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PostPosted: Wed Aug 06, 2008 8:56 am 
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I thought I'd get my request in early as Ry is only partially present these days. :lol: :lol: I'm going to Minnesota - the land of mosquitos - next week. We're leaving on Wednesday and will return the following Tuesday.

And guess what, Patti. I'm not trying to outdo you, but Sun Country said I could drive the plane and land it (unlike some who studied flying in FL). Next, I'm hoping to drive one of those things out at the Kennedy Space Center - and I don't mean a bus.

Muriel

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Dx NSCLC 5/03. Surgery UR lobe. Staged as 1B. Chemo (taxol & Carbo)9/15/03 - 11/13/03. Wonderful CTs until Nov 04. Surgery 11/27/04, again staged as 1B. Chemo (Cisplatin and Gemzar) 2/05 to 6/05. Good CTs and PET since chemo.


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PostPosted: Wed Aug 06, 2008 9:06 am 
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Well Muriel stock up on bug perfume. I understand what you mean about Ry. But then again I think you missed chat last night too. LOL
Flying a plane is a piece of cake. Patti is studying to pilot an Ark. Can't wait to see her land that!!!
You take care Muriel and have a great trip.

_________________
02/07 spot showed on chest x-ray
04/07 ct scan confirmed spot
07/07 pet scan could not confirm cancerous
09/07 had lobectomy of upper lobe on left lung.tumour was 2.1cm
10/07 lymph node samples were negative. classified as stage 1b.
12/07 Begin 4 rounds of adjuvant chemotherapy. Cisplatin and Vinerolbine on a 21 day cycle.
01/08 First 3 month chest x-ray was all clear.
03/08 After 3 rounds, cisplatin wil be replaced by carbo for the last round. Ringing in the ears is a side effect of cisplatn.
03/08/08 Had treatment yesterday of Carboplatin/Vinerolbine. So far feeling alot better than when I received the Cisplatin. Treatment lasted 2 hours compared to 5 hours for Cisplatin.
04/08 Chest x-ray. All clear.
06/08 chest CT Scan. All clear
09/08 Chest x-ray. All clear
11/08 Chest x-ray. All clear
02/09 Chest and abdomen CT Scan. All clear
04/09 Chest x-ray. All clear
06/09 Chest x-ray and abdominal ultrasound All clear
01/10 Chest x-ray. All clear


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PostPosted: Wed Aug 06, 2008 9:24 am 
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Remember Randy's tip

7. No More Mosquitoes
Place a dryer sheet in your pocket. It will keep the mosquitoes away.

I wonder if it just keeps them away from your a$$ or your whole body. :lol:

Have a great trip Muriel.

Denise


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PostPosted: Wed Aug 06, 2008 9:40 am 
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Muriel-

Have fun!!! I PM'd you this morning but see that you didn"t respond!! :( :( :(
SOME of us were quite worried about where you were last night!!

And by the way, you FLY a plane, you don't drive one!!! Everyone stay out of Minnesota!!!!!!!!!

And yes, I have acquired my Class II Ark license so I will be sailing that around once Bruce and I get it built!!! We can anchor it in Florida and take you for a ride!!!

Have fun on your trip - PLEASE be safe!!!!

Patti B.


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PostPosted: Wed Aug 06, 2008 10:36 am 
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Have a great time Muriel and watch out for those big ol bugs although I am sure they are no match for you. take care

Sandra


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PostPosted: Wed Aug 06, 2008 7:57 pm 
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Ok Muriel- the skeeter pass it is. While you're up here you might as well come over to Michigan and visit your old stomping grounds. We could do lunch. Have fun.

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Life is what happens to you while you're busy making other plans.
John Lennon

"Never, never, never give up." Winston Churchill

"I rang for ice, but this is ridiculous." -Madeline Talmadge-Astor, as she was being helped off the Titanic

"Losing love is like a window in your heart, everybody sees you're blown apart, everybody sees the wind blow". Paul Simon

Husband John has NSCLC-Vena Cava Syndrome Stage 3B, Dx 6/02
Carbo/Taxol,Radiation
Taxotere
Gemzar
Iressa started 3/03
10/03 Stable CT scan
1/04 CT Still stable.
3/04 PET Scan, Still stable.
7/04 Still stable
1/05 Still stable
1/30/05 Iressa discontinued Started Tarceva, still stable 7/05
1/06 Slight increase in tumor, stopping Tarceva.
1/27/06 Started Alimta
5/5/06 Avastin added to Alimta
6/14/06 Stable, continue w/ Avastin
1/29/07 Shrinkage! Continue w/ Avasin.
7/07- Something new on the CT scan, doing a bronc 7/25/07 to see what it is. 8/21/07 begins brachytherapy. Next treatment postponed until 9/6/7 due to an infection which is making him too ill for the procedure. 9/13/07 Diagnosed with Aspergillus. Has brachytherapy 9/20/07. Developed a pericardial effusion, 10/30/07 has a pericardial window to drain the fluid. Procedure goes well but he passes away 10/31/07 due to a pulmonary hemorrhage.
Pic is me and daughter Jillian aka The Jillinator.

Visit Walk the Walk:
www.michiganlungcancerwalk.org


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PostPosted: Thu Aug 07, 2008 6:31 am 
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Have a great time, Muriel!

And by the way, Patti, I refer you to your first "ark" posting where you volunteered to DRIVE it! (I see you now plan to SAIL it even though--to the best of my knowledge--arks don't come with sails. :lol:)

Affectionately,
Carole
(See http://lungevity.org/l_community/viewtopic.php?p=367085 for my update, which includes no steering of any kind; i.e., I am adrift! :lol:)

_________________
01/07 Dx NSCLC IIIB Squamous Cell (5 cm. Grade 3 tumor RLL & right hilar & mediastinal lymph nodes). Underwent concurrent radiation & chemo, which decr. tumor to 2 cm., but by 12/07 tumor growing & lymph nodes growing & spreading. 2nd & 3rd line chemos bombed & by 07/08 tumor back to 5 cm. w/mets to liver, left lung & lymph nodes. No viable treatments left, <b>but</b> I'm still pain-free so me and <b>my tattoo</b> are still <b>Dancing in the Street</b> (http://www.youtube.com/watch?v=7y-x2fWKbmo)--figuratively at least! See <b>My Story: Quality of Life</b> at http://lungevity.org/l_community/viewtopic.php?t=36841.

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PostPosted: Thu Aug 07, 2008 7:30 am 
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Carole-

But then you have never seen an ark built by me and Bruce!!!!! :lol: :lol: :lol:


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PostPosted: Thu Aug 07, 2008 8:58 am 
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Have fun Muriel but don't listen to Randy's advice. We heard that months ago and sent our grandson out on the dock night fishing with a scented dryer cloth in his pocket. Must have been the wrong scent cause he came back in BIT UP!

Judy in Key West


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PostPosted: Thu Aug 07, 2008 9:28 am 
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Thank you, thank you, thank you Carole. Of course you DRIVE an Ark or a boat (guess they call them ships in the Navy).

Thanks, Judy for the mosquito info. I was afraid that dryer sheets were too good to be true.

Ry, I'd love to have lunch. Do you mind driving to the Det. airport? I'll ask Sun Country if it's ok for me to drive the plane there on the way back to FL. I'm sure they won't mind.

Muriel

_________________
Dx NSCLC 5/03. Surgery UR lobe. Staged as 1B. Chemo (taxol & Carbo)9/15/03 - 11/13/03. Wonderful CTs until Nov 04. Surgery 11/27/04, again staged as 1B. Chemo (Cisplatin and Gemzar) 2/05 to 6/05. Good CTs and PET since chemo.


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PostPosted: Thu Aug 07, 2008 11:10 am 
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Your welcome Muriel, but wait, who said you "drive" a plane. I thought I saw that and thought, WHAT!!!!!!!

Judy in Key West


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PostPosted: Thu Aug 07, 2008 11:52 am 
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Stop thinking "what," Judy! In fantasy land, boats and planes are driven. Didn't you know that? :roll:

Muriel

_________________
Dx NSCLC 5/03. Surgery UR lobe. Staged as 1B. Chemo (taxol & Carbo)9/15/03 - 11/13/03. Wonderful CTs until Nov 04. Surgery 11/27/04, again staged as 1B. Chemo (Cisplatin and Gemzar) 2/05 to 6/05. Good CTs and PET since chemo.


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PostPosted: Thu Aug 07, 2008 12:36 pm 
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Hold everything! When does your plane arrive in Mpls? Remember some of us members LIVE here in MinnEsOta!! I'll try to mow my lawn the day you arrive and say, WELCOME BACK MURIEL! Wouldn't you doo doo your pants if you saw that out of the planes window? :wink: LOL LOL LOL!

It sure would be GREAT to get the chance to meet you!

The mosquito's are very much ALIVE AND WELL here in MinnEsOta!
They just MIGHT take over the plane your DRIVING if you don't watch out. We have a BUMPER CROP this year of these little buggers!

You have my phone number right? Well, if you have time, give me a call when your here. I'll let the little buggers know that fresh blood is on it's way. (slap, slap, swat, hit) teeheeteehee.

Hugs,
Connie

_________________
Warm and Gentle Hugs,
Connie B
Date Dx.d, 7/21/1995, Age 43, Adenocarcinoma, Stage IIIB, had 3.4cm tumor and three cancerous lymph nodes.
7/25/1995 had Left Lung Removed along with several lymph nodes.
9/9/95 Started Chemo (VP-16/Cisplatin), & Radiation (36 treatments). Cancer Free.
8/11/2003 CT Scan found 4mm Nodule Right Upper Lung. Did PET scan & Nodule Lite up. Also found a Tumor in my Left Atrium (Heart)
8/21/03 Open Heart Sugery for Myxoma Tumor in Left Atrium. During heart surgery (3) surgeons checked 4mm nodule & agreed it did not appear to be cancerous.
11/2004-CT & PET scan, nodule still there 6mm will watch.
4/2005-CT, Nodule still there and has grown to 8mm will do another CT in 9/2005. Waiting & watching nodule.
9/2005 CT Nodule has shrunk to 5mm. Doctor's feel nodule could be scar tissue.
2/2006 Having Shortness of Breath problems.
4/2006 CT, nodule 5mm No Change.
11/2006 CT scan no change in Nodule.
4/26/07 Results of CT scan shows I have another Noudule. Now have two nodules, one is 6-7mm & the new one is about 3mm.
9/2007 CT shows 3 nodules all mm in size. First 2 have no change in them. New one is very small. Repeat CT in 6 months.
12/11/07 Still NED
5/7/08 CT (right lung) (nodules watch) two new nodules I now have 5 nodules. Will watch via CT scans.
10/08 CT Scan showed 1 nodule 6mm has grown to 1.2cm.
5/22/09 CT Scan (awaiting results)
7/4/09 PET Scan (3 nodules in left lung are now 1.4c.m in sizes.
8/13/09 Did Bronhcoscopy
8/18/09 NOT Cancer, no cancer found.
Next PET Scan Oct 2009.

READ MY STORY @ http://www.lungevity.org/l_community/vi ... hp?t=13224

Lost my Father age 56(1970), Mother age 66 (1987), and Sister age 43 (1988) all to Lung Cancer
AVATAR is in Iowa @ the Presidential Cancer Forum


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PostPosted: Thu Aug 07, 2008 12:47 pm 
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Muriel, I can accept that but think maybe you've been a little "driven" whacko hanging around with those other crazy ladies whose names I will not mention.

Don't we all have better things to do? Nah!!!


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PostPosted: Thu Aug 07, 2008 2:20 pm 
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It's so reinforcing and empowering to see others agree with me re: driving planes. Do you suppose it's only in MinnEsOta that they call it driving? Like casseroles and Hot dishes (I no longer can remember which one is "Minnesotan").

Connie, I'll send you a pm re: our MN trip. Wouldn't want the keg bus/ark to show up in the Land of 10,000 Lakes.

Muriel

_________________
Dx NSCLC 5/03. Surgery UR lobe. Staged as 1B. Chemo (taxol & Carbo)9/15/03 - 11/13/03. Wonderful CTs until Nov 04. Surgery 11/27/04, again staged as 1B. Chemo (Cisplatin and Gemzar) 2/05 to 6/05. Good CTs and PET since chemo.


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PostPosted: Thu Aug 07, 2008 3:18 pm 
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Well Muriel. Tom was a pilot and he always FLEW his planes. I suppose as long as it does not leave the ground it can be called DRIVING. Although if you are still on the runway it would be TAXIING.

Denise


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PostPosted: Thu Aug 07, 2008 3:54 pm 
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Thanks for that tidbit of info., Denise. :roll: However, I don't care how many pilots we have around here, I'm planning to drive the plane at about 30,000 ft. Call it what you want, I'll be steering it and making decisions re: where, etc. Would Tom like to travel with us?

Muriel

_________________
Dx NSCLC 5/03. Surgery UR lobe. Staged as 1B. Chemo (taxol & Carbo)9/15/03 - 11/13/03. Wonderful CTs until Nov 04. Surgery 11/27/04, again staged as 1B. Chemo (Cisplatin and Gemzar) 2/05 to 6/05. Good CTs and PET since chemo.


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PostPosted: Thu Aug 07, 2008 3:59 pm 
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Only if he can "PILOT" the plane. He has not done so since his Bypass 4 1/2 yrs ago. He needs a little refresher course.

Denise

_________________
[color=green]Tom 77 yrs young, Devoted Wife of 20 yrs Denise age 49 yrs, 6 kids, 5 granddaughters, 2 grandsons [/color]
__________________________________
[color=blue]1/29/08 Diagnosed with Stage IIIA NSCLC Squamous Cell with lymphnode and liver involvement.
1/29/13 - 5 Year survivor!!
1/29/12 -4 years Survivor!!
2/11/08 - 7/16/08 7 rounds of chemo w/ Carbo/Taxol
3/24/08 Restaged at IV.
4/28 CT Scan
5/5 Results day / Great scan w/ overall shrinkage.
5/12 MRI scheduled.
5/20 - Rad consult
5/28 - 7/16 Radiation to chest 35 rounds
8/18 - CT shows the lung tumor is down to 3.7cm x 2.7cm and liver lesion is GONE!! No signs of metastatic disease within the abdomen. No further treatment need at this time. Next scan in 3 months.
12/5 Hospitalized with pneumonia
12/6 CT Scan all clear. Tumor continues to shrink.
12/10 Home on 24/7 Oxygen. SOB continues.
5/18/09 PET SCAN ALL CLEAR!!!
5/2010 NED!!
4/2012 NED!!
10/2012 CT = Mixed bag of nuts
[/color]

[color=purple]Don’t be afraid your life will end, be afraid that it will never begin. [/color]

[color=red]READ TOM'S STORY @ [/color]
http://www.lungevity.org/l_community/viewtopic.php?t=37425


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PostPosted: Thu Aug 07, 2008 5:15 pm 
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:lol: :lol: :lol: :lol: :lol: :lol: :lol: :lol: :lol: :lol: :lol:
Too TOO FUNNY! Details, Details, Details!! I'll be the backseat driver if you want Muriel! Gotta have one of them!!!! You know why there's always a back seat driver don't you? Mostly when men are driving and women get stuck in the backseat. It's because when the Pilot (frontseat driver) screws up, the backseat driver smacks the frontseat driver in the back of the head and says, "Pay attention to where the hell your going or what your doing!" :wink: It's a hell of a job, but someone has to do it!


Quote:
"Muriel"]Thanks for that tidbit of info., Denise. :roll: However, I don't care how many pilots we have around here, I'm planning to drive the plane at about 30,000 ft. Call it what you want, I'll be steering it and making decisions re: where, etc. Would Tom like to travel with us?

Muriel

_________________
Warm and Gentle Hugs,
Connie B
Date Dx.d, 7/21/1995, Age 43, Adenocarcinoma, Stage IIIB, had 3.4cm tumor and three cancerous lymph nodes.
7/25/1995 had Left Lung Removed along with several lymph nodes.
9/9/95 Started Chemo (VP-16/Cisplatin), & Radiation (36 treatments). Cancer Free.
8/11/2003 CT Scan found 4mm Nodule Right Upper Lung. Did PET scan & Nodule Lite up. Also found a Tumor in my Left Atrium (Heart)
8/21/03 Open Heart Sugery for Myxoma Tumor in Left Atrium. During heart surgery (3) surgeons checked 4mm nodule & agreed it did not appear to be cancerous.
11/2004-CT & PET scan, nodule still there 6mm will watch.
4/2005-CT, Nodule still there and has grown to 8mm will do another CT in 9/2005. Waiting & watching nodule.
9/2005 CT Nodule has shrunk to 5mm. Doctor's feel nodule could be scar tissue.
2/2006 Having Shortness of Breath problems.
4/2006 CT, nodule 5mm No Change.
11/2006 CT scan no change in Nodule.
4/26/07 Results of CT scan shows I have another Noudule. Now have two nodules, one is 6-7mm & the new one is about 3mm.
9/2007 CT shows 3 nodules all mm in size. First 2 have no change in them. New one is very small. Repeat CT in 6 months.
12/11/07 Still NED
5/7/08 CT (right lung) (nodules watch) two new nodules I now have 5 nodules. Will watch via CT scans.
10/08 CT Scan showed 1 nodule 6mm has grown to 1.2cm.
5/22/09 CT Scan (awaiting results)
7/4/09 PET Scan (3 nodules in left lung are now 1.4c.m in sizes.
8/13/09 Did Bronhcoscopy
8/18/09 NOT Cancer, no cancer found.
Next PET Scan Oct 2009.

READ MY STORY @ http://www.lungevity.org/l_community/vi ... hp?t=13224

Lost my Father age 56(1970), Mother age 66 (1987), and Sister age 43 (1988) all to Lung Cancer
AVATAR is in Iowa @ the Presidential Cancer Forum


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PostPosted: Tue Aug 19, 2008 12:51 am 
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I'm turning in the mosquito pass, but may need a "Fay" pass. The last report indicates that Fay will be just east of downtown Orlando about 8pm Tues. night and near Cocoa Beach by 8 Wed. morning.

I'll update the hurricane info. in the General section - unless we lose power.

More about MN later. We came back a day early. Didn't arrive in Orlando till midnight and now it's 3 am.

Muriel

_________________
Dx NSCLC 5/03. Surgery UR lobe. Staged as 1B. Chemo (taxol & Carbo)9/15/03 - 11/13/03. Wonderful CTs until Nov 04. Surgery 11/27/04, again staged as 1B. Chemo (Cisplatin and Gemzar) 2/05 to 6/05. Good CTs and PET since chemo.


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PostPosted: Tue Aug 19, 2008 3:53 am 
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Muriel-

Gkad you are back but please be safe. Will be thinking about you today.

Hugs - Patti


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PostPosted: Tue Aug 19, 2008 7:25 am 
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Muriel, Welcome back. I hope you guys fare as well as we did in Key West. Nothing more than a few green leaves on the ground in our back yard. The media hype is horrible and gives us a bad name. We Floridians look like nut cakes to live here!

Judy in Key West


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PostPosted: Tue Aug 19, 2008 9:30 am 
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Glad you made it home safe and sound. I think Fay is losing it's strength so they say!!!!!!

We/I had a GREAT TIME meeting YOU! If anyone can believe this, Muriel is just as wonderful in person as she is on the board! :wink: It was an honor and pleasure to meet you my friend! ((((Muriel))))

Hope you and Con had a nice flight home.

Talk to you soon.

_________________
Warm and Gentle Hugs,
Connie B
Date Dx.d, 7/21/1995, Age 43, Adenocarcinoma, Stage IIIB, had 3.4cm tumor and three cancerous lymph nodes.
7/25/1995 had Left Lung Removed along with several lymph nodes.
9/9/95 Started Chemo (VP-16/Cisplatin), & Radiation (36 treatments). Cancer Free.
8/11/2003 CT Scan found 4mm Nodule Right Upper Lung. Did PET scan & Nodule Lite up. Also found a Tumor in my Left Atrium (Heart)
8/21/03 Open Heart Sugery for Myxoma Tumor in Left Atrium. During heart surgery (3) surgeons checked 4mm nodule & agreed it did not appear to be cancerous.
11/2004-CT & PET scan, nodule still there 6mm will watch.
4/2005-CT, Nodule still there and has grown to 8mm will do another CT in 9/2005. Waiting & watching nodule.
9/2005 CT Nodule has shrunk to 5mm. Doctor's feel nodule could be scar tissue.
2/2006 Having Shortness of Breath problems.
4/2006 CT, nodule 5mm No Change.
11/2006 CT scan no change in Nodule.
4/26/07 Results of CT scan shows I have another Noudule. Now have two nodules, one is 6-7mm & the new one is about 3mm.
9/2007 CT shows 3 nodules all mm in size. First 2 have no change in them. New one is very small. Repeat CT in 6 months.
12/11/07 Still NED
5/7/08 CT (right lung) (nodules watch) two new nodules I now have 5 nodules. Will watch via CT scans.
10/08 CT Scan showed 1 nodule 6mm has grown to 1.2cm.
5/22/09 CT Scan (awaiting results)
7/4/09 PET Scan (3 nodules in left lung are now 1.4c.m in sizes.
8/13/09 Did Bronhcoscopy
8/18/09 NOT Cancer, no cancer found.
Next PET Scan Oct 2009.

READ MY STORY @ http://www.lungevity.org/l_community/vi ... hp?t=13224

Lost my Father age 56(1970), Mother age 66 (1987), and Sister age 43 (1988) all to Lung Cancer
AVATAR is in Iowa @ the Presidential Cancer Forum


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