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 Post subject: update on brain scan
PostPosted: Mon Nov 09, 2009 7:08 am 
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CT BRAIN SCAN

There is a large mass occupying the right temporo parietal lobe. Evidence of enhancemeng. Considerable surrounding oedema. Evidence of mass effect. Effacement of suici. Some compression of the right lateral ventricie.No other focal lesion seen in the brain. No abnormality seen within the vault.

CONCLUSION:
There appears to be a large metastatic lesion in the right parieto temporal region

I went over to my doctor with the results. we get them within an hr or so in australia. He said that it is from the blood stream (very fast) because the primary in my lung would have only started 6 to 9 months ago and I've had the headaches for a few months so it travelled pretty quickly. I had an oncologists appt for tomorrow but when I got home they had called anc cancelled till next week. Spoke with my doctor for an hour and a half today... this disease is going to kill me and it looks like at least it will be fast.
Marisa

_________________
Stage 1A NSCLC, surgery November, 2000.
October 2009, Stage 4 with mets to brain. New cancer, inoperatable


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 Post subject: Marisa
PostPosted: Mon Nov 09, 2009 9:01 am 
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My heart is breaking for you dear one. I'm sending extra prayers your way. Please let us know how your appt goes next week and what your treatment options will be.

We are all here for you anytime you need us.

((hugs and prayers))

_________________
Jan 09 husband diagnosed with stage 3 adenocarcinoma.
Oct 09 passed peacefully at home after enduring a very difficult battle. I miss him dearly.


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PostPosted: Mon Nov 09, 2009 9:54 am 
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Hi Michelle
I was told that it may not even be treatable at this stage and even if it is I will choose the path less travelled. I'm not going to go for any more opinions, I've already seen a couple then again next week with the onco who will inform me if it is even treatable. Quality of life is important to me.. not quantity and I believe death is just another plane of existence. I'm really ok with all this... just scared of pain but the doctors have assured me that I won't be writhering in agony in a hospital bed. There will be meds available. One thing I do worry about is the possibility of a seizure but I was also told that one is not really aware of it until you come out of it.

_________________
Stage 1A NSCLC, surgery November, 2000.
October 2009, Stage 4 with mets to brain. New cancer, inoperatable


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 Post subject:
PostPosted: Mon Nov 09, 2009 10:25 am 
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I completely respect your choice of the path less traveled route and quality of life. Looking back on my husbands journey I wish we had done that and I too will chose that route should the time ever come.

Please come back and let us know what happens at the doc appt and how you're doing Marisa. My thoughts are with you.....you are a strong wonderful woman.

((hugs and prayers))

_________________
Jan 09 husband diagnosed with stage 3 adenocarcinoma.
Oct 09 passed peacefully at home after enduring a very difficult battle. I miss him dearly.


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 Post subject:
PostPosted: Mon Nov 09, 2009 11:57 am 
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(((Marisa))),
I'm just so so sorry that your disease has progressed to this point. My heart is breaking for you and the tears are streaming down my face. You are such an inspiration in the way you are thinking this out and you appear to be at peace with whatever is to be. Not having been in your situation, I don't know if I could ever have such courage.. I guess a person doesn't know until it happens to them . This decision has to be yours. Please keep in touch with us and let us know what your doctor has to offer and what your final decision is.. In the meantime, I want you to know that you will be in my prayers.

Hugs,
Sue

_________________
[size=84]husband, Mike, 59 years old
**2-01 dx'd Stage 1 nsclc-9cm tumor to right lung-no lymph node involvement...
**4-30-01 pneumonectomy right lung removed. No followup chemo or radiation , but scans and xrays were done
**1-28-04 dx w/recurrent stage IV nsclc tumor on stump of where right lung had been removed , lymph node involvement, tumor adrenal gland -lft side, **02-04-04- taxol & carboplatin 3 treatments-didn't work
**02-12-04- radiation 10 to lung for bleeding
**04-2--04-taxotere had 4 treatments. shrinkage had occured in all after 3.. continuing taxotere. making him very tired ... upper body swelling ..
** 08-01-04-in hospital
latest..
**08-02-04 had stent put in .. superior vena cava.. the vein was being blocked by pressure tumor.
**08-05-04-started 10 radiation treatments,
**08-30-04- started Navelbine on 3 weeks and off 1 Scan after 5 treatments show chemo Navelbine not working -slight decrease to lung mass, but slight increase to adrenal ....
**11-01-04-starting Gemzar ... had 3 treatments... too many side effects... Ct of chest and upper abdomen done on Dec. 2nd -results some shrinkage
**12-06-04-started Alimta Dec. 6th- first treatment went well Had 2nd treatment Dec. 27th ... developed a rash and is tired, but otherwise ok Scan Feb 7th, 2005 STABLE doing good continuing Alimta April 18th scans showed stable disease (after 6 Alimta treatments), but he now has pneumonitis... no more treatments until much better.. on prednisone and oxygen..
**05-31-05 Ct scan of chest showed pneumonitis resolved and stable cancer
**06-06-05-our 35th wedding anniversary... onc confirms everything resolving and stable -reccommends break continued til August
**6-15-05 to 6-18-05 in hospital due to mental confusion ..
had MRI-member empty head club

8-3-2005-Ct scans chest , abdomen and pelvic....Waiting and praying...
**8-8-2005-Ct results were that the chest area looked improved, but the adrenal area had increased and involved some lymph nodes.
Started Tarceva 150mg 8-16-2005-8-20-2005 stopped 2 weeks due to severe rash on 9-8-2005 started back on Tarceva at 100 mg now.. stopped again on 9-19-2005
9-30-2005 scans slight progression to nodes behind adrenal..
10-10-2005-Camptosar- CPT-11 started
10-31-2005- CPT-11
refused more CPT-11 made him extremely fatigued and nauseated
Dec. 6th -CTscans chest, abdomen & pelvic. shows stable but tumor compressing the esophagus..
Dec. 19th- had stent to trachea put in
Dec. 21st- he had stent to esophagus and feeding tube put in
Dec. 22nd.. he will ill put in hospital... vomiting and also coughing and congestion in for 4 days... home for Christmas Dec. 25th... still recouperating with antibiotics etc.
Continuing cough and numerous doctor visits.
*Jan 30th-Feb 4th- hospitalized again with cough ..
Still has cough , but controlled most of the time Hasn't been able to resume chemo

**My "prince charming", best friend, husband and soul mate,, Mike passed away March 2, 2006 after being a 5 year survivor and fighting a very courageous battle**
______________________
Mom- 78 yrs old..
nsclc diag May 2nd, 2007-surgery 2sm tumors removed in wedge section... lymph nodes clear
Tarceva as adjuvant started on June 23rd..quit July2nd.. side effects numerous... am waiting now til next appt. July 13th
July 20th... Mom NED.PET clear and normal .. will go back on half 75mg Tarceva... see how that works..
Stop Tarceva 8-25 too many side effects
Oct. 22nd- Mom surgeon visit, chest xray and results .. all clear, no sign of cancer...
Feb. 18th Mom's PET Scan
March 7th Mom's PET Scan results.. NED
Sept. 22, 08 Mom PET Scan
Sept. 29, 08 Mom PET results new nodule 3/4 "...here we go again.... :-(
*Updated*- Mom surgery- Oct. 30th.. surgeon removed top part of upper right lobe. Nothing showed malignant. She had pneumonia after surgery and a 3 week hospital stay, but she is slowly regaining her strength and is currently NED..

March 3, 2009 CT scan.... results showed some little things along suture line that the doctor believed was healing.. will wait til next scan and compare.

June 2, 2009- CT Scan.. results there is an area along suture line that has increased in size and thickening.. doctor thinks could be cancer... a needle biopsy will be done..

A quick update.. the results of the needle biopsy did confirm that it was cancer...

Cyberknife was done the first week in November..

Pet scan .. Dec. 8th...
Dec. 11th -results .. cyberknife worked and the rest of the scan is clean... YAY!!! Happy Birthday (Dec. 19th.. 81st) and Merry Xmas Mom!
Dec. 2010 NED!!!
June 2, 2011.. Pet Scan results .. NED!!!
Nov 3, 2011.. CT scan results.. NED!!!
Sept. 18, 2012 .. our loving mom has passed on ..Heaven received a most precious angel.


graphic by
http://www.maryslittlelamb.com[/size]


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 Post subject:
PostPosted: Mon Nov 09, 2009 12:17 pm 
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Posts: 2789
Location: Rockford IL
Dearest,
I want to post my admiration for your wonderful attitude and your willingness to share it with us.
I will hold you in fervent prayer and highly treasure your peacefulness. It is a gift.
Pat

_________________
Brian 6-4-48 - 1-1-06
Brian dx w/ NSCLC w/ nueroendocrine features/adenopathy, & mets to liver following routine Chest x-ray >>>> CTScan,needle biopsy,PET/CT fusion scan.(2-2005)
Lung tumor inoperable due to location. Radiation not an option due to Liver met. No discussion relative to prognosis......
3/2/05 1st cycle Cisplatin / VP16 - Tolerated fairly well.
3/23/05 2nd cycle - really knocked Brian for a loop. Lots of nausea and weakness.
4/5/05 scan 4/13/05 (onc visit/results/begin 3rd round:mixed news: reduction in tumor sizes TX plan: 2 more rounds of Cisplatin/Vp16 Weekly labs to watch low hmglbn (injections prn)
4/20/05 Brain MRI (Bri joins empty head club!)
4/27/05 Portacath installation
5/4/05 4th round cpltn/VP16 much difficulty w/ side effects.
5/10/05 scans show no further reduction of lung or liver tumors.
5/25/05 5th cycle Cis/VP16 postponed till 5/31/05 (need time to rebound a bit) round 5 was rough: exhaustion, labored breathing, fever, anxiety.
6/23/05 Doc appointment to address above and okay Tarceva start. Lung Xray done to check for pneumonia as possible explanation for fever.
6/24/05 Begin Tarceva 150mg daily.
next scheduled onc appt or PRN for 8/4/05
6/27/05 OOPS PRN came sooner rather than later>call from onc: chest film showed lung tumor growing quickly
6/27/05 CT scheduled for 7PM
6/30/05 Bad news per CT: progression. Brian is too weak for more chemo so praying that Tarceva will halt growth while Brian gathers strength to fight on.
8/2Scans
8/4/2005 onc appt:Bad news Rapid progression. Off Tarceva.
8/4 began Carboplatin/CPT-11 Praying!
9/1/2005 Chemo had been postponed due to low white blood cells, but began again today.
9/8/2005 next infusion
Brian is very ill, problems w/ voice. Scans & Visit moved up:
9/16/2005 CT Scan
9/19/2005 Onc says scans show significant reduction in tumor volume. Plan is to continue CPT 11 alone for 3 more weeks then 2 weeks off so Brian can gain strength for family wedding in FL on 10/22/05. Carboplatin has to be stopped due to progressing nueropathy.
10/17-19/05 Bri hospitalized with abdominal pain and fever.
10/20-24/05 FL for wedding (Brian was really too sick to go, but we realized that too late)
10/27/05 Scans taken during hospitalization show remarkable progression of disease. Brian begins Alimta and Sandostatin.
He is very ill and spending more and more time in bed.
11/10/2005 No more Alimta. Liver enzymes out of control. More progression. He is receiving Navelbine and low doses of Carboplatin. Brian continues to trend downward.
12-22-05 Onc says no more tx. Brian is too weak.
12-24-05 Hospice called in.
1/01/06 Brian is called Home.
Brian's love remains a great gift. I miss him like fire.


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 Post subject:
PostPosted: Mon Nov 09, 2009 12:38 pm 
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Posts: 2542
Location: Hawaii
Quote:
Quality of life is important to me...not quantity and I believe death is just another plane of existence. I'm really ok with all this...

I'm 100 percent in sync with you on that, Marisa, but in the interim, who knows what might happen? Much Aloha,

Ned

_________________
Ned is just my nickname, though it would be nice to merge it with the other meaning eventually...

Aloha means "Hello, goodbye, love, compassion, welcome, good wishes." It means belonging to others with a common humanity. It's defined better as a feeling in the heart than by words.

Dx NSCLC adenocarcinoma IIIb Sep 2006, now stage IV. Taxol+Carboplatin+Avastin 4 mo., Avastin 8 mo., Tarceva 16 mo., Alimta 12 mo. (sometimes combined with Cisplatin or Carboplatin), Navelbine since Feb 2010, 10 sessions of WBR in March 2011. See My Cancer Journey: viewtopic.php?p=351369#p351369 — UPDATED 03/05/2011.

Above left: Our golden retriever Rosie, who joined the family on 3/5/08 at the playful age of 2.

Below: Hannah, our golden companion 1994-2007.

Image


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 Post subject: Marisa
PostPosted: Mon Nov 09, 2009 12:57 pm 
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Posts: 2636
Location: Redding California
You know how I feel. I did reply to your email. Just know that I am here whenever you need to talk. My love and best wishes with many prayers are sent your way. Love Lillian


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 Post subject:
PostPosted: Mon Nov 09, 2009 3:18 pm 
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Joined: Sat Mar 05, 2005 6:12 pm
Posts: 2789
Location: Rockford IL
I really like what Ned said: "Who knows what may happen?" Stay open to God's Plan and possible changes in your situation or thinking.
Ned, you are very much appreciated.
P

_________________
Brian 6-4-48 - 1-1-06
Brian dx w/ NSCLC w/ nueroendocrine features/adenopathy, & mets to liver following routine Chest x-ray >>>> CTScan,needle biopsy,PET/CT fusion scan.(2-2005)
Lung tumor inoperable due to location. Radiation not an option due to Liver met. No discussion relative to prognosis......
3/2/05 1st cycle Cisplatin / VP16 - Tolerated fairly well.
3/23/05 2nd cycle - really knocked Brian for a loop. Lots of nausea and weakness.
4/5/05 scan 4/13/05 (onc visit/results/begin 3rd round:mixed news: reduction in tumor sizes TX plan: 2 more rounds of Cisplatin/Vp16 Weekly labs to watch low hmglbn (injections prn)
4/20/05 Brain MRI (Bri joins empty head club!)
4/27/05 Portacath installation
5/4/05 4th round cpltn/VP16 much difficulty w/ side effects.
5/10/05 scans show no further reduction of lung or liver tumors.
5/25/05 5th cycle Cis/VP16 postponed till 5/31/05 (need time to rebound a bit) round 5 was rough: exhaustion, labored breathing, fever, anxiety.
6/23/05 Doc appointment to address above and okay Tarceva start. Lung Xray done to check for pneumonia as possible explanation for fever.
6/24/05 Begin Tarceva 150mg daily.
next scheduled onc appt or PRN for 8/4/05
6/27/05 OOPS PRN came sooner rather than later>call from onc: chest film showed lung tumor growing quickly
6/27/05 CT scheduled for 7PM
6/30/05 Bad news per CT: progression. Brian is too weak for more chemo so praying that Tarceva will halt growth while Brian gathers strength to fight on.
8/2Scans
8/4/2005 onc appt:Bad news Rapid progression. Off Tarceva.
8/4 began Carboplatin/CPT-11 Praying!
9/1/2005 Chemo had been postponed due to low white blood cells, but began again today.
9/8/2005 next infusion
Brian is very ill, problems w/ voice. Scans & Visit moved up:
9/16/2005 CT Scan
9/19/2005 Onc says scans show significant reduction in tumor volume. Plan is to continue CPT 11 alone for 3 more weeks then 2 weeks off so Brian can gain strength for family wedding in FL on 10/22/05. Carboplatin has to be stopped due to progressing nueropathy.
10/17-19/05 Bri hospitalized with abdominal pain and fever.
10/20-24/05 FL for wedding (Brian was really too sick to go, but we realized that too late)
10/27/05 Scans taken during hospitalization show remarkable progression of disease. Brian begins Alimta and Sandostatin.
He is very ill and spending more and more time in bed.
11/10/2005 No more Alimta. Liver enzymes out of control. More progression. He is receiving Navelbine and low doses of Carboplatin. Brian continues to trend downward.
12-22-05 Onc says no more tx. Brian is too weak.
12-24-05 Hospice called in.
1/01/06 Brian is called Home.
Brian's love remains a great gift. I miss him like fire.


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PostPosted: Mon Nov 09, 2009 7:08 pm 
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That's exactly what I am doing.... staying open to Gods plan. It's his decision on the decisions that I make in my estimation. I pray for guidance to do the right thing constantly

_________________
Stage 1A NSCLC, surgery November, 2000.
October 2009, Stage 4 with mets to brain. New cancer, inoperatable


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 Post subject: re
PostPosted: Mon Nov 09, 2009 7:21 pm 
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OVER 1000 POSTS !
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Posts: 1018
Location: Yellowknife, Canada
Hi Marisa
We have been talking for the last while so you know I feel. I just want to again say how very courageous you are and have been all through this painful process. Just know that we are here to support you any way we can. Take care friend.

_________________
02/07 spot showed on chest x-ray
04/07 ct scan confirmed spot
07/07 pet scan could not confirm cancerous
09/07 had lobectomy of upper lobe on left lung.tumour was 2.1cm
10/07 lymph node samples were negative. classified as stage 1b.
12/07 Begin 4 rounds of adjuvant chemotherapy. Cisplatin and Vinerolbine on a 21 day cycle.
01/08 First 3 month chest x-ray was all clear.
03/08 After 3 rounds, cisplatin wil be replaced by carbo for the last round. Ringing in the ears is a side effect of cisplatn.
03/08/08 Had treatment yesterday of Carboplatin/Vinerolbine. So far feeling alot better than when I received the Cisplatin. Treatment lasted 2 hours compared to 5 hours for Cisplatin.
04/08 Chest x-ray. All clear.
06/08 chest CT Scan. All clear
09/08 Chest x-ray. All clear
11/08 Chest x-ray. All clear
02/09 Chest and abdomen CT Scan. All clear
04/09 Chest x-ray. All clear
06/09 Chest x-ray and abdominal ultrasound All clear
01/10 Chest x-ray. All clear


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 Post subject:
PostPosted: Mon Nov 09, 2009 8:52 pm 
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Posts: 8424
Location: Greensboro North Carolina
Marissa the fight and courage you are showing right now, brings to mind 2 people also, Dean Carl and Carole Hammett! They both have a lot of info on dealing with this mentally and physically also. This was a Dean Carl original Poem he wrote!!

Quote:
Many of us here remember Dean Carl.Many newer members mabe don't.Dean was one of our very supportive and inspirational members here and was blessed with much wisdom.We lost Dean a while back but his wisdom still exists here in the Path Less Traveled Forum.This is a poem he wrote himself back in March2004.

Cancer!

Oh, how we fear that word!

I say to you, "I have cancer"
And I watch you,
refuse to hear.

I say to you, "I have cancer"
And I watch you,
bury me with your eyes.

Yes, I have CANCER.
Please,
Please hear the word.
But do not lay me in my grave,
At least,
Not just yet.

Oh, I know this disease
Will someday take my life.
The chances of that are,
Shall we say,
Rather high.

Yes, I know that which will take me,
From this world.

But not today!

But then again,
That's all I've ever had.
Today.

And to tell the truth,
(which I've been known to do at times)
That's all any of us ever have.
Today.

So today, I think,
I'll get up early,
And watch the sun set fire to the sky.

Today, I think,
I'll tell my wife,
"I love you", at least a hundred times.

Today, I think,
I'll find a way to laugh so hard,
I'll give myself a stomach ache.

Today, I think,
I'll go to the cliffs above the ocean
And ask old man Ocean what he knows that I don't.

Today, I think,
I'll climb down into the abyss,
And spit in the Devil's eye.

Today I'll do so many wonderful things.
And those I don't get done today.
I'll do tomorrow when tomorrow becomes today.

Yes, I have cancer
Yes, I will die from it someday.
But not today.

Not today.




Prayers and Hugs every and each day to you!!

_________________
April/03 My Wife Deborah, age 46, diagnosed adenocarcinoma NSCLC
1/20/2006 Admitted to hospital Respiratory distress
1/23/2006 Ran to the light and is waiting for us to be rejoined in the Kingdom Of Heaven Her journey is Over but mine lingers on for Now!!!
4/23/07 DEb is joined in Peace by her Puppy Dawg Daisy from Cancer
8/30/07 Got new Pup named Mocha!!

"No matter hnow much it hurts, No matter how alone you feel, Your friends will help you get through anything!!"
Scrubs!!!!Yes the comedy show!!!

The Reason I advocate
If you would like to see our family photos Click on this link!
http://deborah-wallin.memory-of.com/

My memory-of Link is good to go now if you want to see it!!


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PostPosted: Mon Nov 09, 2009 9:12 pm 
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Ohhhhhhhhhhhh Randy.......Thank you for posting this! And Marisa....I'm sending more prayer your way dear one.

_________________
Jan 09 husband diagnosed with stage 3 adenocarcinoma.
Oct 09 passed peacefully at home after enduring a very difficult battle. I miss him dearly.


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PostPosted: Tue Nov 10, 2009 12:22 am 
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Oh Randy... I hadn't seen that poem of Deans. It has brought tears to my eyes. He was such a wonderful man!

_________________
Stage 1A NSCLC, surgery November, 2000.
October 2009, Stage 4 with mets to brain. New cancer, inoperatable


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PostPosted: Tue Nov 10, 2009 8:49 am 
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Posts: 14986
Location: Texas
Thinking about and praying for you. Just wanted you to know that you have support here and many many prayers.

_________________
- Katie Brown, Co-Founder and Director of LCSC-

15 yr cancer survivor.

"Any of us who have experienced the cancer journey- and survived it-
have an obligation to make the path clearer and aid those that come after us."
- Lance Armstrong


In memory of Jessee Dewey, SCLC
December 29, 1938 - September 6, 2003
Lisa Dewey- Jan. 22, 2007

my parents are together in heaven
ImageImage

facebook www.facebook.com/lungevity


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PostPosted: Wed Nov 11, 2009 7:52 pm 
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Hi everyone
I'm going to request a hall pass because I won't be around posting for a few days... (maybe lurking a bit) because I have alot of organisational things to do... Will copy and passte this in there too..
Marisa

_________________
Stage 1A NSCLC, surgery November, 2000.
October 2009, Stage 4 with mets to brain. New cancer, inoperatable


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 Post subject: Marisa
PostPosted: Wed Nov 11, 2009 8:41 pm 
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Take the time you need dear one....my thoughts and prayers will be with you....just post when you can so we know how you're doing ok?


((((hugs))))

_________________
Jan 09 husband diagnosed with stage 3 adenocarcinoma.
Oct 09 passed peacefully at home after enduring a very difficult battle. I miss him dearly.


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 Post subject:
PostPosted: Thu Nov 12, 2009 9:57 am 
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Posts: 2604
Location: Auburn, Alabama
Mairsa,

I will be keeping you in my prayers. You know we love you and are here when you need us.

Susan

_________________
76 year-old mom diagnosed with stage IV lung cancer January 5, 2007.

15 radiation treatments to the spine and four rounds of chemo, Jan-May, 2007.

Stable disease May, 2007-May, 2008.

Bone scan May, 2008 shows new mets in the spine, pelvis and ribs.

July, 2008--finished radiation and has a Quadramet treatment.

October, 2008--Scans show mild progression. Began chemo (carbo/taxol/avistin). Will have four rounds of threatment (every 21 days) and scan in January.

01/05/2009--TWO YEAR SURVIVOR!

4/2009--STABLE! No treatment. Next scan in July

7/2009--Scan shows pleural effusion. Fluid drained and malignant. Cancer has spread to other lung and a 13 mm lesion is seen on the liver. Mom to begin Alimta on 8/3

11/2009--Alimta was hard on mom and scans showed progression.

12/2009--began Tarceva, noticed almost immediate improvement.

2/25/2010--Celebrated Mom's 80th birthday!

5/15/2010--Mom watched her oldest granddaughter graduate from college and then paritied well into the night! She's still feeling great.

6/15/2010--Mom watched her youngest granddaughter graduate from high school. Still feeling great!

8/2010-10/2010--Mom begins feeling tired and stays in bed more and more. Scans reveal that the cancer is moving rapidly throughout her body.

10/13/2010--Mom wins her battle once and for all, and passes to a place where the cancer can no longer touch her.

For a more detailed timeline see:

http://www.lungevity.org/l_community/viewtopic.php?p=360385#360385


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 Post subject:
PostPosted: Thu Nov 12, 2009 1:56 pm 
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Joined: Fri Dec 28, 2007 6:32 pm
Posts: 4769
Location: Key West, FL
Marisa, I can't believe I missed this thread. I hope you are still lurking. I want to tell you that I so admire the grace and courage you are showing in the face of the rapid progress of your disease. Please take care and know that all of us here will keep you in our hearts. Keep us update as you can.

Judy in Key Wes

_________________
Cytology report on fluid removed from lung after pleural effusion and pneumonia Sep 07 showed adenocarcinoma cells. Dx IIIb NSCLC Oct '07 at MDACC, Orlando. Fol 6 rounds Taxol/Carboplatin/Avastin and 2 Avastin, CT/PET 4/1/08 pleural thickening gone and no active cancer cells. 11/3/08 STILL NEVD. CT/PET/MRI 5/4/09 Cancer back, still in the pleura and chest wall, small amt of fluid, all in left lung.
5/11/09 Start on Alimta every three weeks.
7/13/10 Had Alimta on road in Corning NY.
8/24/09 Scans show some improvement. Continue on Alimta.
9/14/09 Chemo on road in Mt Holly NJ.
10/6/09 Started regular Alimta infusions in Key West.
11/3/09 CT and PET scans showed significant improvement. Some issues already resolved.
2/3/2010 No evidence of residual or recurrent disease. NED! Stay on Alimta.
5/6/10 Am considering myself still NED until/unless proven otherwise in July. Rabid radiologist thinks he sees something suggestive of similar to some abdominal cancer. No light up on the PET. Am hoping for the best. Stay on Alimta and scan in 9 wks instead of 3 mos.
7/8/10 Chest CT unchanged (NED Feb '10). Infiltration in the region of the omentum is probably slightly more prominent than before. Diverticulosis requiring antibiotics.
Jul, Aug, Sep, continued Alimta in Corning NY, Portsmouth OH and Mt Holly NJ.
10/14/10 Chest CT unchanged from Feb '10. Findings likely representing progressive nodular peritonal carcinomatosis in the midabdomen. Treatment changed to Tarceva started in Nov.
12/15/10 Chest CT unchanged. Abdomen changes compatible with peritoneal carcinomatosis again identified with mild progression noted.
3/16/11 CT chest unchanged. CT abdomen progression ascites (fluid). Progression of soft tissues nodularity on the peritoneal surface anteriorly with diffuse omental involvement.
4/13-15/11 Hospitalized at MDA. Removed 4 1/2 litres (8-9 lbs) of fluid from abdomen 4/14. Started on taxotere before release on 4/15.
5/16/11 Hospitalized for fever, neutropenic. Treated with intravenous antibiotic and antiviral. Given blood transfusion. Note that KW Cancer Center did not give me my Neulasta shot after my chemo on May 6. Onc had me cancel my 5/26 chemo until after my scan on Jun 6. Was discharged on oxygen. Test w/Dr Gerth 5/26 indicated I could go off sitting and sleeping O. Will do walking test 6/2.
6/2 Did not get requisite numbers on walking test. Left for Orlando 6/5 still on oxygen.
6/6/11 MRI normal; CT stable. Taxotere and Neulasta at MDA 6/7 and 6/8.
6/13/11 Appointment with Dr Olham in KW. Off oxygen week of 6/16.
8/8/11 CT scan showed stable with perhaps some lessening of fluid. Stay on Taxotere.
10/10/11 CT chest still clear, CT abdominal lining stable. Stay on taxotere.
12/19/11 CT chest clear, CT abdominal lining stable, MRI clear. Stay on taxotere.


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