If someone from this area is also a member of this board, by all means let me know. I'd love to be able to call someone nearby.
Christine

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I am 37, was recently diagnosed with stage IV NSCLC, and am looking for some support and to meet other people around my age with the disease.

I'm from St. Pete. Drop me a PM. Hugs, Liz

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Picture is of my 2 BFF - Michelle on left, Mary on right, and me in the center. 10/28/06 on Palm Beach Princess Dinner Cruise. Aren't I adorable? Who else could get away with the pink boa all night? And they loved me!!!
I am a 45 year old woman, 30 year smoker. Quite smoking (and biting my nails) on 9/11/06 DX. God's work.
8/21/06 Hoarseness for 6 weeks - went to ENT.
9/07/06 Chest x-ray (3rd this year, other 2 for Broncittias) and swallow test for acid reflux. Radioligist saw something that no one else can see and asked for CAT scan. God's work.
9/08/06 CAT scan - showed mass 2.5 cm X 2.4 cm X 6 cm.
9/11/06 Informed that they thought I had lung cancer. Sent to Pul. Specialist.
9/12/06 Specialist confirmed.
9/14/06 Pul. function test, PET scan, surgon. Pet scan didn't show anything new. Confirmed CAT scan.
9/19/06 Surgury attemted to remove upper left lung, but found cancer spread to lower lobe and attached to chest wall. Biopsy done and closed. In hospital for 6 days. Diagnosis - Stage IV NSC Lung Cancer with Node involvement.
9/25/06 Brain MRI - Negative
10/02/06 Began chemo, once a week during radiation. (carboplatin/taxotere)
10/03/06 Radioligist thinks I'm Stage IIIb. I like this better. Get tatoos and CAT scan.
10/6/06 Dry run for radiation.
10/09/06 Begin radiation. 5 x week for 7 weeks.
10/20/06 Started having pain swallowing. Taking liqiud meds.
11/12/06 Vomiting for 5 days. Admitted to hospital for dehydration. Finally under control. Released 11/20/06. Treatment stopped at time. Radiation starts again 11/21, chemo 11/27. Statred losing my hair while in hospital. I was doing an experiment with Bioten. Didn't loss any hair while I was taking it, but as soon as I couldn't, it started coming out in handfuls. Started taking it again today. Wonder if it will stop?
11/29/06 Started back on chemo, with changes, carboplatin/taxol with different nausea meds. I'm ready this time. Will start nausea meds early. ER on Sunday.
12/6/06 Back to origional chemo. Tumer marker back at 46. 83 first time. Different nausea meds. Vomiting not as often, but nausea everyday. No ER this week!!
12/13/06 Last radiation. Heading to Moffitt!!! PS Hair stopped falling out.
1/11/07 Having terrible time with vomiting. Everyday since 12/19/06. Went to GI today. He's going in with a camara tomorrow morning.
1/12/07 Findings is ulcers and fungus growing in there. Given meds for fungus. Figured out vomiting was caused by pain patch. Took it off 1/8 07 and haven't vomited since.
1/19/07 CAT Scan, ENT for vocal cords. Will schedule temp. fix for voice.
1/23/07 Stable, No further treatment, Back in 2 months.
1/31/07 Recieved injection into vocal cord. Noticable improvement of voice about 75% of the time.
2/24/07 Update - Had lost a total of 25 lbs. Have gained 15 back since 1/12. Feeling great, looking great and what hair I lost is growing back. A different color!!
3/13/07 CT
3/19/07 Doctor called, all stable.
4/3/07 Saw doctor. Everything Peachy.
6/13 Scan moved up due to abnormal findings on throat scan.
6/19 Results are stable. Have infection.
8/21 Results are stable. Fluid found in right lung, but when scheduled to drain, it had disappeared. Praise God!!
10/30 Results are stable. Some inflemation. Was worried til he saw me. Put me on antibiotics and steriods. Feel better. Rescan 12/4
11/18 Symtoms on right side of face. Went to ER. 4 brian mets. Started WBR on 11/20.

I live in spring hill.....My mom was diagnosed with nsclc oct 2006 and passed away jan 7th 2007...2 1/2 months from beginning to end.....I found out so much about lc that I never knew....I did all the chemos, radiations, doctors vists with her and what ever else I could do for her....We had a great support system....she was my very best friend....I miss her so much...If I could help you you in any way let me know.....Her doctors and cancer center in spring hill were great........
I wish you the very best....my prayers are with you...
Laura

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Always loved....Never Forgotten...Wind beneath my Wings...

I'm in St. Pete too. Drop a PM and I'll send you my phone number and maybe we can chat. Hang in!

Eileen

I'm in East Pasco County..... near Zephyrhills.
Please send me a PM if you would like to chat.
Liz13 and I are still working on getting together for lunch or coffee, so maybe the four (or five) of us can figure out a way to have a short visit! (Liz and I spend most of our conversations trying to get a clear signal on our cell phones! I stand on my head on my back porch, while holding the phone up towards the Heavens, and she screams "Can you hear me now?", very loudly..... )
Take care,
Nova

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My Husband's battle with SCLC.....Picture is of Harry before diagnosis.....

January 07-Doctor ordered a Cat Scan due to cough and pain in ribs. Sent us to the Pulmonologist.
Late January- Biopsy taken. Results show SCLC, inoperable.
Sent to Moffit Cancer Center in Tampa.
End of January '07 -started first chemo treatment. Ended up in ER after about 5 days with dehydration.
Feb 23rd '07 - second round of chemo, ended up IN the hospital for 2 days with a bladder infection.
March-'07 Third round of chemo. Also started radiation twice a day, 5 days a week.
April 10th,'07
Harry is in the hospital with a very bad infection in his heart valve. On liquid diet now because radiation has burnt his esophagus.

May 11th, '07- new scan and MRI results were good. Cancer/tumor has shrunk about 60%. Head is still clear.
June 8th, '07
Harry started first infusion of Carboplatin.
June 15th, 07..... Harry is in the hospital again. Has an abscess on the wall of his intestines. He's lost 7 more pounds. Blood counts are terrible.
June 27th, 07
Harry remained in the hospital for 7 days, (once again).
He is now passing out when he stands. He's been put on a new medication to raise his BP a little, plus help him retain fluids. Hoping it works, because he's bruised and cut from falling.

July 26th, 07- New Cat Scan results show that the original tumor has grown, and there are also new areas involved near ribs and higher in the left lung.. Will start Taxol, to "control" growth.
August 07
MRI came out clean. Thank you, Lord.
Lung tumor has some shrinkage, but some new growth in different areas. Mixed bag of results.

2nd dose of Taxol given.
9-10-07
Cat scan results were fairly stable.
He will continue on the Taxol, another 4 rounds. Blood counts were good.
Nov. '07
Harry had his last dose of Taxol. He won't get the 6th dose, due to numbness and tingling in his feet.

New scan done on Jan. 7th, '08
Shows Mets to liver in several spots. New tumor in lung, and more fluid.
Started Cpt-11 once a week.
Doctor mentioned Hospice. It was declined. Harry went fishing the next day. :O)
March '08
Harry now has Mets in his liver, ribs,shoulder, arm and more nodes.
He's on strong pain medication. Mostly sits in his chair and sleeps. His fighting spirit still remains, and he chooses to continue treatment.
April 8th, 08
Radiation doctor states that there isn't much more they can do. Harry has been given a "6 months or less" prognosis .
Harry has chosen to have Hospice involved. Says he's "kind of tired of sitting in doctor's offices".
I'm not sure yet how I feel about it , but it's his choice.
June 7th, 08
Harry passed away at 1:05 am, a few hours after being taken to the Hospice Care Center .
I miss him SO much. My heart is broken.

I think that's a great idea, Nova. If everyone is up for it, maybe we can try to get together at some point over the holidays. Liz has my phone number and I'll PM you with it too.

Eileen

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6/06 Mass found upper left lung.
7/10/06: Upper Left lobectomy. No further treatment. Staged lA. Scan again in 4 months.
7/06: Pre-op PET scan lit up in colon area too.
8/06: Colectomy upper colon. No further treatment. Staged lA
11/06: CT Scan - stable
2/07: CT Scan - stable
4/07: MRI Brain - Clear
7/10/07:CT Scan (one year out) - STABLE! (Yeah!!!!) Next scan in 6 months.
8/07: Colonoscopy: one small polyp found and removed. Next check-up in 3 years! (Yeah!!!!)
10/07: MRI liver--clear.
12/07: CT Scan - Stable!
06/08: CT Scan - Stable!

Carl Jung: "You may conquer the dragon or it may eat you, but one way or the other, you have to deal with the same dragon."

OH how cool would that be!! I hope you all can get together! and take pictures! We'll name it the Florida LCSC Reunion. (you guys have to meet now!) he he

_________________
- Katie Brown, Co-Founder of LCSC- Director of Support & Advocacy

18 yr cancer survivor.
Certified Patient Navigator
www.iamkatiebrown.com


In memory of Jessee Dewey, SCLC
December 29, 1938 - September 6, 2003
Lisa Dewey- Jan. 22, 2007
my parents are together in heaven


facebook http://www.facebook.com/lungevity

It really would be cool, Katie. I can see it happening too

_________________
6/06 Mass found upper left lung.
7/10/06: Upper Left lobectomy. No further treatment. Staged lA. Scan again in 4 months.
7/06: Pre-op PET scan lit up in colon area too.
8/06: Colectomy upper colon. No further treatment. Staged lA
11/06: CT Scan - stable
2/07: CT Scan - stable
4/07: MRI Brain - Clear
7/10/07:CT Scan (one year out) - STABLE! (Yeah!!!!) Next scan in 6 months.
8/07: Colonoscopy: one small polyp found and removed. Next check-up in 3 years! (Yeah!!!!)
10/07: MRI liver--clear.
12/07: CT Scan - Stable!
06/08: CT Scan - Stable!

Carl Jung: "You may conquer the dragon or it may eat you, but one way or the other, you have to deal with the same dragon."

I just got an email notifying me of a Private Message at LCSC but when I clicked on the link given, it took me to my mailbox but there's no new message. Did someone PM from this thread? Thanks,

Eileen

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6/06 Mass found upper left lung.
7/10/06: Upper Left lobectomy. No further treatment. Staged lA. Scan again in 4 months.
7/06: Pre-op PET scan lit up in colon area too.
8/06: Colectomy upper colon. No further treatment. Staged lA
11/06: CT Scan - stable
2/07: CT Scan - stable
4/07: MRI Brain - Clear
7/10/07:CT Scan (one year out) - STABLE! (Yeah!!!!) Next scan in 6 months.
8/07: Colonoscopy: one small polyp found and removed. Next check-up in 3 years! (Yeah!!!!)
10/07: MRI liver--clear.
12/07: CT Scan - Stable!
06/08: CT Scan - Stable!

Carl Jung: "You may conquer the dragon or it may eat you, but one way or the other, you have to deal with the same dragon."

Chances are someone PM'd you and you had not "picked it up" yet. The sender then can change their mind and go in and delete their PM to you.

It could have been a mistake and someone send a PM to you that they meant for someone else.

Our notifications go out immediately thought, which is why you still get notified even if you don't get the PM.

Hope that helps.

_________________
- Katie Brown, Co-Founder of LCSC- Director of Support & Advocacy

18 yr cancer survivor.
Certified Patient Navigator
www.iamkatiebrown.com


In memory of Jessee Dewey, SCLC
December 29, 1938 - September 6, 2003
Lisa Dewey- Jan. 22, 2007
my parents are together in heaven


facebook http://www.facebook.com/lungevity

Sure does! Thanks, Katie.

_________________
6/06 Mass found upper left lung.
7/10/06: Upper Left lobectomy. No further treatment. Staged lA. Scan again in 4 months.
7/06: Pre-op PET scan lit up in colon area too.
8/06: Colectomy upper colon. No further treatment. Staged lA
11/06: CT Scan - stable
2/07: CT Scan - stable
4/07: MRI Brain - Clear
7/10/07:CT Scan (one year out) - STABLE! (Yeah!!!!) Next scan in 6 months.
8/07: Colonoscopy: one small polyp found and removed. Next check-up in 3 years! (Yeah!!!!)
10/07: MRI liver--clear.
12/07: CT Scan - Stable!
06/08: CT Scan - Stable!

Carl Jung: "You may conquer the dragon or it may eat you, but one way or the other, you have to deal with the same dragon."