_________________
Mom's timeline

[size=75]1996 - dx w/ Breastcancer
Bi lateral Mastechtomy. 17 lymphnodes removed and clear.
Aug 2006 - weakness and poor coordination in left hand and weak left leg.
Dr runs al types of blood tests.
Gets Nerologist appt for Mid OCTOBER!!
Sept 5 - Mom goes to ER to get tests done today. Multiple Brain lesions discovered
Sept 6 - Appt with GP who suspects breast or lung cancer
Sept 7 - Radio Onco wants to Radiate starting Sept 11, Mom begins taking Decadron
Sept 8 - Mom tells primary onco she is waiting until she knows everything before she treats.
September 9 & 10 a great weekend with mom and wife and mom's boyfriend. Mom makes eggplant parm!
Tues Sept 12 - Full body CAT shows Lung tumor with spots on liver and bones
Sept 14 - Pulminary dr walks through all cat scans with us. Shows the brain tumors...this was worse than I thought. Schedules lung Biopsy.
Sept 15 - Bone scan shows definite signs of lung cancer which had spread to the bones,
September 16 & 17 - Mom goes to Beach with my wife Keri and talks about being a parent. I build a railing for her to get up and down steps in the back yard for when she needs it. A fantastically fun weekend. Mom postpones biopsy. She says if she picks radiation, she'll do the biopsy then, because she'll already be in the hospital
Sept 22 Oncologiist is told mom will make a decision that weekend on treatment.
Sept 23-24 Mom decides to radiate but no chemo. Wants to treat the mind but chose to have her body go first. And then we got on with a great weekend and mom and Keri get there nails done and massages.
Sept 25 - mom gets mask for radiation done
Sept 26 - mom does radiation #1. Her word "piece of cake"
Sept 28 - My birthday, mom has a cake waiting for me, we brought her filet mignon. A great night.
Sept 29 - Oncologist says mom makes him laugh.
Oct 1 King crab legs for moms birthday, she's tired but enjoyed!
October 2 - Moms birthday, she is very weak and sleepy. But we spent it with her
Oct 3 - Mom is officially to tired to function. I tell her no more car. Tough conversation. But she agreed.
Oct 4 9:30 - Called mom, woke her up, told her I'd see her at 12:30 for appt.
Oct 4 12:30 - I arrive mom is confused and having trouble breathing.
Oct 4 5:30 - Mom is in Critical Care
Oct 5 7:00 - Sun shines on moms face during a sunrise one last time and she leaves us. Only 56 years old.

Today - we are not 100% and won't be tomorrow either. But notice, mom wasn't about focusing on the disease only, she was primarily about the good times!

2/25/08 Mom's granddaughter, Sophia Randilyn is born. Mom, I've already told her so much about you.[/size]

[img]http://www.freewebs.com/beansprouts2005/Nicksignature.jpg[/img]

2/11/11 Mom's grandson, Nicholas Thomas IV is born. We've already talked about how his Grammy would have just loved her little man.

_________________
Mom's timeline

[size=75]1996 - dx w/ Breastcancer
Bi lateral Mastechtomy. 17 lymphnodes removed and clear.
Aug 2006 - weakness and poor coordination in left hand and weak left leg.
Dr runs al types of blood tests.
Gets Nerologist appt for Mid OCTOBER!!
Sept 5 - Mom goes to ER to get tests done today. Multiple Brain lesions discovered
Sept 6 - Appt with GP who suspects breast or lung cancer
Sept 7 - Radio Onco wants to Radiate starting Sept 11, Mom begins taking Decadron
Sept 8 - Mom tells primary onco she is waiting until she knows everything before she treats.
September 9 & 10 a great weekend with mom and wife and mom's boyfriend. Mom makes eggplant parm!
Tues Sept 12 - Full body CAT shows Lung tumor with spots on liver and bones
Sept 14 - Pulminary dr walks through all cat scans with us. Shows the brain tumors...this was worse than I thought. Schedules lung Biopsy.
Sept 15 - Bone scan shows definite signs of lung cancer which had spread to the bones,
September 16 & 17 - Mom goes to Beach with my wife Keri and talks about being a parent. I build a railing for her to get up and down steps in the back yard for when she needs it. A fantastically fun weekend. Mom postpones biopsy. She says if she picks radiation, she'll do the biopsy then, because she'll already be in the hospital
Sept 22 Oncologiist is told mom will make a decision that weekend on treatment.
Sept 23-24 Mom decides to radiate but no chemo. Wants to treat the mind but chose to have her body go first. And then we got on with a great weekend and mom and Keri get there nails done and massages.
Sept 25 - mom gets mask for radiation done
Sept 26 - mom does radiation #1. Her word "piece of cake"
Sept 28 - My birthday, mom has a cake waiting for me, we brought her filet mignon. A great night.
Sept 29 - Oncologist says mom makes him laugh.
Oct 1 King crab legs for moms birthday, she's tired but enjoyed!
October 2 - Moms birthday, she is very weak and sleepy. But we spent it with her
Oct 3 - Mom is officially to tired to function. I tell her no more car. Tough conversation. But she agreed.
Oct 4 9:30 - Called mom, woke her up, told her I'd see her at 12:30 for appt.
Oct 4 12:30 - I arrive mom is confused and having trouble breathing.
Oct 4 5:30 - Mom is in Critical Care
Oct 5 7:00 - Sun shines on moms face during a sunrise one last time and she leaves us. Only 56 years old.

Today - we are not 100% and won't be tomorrow either. But notice, mom wasn't about focusing on the disease only, she was primarily about the good times!

2/25/08 Mom's granddaughter, Sophia Randilyn is born. Mom, I've already told her so much about you.[/size]

[img]http://www.freewebs.com/beansprouts2005/Nicksignature.jpg[/img]

2/11/11 Mom's grandson, Nicholas Thomas IV is born. We've already talked about how his Grammy would have just loved her little man.

OHHHHHHHHHH!!!!!!!!!!!!! She is a cutie Pie!

_________________
April/03 My Wife Deborah, age 46, diagnosed adenocarcinoma NSCLC
1/20/2006 Admitted to hospital Respiratory distress
1/23/2006 Ran to the light and is waiting for us to be rejoined in the Kingdom Of Heaven Her journey is Over but mine lingers on for Now!!!
4/23/07 DEb is joined in Peace by her Puppy Dawg Daisy from Cancer
8/30/07 Got new Pup named Mocha!!

"No matter hnow much it hurts, No matter how alone you feel, Your friends will help you get through anything!!"
Scrubs!!!!Yes the comedy show!!!

The Reason I advocate
If you would like to see our family photos Click on this link!
http://deborah-wallin.memory-of.com/

My memory-of Link is good to go now if you want to see it!!

She looks like a little giggle box! She is ADORABLE, I can't believe she is this big!!!

_________________
- Katie Brown, Co-Founder of LCSC- Director of Support & Advocacy

18 yr cancer survivor.
Certified Patient Navigator
www.iamkatiebrown.com


In memory of Jessee Dewey, SCLC
December 29, 1938 - September 6, 2003
Lisa Dewey- Jan. 22, 2007
my parents are together in heaven


facebook http://www.facebook.com/lungevity

Oh Nick, she is just adorable!!! I want to hold her

Sue

_________________
[size=84]husband, Mike, 59 years old
**2-01 dx'd Stage 1 nsclc-9cm tumor to right lung-no lymph node involvement...
**4-30-01 pneumonectomy right lung removed. No followup chemo or radiation , but scans and xrays were done
**1-28-04 dx w/recurrent stage IV nsclc tumor on stump of where right lung had been removed , lymph node involvement, tumor adrenal gland -lft side, **02-04-04- taxol & carboplatin 3 treatments-didn't work
**02-12-04- radiation 10 to lung for bleeding
**04-2--04-taxotere had 4 treatments. shrinkage had occured in all after 3.. continuing taxotere. making him very tired ... upper body swelling ..
** 08-01-04-in hospital
latest..
**08-02-04 had stent put in .. superior vena cava.. the vein was being blocked by pressure tumor.
**08-05-04-started 10 radiation treatments,
**08-30-04- started Navelbine on 3 weeks and off 1 Scan after 5 treatments show chemo Navelbine not working -slight decrease to lung mass, but slight increase to adrenal ....
**11-01-04-starting Gemzar ... had 3 treatments... too many side effects... Ct of chest and upper abdomen done on Dec. 2nd -results some shrinkage
**12-06-04-started Alimta Dec. 6th- first treatment went well Had 2nd treatment Dec. 27th ... developed a rash and is tired, but otherwise ok Scan Feb 7th, 2005 STABLE doing good continuing Alimta April 18th scans showed stable disease (after 6 Alimta treatments), but he now has pneumonitis... no more treatments until much better.. on prednisone and oxygen..
**05-31-05 Ct scan of chest showed pneumonitis resolved and stable cancer
**06-06-05-our 35th wedding anniversary... onc confirms everything resolving and stable -reccommends break continued til August
**6-15-05 to 6-18-05 in hospital due to mental confusion ..
had MRI-member empty head club

8-3-2005-Ct scans chest , abdomen and pelvic....Waiting and praying...
**8-8-2005-Ct results were that the chest area looked improved, but the adrenal area had increased and involved some lymph nodes.
Started Tarceva 150mg 8-16-2005-8-20-2005 stopped 2 weeks due to severe rash on 9-8-2005 started back on Tarceva at 100 mg now.. stopped again on 9-19-2005
9-30-2005 scans slight progression to nodes behind adrenal..
10-10-2005-Camptosar- CPT-11 started
10-31-2005- CPT-11
refused more CPT-11 made him extremely fatigued and nauseated
Dec. 6th -CTscans chest, abdomen & pelvic. shows stable but tumor compressing the esophagus..
Dec. 19th- had stent to trachea put in
Dec. 21st- he had stent to esophagus and feeding tube put in
Dec. 22nd.. he will ill put in hospital... vomiting and also coughing and congestion in for 4 days... home for Christmas Dec. 25th... still recouperating with antibiotics etc.
Continuing cough and numerous doctor visits.
*Jan 30th-Feb 4th- hospitalized again with cough ..
Still has cough , but controlled most of the time Hasn't been able to resume chemo

**My "prince charming", best friend, husband and soul mate,, Mike passed away March 2, 2006 after being a 5 year survivor and fighting a very courageous battle**
______________________
Mom- 78 yrs old..
nsclc diag May 2nd, 2007-surgery 2sm tumors removed in wedge section... lymph nodes clear
Tarceva as adjuvant started on June 23rd..quit July2nd.. side effects numerous... am waiting now til next appt. July 13th
July 20th... Mom NED.PET clear and normal .. will go back on half 75mg Tarceva... see how that works..
Stop Tarceva 8-25 too many side effects
Oct. 22nd- Mom surgeon visit, chest xray and results .. all clear, no sign of cancer...
Feb. 18th Mom's PET Scan
March 7th Mom's PET Scan results.. NED
Sept. 22, 08 Mom PET Scan
Sept. 29, 08 Mom PET results new nodule 3/4 "...here we go again.... :-(
*Updated*- Mom surgery- Oct. 30th.. surgeon removed top part of upper right lobe. Nothing showed malignant. She had pneumonia after surgery and a 3 week hospital stay, but she is slowly regaining her strength and is currently NED..

March 3, 2009 CT scan.... results showed some little things along suture line that the doctor believed was healing.. will wait til next scan and compare.

June 2, 2009- CT Scan.. results there is an area along suture line that has increased in size and thickening.. doctor thinks could be cancer... a needle biopsy will be done..

A quick update.. the results of the needle biopsy did confirm that it was cancer...

Cyberknife was done the first week in November..

Pet scan .. Dec. 8th...
Dec. 11th -results .. cyberknife worked and the rest of the scan is clean... YAY!!! Happy Birthday (Dec. 19th.. 81st) and Merry Xmas Mom!
Dec. 2010 NED!!!
June 2, 2011.. Pet Scan results .. NED!!!
Nov 3, 2011.. CT scan results.. NED!!!
Sept. 18, 2012 .. our loving mom has passed on ..Heaven received a most precious angel.


graphic by
http://www.maryslittlelamb.com[/size]

_________________

Picture is me and my big brother Tommy who also has lung cancer.(June 2006)
Sadly, Tommy was called home 6/29/2008. May he rest in peace.


12/28/05: Admitted to hospital for L pleural effusion.
12/29/05:1400cc's drained from L lung, biopsy revealed adenocarcinoma. CT, MRI, ultrasound, and bone scan revealed multiple small pleural lesions bilateraly, several small liver lesions, and 1 small lesion on lumbar spine. Largest lesion is approximately 2 cm (on spine), all lung lesions are mm's.
1/23/06:Second opinion at Fox Chase Cancer Center - agrees with initial diagnosis Stage lV NSCLC Adenocarcinoma
1/24/06:Pet scan confirms findings on CT & MRI
1/27/06:CT directed needle biopsy of liver confirms original diagnosis of Adenocarcinoma.
2/6/06:Started Carbo/Taxol/Avastin every 21 days for 6 cycles.
2/9/06:Portacath placement for chemotherapy.
3/3/06:Started IV Vitamin C 3times/week.
3/21/06:CT revealed lung nodules are shrinking.
4/28/06:CT revealed improvement in both the lung and liver.
5/23/06:Last round of Carbo/Taxol/Avastin.
6/7/06:CT revealed 2 small spots that do not appear to be cancer in the lungs, and 2 spots left on liver that are too small to be measured.
6/13/06:Started tx with just Avastin every 21 days.
6/14/06:Reduced lV Vitamin C to 2 times/week.
8/7/06:CT still shows small spots in lung, no change in size - may not be cancer. Liver clean!!!
10/10/06:CT and Bone Scan. No change on CT, Bone Scan clean. Doc says looks like remission!!!!! Yay!!!!
1/29/07:CT shows stable pulmonary nodules with new liver mets noted.
2/19/07: Started trial with Alimta and Cetuximab.
3/27/07:CT shows disease progression in lung and liver.
4/30/07: Started Taxotere every 21 days.
6/4/07: CT shows disease is stable - Yes!
7/16/07: CT shows shrinkage in all tumors - Yes, yes, yes! Will continue with Taxotere for as long as tolerated. Am still receiving IV Vitamin C once a week and am taking numerous supplements.
8/28/2007: CT is stable, possibly slight shrinkage! Will continue Taxotere.
12/10/2007: CT still stable!
2/19/2008: CT shows multiple hypodense lesions within the liver are now larger in size; lung nodules stable. Gemzar started (2 weeks on, 1 week off)
4/28/2008: CT shows slight shrinkage in 3 of 4 liver lesions. YAY!!!
7/2/2008: CT shows all lesions stable! Yesssss!!!!!!! Will continue with Gemzar.

What cuteness!!

_________________
Mom: SCLC 6/7/40-11/28/07
Dad: Renal failure 1/21/35-12/13/06
*Living forever in my heart.*

Tooooooooo freakin' adorable. I bet you two just sit and watch her all the time, don't ya??

She's a keeper, for sure!

_________________
~~Missy~~
Mother (15+ year cervical cancer survivor) (55 at dx) dx NSCLC stage IV
May 10, 2005...spot on L lung seen on xray...May 11...chest xray and belly ct confirm spot, lymphnode enlargement...May 12...needle biopsy of spot...May 13...DX Adenocarcinoma...May 14...head ct...May 17...PET...Stage IV (One brain met (1"), one "spot")
May 18... CT and meeting with rad. onc...confirm dx...chemo/radiation/SRS (stereotactic radiosurgery)
May 20...CT and stealth MRI
May 24...SRS
May 31...Radiation begins
June 1...Chemo (Taxol/carbo) begins...1x per week x 7 weeks
June 17-23...hospital, clotting...add coumadin
June 26-28...hospital, PE, add lovenox injections 2 x daily
July 8...MRI (results on 12th)
July 11...hospital, suspect PE...2 units blood...chemo vacation...CT shows clots in lungs decreasing in size
July 12...MRI results...original met is almost gone...spot grew...SRS for new met
July 22...Radiation complete (38 rounds)
August 5...MRI (For SRS)
August 16...CT...no new cancer from neck down, no clots in lungs, swtch to 5 hour chemo every three weeks
August 21...Hospital, severe dehydration...chemo change, severe reaction
August 23...CT for SRS
August 24...SRS treatment
October...begin Tarceva
October 24...MRI, original met gone, second one shrinking...return in 3 months
November 3-8...hospital, pneumonia, both lungs
November 28...CT, primary tumor still shinking, no new cancers...chest xray in 3 weeks
January 23, 2006...MRI, first gone, very little left of second...lump in neck
January 24...Med onc...off tarceva, on Gemzar...CT, neck and abdomen
January 26...first round Gemzar
February 2...hospital, severe infection
May 1...MRI, met in same place as original...doubled in size...WBR (20 double treatments) and 3 (double) on just tumor itself
June 7...MRI, mets stable!!
Sept. 25...Begin radiation to right side of neck...20 treatments
Oct. 2...make that 25 treatments to right side of neck
December 7...MRI, mets in brain continuing to grow, going to try SRS again
December 18...begin 5 SRS treatments...one every-other day
January, 2007...MRI...no change to mets...end of line for treatment options
May 23, 2007...Mom passes peacefully surrounded by her family. My next tattoo (after the baby gets here) will be a Black-Eyed Susan in memory of my mom...Sue

~~The Beastie Never Wins~~
~~Fortes Fortuna Juvat...Fortune Favors the Brave~~

Adorable! Too bad we are on differnt coasts, we could have some fun playdates!

_________________
[size=84]Mom diagnosed 11/03; age 58; NSCLC IIIA
Carboplatin/Gemzar
3/4/04--lobectomy
5/04--completed radiation
5/05--coiling for brain anyerusm found on routine brain MRI
8/05--triple bypass
10/06--PET, brain MRI, CT clear
8/07--NED
Currently in remission/NED
2/12--Stage IV squamous cell, a new beast
4/9/12--My mom passed away

Dad diagnosed 9/06; age 65 (asymptomatic); adenocarcinoma with BAC features
9/06--Wedge resection of 1.4cm tumor
Lots of little nodules remain and a small thing on brain maybe
11/06--Stable
5/18/10--Dx with Macroglobenemia (indolent lymphoma) & nodule growth
6/10--IT'S BACK! Tarceva time
[/size]