller, MD
President, National Lung Cancer Partnership

Chief, Division of Hematology and Oncology
Deputy Director of Simmons Comprehensive Cancer Center
Andrea L. Simmons Distinguished Chair in Cancer Research
University of Texas Southwestern Medical Center

_________________
"Life is not measured by the number of breaths we take...but by the moments that takes our breath away"
[size=75]
Husband Joel, 58 dx 10/18/04 Smoker since age 15 stopped when diagnosed
Adenocarcinoma- stage 1B
Lobectomy Left upper lobe on 12/15/04
biopsy on lymph nodes - negative NED
1/13/04 Oncologist appt.to see about preventive Chemo.
Cancelled due to chronic fatigue
1/12 fentynal patch for pain
1/14 discontinued Fentynal patch bad reaction
1/15 Blood test showed high T levels
2/1 Endoconrinologist visit diagnosed over-active thyroid
2/8/05 took Radioactive Iodine to kill thyroid
2/16/05 appetite back, fatigue leaving
2/24/05 visit with Pulmonary Doc. Breathing at 96% capacity,
Next visit 3 mos.
3/9/05 Endocrinologist visit -T levels went from 25 down to 5.
3/30 started Synthoid(thyroid med)
3/31 Oncologist. appt. CT results NED...
4/14 starting adjunctive Chemo (carbo/taxol) 4 treatments
3 weeks apart.
6/15/05 Joel finished chemo, chest X-ray clear, Next CT in August
9/01/05 1st CT since Chemo.. NED
11/17/05 CT - small nodule found 4 or 5 mil. in his good lung
1/10/06 CT - nodule Stable
7/2006 CT/ Nodule stable
10/2006 CT Nodule seem to have grown from 4 to 7 mil.
10/2006 Pet- showed some uptake
10/2006- operation- wedge section right upper lobe turned out to be cancerous 2 nodules next to each other. 2 different types of cancer. 1 squamous cell carcinoma (new primary)2- adenocarcinoma-(not sure if new primary or metastasis)
May be restaged to IIIB
11/07/2006 will start 4 rounds of taxotere. 3 weeks apart. Will take Decadron before, day of and day after. Will get a shot of Leunesta the day after. Here we go again.. Joel's attitude.... great as usual
Horrible reaction to the neulasta shots. One night(New Years eve) went to ER. Spent 3 days in hosptal.
Feb 2007 finished chemo.
March 2007 had his CT .. as expected right now all is clear.
June 2007 NED!!!
Sept 07- CT- small nodule 3.5 mm
Going to do another CT in 6 weeks.
October 07- CT done, results STABLE...YEA
Jan. 2008... STABLE!!!
April 2008 little growth but still called stable
July 17 208 nodule doubled in size to 9mm. Needs Pet Scan, tests, hopefully cyberknife...
July 29 met with his surgeon... said Cyberknife is the way to go.
August 1- Cyberknife visit... Joel is a canidate, its a go...Happy B-day Joel...
Sept 22, 2008 finshed up the last of 3 cyberknife procedures
Nov. had CT scan
Nov. 9th results of CT from Cyberknife..... Tumor completely gone... right now NED!!!
Feb. 09- Pet/CT results. . . NEd!!!
May 09 Pet/CT results. . . NED!!!
Sept. 09 Pet/CT results.....NED!!
Jan. 2010--- NED!! Pet now will be every 6 months.
June 8,2010 Pet scan on our Anniversary... hope thats a good sign..
June 17, NED!!!
Dec. 30,2010... NED!!!
June 20,2011... NED!!!
March 2012....NED!!!

pic of Joel and our daughter Nicole at walk NOV. 07

[img]http://www.freewebs.com/beansprouts2005/nik_and_dad_1LC_walk.jpg[/img]

http://www.babababies.com


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PostPosted: Mon Jun 25, 2007 5:48 pm 
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Joined: Fri Nov 12, 2004 11:27 am
Posts: 5686
Location: PA
Thanks, Maryanne.

Hope Joel (and YOU too) is doing well.

Kasey

_________________
Kasey ~ 8 year survivor ~ Stage IIIb 'inoperable' (yea, right!) lung cancer
9/20/04 Dx lc
9/24/04 Bronchoscopy
10/08/04 CT guided needle biopsy
10/14/04 Dx Pancoast tumor - NSCLC 111a(?) - inoperable - incurable
11/02/04 2nd opinion - Sloan-Kettering - concurs with local dx and tx
11/03/04-12/02/04 Radiation x22 chemo x5 taxol/carboplatin
11/04 - 3rd opinion - FoxChase -turned away
11/04 FOUND LCSC & HOPE
11/04 4th opinion NIH - surgery possible
1/04/05 Successful surgery - RU lobectomy - all margins, nodes, and path reports are NEGATIVE
2/05 chemo x2 taxol/carboplatin
3/05 Esophagus stretched twice
4/06/05 bloodwork, chest x-ray, CT scan, PET scan, NED
5/05 2 more esophagus stretches
7/13/05 bloodwork, chest x-ray, CT scan, PET scan, brain MRI, NED
10/05/05 bloodwork, chest x-ray, PET/CT scan, NED
1/11/06 bloodwork, chest x-ray, PET/CT scan, brain MRI, NED
4/05/06 bloodwork, chest x-ray, PET/CT scan, NED
6/10/06 emergency appendectomy
7/12/06 bloodwork, chest x-ray, PET/CT scan, brain MRI, NED
9/26/06 bloodwork, chest x-ray, PET/CT scan, NED
1/10/07 bloodwork, urinalysis, chest x-ray, CT, PET/CT scan, arm CT, brain MRI, NED
7/11/07 bloodwork, urinalysis, chest x-ray, PET/CT scan, brain MRI, NED
1/9/08 bloodwork, urinalysis, chest x-ray, PET/CT scan, brain MRI, CT w/contrast.....mm 'spot' lower right lobe - watch and wait 3 months
4/8/08 bloodwork, urinalysis, chest x-ray, PET/CT scan, NED
10/14/08 bloodwork, urinaysis, chest x-ray, PET/CT scan, brain MRI, NED
4/15/09 bloodwork, urinalysis, chest x-ray, PET/CT scan, brain MRI, NED
10/13/09 bloodwork, urinalysis, chest x-ray, PET/CT scan, brain MRI, CT/contrast, NED
4/13-4/15/10 bloodwork, urinalysis, chest x-ray, PET/CT scan, brain MRI, CT/contrast, PFT, echocardiogram, EKG, stress test, NED
4/11-4/13/2011 bloodwork, urinalysis, chest x-ray, PET scan, CT scan w/contrast, brain MRI, NED
4/16-4/18/2012 bloodwork, urinalysis, chest x-ray, PET scan, CT scan w/contrast, brain MRI, NED


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