Hi All,
I just wanted to let you know that I will be out of town from July 1st thru July 5th. I am getting a five-day break.

My dad has a CT scan and an appt. tomorrow and then I am off. I will post the CT scan results after I get back.

Kristi

_________________
Andy, my dad, diagnosed with SCLC on May 6, 2008
Chest x-ray showed possible tumor with pneumonia on April 10, 2008
Repeat Chest x-ray done - April 18, 2008
Chest CT scan - April 23, 2008
CT results show tumor on right upper lung with enlarged lymph nodes and spot on liver - April 28, 2008
Abdominal CT - April 30, 2008
Appt. with pulmonary specialist - May 1, 2008
Bronchoscopy with biopsy - May 2, 2008
Biopsy results show small cell lung cancer - May 6, 2008
PET scan - May 7, 2008
Admitted to hospital for pain management - May 8, 2008
PET scan results shows disease has spread to liver and bones - May 7, 2008
MRI to brain and spine (no brain mets) - May 9, 2008
First radiation treatment - May 9, 2008
Last radiation treatment - May 21, 2008
First Infusion of IV Fluids - May 21, 2008
Port Placement - May 23, 2008
Chemo (Carboplatin/VP-16) - May 27, 2008
VP-16 - May 28th and May 29th
Platelets - June 6, 2008
Blood transfusion - One unit of blood - June 13, 2008
Second round of chemo - June 17th thru June 19th
CT scan (Showed 50% reduction in lung tumor and in liver) - July 1, 2008
Hospitalized July 4th thru 7th
Third round of chemo - July 8th thru 10th
Blood transfusion - Two units of blood - July 23, 2008
Treatment stopped late July 2008
CT scan - Results stable - August 2008
CT scan - Results showed significant growth - Offered Topotecan - Late September 2008September
Treatment declined - September 29, 2008
Entered hospice - October 1, 2008
Admitted to KC Hospice House - October 7, 2008
Earned wings at 6:25 AM on Wed., Oct. 15, 2008

Jackie, my mom, diagnosed with NSCLC - May 2008
Persistent cough - March/April 2008
Chest x-ray - April 18, 2008
Chest CT - April 23, 2008
Results showed nodule on left lung - April 28, 2008
Consultation with pulmonary specialist - May 9, 2008
Bronchoscopy with biopsy - May 13, 2008
PET scan - May 14, 2008
Results show NSC of unknown origin - May 15, 2008
First appt. with oncologist - May 21, 2008
Brain MRI (negative for cancer) - May 21, 2008
Colonoscopy (negative for cancer) - May 28, 2008
Diagnosis of of non-smal cell lung cancer - May 30, 2008
First round of chemo (Carboplatin/Taxol/Avastin) - June 16, 2008
Second round of chemo - July 7, 2008
Third round of chemo - July 28, 2008
Fourth round of chemo - August 18, 2008

Have fun Kristi. You deserve the break.

Denise

_________________
[color=green]Tom 77 yrs young, Devoted Wife of 20 yrs Denise age 49 yrs, 6 kids, 5 granddaughters, 2 grandsons [/color]
__________________________________
[color=blue]1/29/08 Diagnosed with Stage IIIA NSCLC Squamous Cell with lymphnode and liver involvement.
1/29/13 - 5 Year survivor!!
1/29/12 -4 years Survivor!!
2/11/08 - 7/16/08 7 rounds of chemo w/ Carbo/Taxol
3/24/08 Restaged at IV.
4/28 CT Scan
5/5 Results day / Great scan w/ overall shrinkage.
5/12 MRI scheduled.
5/20 - Rad consult
5/28 - 7/16 Radiation to chest 35 rounds
8/18 - CT shows the lung tumor is down to 3.7cm x 2.7cm and liver lesion is GONE!! No signs of metastatic disease within the abdomen. No further treatment need at this time. Next scan in 3 months.
12/5 Hospitalized with pneumonia
12/6 CT Scan all clear. Tumor continues to shrink.
12/10 Home on 24/7 Oxygen. SOB continues.
5/18/09 PET SCAN ALL CLEAR!!!
5/2010 NED!!
4/2012 NED!!
10/2012 CT = Mixed bag of nuts
[/color]

[color=purple]Don’t be afraid your life will end, be afraid that it will never begin. [/color]

[color=red]READ TOM'S STORY @ [/color]
http://www.lungevity.org/l_community/viewtopic.php?t=37425

So glad to hear you are getting away on a much deserved break Kristi. Enjoy the lake! Stay longer!

_________________
See my survival story at http://lungevity.org/l_community/viewtopic.php?t=39390

43 years old at diagnosis, wife and mother of 2 wonderful children (1 of each, 12 and 13).

March 2007-cough that wouldn't clear, gets progressively worse, can't sleep on left side by July 2007
August 2007-cloudy x-ray
Aug 27-finally a CT scan, and hospitalized, 3 litres of fluid on lung. Fluid drained, hospital stay, bronchs, mediastinoscopy, thorascopy. Had been told cancer earlier, not in fluid though. Tests done to confirm staging. Staging confirmed as Stage III A, later changed to III B.
Oct 4-PET scan for radiation planning.
Oct 17-Nov 28-30 radiation treatments
Oct 17 to Jan 11-4 rounds of chemo, cisplatin and etoposide
Jan 28-Ct scan/chest x-ray
Feb 12-doc said re CT scan "results are excellent, could possibly be a complete positive response!" Don't think it gets much better than that. I won't say NED yet....
Mar 18/08-NED!!!!! based on updated CT scan. Small pleural effusion left,difficult to tell, but rest is NED. And also cleared for START, liposome vaccine clinical trial.
April 3-1st day of vaccine, every week for 8 weeks, less frequently after that
-May 8-PET scan results, bone mets!!! Lungs still clear. Begin radiation/chemo planning. Off of clinical trial after 5 treatments.
-May 27 and 30, 2 radiation treatments, 14 greys total
-June 10-July 21-first 3 alimta infusion, also receiving zometa infusions separately
-CT scan results July 21-lungs still clear, back a mess, referred to a neurosurgeon for possible surgery
-Aug 13-1st gemzar infusion (stopped alimta, was intolerant and gemzar thought to be more effective)
Aug 16-MRI as reported pain in right leg, results were probable nerve damage from spine mets
-Aug20-end of first cycle of gemzar. Treatments stopped as was intolerant, too many side effects.
Sept 25-bone scan ordered by pain doc
Oct 3-started Tarceva, 150 mg
Oct 23 PET scan results-progression in spine and left lung with lymph node involvement-CRAP!!!!!
Nov 5-Tarceva down to 125 mg
Jan 20-failed bone cement procedure, pain worse
Jan 23-admitted to hospital for 10 days: full kidney failure, later discovered infection in chest which was lanced, identified dropped foot, off of Tarceva since Jan 20
Mar 31-1st of 10 radiation treatments to the spine
May 12-started navalbine

"Strength does not come from physical capacity. It comes from an indomitable will". -Mahatma Gandhi

"When the going gets tough, the tough get waterproof mascara" (assuming you have eyelashes left after chemo!)

Have a wonderful time- BREATHE!
Peace - Janet

_________________
Diagnosed at 47 years old - never smoked
3 amazing children, now 27, 25, and 24
Married 30 years

12/22/06 Diagnosed NSCLC Stage IV - Adnocarcinoma
Tumor in Rt Lung, 3 on Spine, one on the Pons of the brain
Radiation to the spine
Fractionated Linac Stereotactic Radiotherapy to the Pons of the brain

2/15/07 Start Tarceva 150 mg
4 1/2 years of "no progression of disease"

4/11/11 New mets on brain, Gamma Knife Radiation
Probable Leptomeningeal Disease.
Start "pulsing Tarceva" 1500mg 1xweek

7/11 - Brain mets swelling as an after effect of Gamma Knife, put on anti seizure meds, steroids.
New mets on spine and lung - watching.

9/11 - No new growth in Brain - more growth on spine and ribs. Back to Tarceva 100mg daily, adding Avastin every 3 weeks.

12/11 - Scans show no new growth, some mets stable, others have shrunk!

12/22/11 - 5 year survivor!!!!!

7/20/12 - scans show new growth in lungs and spine. Staying on Tarceva and Avastin and adding Alimta and Carboplatin.

10/12 Taken off Alimta and Carboplatin due to extreme side effects, continuing on Tarceva and Avastin - scans stable

Winter/13. Scans show growth again. Bones, lungs, lymph nodes, spleen. Time to look into clinical trials

4/13. Started clinical trial at Yale AP26113 by ARIAD, a "second generation Tarceva", side effects so far, diarrhea and nausea.

My story - http://lungevity.org/l_community/viewtopic.php?f=47&t=46162

Enjoy yourself -
Dar

_________________
My Mom
5/1/46-6/20/08

When you are sorrowful look again in your heart, and you shall see that in truth you are weeping for that which has been your delight

Jake

Enjoy!

_________________
Life is what happens to you while you're busy making other plans.
John Lennon

"Never, never, never give up." Winston Churchill

"I rang for ice, but this is ridiculous." -Madeline Talmadge-Astor, as she was being helped off the Titanic

"Losing love is like a window in your heart, everybody sees you're blown apart, everybody sees the wind blow". Paul Simon

Husband John has NSCLC-Vena Cava Syndrome Stage 3B, Dx 6/02
Carbo/Taxol,Radiation
Taxotere
Gemzar
Iressa started 3/03
10/03 Stable CT scan
1/04 CT Still stable.
3/04 PET Scan, Still stable.
7/04 Still stable
1/05 Still stable
1/30/05 Iressa discontinued Started Tarceva, still stable 7/05
1/06 Slight increase in tumor, stopping Tarceva.
1/27/06 Started Alimta
5/5/06 Avastin added to Alimta
6/14/06 Stable, continue w/ Avastin
1/29/07 Shrinkage! Continue w/ Avasin.
7/07- Something new on the CT scan, doing a bronc 7/25/07 to see what it is. 8/21/07 begins brachytherapy. Next treatment postponed until 9/6/7 due to an infection which is making him too ill for the procedure. 9/13/07 Diagnosed with Aspergillus. Has brachytherapy 9/20/07. Developed a pericardial effusion, 10/30/07 has a pericardial window to drain the fluid. Procedure goes well but he passes away 10/31/07 due to a pulmonary hemorrhage.
Pic is me and daughter Jillian aka The Jillinator.
Visit Walk the Walk:
www.michiganlungcancerwalk.org

Good for you, Kristi. Enjoy yourself!!!! We will be here when you get back!!

Hugs - Patti B.

My break was wonderful despite my dad being admitted to the hospital over the weekend. He was low on potassium and had low hemoglobin. Hopefully things will be on the upswing now! I must talk with the oncologist about the low potassium issue. I didn't cut my trip short... Let the family handle it.

Kristi

_________________
Andy, my dad, diagnosed with SCLC on May 6, 2008
Chest x-ray showed possible tumor with pneumonia on April 10, 2008
Repeat Chest x-ray done - April 18, 2008
Chest CT scan - April 23, 2008
CT results show tumor on right upper lung with enlarged lymph nodes and spot on liver - April 28, 2008
Abdominal CT - April 30, 2008
Appt. with pulmonary specialist - May 1, 2008
Bronchoscopy with biopsy - May 2, 2008
Biopsy results show small cell lung cancer - May 6, 2008
PET scan - May 7, 2008
Admitted to hospital for pain management - May 8, 2008
PET scan results shows disease has spread to liver and bones - May 7, 2008
MRI to brain and spine (no brain mets) - May 9, 2008
First radiation treatment - May 9, 2008
Last radiation treatment - May 21, 2008
First Infusion of IV Fluids - May 21, 2008
Port Placement - May 23, 2008
Chemo (Carboplatin/VP-16) - May 27, 2008
VP-16 - May 28th and May 29th
Platelets - June 6, 2008
Blood transfusion - One unit of blood - June 13, 2008
Second round of chemo - June 17th thru June 19th
CT scan (Showed 50% reduction in lung tumor and in liver) - July 1, 2008
Hospitalized July 4th thru 7th
Third round of chemo - July 8th thru 10th
Blood transfusion - Two units of blood - July 23, 2008
Treatment stopped late July 2008
CT scan - Results stable - August 2008
CT scan - Results showed significant growth - Offered Topotecan - Late September 2008September
Treatment declined - September 29, 2008
Entered hospice - October 1, 2008
Admitted to KC Hospice House - October 7, 2008
Earned wings at 6:25 AM on Wed., Oct. 15, 2008

Jackie, my mom, diagnosed with NSCLC - May 2008
Persistent cough - March/April 2008
Chest x-ray - April 18, 2008
Chest CT - April 23, 2008
Results showed nodule on left lung - April 28, 2008
Consultation with pulmonary specialist - May 9, 2008
Bronchoscopy with biopsy - May 13, 2008
PET scan - May 14, 2008
Results show NSC of unknown origin - May 15, 2008
First appt. with oncologist - May 21, 2008
Brain MRI (negative for cancer) - May 21, 2008
Colonoscopy (negative for cancer) - May 28, 2008
Diagnosis of of non-smal cell lung cancer - May 30, 2008
First round of chemo (Carboplatin/Taxol/Avastin) - June 16, 2008
Second round of chemo - July 7, 2008
Third round of chemo - July 28, 2008
Fourth round of chemo - August 18, 2008