Hello everyone,
I'm here collecting your positive thoughts and prayers for my mom, Gwen Jones. My sister (Bonnie Jones) will be taking her for her Pet Scan tomorrow, Dec. 8th. It will be the first she has had since her cyberknife treatments. We will be getting the results on Thursday when she visits with the doctor. I can't tell you how much it means to her to know that people are praying for her. She believes that it is with your help that she has come this far in the 2 yrs. 7 months since her diagnosis. Thank you all for always being here for us. We love you . I will update later when the results come in.

Love,
Sue

_________________
[size=84]husband, Mike, 59 years old
**2-01 dx'd Stage 1 nsclc-9cm tumor to right lung-no lymph node involvement...
**4-30-01 pneumonectomy right lung removed. No followup chemo or radiation , but scans and xrays were done
**1-28-04 dx w/recurrent stage IV nsclc tumor on stump of where right lung had been removed , lymph node involvement, tumor adrenal gland -lft side, **02-04-04- taxol & carboplatin 3 treatments-didn't work
**02-12-04- radiation 10 to lung for bleeding
**04-2--04-taxotere had 4 treatments. shrinkage had occured in all after 3.. continuing taxotere. making him very tired ... upper body swelling ..
** 08-01-04-in hospital
latest..
**08-02-04 had stent put in .. superior vena cava.. the vein was being blocked by pressure tumor.
**08-05-04-started 10 radiation treatments,
**08-30-04- started Navelbine on 3 weeks and off 1 Scan after 5 treatments show chemo Navelbine not working -slight decrease to lung mass, but slight increase to adrenal ....
**11-01-04-starting Gemzar ... had 3 treatments... too many side effects... Ct of chest and upper abdomen done on Dec. 2nd -results some shrinkage
**12-06-04-started Alimta Dec. 6th- first treatment went well Had 2nd treatment Dec. 27th ... developed a rash and is tired, but otherwise ok Scan Feb 7th, 2005 STABLE doing good continuing Alimta April 18th scans showed stable disease (after 6 Alimta treatments), but he now has pneumonitis... no more treatments until much better.. on prednisone and oxygen..
**05-31-05 Ct scan of chest showed pneumonitis resolved and stable cancer
**06-06-05-our 35th wedding anniversary... onc confirms everything resolving and stable -reccommends break continued til August
**6-15-05 to 6-18-05 in hospital due to mental confusion ..
had MRI-member empty head club

8-3-2005-Ct scans chest , abdomen and pelvic....Waiting and praying...
**8-8-2005-Ct results were that the chest area looked improved, but the adrenal area had increased and involved some lymph nodes.
Started Tarceva 150mg 8-16-2005-8-20-2005 stopped 2 weeks due to severe rash on 9-8-2005 started back on Tarceva at 100 mg now.. stopped again on 9-19-2005
9-30-2005 scans slight progression to nodes behind adrenal..
10-10-2005-Camptosar- CPT-11 started
10-31-2005- CPT-11
refused more CPT-11 made him extremely fatigued and nauseated
Dec. 6th -CTscans chest, abdomen & pelvic. shows stable but tumor compressing the esophagus..
Dec. 19th- had stent to trachea put in
Dec. 21st- he had stent to esophagus and feeding tube put in
Dec. 22nd.. he will ill put in hospital... vomiting and also coughing and congestion in for 4 days... home for Christmas Dec. 25th... still recouperating with antibiotics etc.
Continuing cough and numerous doctor visits.
*Jan 30th-Feb 4th- hospitalized again with cough ..
Still has cough , but controlled most of the time Hasn't been able to resume chemo

**My "prince charming", best friend, husband and soul mate,, Mike passed away March 2, 2006 after being a 5 year survivor and fighting a very courageous battle**
______________________
Mom- 78 yrs old..
nsclc diag May 2nd, 2007-surgery 2sm tumors removed in wedge section... lymph nodes clear
Tarceva as adjuvant started on June 23rd..quit July2nd.. side effects numerous... am waiting now til next appt. July 13th
July 20th... Mom NED.PET clear and normal .. will go back on half 75mg Tarceva... see how that works..
Stop Tarceva 8-25 too many side effects
Oct. 22nd- Mom surgeon visit, chest xray and results .. all clear, no sign of cancer...
Feb. 18th Mom's PET Scan
March 7th Mom's PET Scan results.. NED
Sept. 22, 08 Mom PET Scan
Sept. 29, 08 Mom PET results new nodule 3/4 "...here we go again.... :-(
*Updated*- Mom surgery- Oct. 30th.. surgeon removed top part of upper right lobe. Nothing showed malignant. She had pneumonia after surgery and a 3 week hospital stay, but she is slowly regaining her strength and is currently NED..

March 3, 2009 CT scan.... results showed some little things along suture line that the doctor believed was healing.. will wait til next scan and compare.

June 2, 2009- CT Scan.. results there is an area along suture line that has increased in size and thickening.. doctor thinks could be cancer... a needle biopsy will be done..

A quick update.. the results of the needle biopsy did confirm that it was cancer...

Cyberknife was done the first week in November..

Pet scan .. Dec. 8th...
Dec. 11th -results .. cyberknife worked and the rest of the scan is clean... YAY!!! Happy Birthday (Dec. 19th.. 81st) and Merry Xmas Mom!
Dec. 2010 NED!!!
June 2, 2011.. Pet Scan results .. NED!!!
Nov 3, 2011.. CT scan results.. NED!!!
Sept. 18, 2012 .. our loving mom has passed on ..Heaven received a most precious angel.


graphic by
http://www.maryslittlelamb.com[/size]

Sue,
You got'em! I'll be saying prayers for good results for your amazing mother. I'm glad she doesn't have to wait very long to find out. Two days is bad enough, but in terms of scan waits it is relatively short.

Susan

_________________
76 year-old mom diagnosed with stage IV lung cancer January 5, 2007.

15 radiation treatments to the spine and four rounds of chemo, Jan-May, 2007.

Stable disease May, 2007-May, 2008.

Bone scan May, 2008 shows new mets in the spine, pelvis and ribs.

July, 2008--finished radiation and has a Quadramet treatment.

October, 2008--Scans show mild progression. Began chemo (carbo/taxol/avistin). Will have four rounds of threatment (every 21 days) and scan in January.

01/05/2009--TWO YEAR SURVIVOR!

4/2009--STABLE! No treatment. Next scan in July

7/2009--Scan shows pleural effusion. Fluid drained and malignant. Cancer has spread to other lung and a 13 mm lesion is seen on the liver. Mom to begin Alimta on 8/3

11/2009--Alimta was hard on mom and scans showed progression.

12/2009--began Tarceva, noticed almost immediate improvement.

2/25/2010--Celebrated Mom's 80th birthday!

5/15/2010--Mom watched her oldest granddaughter graduate from college and then paritied well into the night! She's still feeling great.

6/15/2010--Mom watched her youngest granddaughter graduate from high school. Still feeling great!

8/2010-10/2010--Mom begins feeling tired and stays in bed more and more. Scans reveal that the cancer is moving rapidly throughout her body.

10/13/2010--Mom wins her battle once and for all, and passes to a place where the cancer can no longer touch her.

For a more detailed timeline see:

http://www.lungevity.org/l_community/viewtopic.php?p=360385#360385

Prayers on the way!

Dana

_________________
Mar. '08-Routine xray found Spot tip of upper left lung.
Dr orders CAT. growth confirmed.
Sent to Pulmonolgist who orders PET.
Pet results-my spot lights up like a Christmas tree.
Can't reach spot for biopsy referred to surgeon.
Surgical Biopsy scheduled for Apr. 28th '08
Apr. '08-Surgeon found SCLC, removed upper left lobe and surronding lymph nodes.
Everything biopsied no other cancer found, declaired NED by surgeon on Apr.28th '08
ONC wants me to start adjuvant therapy.
June '08-MRI brain scan and CAT NED
Chemo cisplatin/vp16 3 days every 3 weeks 4 sessions ended Aug. '08
Partial hearing loss due to Cisplatin
Sept. '08 1st CAT after treatment NED
Dec. '08-2nd CAT after treatment NED
Apr. '09-MRI (brain) and CAT NED
Aug. '09-CAT NED
Dec. '09-CAT and MRI NED
Apr. '10-CAT and MRI NED
Oct. '10-CAT and MRI NED
Jan. '11-XRay NED
Oct. '11-CAT NED

You absolutely have mine. Many prayers and positive thoughts coming that way

_________________
My mom is 45 and a lung cancer patient Stage IIIA
Dx 11-17-04, 45 yrs. old.
Chest X-Ray
CT Scan
Pet Scan
Lung Biopsy (Superior Sulcus Tumor of Right upper lobe squamous cell)
Lymph node of neck biopsied (Negative)
Chemo and Radiation started 12-20-04
First week of Chemo finished 12-28-04 has three weeks off!
Started chemo on Jan 17th will hopefully finish on Monday the 24th and finishes radiation on Tues the 25th. Praying that this works!
Surgery March 1st. Successful Tumor was all dead Doc. says NED but has had no scans.
Chemo Etoposide/Cisplatin started again Beg. of April
Doc changed last round of Chemo to Carbo/Etoposide due to hearing problems and last round was postponed because of low blood counts
May 9th, 10th, and 11th last of the chemo!
Scans scheduled for Aug. 15th Praying for NED!
Scans show NED is with us! Appt. with radiation doc 10/23 and oncologist 12/19
12/27 Mom had appt. Doc ordered bone scan is to return in 4 months
12/02/2006 Mom had appt with Oncologis in November everything is going good. Scans to be scheduled not sure when I think in three months. Mom is doing great and unfortunately still smoking =( Dr said to stay away from sick people
3/13/2007 Mom is 22 months from last treatment and doing fantastic
9/25/2008 Mom turned 49!
10/27/2008 Mom still dong well. Ned is still our very best friend and we will keep him =)

I posted on facebook but wanted to here as well - you have my prayers!

Paulette

_________________
04/02/09 family doctor found spot on upper left lung on chest x-ray.
04/03/09 CT scan with contrast - shows 5cm tumor in left upper lobe.
04/08/09 Met with thoracic surgeon.
04/14/09 PET scan - cancer only in tumor. Echo stress test. Cartiod ultrasound
05/01/09 Vats surgery - Upper left lobe and wedge of bottom lobe. Clean margins and no spread to lymph nodes. Staged 1b because of size of tumor. In hospital 7 days due to fluid in remainder of left lung.
06/09/09 Met with oncologist - because of size of tumor adjuvant chemo recommended. Cisplatin/Navelbine, 4 rounds. Some problems 1st round but minor ones after that. Finished chemo August 24.
09/02/09 CT scan of chest with contrast - NED
03/02/10 CT scan of chest and abdoman with contrast - NED
08/25/10 CT scan of chest and brain with contrast - NED
03/01/11 CT scan of chest and abdoman with contrast - NED
09/19/11 CT scan of chest with contrast - NED
02/24/12 CT scan of chest and brain with contrast - NED
08/21/12 CT scan of chest with contrast - NED
02/22/13 CT scan of chest with contrast - NED
_______________________________________
10/13/86 Daddy died of lung cancer after a 8 month fight. Diagnosed 2/86.

Prayers for Mom on the way:)

_________________
GOD is good all the time,

Barb

"Never doubt that a small group of thoughtful, committed citizens can change the world. Indeed, it is the only thing that ever has." Margaret Mead

" For in the end, it's not the years in your life, but the life in your years" Abraham Lincoln

1/5/07 Had cough for a few months, given antibiotics
1/19/07 abnormal CT
2/07 2nd round antibiotics
3/07 2nd CT shows growth changed, now highly suspicious for malignancy
3/27/07 fine needle biopsy fails to get target tissue
4/6/07 PET-CT negative for malignancy
4/07 2nd opinion at Karmanos Cancer Institute, tumor board recommends surgery to remove nodule.
5/16/07 Lobectomy RLL- NSCLC, adenocarcinoma with BAC features, Stage 1a, no further treatment
needed.
8/24/07 CT - NED
9/14/07 Dx with pleural friction rub, need NSAIDS for the inflammation.
12/17/07 CT showed 2 new small nodules, 6 & 8 mm. Enlarged lymph nodes.
2/28/08 CT & PET Scans, more nodules, SUV between 2 & 8. Report says most likely recurrence and metastases.
3/6/08 Needle biopsy; benign, no fungus or TB.
3/19/08 Bronchoscopy; benign, no cancer, tumors, infections, fungus, virus or TB. Most likely inflammation.
5/3/08 PET/CT and CT-most nodules decreased in size by 50%, diagnosis; inflammation possibly from ruptured silicone breast implants which were removed 9/05.
7/18/08 CT nodules stable from May, 2 lymph nodes slightly increased, will rescan mid-Oct
10/10/08 PET/CT and CT show lymph nodes of concern decreased in size. Still have several nodules, but they are either stable, reduced in size. There are now 2 new enlarged lymph nodes. They believe they may be part of my ongoing inflammation, will rescan in 3 months.
1/09 scans show progression of larger nodule. Biopsy 2/5/09 benign, will rescan in 3 months.
4/24/09 "scans show progression of disease". Have had horrible cough and increased SOB. Will treat with 30mg prednisone for 6 weeks, then new PET.
PET/CT 6-5-09 suspicious mass decreased in size indicating no recurrence, probably sarcoidosis or inflammation, will rescan in a few months.
9/09 All inflammtion is back. Put back on prednisone, rescan in Dec
12/09 Most inflammation gone. Start predinsone taper rescan 3/10
1/10 Seek treatment for increased pain from 5/07 thoracotomy.
3/15/10 CT shows slight increase in 2 nodules and lymph node, continue prednisone 4 week more, rescan in June
4/16/10 back on higher dose prednisone due to increased cough during taper. Will taper to inhaled steroid and have CT 6/11/10
6/17/10 CT nodules & lymph nodes stable, stay on inhaled steroid rescan 12/10
12/16/10 CT Stable, recan 6/11
2/11 Start Lyrica for post thoracotmy syndrome pain. Now haivng regular epidurals for ongoing lumbar herniated disc with bilateral leg pain

Alays prayers for you and your family, Sue. Been distracted with our own 'stuff' here the past week+ so didn't see this until now. Good luck.

Kasey

_________________
Kasey ~ 8 year survivor ~ Stage IIIb 'inoperable' (yea, right!) lung cancer
9/20/04 Dx lc
9/24/04 Bronchoscopy
10/08/04 CT guided needle biopsy
10/14/04 Dx Pancoast tumor - NSCLC 111a(?) - inoperable - incurable
11/02/04 2nd opinion - Sloan-Kettering - concurs with local dx and tx
11/03/04-12/02/04 Radiation x22 chemo x5 taxol/carboplatin
11/04 - 3rd opinion - FoxChase -turned away
11/04 FOUND LCSC & HOPE
11/04 4th opinion NIH - surgery possible
1/04/05 Successful surgery - RU lobectomy - all margins, nodes, and path reports are NEGATIVE
2/05 chemo x2 taxol/carboplatin
3/05 Esophagus stretched twice
4/06/05 bloodwork, chest x-ray, CT scan, PET scan, NED
5/05 2 more esophagus stretches
7/13/05 bloodwork, chest x-ray, CT scan, PET scan, brain MRI, NED
10/05/05 bloodwork, chest x-ray, PET/CT scan, NED
1/11/06 bloodwork, chest x-ray, PET/CT scan, brain MRI, NED
4/05/06 bloodwork, chest x-ray, PET/CT scan, NED
6/10/06 emergency appendectomy
7/12/06 bloodwork, chest x-ray, PET/CT scan, brain MRI, NED
9/26/06 bloodwork, chest x-ray, PET/CT scan, NED
1/10/07 bloodwork, urinalysis, chest x-ray, CT, PET/CT scan, arm CT, brain MRI, NED
7/11/07 bloodwork, urinalysis, chest x-ray, PET/CT scan, brain MRI, NED
1/9/08 bloodwork, urinalysis, chest x-ray, PET/CT scan, brain MRI, CT w/contrast.....mm 'spot' lower right lobe - watch and wait 3 months
4/8/08 bloodwork, urinalysis, chest x-ray, PET/CT scan, NED
10/14/08 bloodwork, urinaysis, chest x-ray, PET/CT scan, brain MRI, NED
4/15/09 bloodwork, urinalysis, chest x-ray, PET/CT scan, brain MRI, NED
10/13/09 bloodwork, urinalysis, chest x-ray, PET/CT scan, brain MRI, CT/contrast, NED
4/13-4/15/10 bloodwork, urinalysis, chest x-ray, PET/CT scan, brain MRI, CT/contrast, PFT, echocardiogram, EKG, stress test, NED
4/11-4/13/2011 bloodwork, urinalysis, chest x-ray, PET scan, CT scan w/contrast, brain MRI, NED
4/16-4/18/2012 bloodwork, urinalysis, chest x-ray, PET scan, CT scan w/contrast, brain MRI, NED

Sending good vibes, positive thoughts and prayers your way!

_________________
7/2002 (60 yrs. old) Dad dx laryngeal cancer
8/2002 Laryngectomy and Radical Neck Dissection (only 1 lymph node involved) with follow up radiation treatments (Johns Hopkins)
Clean until 6/2004 spot on lung found by x-ray and CT scan
7/2004 Biopsy shows NSCLC (SCC)
8/2004 Successful Lobectomy of middle right lobe and slight wedge resection of upper right lobe (1 lymph node in removed lobe came back positive) (Johns Hopkins) Drs. feel that it is a new primary cancer.
9/04 started clinical trial of taxotere and cisplatin
12/04 New spot found on CT and PET (lymph node) Bronchoscopy not successful stopping clinical trial
1/05 Started 6 weeks of daily radiation and one time a week regimen (for 6 weeks) of carbo/taxol
2/17/05 Finished with rounds of treatment!
3/30/05 Great news, spot on CT has shrunk from 2.5 cm. to less than 1cm. No new spots, STABLE!
7/05 Angiogram, stent put in, doing great!
7/05 The beast is back in the other lung, 9mm spot top of lung, currently waiting to do treatment due to heart medication (Plavix), will do PET in September to confirm cancer and then make treatment decisions.
9/05 PET revealed that spot doubled in size and there is fluid in other lung. Waiting on thorocentesis and hopefully surgery.
10/05 Heart attack from stopping Plavix for lung procedures.
11/05 Fluid gone Cleared for surgery, scheduled for December 5th
12/05 After a successful lobectomy, had another heart attack while in hospital, pacemaker put in, long road to recovery. Pathology report came back with lymph node involvement, restaged to stage III.
2/06 Scans performed NO EVIDENCE OF ACTIVE DISEASE!! Started Tarceva
5/06 NED!!! Will continue on Tarceva
8/06 NED!!! Tarceva still working!
12/06 Its Back 2cm spot found in mediastinum area between the lungs, doctors believe it is a node.Off Tarceva and on to Alimta right after Christmas.
3/07 STABLE after 3 rounds of Alimta! Starting another three and then scans in May.
5/07 Its growing again slightly. Area in the medistinum between the lungs. Off of Alimta and dad has asked for a 2 month chemo break. Scans in July.
7/07 Its back and moving fast. Spot between the lungs up from 1 to 5 and 3 new nodules lighting up. They don't think chemo is a great option. Looks like we're on to a clinical trial..researching..
8/07 Clinical trial at Hopkins
9/07 After 2 rounds, Clinical trial stopped due to slight growth
9/07 Started new clinical trial on HIV drug at NCI at NIH
11/07 Scans - STABLE!! They think the clinical trial is working. Continue on trial new scans in January
1/08 Trial not working, showing slow progression of disease. Taking February off to get clean for new trial.
3/08 Can't get into the trial he wants, starting on Gemzar.
6/11/08 My courageous dad lost his battle with cancer. He never gave up. He passed away one hour after getting chemo.

*Avatar Picture - Connor wearing Cappy's hat

Sue, I offered tons of positive thoughts your Mom's way on FB but it bears repeating. I think it's awesome that you guys printed out well wishes from friends for your Mom to read. What a great boost for someone going thru this. Keep us posted.

Judy in Key West

_________________
Cytology report on fluid removed from lung after pleural effusion and pneumonia Sep 07 showed adenocarcinoma cells. Dx IIIb NSCLC Oct '07 at MDACC, Orlando. Fol 6 rounds Taxol/Carboplatin/Avastin and 2 Avastin, CT/PET 4/1/08 pleural thickening gone and no active cancer cells. 11/3/08 STILL NEVD. CT/PET/MRI 5/4/09 Cancer back, still in the pleura and chest wall, small amt of fluid, all in left lung.
5/11/09 Start on Alimta every three weeks.
7/13/10 Had Alimta on road in Corning NY.
8/24/09 Scans show some improvement. Continue on Alimta.
9/14/09 Chemo on road in Mt Holly NJ.
10/6/09 Started regular Alimta infusions in Key West.
11/3/09 CT and PET scans showed significant improvement. Some issues already resolved.
2/3/2010 No evidence of residual or recurrent disease. NED! Stay on Alimta.
5/6/10 Am considering myself still NED until/unless proven otherwise in July. Rabid radiologist thinks he sees something suggestive of similar to some abdominal cancer. No light up on the PET. Am hoping for the best. Stay on Alimta and scan in 9 wks instead of 3 mos.
7/8/10 Chest CT unchanged (NED Feb '10). Infiltration in the region of the omentum is probably slightly more prominent than before. Diverticulosis requiring antibiotics.
Jul, Aug, Sep, continued Alimta in Corning NY, Portsmouth OH and Mt Holly NJ.
10/14/10 Chest CT unchanged from Feb '10. Findings likely representing progressive nodular peritonal carcinomatosis in the midabdomen. Treatment changed to Tarceva started in Nov.
12/15/10 Chest CT unchanged. Abdomen changes compatible with peritoneal carcinomatosis again identified with mild progression noted.
3/16/11 CT chest unchanged. CT abdomen progression ascites (fluid). Progression of soft tissues nodularity on the peritoneal surface anteriorly with diffuse omental involvement.
4/13-15/11 Hospitalized at MDA. Removed 4 1/2 litres (8-9 lbs) of fluid from abdomen 4/14. Started on taxotere before release on 4/15.
5/16/11 Hospitalized for fever, neutropenic. Treated with intravenous antibiotic and antiviral. Given blood transfusion. Note that KW Cancer Center did not give me my Neulasta shot after my chemo on May 6. Onc had me cancel my 5/26 chemo until after my scan on Jun 6. Was discharged on oxygen. Test w/Dr Gerth 5/26 indicated I could go off sitting and sleeping O. Will do walking test 6/2.
6/2 Did not get requisite numbers on walking test. Left for Orlando 6/5 still on oxygen.
6/6/11 MRI normal; CT stable. Taxotere and Neulasta at MDA 6/7 and 6/8.
6/13/11 Appointment with Dr Olham in KW. Off oxygen week of 6/16.
8/8/11 CT scan showed stable with perhaps some lessening of fluid. Stay on Taxotere.
10/10/11 CT chest still clear, CT abdominal lining stable. Stay on taxotere.
12/19/11 CT chest clear, CT abdominal lining stable, MRI clear. Stay on taxotere.

(((((Sue)))))

Many positive thoughts and prayers for your mom. Betcha she's gonna rock that scan!!!!

Hugs - Patti B.

_________________
My personal war against cancer:
Stage IV at diagnosis 9/29/06- told 12 months tops.......yeah, right!!!
5 rounds of radiation R hip
15 Whole brain radiation txs 7/20 - 8/7/09
8 weeks on oral Tarceva
To date, 80 IV chemo sessions and still counting
Chemos have consisted of:
Carbo/Taxol/Avastin
Avastin alone
Alimta
weekly Navalbine
weekly Gemzar, now on Gemzar every other week due to blood counts
All my veins have become inaccessible - port installed 12/30/09
Put on Alimta/Avastin as a combo
Currently on Taxotere, on 3 weeks off one

Praying along with everyone for a great scan for your Mom. Prayers are powerful.

Barbara

_________________
Bill died peacefully on March 25, 2010. He was very much loved, and will be sorely missed.

Link to "Bill's Story," and more detailed list of treatment regimens:

http://www.lungevity.org/l_community/viewtopic.php?t=37269

Photo: Barbara and Great Granddaughter KayMarie taken January 2010 at Rehab where Bill was gaining strength.

UPDATE DEC. 10..... RESULTS OF PET SCAN AND CYBERKNIFE!!!

The doctor came in with a smile on his face and told my mom and my sister "the pet scan is terrific".... the cyberknife did it's job and the tumor will continue to harden and then crystalize.... it's fried folks!!!! As for the rest of the scan, it's CLEAN. He said that even areas that showed up a while back are clear now. Such a wonderful wonderful day. He told my mom to enjoy her Birthday ( Dec. 19th -her 81st) and her Christmas. We couldn't be more thrilled.

My mom wanted me to thank all of you for the positive thoughts and prayers you sent her way. She really believes it had a lot to do with her outcome. She thanks you and my family thanks you. Love you guys. You are the best.

Hugs,
Sue

_________________
[size=84]husband, Mike, 59 years old
**2-01 dx'd Stage 1 nsclc-9cm tumor to right lung-no lymph node involvement...
**4-30-01 pneumonectomy right lung removed. No followup chemo or radiation , but scans and xrays were done
**1-28-04 dx w/recurrent stage IV nsclc tumor on stump of where right lung had been removed , lymph node involvement, tumor adrenal gland -lft side, **02-04-04- taxol & carboplatin 3 treatments-didn't work
**02-12-04- radiation 10 to lung for bleeding
**04-2--04-taxotere had 4 treatments. shrinkage had occured in all after 3.. continuing taxotere. making him very tired ... upper body swelling ..
** 08-01-04-in hospital
latest..
**08-02-04 had stent put in .. superior vena cava.. the vein was being blocked by pressure tumor.
**08-05-04-started 10 radiation treatments,
**08-30-04- started Navelbine on 3 weeks and off 1 Scan after 5 treatments show chemo Navelbine not working -slight decrease to lung mass, but slight increase to adrenal ....
**11-01-04-starting Gemzar ... had 3 treatments... too many side effects... Ct of chest and upper abdomen done on Dec. 2nd -results some shrinkage
**12-06-04-started Alimta Dec. 6th- first treatment went well Had 2nd treatment Dec. 27th ... developed a rash and is tired, but otherwise ok Scan Feb 7th, 2005 STABLE doing good continuing Alimta April 18th scans showed stable disease (after 6 Alimta treatments), but he now has pneumonitis... no more treatments until much better.. on prednisone and oxygen..
**05-31-05 Ct scan of chest showed pneumonitis resolved and stable cancer
**06-06-05-our 35th wedding anniversary... onc confirms everything resolving and stable -reccommends break continued til August
**6-15-05 to 6-18-05 in hospital due to mental confusion ..
had MRI-member empty head club

8-3-2005-Ct scans chest , abdomen and pelvic....Waiting and praying...
**8-8-2005-Ct results were that the chest area looked improved, but the adrenal area had increased and involved some lymph nodes.
Started Tarceva 150mg 8-16-2005-8-20-2005 stopped 2 weeks due to severe rash on 9-8-2005 started back on Tarceva at 100 mg now.. stopped again on 9-19-2005
9-30-2005 scans slight progression to nodes behind adrenal..
10-10-2005-Camptosar- CPT-11 started
10-31-2005- CPT-11
refused more CPT-11 made him extremely fatigued and nauseated
Dec. 6th -CTscans chest, abdomen & pelvic. shows stable but tumor compressing the esophagus..
Dec. 19th- had stent to trachea put in
Dec. 21st- he had stent to esophagus and feeding tube put in
Dec. 22nd.. he will ill put in hospital... vomiting and also coughing and congestion in for 4 days... home for Christmas Dec. 25th... still recouperating with antibiotics etc.
Continuing cough and numerous doctor visits.
*Jan 30th-Feb 4th- hospitalized again with cough ..
Still has cough , but controlled most of the time Hasn't been able to resume chemo

**My "prince charming", best friend, husband and soul mate,, Mike passed away March 2, 2006 after being a 5 year survivor and fighting a very courageous battle**
______________________
Mom- 78 yrs old..
nsclc diag May 2nd, 2007-surgery 2sm tumors removed in wedge section... lymph nodes clear
Tarceva as adjuvant started on June 23rd..quit July2nd.. side effects numerous... am waiting now til next appt. July 13th
July 20th... Mom NED.PET clear and normal .. will go back on half 75mg Tarceva... see how that works..
Stop Tarceva 8-25 too many side effects
Oct. 22nd- Mom surgeon visit, chest xray and results .. all clear, no sign of cancer...
Feb. 18th Mom's PET Scan
March 7th Mom's PET Scan results.. NED
Sept. 22, 08 Mom PET Scan
Sept. 29, 08 Mom PET results new nodule 3/4 "...here we go again.... :-(
*Updated*- Mom surgery- Oct. 30th.. surgeon removed top part of upper right lobe. Nothing showed malignant. She had pneumonia after surgery and a 3 week hospital stay, but she is slowly regaining her strength and is currently NED..

March 3, 2009 CT scan.... results showed some little things along suture line that the doctor believed was healing.. will wait til next scan and compare.

June 2, 2009- CT Scan.. results there is an area along suture line that has increased in size and thickening.. doctor thinks could be cancer... a needle biopsy will be done..

A quick update.. the results of the needle biopsy did confirm that it was cancer...

Cyberknife was done the first week in November..

Pet scan .. Dec. 8th...
Dec. 11th -results .. cyberknife worked and the rest of the scan is clean... YAY!!! Happy Birthday (Dec. 19th.. 81st) and Merry Xmas Mom!
Dec. 2010 NED!!!
June 2, 2011.. Pet Scan results .. NED!!!
Nov 3, 2011.. CT scan results.. NED!!!
Sept. 18, 2012 .. our loving mom has passed on ..Heaven received a most precious angel.


graphic by
http://www.maryslittlelamb.com[/size]

Oh Sue I am so happy for you and your family!!! What a wonderful Christmas gift and Birthday gift! You made my day!

_________________
7/2002 (60 yrs. old) Dad dx laryngeal cancer
8/2002 Laryngectomy and Radical Neck Dissection (only 1 lymph node involved) with follow up radiation treatments (Johns Hopkins)
Clean until 6/2004 spot on lung found by x-ray and CT scan
7/2004 Biopsy shows NSCLC (SCC)
8/2004 Successful Lobectomy of middle right lobe and slight wedge resection of upper right lobe (1 lymph node in removed lobe came back positive) (Johns Hopkins) Drs. feel that it is a new primary cancer.
9/04 started clinical trial of taxotere and cisplatin
12/04 New spot found on CT and PET (lymph node) Bronchoscopy not successful stopping clinical trial
1/05 Started 6 weeks of daily radiation and one time a week regimen (for 6 weeks) of carbo/taxol
2/17/05 Finished with rounds of treatment!
3/30/05 Great news, spot on CT has shrunk from 2.5 cm. to less than 1cm. No new spots, STABLE!
7/05 Angiogram, stent put in, doing great!
7/05 The beast is back in the other lung, 9mm spot top of lung, currently waiting to do treatment due to heart medication (Plavix), will do PET in September to confirm cancer and then make treatment decisions.
9/05 PET revealed that spot doubled in size and there is fluid in other lung. Waiting on thorocentesis and hopefully surgery.
10/05 Heart attack from stopping Plavix for lung procedures.
11/05 Fluid gone Cleared for surgery, scheduled for December 5th
12/05 After a successful lobectomy, had another heart attack while in hospital, pacemaker put in, long road to recovery. Pathology report came back with lymph node involvement, restaged to stage III.
2/06 Scans performed NO EVIDENCE OF ACTIVE DISEASE!! Started Tarceva
5/06 NED!!! Will continue on Tarceva
8/06 NED!!! Tarceva still working!
12/06 Its Back 2cm spot found in mediastinum area between the lungs, doctors believe it is a node.Off Tarceva and on to Alimta right after Christmas.
3/07 STABLE after 3 rounds of Alimta! Starting another three and then scans in May.
5/07 Its growing again slightly. Area in the medistinum between the lungs. Off of Alimta and dad has asked for a 2 month chemo break. Scans in July.
7/07 Its back and moving fast. Spot between the lungs up from 1 to 5 and 3 new nodules lighting up. They don't think chemo is a great option. Looks like we're on to a clinical trial..researching..
8/07 Clinical trial at Hopkins
9/07 After 2 rounds, Clinical trial stopped due to slight growth
9/07 Started new clinical trial on HIV drug at NCI at NIH
11/07 Scans - STABLE!! They think the clinical trial is working. Continue on trial new scans in January
1/08 Trial not working, showing slow progression of disease. Taking February off to get clean for new trial.
3/08 Can't get into the trial he wants, starting on Gemzar.
6/11/08 My courageous dad lost his battle with cancer. He never gave up. He passed away one hour after getting chemo.

*Avatar Picture - Connor wearing Cappy's hat

Sue-

I couldn't be more thrilled for your mom and your entire family!!!! What a wonderful birthday present and I am sure this will be the best Christmas ever for you!!!!

Hugs - Patti B.

_________________
My personal war against cancer:
Stage IV at diagnosis 9/29/06- told 12 months tops.......yeah, right!!!
5 rounds of radiation R hip
15 Whole brain radiation txs 7/20 - 8/7/09
8 weeks on oral Tarceva
To date, 80 IV chemo sessions and still counting
Chemos have consisted of:
Carbo/Taxol/Avastin
Avastin alone
Alimta
weekly Navalbine
weekly Gemzar, now on Gemzar every other week due to blood counts
All my veins have become inaccessible - port installed 12/30/09
Put on Alimta/Avastin as a combo
Currently on Taxotere, on 3 weeks off one

cant see thru the happy tears right now!!!!!!!!!!!!!!!!!! Off to FB to find GWEN!!!!

_________________
April/03 My Wife Deborah, age 46, diagnosed adenocarcinoma NSCLC
1/20/2006 Admitted to hospital Respiratory distress
1/23/2006 Ran to the light and is waiting for us to be rejoined in the Kingdom Of Heaven Her journey is Over but mine lingers on for Now!!!
4/23/07 DEb is joined in Peace by her Puppy Dawg Daisy from Cancer
8/30/07 Got new Pup named Mocha!!

"No matter hnow much it hurts, No matter how alone you feel, Your friends will help you get through anything!!"
Scrubs!!!!Yes the comedy show!!!

The Reason I advocate
If you would like to see our family photos Click on this link!
http://deborah-wallin.memory-of.com/

My memory-of Link is good to go now if you want to see it!!

!

_________________
Dxed nslc stage2b,Aug.05 had right lung and 17 nodes removed which 2 had shown to be effected.August 27,05 had surgery redone again to stop bleeding. Started chemo sept.05 as a precaustioary. Have 3 month visit followups and have been ned so far and am hoping and praying to stay that way.Grade3 squamous cell type(T2,N1,Mo)tumor 10.5 cemtimeters,1 peribronchial node and 1 10R node involved

This is so fabulous. Made me cry. I am sooooo happy. I hope you guys have a great Christmas and that your mom enjoys her birthday

_________________
My mom is 45 and a lung cancer patient Stage IIIA
Dx 11-17-04, 45 yrs. old.
Chest X-Ray
CT Scan
Pet Scan
Lung Biopsy (Superior Sulcus Tumor of Right upper lobe squamous cell)
Lymph node of neck biopsied (Negative)
Chemo and Radiation started 12-20-04
First week of Chemo finished 12-28-04 has three weeks off!
Started chemo on Jan 17th will hopefully finish on Monday the 24th and finishes radiation on Tues the 25th. Praying that this works!
Surgery March 1st. Successful Tumor was all dead Doc. says NED but has had no scans.
Chemo Etoposide/Cisplatin started again Beg. of April
Doc changed last round of Chemo to Carbo/Etoposide due to hearing problems and last round was postponed because of low blood counts
May 9th, 10th, and 11th last of the chemo!
Scans scheduled for Aug. 15th Praying for NED!
Scans show NED is with us! Appt. with radiation doc 10/23 and oncologist 12/19
12/27 Mom had appt. Doc ordered bone scan is to return in 4 months
12/02/2006 Mom had appt with Oncologis in November everything is going good. Scans to be scheduled not sure when I think in three months. Mom is doing great and unfortunately still smoking =( Dr said to stay away from sick people
3/13/2007 Mom is 22 months from last treatment and doing fantastic
9/25/2008 Mom turned 49!
10/27/2008 Mom still dong well. Ned is still our very best friend and we will keep him =)

Amazing and Awesome News!!!!

Dana

_________________
Mar. '08-Routine xray found Spot tip of upper left lung.
Dr orders CAT. growth confirmed.
Sent to Pulmonolgist who orders PET.
Pet results-my spot lights up like a Christmas tree.
Can't reach spot for biopsy referred to surgeon.
Surgical Biopsy scheduled for Apr. 28th '08
Apr. '08-Surgeon found SCLC, removed upper left lobe and surronding lymph nodes.
Everything biopsied no other cancer found, declaired NED by surgeon on Apr.28th '08
ONC wants me to start adjuvant therapy.
June '08-MRI brain scan and CAT NED
Chemo cisplatin/vp16 3 days every 3 weeks 4 sessions ended Aug. '08
Partial hearing loss due to Cisplatin
Sept. '08 1st CAT after treatment NED
Dec. '08-2nd CAT after treatment NED
Apr. '09-MRI (brain) and CAT NED
Aug. '09-CAT NED
Dec. '09-CAT and MRI NED
Apr. '10-CAT and MRI NED
Oct. '10-CAT and MRI NED
Jan. '11-XRay NED
Oct. '11-CAT NED

WONDERFUL, FABULOUS, AWESOME NEWS!!!!!

What a great holiday and birthday gift to receive!!!

Denise

_________________
[color=green]Tom 77 yrs young, Devoted Wife of 20 yrs Denise age 49 yrs, 6 kids, 5 granddaughters, 2 grandsons [/color]
__________________________________
[color=blue]1/29/08 Diagnosed with Stage IIIA NSCLC Squamous Cell with lymphnode and liver involvement.
1/29/13 - 5 Year survivor!!
1/29/12 -4 years Survivor!!
2/11/08 - 7/16/08 7 rounds of chemo w/ Carbo/Taxol
3/24/08 Restaged at IV.
4/28 CT Scan
5/5 Results day / Great scan w/ overall shrinkage.
5/12 MRI scheduled.
5/20 - Rad consult
5/28 - 7/16 Radiation to chest 35 rounds
8/18 - CT shows the lung tumor is down to 3.7cm x 2.7cm and liver lesion is GONE!! No signs of metastatic disease within the abdomen. No further treatment need at this time. Next scan in 3 months.
12/5 Hospitalized with pneumonia
12/6 CT Scan all clear. Tumor continues to shrink.
12/10 Home on 24/7 Oxygen. SOB continues.
5/18/09 PET SCAN ALL CLEAR!!!
5/2010 NED!!
4/2012 NED!!
10/2012 CT = Mixed bag of nuts
[/color]

[color=purple]Don’t be afraid your life will end, be afraid that it will never begin. [/color]

[color=red]READ TOM'S STORY @ [/color]
http://www.lungevity.org/l_community/viewtopic.php?t=37425

Hi Everyone,

Mom and our family can't thank you enough for all your thoughts and prayers for mom, you guys are awesome. I truly believe and so does mom that the power of prayer can move mountains... Thank you thank you!!

Love ya,
Bonnie

_________________
Mom- 78 yrs old..
nsclc diag May 2nd, 2007-surgery 2sm tumors removed in wedge section... lymph nodes clear
Tarceva as adjuvant started on June 23rd..quit July2nd.. side effects numerous... am waiting now til next appt. July 13th
July 20th... Mom NED.PET clear and normal .. will go back on half 75mg Tarceva... see how that works..
Stop Tarceva 8-25 too many side effects
Oct. 22nd- Mom surgeon visit, chest xray and results .. all clear, no sign of cancer...
Feb. 18th Mom's PET Scan
March 7th Mom's PET Scan results.. NED
Sept. 22, 08 Mom PET Scan
Sept. 29, 08 Mom PET results new nodule 3/4 "...here we go again.... Sad
*Updated*- Mom surgery- Oct. 30th.. surgeon removed top part of upper right lobe. Nothing showed malignant. She had pneumonia after surgery and a 3 week hospital stay, but she is slowly regaining her strength and is currently NED..

Sending Love and Prayers to all!!!

I'm tickled pink....so happy for your answered prayers

_________________
***Maternal Grandmother Ora died in 1995 from LC lived 5 years after diagnosis-refused treatment

***Maternal Grandfather John died in 2004 from LC lived 3 years after diagnosis-refused treatment

***My mother Millie diagnosed w/NSCLC(stg 2A or 2B) August 26th, 2009. Initially Mom refused treatment; finally agreed to see ONC-appointment 9/21/09

***9/23/09 Mom decided that she would fight this monster and AGREED TO HAVE SURGERY.

***Mom scheduled for PET Scan 10/2/09 and meets with the surgeon 10/5/09

***Mom's surgery scheduled for October 13th

***Surgery went well...Left Pneumonectony & radical lymphectomy...3 lymph nodes positive(pathology report indicates lymph nodes possible positive b/c of proximity to hilar tumor)

***Hospitalization...some problems encountered(fever, increased heart rate, low blood pressure)

***Mom discharged from the hospital October 20,2009 with Home Health care...Oxygen 3L per NC

***Mom back in hospital October 23, 2009, diagnosed with pneumonia and probable pericarditis(infection around the lining of the heart). She was placed on 2 strong IV antibiotics. Several test were done and she was finally discharged October 29, 2009.

***November 4, 2009-Mom home doing fairly well (I HAVE MY FINGERS CROSSED), No oxygen (SATs 98 w/o oxygen), hydrocodone for pain, duoneb & pulmicort updrafts...CHEMO expected after total recovery from surgery

***Chemo started 12/7/09 (cisplatin & taxol)

***12/14/09- 1st bone scan and Ct scan since surgery...NED is my best friend

***Mom received Mediport 12/17/09...good bye venous needlesticks

***December 2009-May 2010 Mom had 18 Chemo treatments: Taxol & Cisplatin-NEVER LOST ALL HER HAIR, NEVER EXPERIENCED NAUSEA & VOMITTING

***June 2010-SCANS---NED--- Next scans December 2010...PRAISE THE LORD.

***July 2010-Mom working part-time

PRAYING FOR STRENGTH...STRIVING TO BE LIKE CHRIST EVEN WHEN I'M FACED WITH ADVERSITY

What great news! Big congrats!

_________________
Bud

Long distance cyclist and lung cancer survivor
56 years old at time of diagnosis in 2007, now live in Crowley, Tx
Nov 2007 - Tentatively diagnosed as NSCLC stage I from CT scan
Dec 2007 - Upper left lobectomy, biopsy showed one cancerous lymph node, changing the diagnosis to stage II (squamous cell)
Feb to Apr 2008 - Three rounds of cisplatin and gemcitabine
Apr 2008 - chest x-ray, NED
May 2008 - brain mri, clear
Jul 2008 - CT scan, NED
Dec 2008 - CT scan, NED
June 2009 - CT scan, NED
Jan 2010 - CT scan, NED
July 2010 - CT scan, NED
June 2011 - CT scan, NED
May 2012 - CT scan, NED
December 2012 - CT scan, NED. I am now a 5 year survivor!

June 2009 - Wife Rose diagnosed with breast cancer
Stage III IDC
Sept 2009 - Finished 4 rounds of chemo (AC)
Nov 2009 - Surgery
March 2010 - Finished 12 weeks of weekly Taxol
August 2010 - CT scan, NED
August 2011 - Checkup, NED
August 2012 - Checkup, NED
The rest of my story is at:

http://www.lungevity.org/l_community/vi ... hp?t=38841

My blog - uneasy-rider.com

SUPER!!

Ned

_________________
Ned is just my nickname, though it would be nice to merge it with the other meaning eventually...

Aloha means "Hello, goodbye, love, compassion, welcome, good wishes." It means belonging to others with a common humanity. It's defined better as a feeling in the heart than by words.

Dx NSCLC adenocarcinoma IIIb Sep 2006, now stage IV. Taxol+Carboplatin+Avastin 4 mo., Avastin 8 mo., Tarceva 16 mo., Alimta 12 mo. (sometimes combined with Cisplatin or Carboplatin), Navelbine since Feb 2010, 10 sessions of WBR in March 2011. See My Cancer Journey: viewtopic.php?p=351369#p351369 — UPDATED 03/05/2011.

Above left: Our golden retriever Rosie, who joined the family on 3/5/08 at the playful age of 2.

Below: Hannah, our golden companion 1994-2007.

Real Happy news Sue! Happy Holidays!

Donna G

_________________
NSCLC, 4 cm Pancoast tumor, diag. 12/3/97 Cisplatin and VP 16, Radiation, R upper lobectomy, more Cisplatin and VP 16. Celebrating 16 yrs of survival ! Click here and read MY STORY

http://lungevity.org/l_community/viewtopic.php?f47&t=9092

The BEST BEST News!! I'm so happy for you guys!!!

Hugs

_________________
- Katie Brown, Co-Founder and Director of LCSC-

15 yr cancer survivor.

"Any of us who have experienced the cancer journey- and survived it-
have an obligation to make the path clearer and aid those that come after us."
- Lance Armstrong

In memory of Jessee Dewey, SCLC
December 29, 1938 - September 6, 2003
Lisa Dewey- Jan. 22, 2007
my parents are together in heaven


facebook www.facebook.com/lungevity

Hurray Hurray Hurray! Congratulations to Mom and all of you. The worry is over for your Mom's birthday and Christmas. How great is that. Happy Birthday Sue and Bonnie's Mom! Big celebration planned I hope.

Judy in Key West

_________________
Cytology report on fluid removed from lung after pleural effusion and pneumonia Sep 07 showed adenocarcinoma cells. Dx IIIb NSCLC Oct '07 at MDACC, Orlando. Fol 6 rounds Taxol/Carboplatin/Avastin and 2 Avastin, CT/PET 4/1/08 pleural thickening gone and no active cancer cells. 11/3/08 STILL NEVD. CT/PET/MRI 5/4/09 Cancer back, still in the pleura and chest wall, small amt of fluid, all in left lung.
5/11/09 Start on Alimta every three weeks.
7/13/10 Had Alimta on road in Corning NY.
8/24/09 Scans show some improvement. Continue on Alimta.
9/14/09 Chemo on road in Mt Holly NJ.
10/6/09 Started regular Alimta infusions in Key West.
11/3/09 CT and PET scans showed significant improvement. Some issues already resolved.
2/3/2010 No evidence of residual or recurrent disease. NED! Stay on Alimta.
5/6/10 Am considering myself still NED until/unless proven otherwise in July. Rabid radiologist thinks he sees something suggestive of similar to some abdominal cancer. No light up on the PET. Am hoping for the best. Stay on Alimta and scan in 9 wks instead of 3 mos.
7/8/10 Chest CT unchanged (NED Feb '10). Infiltration in the region of the omentum is probably slightly more prominent than before. Diverticulosis requiring antibiotics.
Jul, Aug, Sep, continued Alimta in Corning NY, Portsmouth OH and Mt Holly NJ.
10/14/10 Chest CT unchanged from Feb '10. Findings likely representing progressive nodular peritonal carcinomatosis in the midabdomen. Treatment changed to Tarceva started in Nov.
12/15/10 Chest CT unchanged. Abdomen changes compatible with peritoneal carcinomatosis again identified with mild progression noted.
3/16/11 CT chest unchanged. CT abdomen progression ascites (fluid). Progression of soft tissues nodularity on the peritoneal surface anteriorly with diffuse omental involvement.
4/13-15/11 Hospitalized at MDA. Removed 4 1/2 litres (8-9 lbs) of fluid from abdomen 4/14. Started on taxotere before release on 4/15.
5/16/11 Hospitalized for fever, neutropenic. Treated with intravenous antibiotic and antiviral. Given blood transfusion. Note that KW Cancer Center did not give me my Neulasta shot after my chemo on May 6. Onc had me cancel my 5/26 chemo until after my scan on Jun 6. Was discharged on oxygen. Test w/Dr Gerth 5/26 indicated I could go off sitting and sleeping O. Will do walking test 6/2.
6/2 Did not get requisite numbers on walking test. Left for Orlando 6/5 still on oxygen.
6/6/11 MRI normal; CT stable. Taxotere and Neulasta at MDA 6/7 and 6/8.
6/13/11 Appointment with Dr Olham in KW. Off oxygen week of 6/16.
8/8/11 CT scan showed stable with perhaps some lessening of fluid. Stay on Taxotere.
10/10/11 CT chest still clear, CT abdominal lining stable. Stay on taxotere.
12/19/11 CT chest clear, CT abdominal lining stable, MRI clear. Stay on taxotere.

What a wonderful, wonderful Blessing! I certainly want to wish your mother a very Happy, Happy Birthday. I am very, very happy for her.

Carol

_________________
Carol
64 Year old former smoker
1/4/05 at age 56 DX NSCLC, upper right lobe.
Staged IIA by PET Scan.
Restaged to IIIA by surgeon prior to surgery, after he examined PET and CT Scan results.
4/7/05 Completed 6 weeks of radiation and chemotherapy (taxol/carboplatin).
4/29/05 CT Scan.
5/21/05 PET Scan.
5/31/05 Met with surgeon, PET Scan showed nodule in left lung lit up that never lit up before.
6/9/05 Biopsy=OK nodule is scar tissue.
7/1/05 BRONCHOSCOPY,
MEDIASTINOSCOPY, THORACOTOMY SURGERY=ALL MARGINS CLEAN, 20 LYMPH NODES REMOVED. PLUS ONE RIB BONE. ALL NEGATIVE FOR CANCER.
8/9/05 & 9/1/05 ADJUVANT CHEMO. 10/4/05 1ST CT SCAN="Defined patchy density at the superior segment of the right lower lobe. Findings are most likely related to recent surgery and/or posttreatment change, however, this should be followed on subsequent studies".
1/3/06 Brain CT=Clear;Chest CT=Scar Tissue.
1/4/06 ONE YEAR SINCE DIAGNOSIS
4/1/06 Brain & Chest CT=NED. 6/13/06 XRAY=NERD.
7/1/06 ONE YEAR SINCE SURGERY.
10/25/06 CT=NED.
1/4/07 TWO YEARS SINCE DIAGNOSIS
5/3/07 CT=NED.
7/1/07 TWO YEARS SINCE SURGERY.
11/6/07 CT=NED
PLEASE continue to keep me in your prayers.WHEN PRAISES GO UP, BLESSINGS COME DOWN.[/size]
1/4/08 THREE YEARS SINCE DIAGNOSIS
3/20/08 CT=NED
6/20/08 X-RAY=NED
7/1/08 THREE YEARS SINCE SURGERY.
10/27/08 CT=NED
1/4/09 FOUR YEARS SINCE DIAGNOSIS
3/26/09 X-RAY=NED
7/1/09 FOUR YEARS SINCE SURGERY.
9/17/09 CHEST X-RAY CEA BLOOD TEST=NED
1/4/10 FIVE YEARS SINCE DIAGNOSIS
3/29/10 X-RAY=NED
10/5/10 CT=NED
4/1/11 X-RAY=NED
7/1/11 SIX YEARS SINCE SURGERY
10/10/11 X-RAY=NED
4/15/12 CT/PET=NED
4/18/13 CT=NEW 3MM NODULE FOUND ON UPPER LEFT LOBE

Hi Sue,

GREAT NEWS ABOUT YOUR MOM.

you know how we feel commented on FB.

Cyberknife rules!!!!!!

Maryanne

_________________
"Life is not measured by the number of breaths we take...but by the moments that takes our breath away"
[size=75]
Husband Joel, 58 dx 10/18/04 Smoker since age 15 stopped when diagnosed
Adenocarcinoma- stage 1B
Lobectomy Left upper lobe on 12/15/04
biopsy on lymph nodes - negative NED
1/13/04 Oncologist appt.to see about preventive Chemo.
Cancelled due to chronic fatigue
1/12 fentynal patch for pain
1/14 discontinued Fentynal patch bad reaction
1/15 Blood test showed high T levels
2/1 Endoconrinologist visit diagnosed over-active thyroid
2/8/05 took Radioactive Iodine to kill thyroid
2/16/05 appetite back, fatigue leaving
2/24/05 visit with Pulmonary Doc. Breathing at 96% capacity,
Next visit 3 mos.
3/9/05 Endocrinologist visit -T levels went from 25 down to 5.
3/30 started Synthoid(thyroid med)
3/31 Oncologist. appt. CT results NED...
4/14 starting adjunctive Chemo (carbo/taxol) 4 treatments
3 weeks apart.
6/15/05 Joel finished chemo, chest X-ray clear, Next CT in August
9/01/05 1st CT since Chemo.. NED
11/17/05 CT - small nodule found 4 or 5 mil. in his good lung
1/10/06 CT - nodule Stable
7/2006 CT/ Nodule stable
10/2006 CT Nodule seem to have grown from 4 to 7 mil.
10/2006 Pet- showed some uptake
10/2006- operation- wedge section right upper lobe turned out to be cancerous 2 nodules next to each other. 2 different types of cancer. 1 squamous cell carcinoma (new primary)2- adenocarcinoma-(not sure if new primary or metastasis)
May be restaged to IIIB
11/07/2006 will start 4 rounds of taxotere. 3 weeks apart. Will take Decadron before, day of and day after. Will get a shot of Leunesta the day after. Here we go again.. Joel's attitude.... great as usual
Horrible reaction to the neulasta shots. One night(New Years eve) went to ER. Spent 3 days in hosptal.
Feb 2007 finished chemo.
March 2007 had his CT .. as expected right now all is clear.
June 2007 NED!!!
Sept 07- CT- small nodule 3.5 mm
Going to do another CT in 6 weeks.
October 07- CT done, results STABLE...YEA
Jan. 2008... STABLE!!!
April 2008 little growth but still called stable
July 17 208 nodule doubled in size to 9mm. Needs Pet Scan, tests, hopefully cyberknife...
July 29 met with his surgeon... said Cyberknife is the way to go.
August 1- Cyberknife visit... Joel is a canidate, its a go...Happy B-day Joel...
Sept 22, 2008 finshed up the last of 3 cyberknife procedures
Nov. had CT scan
Nov. 9th results of CT from Cyberknife..... Tumor completely gone... right now NED!!!
Feb. 09- Pet/CT results. . . NEd!!!
May 09 Pet/CT results. . . NED!!!
Sept. 09 Pet/CT results.....NED!!
Jan. 2010--- NED!! Pet now will be every 6 months.
June 8,2010 Pet scan on our Anniversary... hope thats a good sign..
June 17, NED!!!
Dec. 30,2010... NED!!!
June 20,2011... NED!!!
March 2012....NED!!!

pic of Joel and our daughter Nicole at walk NOV. 07

[img]http://www.freewebs.com/beansprouts2005/nik_and_dad_1LC_walk.jpg[/img]

http://www.babababies.com

Again, thank you so very much for all your kind words and support for my mom. Maryanne, I'm so glad you and Joel are here to share this update because I know you can relate. The cyberknife doc is pretty pleased with the results of the team's work. Yay, for the team..

Sue

_________________
[size=84]husband, Mike, 59 years old
**2-01 dx'd Stage 1 nsclc-9cm tumor to right lung-no lymph node involvement...
**4-30-01 pneumonectomy right lung removed. No followup chemo or radiation , but scans and xrays were done
**1-28-04 dx w/recurrent stage IV nsclc tumor on stump of where right lung had been removed , lymph node involvement, tumor adrenal gland -lft side, **02-04-04- taxol & carboplatin 3 treatments-didn't work
**02-12-04- radiation 10 to lung for bleeding
**04-2--04-taxotere had 4 treatments. shrinkage had occured in all after 3.. continuing taxotere. making him very tired ... upper body swelling ..
** 08-01-04-in hospital
latest..
**08-02-04 had stent put in .. superior vena cava.. the vein was being blocked by pressure tumor.
**08-05-04-started 10 radiation treatments,
**08-30-04- started Navelbine on 3 weeks and off 1 Scan after 5 treatments show chemo Navelbine not working -slight decrease to lung mass, but slight increase to adrenal ....
**11-01-04-starting Gemzar ... had 3 treatments... too many side effects... Ct of chest and upper abdomen done on Dec. 2nd -results some shrinkage
**12-06-04-started Alimta Dec. 6th- first treatment went well Had 2nd treatment Dec. 27th ... developed a rash and is tired, but otherwise ok Scan Feb 7th, 2005 STABLE doing good continuing Alimta April 18th scans showed stable disease (after 6 Alimta treatments), but he now has pneumonitis... no more treatments until much better.. on prednisone and oxygen..
**05-31-05 Ct scan of chest showed pneumonitis resolved and stable cancer
**06-06-05-our 35th wedding anniversary... onc confirms everything resolving and stable -reccommends break continued til August
**6-15-05 to 6-18-05 in hospital due to mental confusion ..
had MRI-member empty head club

8-3-2005-Ct scans chest , abdomen and pelvic....Waiting and praying...
**8-8-2005-Ct results were that the chest area looked improved, but the adrenal area had increased and involved some lymph nodes.
Started Tarceva 150mg 8-16-2005-8-20-2005 stopped 2 weeks due to severe rash on 9-8-2005 started back on Tarceva at 100 mg now.. stopped again on 9-19-2005
9-30-2005 scans slight progression to nodes behind adrenal..
10-10-2005-Camptosar- CPT-11 started
10-31-2005- CPT-11
refused more CPT-11 made him extremely fatigued and nauseated
Dec. 6th -CTscans chest, abdomen & pelvic. shows stable but tumor compressing the esophagus..
Dec. 19th- had stent to trachea put in
Dec. 21st- he had stent to esophagus and feeding tube put in
Dec. 22nd.. he will ill put in hospital... vomiting and also coughing and congestion in for 4 days... home for Christmas Dec. 25th... still recouperating with antibiotics etc.
Continuing cough and numerous doctor visits.
*Jan 30th-Feb 4th- hospitalized again with cough ..
Still has cough , but controlled most of the time Hasn't been able to resume chemo

**My "prince charming", best friend, husband and soul mate,, Mike passed away March 2, 2006 after being a 5 year survivor and fighting a very courageous battle**
______________________
Mom- 78 yrs old..
nsclc diag May 2nd, 2007-surgery 2sm tumors removed in wedge section... lymph nodes clear
Tarceva as adjuvant started on June 23rd..quit July2nd.. side effects numerous... am waiting now til next appt. July 13th
July 20th... Mom NED.PET clear and normal .. will go back on half 75mg Tarceva... see how that works..
Stop Tarceva 8-25 too many side effects
Oct. 22nd- Mom surgeon visit, chest xray and results .. all clear, no sign of cancer...
Feb. 18th Mom's PET Scan
March 7th Mom's PET Scan results.. NED
Sept. 22, 08 Mom PET Scan
Sept. 29, 08 Mom PET results new nodule 3/4 "...here we go again.... :-(
*Updated*- Mom surgery- Oct. 30th.. surgeon removed top part of upper right lobe. Nothing showed malignant. She had pneumonia after surgery and a 3 week hospital stay, but she is slowly regaining her strength and is currently NED..

March 3, 2009 CT scan.... results showed some little things along suture line that the doctor believed was healing.. will wait til next scan and compare.

June 2, 2009- CT Scan.. results there is an area along suture line that has increased in size and thickening.. doctor thinks could be cancer... a needle biopsy will be done..

A quick update.. the results of the needle biopsy did confirm that it was cancer...

Cyberknife was done the first week in November..

Pet scan .. Dec. 8th...
Dec. 11th -results .. cyberknife worked and the rest of the scan is clean... YAY!!! Happy Birthday (Dec. 19th.. 81st) and Merry Xmas Mom!
Dec. 2010 NED!!!
June 2, 2011.. Pet Scan results .. NED!!!
Nov 3, 2011.. CT scan results.. NED!!!
Sept. 18, 2012 .. our loving mom has passed on ..Heaven received a most precious angel.


graphic by
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So glad to hear the good news, Sue. Have a very Merry Christmas now.

Kasey

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Kasey ~ 8 year survivor ~ Stage IIIb 'inoperable' (yea, right!) lung cancer
9/20/04 Dx lc
9/24/04 Bronchoscopy
10/08/04 CT guided needle biopsy
10/14/04 Dx Pancoast tumor - NSCLC 111a(?) - inoperable - incurable
11/02/04 2nd opinion - Sloan-Kettering - concurs with local dx and tx
11/03/04-12/02/04 Radiation x22 chemo x5 taxol/carboplatin
11/04 - 3rd opinion - FoxChase -turned away
11/04 FOUND LCSC & HOPE
11/04 4th opinion NIH - surgery possible
1/04/05 Successful surgery - RU lobectomy - all margins, nodes, and path reports are NEGATIVE
2/05 chemo x2 taxol/carboplatin
3/05 Esophagus stretched twice
4/06/05 bloodwork, chest x-ray, CT scan, PET scan, NED
5/05 2 more esophagus stretches
7/13/05 bloodwork, chest x-ray, CT scan, PET scan, brain MRI, NED
10/05/05 bloodwork, chest x-ray, PET/CT scan, NED
1/11/06 bloodwork, chest x-ray, PET/CT scan, brain MRI, NED
4/05/06 bloodwork, chest x-ray, PET/CT scan, NED
6/10/06 emergency appendectomy
7/12/06 bloodwork, chest x-ray, PET/CT scan, brain MRI, NED
9/26/06 bloodwork, chest x-ray, PET/CT scan, NED
1/10/07 bloodwork, urinalysis, chest x-ray, CT, PET/CT scan, arm CT, brain MRI, NED
7/11/07 bloodwork, urinalysis, chest x-ray, PET/CT scan, brain MRI, NED
1/9/08 bloodwork, urinalysis, chest x-ray, PET/CT scan, brain MRI, CT w/contrast.....mm 'spot' lower right lobe - watch and wait 3 months
4/8/08 bloodwork, urinalysis, chest x-ray, PET/CT scan, NED
10/14/08 bloodwork, urinaysis, chest x-ray, PET/CT scan, brain MRI, NED
4/15/09 bloodwork, urinalysis, chest x-ray, PET/CT scan, brain MRI, NED
10/13/09 bloodwork, urinalysis, chest x-ray, PET/CT scan, brain MRI, CT/contrast, NED
4/13-4/15/10 bloodwork, urinalysis, chest x-ray, PET/CT scan, brain MRI, CT/contrast, PFT, echocardiogram, EKG, stress test, NED
4/11-4/13/2011 bloodwork, urinalysis, chest x-ray, PET scan, CT scan w/contrast, brain MRI, NED
4/16-4/18/2012 bloodwork, urinalysis, chest x-ray, PET scan, CT scan w/contrast, brain MRI, NED

Sue--this is the BEST news!!!!! I am so happy for you both. Give your mom a great big ol' hug from me and tell her I'm doing the happy dance in her honor. I have tears in my eyes, I'm so happy to read this.

Susan

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76 year-old mom diagnosed with stage IV lung cancer January 5, 2007.

15 radiation treatments to the spine and four rounds of chemo, Jan-May, 2007.

Stable disease May, 2007-May, 2008.

Bone scan May, 2008 shows new mets in the spine, pelvis and ribs.

July, 2008--finished radiation and has a Quadramet treatment.

October, 2008--Scans show mild progression. Began chemo (carbo/taxol/avistin). Will have four rounds of threatment (every 21 days) and scan in January.

01/05/2009--TWO YEAR SURVIVOR!

4/2009--STABLE! No treatment. Next scan in July

7/2009--Scan shows pleural effusion. Fluid drained and malignant. Cancer has spread to other lung and a 13 mm lesion is seen on the liver. Mom to begin Alimta on 8/3

11/2009--Alimta was hard on mom and scans showed progression.

12/2009--began Tarceva, noticed almost immediate improvement.

2/25/2010--Celebrated Mom's 80th birthday!

5/15/2010--Mom watched her oldest granddaughter graduate from college and then paritied well into the night! She's still feeling great.

6/15/2010--Mom watched her youngest granddaughter graduate from high school. Still feeling great!

8/2010-10/2010--Mom begins feeling tired and stays in bed more and more. Scans reveal that the cancer is moving rapidly throughout her body.

10/13/2010--Mom wins her battle once and for all, and passes to a place where the cancer can no longer touch her.

For a more detailed timeline see:

http://www.lungevity.org/l_community/viewtopic.php?p=360385#360385