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 Post subject: Results
PostPosted: Tue May 04, 2010 7:59 pm 
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Location: Yellowknife, Canada
Well alot of members are having test these days. I had my chest x-ray 2 weeks ago but didn't want to say anything until I got my results today.......NED !! Next is a CT Scan and abdominal ultrasound in September on my 3rd anniversary since surgery. I just hope that everyone else gets good news as well.

_________________
02/07 spot showed on chest x-ray
04/07 ct scan confirmed spot
07/07 pet scan could not confirm cancerous
09/07 had lobectomy of upper lobe on left lung.tumour was 2.1cm
10/07 lymph node samples were negative. classified as stage 1b.
12/07 Begin 4 rounds of adjuvant chemotherapy. Cisplatin and Vinerolbine on a 21 day cycle.
01/08 First 3 month chest x-ray was all clear.
03/08 After 3 rounds, cisplatin wil be replaced by carbo for the last round. Ringing in the ears is a side effect of cisplatn.
03/08/08 Had treatment yesterday of Carboplatin/Vinerolbine. So far feeling alot better than when I received the Cisplatin. Treatment lasted 2 hours compared to 5 hours for Cisplatin.
04/08 Chest x-ray. All clear.
06/08 chest CT Scan. All clear
09/08 Chest x-ray. All clear
11/08 Chest x-ray. All clear
02/09 Chest and abdomen CT Scan. All clear
04/09 Chest x-ray. All clear
06/09 Chest x-ray and abdominal ultrasound All clear
01/10 Chest x-ray. All clear


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 Post subject: Re: Results
PostPosted: Tue May 04, 2010 8:30 pm 
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Location: Memphis
That's wonderful news!! Congrats and here's to many, many more.

Blessings,
Jamie

_________________
We are not dealt a situation we cannot handle. It is how we handle these situations, that defines who we are, and who we'll become.
Age 35 at diagnosis
[size=75]Dx December 2004 Stage IIIB
Started Tarceva June 2005(working)
Stable scans (8/2005)
Stable scans (10/2005)
Stable scans (11/2005)
Celebrating 1 year since diagnosis
1/16/06 NED--just scar tissue and/or fibrosis
4/16/06 NED--just scar tissue and/or fibrosis
7/19/06 Stability again--Thank you Lord Jesus!!
11/19/06 NED
1/19/07 NED Again!!!
4/19/07 NED Again!! God is Good!
7/21/07 NED AGAIN!! Pet was clear!!
10/25/07 NED AGAIN!!! God is Good!
01/2008 Cancer free and thanking God!!
06/2008 NED AGAIN!! Thank you God!!
10/2008 NED AGAIN!! Thank you God!!
2/2009 NED AGAIN!! Thank you God!!
6/2009 NED AGAIN! Thank you God!!
12/2009 NED AGAIN!! Thanks be to GOD!!
6/2010 NED AGAIN!!! Thanks be to GOD!!
5 1/2 Year Survivor
http://www.caringbridge.org/tn/jamie
www.memphislungcancerconnections.com
www.lungevity.org/playingforacure

[/size]


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 Post subject: Re: Results
PostPosted: Tue May 04, 2010 9:03 pm 
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Wonderful news, Bruce!!! This is what we like to hear. I'm so very happy for you.

Hugs,
Sue

_________________
[size=84]husband, Mike, 59 years old
**2-01 dx'd Stage 1 nsclc-9cm tumor to right lung-no lymph node involvement...
**4-30-01 pneumonectomy right lung removed. No followup chemo or radiation , but scans and xrays were done
**1-28-04 dx w/recurrent stage IV nsclc tumor on stump of where right lung had been removed , lymph node involvement, tumor adrenal gland -lft side, **02-04-04- taxol & carboplatin 3 treatments-didn't work
**02-12-04- radiation 10 to lung for bleeding
**04-2--04-taxotere had 4 treatments. shrinkage had occured in all after 3.. continuing taxotere. making him very tired ... upper body swelling ..
** 08-01-04-in hospital
latest..
**08-02-04 had stent put in .. superior vena cava.. the vein was being blocked by pressure tumor.
**08-05-04-started 10 radiation treatments,
**08-30-04- started Navelbine on 3 weeks and off 1 Scan after 5 treatments show chemo Navelbine not working -slight decrease to lung mass, but slight increase to adrenal ....
**11-01-04-starting Gemzar ... had 3 treatments... too many side effects... Ct of chest and upper abdomen done on Dec. 2nd -results some shrinkage
**12-06-04-started Alimta Dec. 6th- first treatment went well Had 2nd treatment Dec. 27th ... developed a rash and is tired, but otherwise ok Scan Feb 7th, 2005 STABLE doing good continuing Alimta April 18th scans showed stable disease (after 6 Alimta treatments), but he now has pneumonitis... no more treatments until much better.. on prednisone and oxygen..
**05-31-05 Ct scan of chest showed pneumonitis resolved and stable cancer
**06-06-05-our 35th wedding anniversary... onc confirms everything resolving and stable -reccommends break continued til August
**6-15-05 to 6-18-05 in hospital due to mental confusion ..
had MRI-member empty head club

8-3-2005-Ct scans chest , abdomen and pelvic....Waiting and praying...
**8-8-2005-Ct results were that the chest area looked improved, but the adrenal area had increased and involved some lymph nodes.
Started Tarceva 150mg 8-16-2005-8-20-2005 stopped 2 weeks due to severe rash on 9-8-2005 started back on Tarceva at 100 mg now.. stopped again on 9-19-2005
9-30-2005 scans slight progression to nodes behind adrenal..
10-10-2005-Camptosar- CPT-11 started
10-31-2005- CPT-11
refused more CPT-11 made him extremely fatigued and nauseated
Dec. 6th -CTscans chest, abdomen & pelvic. shows stable but tumor compressing the esophagus..
Dec. 19th- had stent to trachea put in
Dec. 21st- he had stent to esophagus and feeding tube put in
Dec. 22nd.. he will ill put in hospital... vomiting and also coughing and congestion in for 4 days... home for Christmas Dec. 25th... still recouperating with antibiotics etc.
Continuing cough and numerous doctor visits.
*Jan 30th-Feb 4th- hospitalized again with cough ..
Still has cough , but controlled most of the time Hasn't been able to resume chemo

**My "prince charming", best friend, husband and soul mate,, Mike passed away March 2, 2006 after being a 5 year survivor and fighting a very courageous battle**
______________________
Mom- 78 yrs old..
nsclc diag May 2nd, 2007-surgery 2sm tumors removed in wedge section... lymph nodes clear
Tarceva as adjuvant started on June 23rd..quit July2nd.. side effects numerous... am waiting now til next appt. July 13th
July 20th... Mom NED.PET clear and normal .. will go back on half 75mg Tarceva... see how that works..
Stop Tarceva 8-25 too many side effects
Oct. 22nd- Mom surgeon visit, chest xray and results .. all clear, no sign of cancer...
Feb. 18th Mom's PET Scan
March 7th Mom's PET Scan results.. NED
Sept. 22, 08 Mom PET Scan
Sept. 29, 08 Mom PET results new nodule 3/4 "...here we go again.... :-(
*Updated*- Mom surgery- Oct. 30th.. surgeon removed top part of upper right lobe. Nothing showed malignant. She had pneumonia after surgery and a 3 week hospital stay, but she is slowly regaining her strength and is currently NED..

March 3, 2009 CT scan.... results showed some little things along suture line that the doctor believed was healing.. will wait til next scan and compare.

June 2, 2009- CT Scan.. results there is an area along suture line that has increased in size and thickening.. doctor thinks could be cancer... a needle biopsy will be done..

A quick update.. the results of the needle biopsy did confirm that it was cancer...

Cyberknife was done the first week in November..

Pet scan .. Dec. 8th...
Dec. 11th -results .. cyberknife worked and the rest of the scan is clean... YAY!!! Happy Birthday (Dec. 19th.. 81st) and Merry Xmas Mom!
Dec. 2010 NED!!!
June 2, 2011.. Pet Scan results .. NED!!!
Nov 3, 2011.. CT scan results.. NED!!!
Sept. 18, 2012 .. our loving mom has passed on ..Heaven received a most precious angel.


graphic by
http://www.maryslittlelamb.com[/size]


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 Post subject: Re: Results
PostPosted: Wed May 05, 2010 7:05 am 
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Bruce,
Love to hear GREAT news!!! Congratulations!!

Dana

_________________
Mar. '08-Routine xray found Spot tip of upper left lung.
Dr orders CAT. growth confirmed.
Sent to Pulmonolgist who orders PET.
Pet results-my spot lights up like a Christmas tree.
Can't reach spot for biopsy referred to surgeon.
Surgical Biopsy scheduled for Apr. 28th '08
Apr. '08-Surgeon found SCLC, removed upper left lobe and surronding lymph nodes.
Everything biopsied no other cancer found, declaired NED by surgeon on Apr.28th '08
ONC wants me to start adjuvant therapy.
June '08-MRI brain scan and CAT NED
Chemo cisplatin/vp16 3 days every 3 weeks 4 sessions ended Aug. '08
Partial hearing loss due to Cisplatin
Sept. '08 1st CAT after treatment NED
Dec. '08-2nd CAT after treatment NED
Apr. '09-MRI (brain) and CAT NED
Aug. '09-CAT NED
Dec. '09-CAT and MRI NED
Apr. '10-CAT and MRI NED
Oct. '10-CAT and MRI NED
Jan. '11-XRay NED
Oct. '11-CAT NED


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 Post subject: Re: Results
PostPosted: Wed May 05, 2010 7:45 am 
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Whoo hoo Bruce - love those results!!! Congratulations on just about 3 years - keep the good news coming my friend.

I go at the end of the month for my yearly CT scan so I'll let you know how that turns out.

Take care,

Linda


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 Post subject: Re: Results
PostPosted: Wed May 05, 2010 8:03 am 
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Great news, indeed, Bruce. I'm more than thrilled for you. NED ~ a great buddy to keep around, isn't he? What a great reason for a celebration!!!

Kasey

_________________
Kasey ~ 8 year survivor ~ Stage IIIb 'inoperable' (yea, right!) lung cancer
9/20/04 Dx lc
9/24/04 Bronchoscopy
10/08/04 CT guided needle biopsy
10/14/04 Dx Pancoast tumor - NSCLC 111a(?) - inoperable - incurable
11/02/04 2nd opinion - Sloan-Kettering - concurs with local dx and tx
11/03/04-12/02/04 Radiation x22 chemo x5 taxol/carboplatin
11/04 - 3rd opinion - FoxChase -turned away
11/04 FOUND LCSC & HOPE
11/04 4th opinion NIH - surgery possible
1/04/05 Successful surgery - RU lobectomy - all margins, nodes, and path reports are NEGATIVE
2/05 chemo x2 taxol/carboplatin
3/05 Esophagus stretched twice
4/06/05 bloodwork, chest x-ray, CT scan, PET scan, NED
5/05 2 more esophagus stretches
7/13/05 bloodwork, chest x-ray, CT scan, PET scan, brain MRI, NED
10/05/05 bloodwork, chest x-ray, PET/CT scan, NED
1/11/06 bloodwork, chest x-ray, PET/CT scan, brain MRI, NED
4/05/06 bloodwork, chest x-ray, PET/CT scan, NED
6/10/06 emergency appendectomy
7/12/06 bloodwork, chest x-ray, PET/CT scan, brain MRI, NED
9/26/06 bloodwork, chest x-ray, PET/CT scan, NED
1/10/07 bloodwork, urinalysis, chest x-ray, CT, PET/CT scan, arm CT, brain MRI, NED
7/11/07 bloodwork, urinalysis, chest x-ray, PET/CT scan, brain MRI, NED
1/9/08 bloodwork, urinalysis, chest x-ray, PET/CT scan, brain MRI, CT w/contrast.....mm 'spot' lower right lobe - watch and wait 3 months
4/8/08 bloodwork, urinalysis, chest x-ray, PET/CT scan, NED
10/14/08 bloodwork, urinaysis, chest x-ray, PET/CT scan, brain MRI, NED
4/15/09 bloodwork, urinalysis, chest x-ray, PET/CT scan, brain MRI, NED
10/13/09 bloodwork, urinalysis, chest x-ray, PET/CT scan, brain MRI, CT/contrast, NED
4/13-4/15/10 bloodwork, urinalysis, chest x-ray, PET/CT scan, brain MRI, CT/contrast, PFT, echocardiogram, EKG, stress test, NED
4/11-4/13/2011 bloodwork, urinalysis, chest x-ray, PET scan, CT scan w/contrast, brain MRI, NED
4/16-4/18/2012 bloodwork, urinalysis, chest x-ray, PET scan, CT scan w/contrast, brain MRI, NED


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 Post subject: Re: Results
PostPosted: Wed May 05, 2010 8:28 am 
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YEAH BRUCE YEAH!!!!!!!!

Hugs - Patti B.

_________________
My personal war against cancer:
Stage IV at diagnosis 9/29/06- told 12 months tops.......yeah, right!!!
5 rounds of radiation R hip
15 Whole brain radiation txs 7/20 - 8/7/09
8 weeks on oral Tarceva
To date, 80 IV chemo sessions and still counting
Chemos have consisted of:
Carbo/Taxol/Avastin
Avastin alone
Alimta
weekly Navalbine
weekly Gemzar, now on Gemzar every other week due to blood counts
All my veins have become inaccessible - port installed 12/30/09
Put on Alimta/Avastin as a combo
Currently on Taxotere, on 3 weeks off one


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 Post subject: Re: Results
PostPosted: Wed May 05, 2010 8:53 am 
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Awesome new Bruce! :D

_________________
My mom is 45 and a lung cancer patient Stage IIIA
Dx 11-17-04, 45 yrs. old.
Chest X-Ray
CT Scan
Pet Scan
Lung Biopsy (Superior Sulcus Tumor of Right upper lobe squamous cell)
Lymph node of neck biopsied (Negative)
Chemo and Radiation started 12-20-04
First week of Chemo finished 12-28-04 has three weeks off!
Started chemo on Jan 17th will hopefully finish on Monday the 24th and finishes radiation on Tues the 25th. Praying that this works!
Surgery March 1st. Successful Tumor was all dead Doc. says NED but has had no scans.
Chemo Etoposide/Cisplatin started again Beg. of April
Doc changed last round of Chemo to Carbo/Etoposide due to hearing problems and last round was postponed because of low blood counts
May 9th, 10th, and 11th last of the chemo!
Scans scheduled for Aug. 15th Praying for NED!
Scans show NED is with us! Appt. with radiation doc 10/23 and oncologist 12/19
12/27 Mom had appt. Doc ordered bone scan is to return in 4 months
12/02/2006 Mom had appt with Oncologis in November everything is going good. Scans to be scheduled not sure when I think in three months. Mom is doing great and unfortunately still smoking =( Dr said to stay away from sick people

3/13/2007 Mom is 22 months from last treatment and doing fantastic
9/25/2008 Mom turned 49!
10/27/2008 Mom still dong well. Ned is still our very best friend and we will keep him =)


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 Post subject: Re: Results
PostPosted: Wed May 05, 2010 10:39 am 
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Wonderful news Bruce

Muriel

_________________
Dx NSCLC 5/03. Surgery UR lobe. Staged as 1B. Chemo (taxol & Carbo)9/15/03 - 11/13/03. Wonderful CTs until Nov 04. Surgery 11/27/04, again staged as 1B. Chemo (Cisplatin and Gemzar) 2/05 to 6/05. Good CTs and PET since chemo.


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 Post subject: Re: Results
PostPosted: Wed May 05, 2010 11:06 am 
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Way to go, Bruce!

Ned

_________________
Ned is just my nickname, though it would be nice to merge it with the other meaning eventually...

Aloha means "Hello, goodbye, love, compassion, welcome, good wishes." It means belonging to others with a common humanity. It's defined better as a feeling in the heart than by words.

Dx NSCLC adenocarcinoma IIIb Sep 2006, now stage IV. Taxol+Carboplatin+Avastin 4 mo., Avastin 8 mo., Tarceva 16 mo., Alimta 12 mo. (sometimes combined with Cisplatin or Carboplatin), Navelbine since Feb 2010, 10 sessions of WBR in March 2011. See My Cancer Journey: viewtopic.php?p=351369#p351369 — UPDATED 03/05/2011.

Above left: Our golden retriever Rosie, who joined the family on 3/5/08 at the playful age of 2.

Below: Hannah, our golden companion 1994-2007.

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 Post subject: Re: Results
PostPosted: Wed May 05, 2010 11:48 am 
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HIP HIP HORAAAAYYYY BRUCE! Got my scan today, results tomorrow. Meet you on the USS NED tomorrow afternoon.

Judy in KW

_________________
Cytology report on fluid removed from lung after pleural effusion and pneumonia Sep 07 showed adenocarcinoma cells. Dx IIIb NSCLC Oct '07 at MDACC, Orlando. Fol 6 rounds Taxol/Carboplatin/Avastin and 2 Avastin, CT/PET 4/1/08 pleural thickening gone and no active cancer cells. 11/3/08 STILL NEVD. CT/PET/MRI 5/4/09 Cancer back, still in the pleura and chest wall, small amt of fluid, all in left lung.
5/11/09 Start on Alimta every three weeks.
7/13/10 Had Alimta on road in Corning NY.
8/24/09 Scans show some improvement. Continue on Alimta.
9/14/09 Chemo on road in Mt Holly NJ.
10/6/09 Started regular Alimta infusions in Key West.
11/3/09 CT and PET scans showed significant improvement. Some issues already resolved.
2/3/2010 No evidence of residual or recurrent disease. NED! Stay on Alimta.
5/6/10 Am considering myself still NED until/unless proven otherwise in July. Rabid radiologist thinks he sees something suggestive of similar to some abdominal cancer. No light up on the PET. Am hoping for the best. Stay on Alimta and scan in 9 wks instead of 3 mos.
7/8/10 Chest CT unchanged (NED Feb '10). Infiltration in the region of the omentum is probably slightly more prominent than before. Diverticulosis requiring antibiotics.
Jul, Aug, Sep, continued Alimta in Corning NY, Portsmouth OH and Mt Holly NJ.
10/14/10 Chest CT unchanged from Feb '10. Findings likely representing progressive nodular peritonal carcinomatosis in the midabdomen. Treatment changed to Tarceva started in Nov.
12/15/10 Chest CT unchanged. Abdomen changes compatible with peritoneal carcinomatosis again identified with mild progression noted.
3/16/11 CT chest unchanged. CT abdomen progression ascites (fluid). Progression of soft tissues nodularity on the peritoneal surface anteriorly with diffuse omental involvement.
4/13-15/11 Hospitalized at MDA. Removed 4 1/2 litres (8-9 lbs) of fluid from abdomen 4/14. Started on taxotere before release on 4/15.
5/16/11 Hospitalized for fever, neutropenic. Treated with intravenous antibiotic and antiviral. Given blood transfusion. Note that KW Cancer Center did not give me my Neulasta shot after my chemo on May 6. Onc had me cancel my 5/26 chemo until after my scan on Jun 6. Was discharged on oxygen. Test w/Dr Gerth 5/26 indicated I could go off sitting and sleeping O. Will do walking test 6/2.
6/2 Did not get requisite numbers on walking test. Left for Orlando 6/5 still on oxygen.
6/6/11 MRI normal; CT stable. Taxotere and Neulasta at MDA 6/7 and 6/8.
6/13/11 Appointment with Dr Olham in KW. Off oxygen week of 6/16.
8/8/11 CT scan showed stable with perhaps some lessening of fluid. Stay on Taxotere.
10/10/11 CT chest still clear, CT abdominal lining stable. Stay on taxotere.
12/19/11 CT chest clear, CT abdominal lining stable, MRI clear. Stay on taxotere.


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 Post subject: Re: Results
PostPosted: Wed May 05, 2010 1:35 pm 
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Congratulations Bruce!! Love to hear NED.

_________________
GOD is good all the time,

Barb

"Never doubt that a small group of thoughtful, committed citizens can change the world. Indeed, it is the only thing that ever has." Margaret Mead

" For in the end, it's not the years in your life, but the life in your years" Abraham Lincoln

1/5/07 Had cough for a few months, given antibiotics
1/19/07 abnormal CT
2/07 2nd round antibiotics
3/07 2nd CT shows growth changed, now highly suspicious for malignancy
3/27/07 fine needle biopsy fails to get target tissue
4/6/07 PET-CT negative for malignancy
4/07 2nd opinion at Karmanos Cancer Institute, tumor board recommends surgery to remove nodule.
5/16/07 Lobectomy RLL- NSCLC, adenocarcinoma with BAC features, Stage 1a, no further treatment
needed.
8/24/07 CT - NED
9/14/07 Dx with pleural friction rub, need NSAIDS for the inflammation.
12/17/07 CT showed 2 new small nodules, 6 & 8 mm. Enlarged lymph nodes.
2/28/08 CT & PET Scans, more nodules, SUV between 2 & 8. Report says most likely recurrence and metastases.
3/6/08 Needle biopsy; benign, no fungus or TB.
3/19/08 Bronchoscopy; benign, no cancer, tumors, infections, fungus, virus or TB. Most likely inflammation.
5/3/08 PET/CT and CT-most nodules decreased in size by 50%, diagnosis; inflammation possibly from ruptured silicone breast implants which were removed 9/05.
7/18/08 CT nodules stable from May, 2 lymph nodes slightly increased, will rescan mid-Oct
10/10/08 PET/CT and CT show lymph nodes of concern decreased in size. Still have several nodules, but they are either stable, reduced in size. There are now 2 new enlarged lymph nodes. They believe they may be part of my ongoing inflammation, will rescan in 3 months.
1/09 scans show progression of larger nodule. Biopsy 2/5/09 benign, will rescan in 3 months.
4/24/09 "scans show progression of disease". Have had horrible cough and increased SOB. Will treat with 30mg prednisone for 6 weeks, then new PET.
PET/CT 6-5-09 suspicious mass decreased in size indicating no recurrence, probably sarcoidosis or inflammation, will rescan in a few months.
9/09 All inflammtion is back. Put back on prednisone, rescan in Dec
12/09 Most inflammation gone. Start predinsone taper rescan 3/10
1/10 Seek treatment for increased pain from 5/07 thoracotomy.
3/15/10 CT shows slight increase in 2 nodules and lymph node, continue prednisone 4 week more, rescan in June
4/16/10 back on higher dose prednisone due to increased cough during taper. Will taper to inhaled steroid and have CT 6/11/10
6/17/10 CT nodules & lymph nodes stable, stay on inhaled steroid rescan 12/10
12/16/10 CT Stable, recan 6/11
2/11 Start Lyrica for post thoracotmy syndrome pain. Now haivng regular epidurals for ongoing lumbar herniated disc with bilateral leg pain


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 Post subject: Re: Results
PostPosted: Wed May 05, 2010 1:47 pm 
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that s great news Bruce !! Keep at it man!!!

_________________
April/03 My Wife Deborah, age 46, diagnosed adenocarcinoma NSCLC
1/20/2006 Admitted to hospital Respiratory distress
1/23/2006 Ran to the light and is waiting for us to be rejoined in the Kingdom Of Heaven Her journey is Over but mine lingers on for Now!!!
4/23/07 DEb is joined in Peace by her Puppy Dawg Daisy from Cancer
8/30/07 Got new Pup named Mocha!!

"No matter hnow much it hurts, No matter how alone you feel, Your friends will help you get through anything!!"
Scrubs!!!!Yes the comedy show!!!

The Reason I advocate
If you would like to see our family photos Click on this link!
http://deborah-wallin.memory-of.com/

My memory-of Link is good to go now if you want to see it!!


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 Post subject: Re: Results
PostPosted: Wed May 05, 2010 2:00 pm 
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Yeah Bruce! NED is good, very, very good. I have my three year anny coming up in June!

Judy in MI

_________________
6/07 DX NSCLC, Left Upper Lobe wedge resection: Stage 2.3/4, (2B?) Adenocarcinoma, measures 2.5x1.5x1.1cm. Involving visceral pleura but not through it. 5 rounds chemo, carboplatin and Taxol. Subsequent scans NED.

1/11 3.5 mm node found. 10/11 CT node now 8 mm, and new 6 mm node. 11/11 CT Pet shows slight uptake. 1/4/12 Biopsy - Pneumothorax complication. 1/14/12 Lobectomy of upper rt. lobe. NSCLC Adenocarcinoma in situ, nonmucinous (bronchioloalveolar carcinoma) 1.4cm involves pulmonary parenchyma.
3/14/12 Begin 4 cycles of Cisplatin/Navelbein, with Neulasta shot
4/6/12 Chemo changed to Carboplatin/Navelbine without Neulasta shot. Reduced chemo by 50% due to intolerance.
7/5/12 CT scan is clean, NED for lung cancer! There are issues with liver and stomach that will be investigated but not believed to be because of cancer. Wait and see!

*Avatar was taken 7/3/12 on our way out to see the Fireworks on a friends boat on their lake!

Mom dx SCLC 1/96, passed 10/19/96, age 62
Dad dx Brain cancer 4/87, passed 6/87, age 57
Sister dx Brain cancer 4/83, passed 12/83, age 25


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 Post subject: Re: Results
PostPosted: Wed May 05, 2010 5:12 pm 
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Love that NED!!!!!

Whoo Hoo--Way to go!

Susan

_________________
76 year-old mom diagnosed with stage IV lung cancer January 5, 2007.

15 radiation treatments to the spine and four rounds of chemo, Jan-May, 2007.

Stable disease May, 2007-May, 2008.

Bone scan May, 2008 shows new mets in the spine, pelvis and ribs.

July, 2008--finished radiation and has a Quadramet treatment.

October, 2008--Scans show mild progression. Began chemo (carbo/taxol/avistin). Will have four rounds of threatment (every 21 days) and scan in January.

01/05/2009--TWO YEAR SURVIVOR!

4/2009--STABLE! No treatment. Next scan in July

7/2009--Scan shows pleural effusion. Fluid drained and malignant. Cancer has spread to other lung and a 13 mm lesion is seen on the liver. Mom to begin Alimta on 8/3

11/2009--Alimta was hard on mom and scans showed progression.

12/2009--began Tarceva, noticed almost immediate improvement.

2/25/2010--Celebrated Mom's 80th birthday!

5/15/2010--Mom watched her oldest granddaughter graduate from college and then paritied well into the night! She's still feeling great.

6/15/2010--Mom watched her youngest granddaughter graduate from high school. Still feeling great!

8/2010-10/2010--Mom begins feeling tired and stays in bed more and more. Scans reveal that the cancer is moving rapidly throughout her body.

10/13/2010--Mom wins her battle once and for all, and passes to a place where the cancer can no longer touch her.

For a more detailed timeline see:

http://www.lungevity.org/l_community/viewtopic.php?p=360385#360385


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 Post subject: Re: Results
PostPosted: Thu May 06, 2010 6:13 am 
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Location: Texas
YAY!! WONDERFUL NEWS!!!

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 Post subject: Re: Results
PostPosted: Thu May 06, 2010 11:08 pm 
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Location: Voorhees, NJ (near Philly)
Oh Bruce it is so great when you hear those words.... NED!!!!! :mrgreen:

A bIG CONGRATS TO YOU!!!!!

Maryanne :wink:

_________________
"Life is not measured by the number of breaths we take...but by the moments that takes our breath away"
[size=75]
Husband Joel, 58 dx 10/18/04 Smoker since age 15 stopped when diagnosed
Adenocarcinoma- stage 1B
Lobectomy Left upper lobe on 12/15/04
biopsy on lymph nodes - negative NED
1/13/04 Oncologist appt.to see about preventive Chemo.
Cancelled due to chronic fatigue
1/12 fentynal patch for pain
1/14 discontinued Fentynal patch bad reaction
1/15 Blood test showed high T levels
2/1 Endoconrinologist visit diagnosed over-active thyroid
2/8/05 took Radioactive Iodine to kill thyroid
2/16/05 appetite back, fatigue leaving
2/24/05 visit with Pulmonary Doc. Breathing at 96% capacity,
Next visit 3 mos.
3/9/05 Endocrinologist visit -T levels went from 25 down to 5.
3/30 started Synthoid(thyroid med)
3/31 Oncologist. appt. CT results NED...
4/14 starting adjunctive Chemo (carbo/taxol) 4 treatments
3 weeks apart.
6/15/05 Joel finished chemo, chest X-ray clear, Next CT in August
9/01/05 1st CT since Chemo.. NED
11/17/05 CT - small nodule found 4 or 5 mil. in his good lung
1/10/06 CT - nodule Stable
7/2006 CT/ Nodule stable
10/2006 CT Nodule seem to have grown from 4 to 7 mil.
10/2006 Pet- showed some uptake
10/2006- operation- wedge section right upper lobe turned out to be cancerous 2 nodules next to each other. 2 different types of cancer. 1 squamous cell carcinoma (new primary)2- adenocarcinoma-(not sure if new primary or metastasis)
May be restaged to IIIB
11/07/2006 will start 4 rounds of taxotere. 3 weeks apart. Will take Decadron before, day of and day after. Will get a shot of Leunesta the day after. Here we go again.. Joel's attitude.... great as usual
Horrible reaction to the neulasta shots. One night(New Years eve) went to ER. Spent 3 days in hosptal.
Feb 2007 finished chemo.
March 2007 had his CT .. as expected right now all is clear.
June 2007 NED!!!
Sept 07- CT- small nodule 3.5 mm
Going to do another CT in 6 weeks.
October 07- CT done, results STABLE...YEA
Jan. 2008... STABLE!!!
April 2008 little growth but still called stable
July 17 208 nodule doubled in size to 9mm. Needs Pet Scan, tests, hopefully cyberknife...
July 29 met with his surgeon... said Cyberknife is the way to go.
August 1- Cyberknife visit... Joel is a canidate, its a go...Happy B-day Joel...
Sept 22, 2008 finshed up the last of 3 cyberknife procedures
Nov. had CT scan
Nov. 9th results of CT from Cyberknife..... Tumor completely gone... right now NED!!!
Feb. 09- Pet/CT results. . . NEd!!!
May 09 Pet/CT results. . . NED!!!
Sept. 09 Pet/CT results.....NED!!
Jan. 2010--- NED!! Pet now will be every 6 months.
June 8,2010 Pet scan on our Anniversary... hope thats a good sign..
June 17, NED!!!
Dec. 30,2010... NED!!!
June 20,2011... NED!!!
March 2012....NED!!!

pic of Joel and our daughter Nicole at walk NOV. 07

[img]http://www.freewebs.com/beansprouts2005/nik_and_dad_1LC_walk.jpg[/img]

http://www.babababies.com


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 Post subject: Re: Results
PostPosted: Fri May 07, 2010 7:47 am 
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Posts: 2031
Location: Illinois
Happy for you Bruce!
Cindy

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age 56
surgery 6/20/03, stage 1B, upper left lobectomy
started adjuvant chemo on 08/14/03
3 cycles--cisplatin/gemzar
finished chemo 11/6/03
now 9 years post-lobectomy, annual x-ray and follow-up with surgeon
follow-up with oncologist every year/bloodwork and clinical exam

2001 early stage breast cancer/surgery and radiation only, no chemo needed. Mammograms once a year,

Just passed 11 year mark for the breast cancer and 9 year mark for the lung


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 Post subject: Re: Results
PostPosted: Fri May 07, 2010 8:18 am 
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Two thumbs up Bruce. Enjoy your summer! :D

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Dxed nslc stage2b,Aug.05 had right lung and 17 nodes removed which 2 had shown to be effected.August 27,05 had surgery redone again to stop bleeding. Started chemo sept.05 as a precaustioary. Have 3 month visit followups and have been ned so far and am hoping and praying to stay that way.Grade3 squamous cell type(T2,N1,Mo)tumor 10.5 cemtimeters,1 peribronchial node and 1 10R node involved


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 Post subject: Re: Results
PostPosted: Fri May 07, 2010 7:11 pm 
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Posts: 1019
Location: Yellowknife, Canada
Thank you to everyone. I really appreciate all the encouragement and support I receive on this site.

_________________
02/07 spot showed on chest x-ray
04/07 ct scan confirmed spot
07/07 pet scan could not confirm cancerous
09/07 had lobectomy of upper lobe on left lung.tumour was 2.1cm
10/07 lymph node samples were negative. classified as stage 1b.
12/07 Begin 4 rounds of adjuvant chemotherapy. Cisplatin and Vinerolbine on a 21 day cycle.
01/08 First 3 month chest x-ray was all clear.
03/08 After 3 rounds, cisplatin wil be replaced by carbo for the last round. Ringing in the ears is a side effect of cisplatn.
03/08/08 Had treatment yesterday of Carboplatin/Vinerolbine. So far feeling alot better than when I received the Cisplatin. Treatment lasted 2 hours compared to 5 hours for Cisplatin.
04/08 Chest x-ray. All clear.
06/08 chest CT Scan. All clear
09/08 Chest x-ray. All clear
11/08 Chest x-ray. All clear
02/09 Chest and abdomen CT Scan. All clear
04/09 Chest x-ray. All clear
06/09 Chest x-ray and abdominal ultrasound All clear
01/10 Chest x-ray. All clear


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 Post subject: Re: Results
PostPosted: Sun May 09, 2010 1:33 pm 
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Posts: 3016
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Bruce,
I am so very happy to hear your good news. Congratulations!

Carol

_________________
Carol
64 Year old former smoker
1/4/05 at age 56 DX NSCLC, upper right lobe.
Staged IIA by PET Scan.
Restaged to IIIA by surgeon prior to surgery, after he examined PET and CT Scan results.
4/7/05 Completed 6 weeks of radiation and chemotherapy (taxol/carboplatin).
4/29/05 CT Scan.
5/21/05 PET Scan.
5/31/05 Met with surgeon, PET Scan showed nodule in left lung lit up that never lit up before.
6/9/05 Biopsy=OK nodule is scar tissue.
7/1/05 BRONCHOSCOPY,
MEDIASTINOSCOPY, THORACOTOMY SURGERY=ALL MARGINS CLEAN, 20 LYMPH NODES REMOVED. PLUS ONE RIB BONE. ALL NEGATIVE FOR CANCER.
8/9/05 & 9/1/05 ADJUVANT CHEMO. 10/4/05 1ST CT SCAN="Defined patchy density at the superior segment of the right lower lobe. Findings are most likely related to recent surgery and/or posttreatment change, however, this should be followed on subsequent studies".
1/3/06 Brain CT=Clear;Chest CT=Scar Tissue.
1/4/06 ONE YEAR SINCE DIAGNOSIS
4/1/06 Brain & Chest CT=NED. 6/13/06 XRAY=NERD.
7/1/06 ONE YEAR SINCE SURGERY.
10/25/06 CT=NED.
1/4/07 TWO YEARS SINCE DIAGNOSIS
5/3/07 CT=NED.
7/1/07 TWO YEARS SINCE SURGERY.
11/6/07 CT=NED
PLEASE continue to keep me in your prayers.WHEN PRAISES GO UP, BLESSINGS COME DOWN.[/size]
1/4/08 THREE YEARS SINCE DIAGNOSIS
3/20/08 CT=NED
6/20/08 X-RAY=NED
7/1/08 THREE YEARS SINCE SURGERY.
10/27/08 CT=NED
1/4/09 FOUR YEARS SINCE DIAGNOSIS
3/26/09 X-RAY=NED
7/1/09 FOUR YEARS SINCE SURGERY.
9/17/09 CHEST X-RAY CEA BLOOD TEST=NED
1/4/10 FIVE YEARS SINCE DIAGNOSIS
3/29/10 X-RAY=NED
10/5/10 CT=NED
4/1/11 X-RAY=NED
7/1/11 SIX YEARS SINCE SURGERY
10/10/11 X-RAY=NED
4/15/12 CT/PET=NED
4/18/13 CT=NEW 3MM NODULE FOUND ON UPPER LEFT LOBE


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 Post subject: Re: Results
PostPosted: Mon May 10, 2010 8:12 am 
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Posts: 1422
Location: Crowley, Texas
Great news, congrats, Bruce!

_________________
Bud

Long distance cyclist and lung cancer survivor
56 years old at time of diagnosis in 2007, now live in Crowley, Tx
Nov 2007 - Tentatively diagnosed as NSCLC stage I from CT scan
Dec 2007 - Upper left lobectomy, biopsy showed one cancerous lymph node, changing the diagnosis to stage II (squamous cell)
Feb to Apr 2008 - Three rounds of cisplatin and gemcitabine
Apr 2008 - chest x-ray, NED
May 2008 - brain mri, clear
Jul 2008 - CT scan, NED
Dec 2008 - CT scan, NED
June 2009 - CT scan, NED
Jan 2010 - CT scan, NED
July 2010 - CT scan, NED
June 2011 - CT scan, NED
May 2012 - CT scan, NED
December 2012 - CT scan, NED. I am now a 5 year survivor!

June 2009 - Wife Rose diagnosed with breast cancer
Stage III IDC
Sept 2009 - Finished 4 rounds of chemo (AC)
Nov 2009 - Surgery
March 2010 - Finished 12 weeks of weekly Taxol
August 2010 - CT scan, NED
August 2011 - Checkup, NED
August 2012 - Checkup, NED
The rest of my story is at:

http://www.lungevity.org/l_community/vi ... hp?t=38841

My blog - uneasy-rider.com


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 Post subject: Re: Results
PostPosted: Mon May 10, 2010 5:13 pm 
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Posts: 928
Location: Orlando, FL
Great news Bruce.

_________________
~~Laurie~~

Bill, I love you so, I always will
(The 5th Dimension - Wedding Bell Blues - 1969)

05/13/47 -- 04/03/08
Small Cell Lung Cancer

Trust in the LORD with all your heart and lean not on your own understanding;
in all your ways acknowledge him,
and he will direct your paths.
Proverbs 3, 5-6

__________________________________


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 Post subject: Re: Results
PostPosted: Fri Jul 09, 2010 8:28 am 
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Posts: 19
Location: Ashland,OH
So happy for you Bruce !!! You are an inspiration for me since our cases were similar---can't thank you enough for being there when I first started the journey and giving me hope :)
Deb

_________________
[size=85][/size]
2006---unexplained weight loss between March and August, accompanied by vomiting and diarrhea.
09/11/06--quit smoking---immediately gained all the weight back within three months
2007-2008---Doctors assume that because of my age, it is menopause causing me to have panic attacks and just not feel well
2008-2009----Doctors all think I'm a hysterical fruitcake for asking them to run more and more tests, that could explain my symptoms. Still have panic attacks and feeling that something is really bad wrong..Anemic for no apparent reason.
09/09---Colonoscopy, a couple of polyps---put on 3 year watch list
11/09/09---coughed up small amount of blood
11/11/09---chest xray shows something in RLL
11/09---CT scan shows 4.5cm mass RLL also mass in thyroid
12/09---Pet Scan Lung SUV 6.0, thyroid SUV 32
12/09--bronchoscopy clear, no cancer cells---schedule pulmonary function test--ok
01/09--tired of waiting for doctors to get back from holidays, not liking the way I am being treated or the length of time it is taking to find out what I already know
01/09--ENT does Fine Needle thyroid biopsy, suggestive of papillary thyroid cancer
01/09--ENT schedules lung biopsy for me because pulomologist and surgeon are taking too long---referred myself to Cleveland Clinic oncologist
01/09---lung biopsy
01/30/09---diagnosed with lung cancer--referred to Cleveland Clinic surgeon asap
02/04/09---met surgeon
02/11/09---pre-surgery testing
02/19/09---thoractomy. 40% of right lung removed (RLL and pt of middle lobe) staged IIB adenocarcinoma--no lymph node spread ,but one was engulfed in tumor T2N1M0
03/09--had port inserted and started chemo (20 wks Cisplatin/Navelbine)
06/14/09---unexpected death of 28 year old son interrupted chemo--- lost too much weight and, kidney function compromised---unable to have last round of cisplatin
07/09---finish Navelbine chemo--remission from lung cancer !!!
08/09---total thyroidectomy--4.5cm nodule in right lobe and 2.5 cm in left lobe
10/09---radioactive iodine
12/09/09---no thyroglobin detectable---remission from thryroid cancer!! Gaining weight unconrtollably.
02/08/10---CT and blood work (still gaining weight)
02/09/10---NED !!!
06/10/10---Endocronologist follow-up and bloodwork---all is well with the thyroid, but still gaining weight uncontrollably---change synthroid dosage
08/02/10---CT and bloodwork
08/03/10---NED !!!! (Also lost 6 pounds !!!)


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 Post subject: Re: Results
PostPosted: Fri Jul 09, 2010 8:50 am 
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Joined: Sat Feb 20, 2010 5:53 am
Posts: 1319
Location: Airdrie north Lanarkshire
Hi Bruce ,
Sorry,just caught your posting just now,how could this have slipped through my net unseen?What else can I say?
CONGRATULATIONS,heres to many,many,many more years of NED.
By the way all of you out there that goes for all of you also.

_________________
Regards,
Eric Byrne

To read my story, please follow the link : http://lungevity.org/l_community/viewtopic.php?t=43268


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 Post subject: Re: Results
PostPosted: Fri Jul 09, 2010 10:35 am 
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Joined: Wed Jun 01, 2005 5:30 pm
Posts: 3016
Location: CA
That is wonderful, wonderful, wonderful news Bruce!!! :D :D :D I am very happy for you.

Carol

_________________
Carol
64 Year old former smoker
1/4/05 at age 56 DX NSCLC, upper right lobe.
Staged IIA by PET Scan.
Restaged to IIIA by surgeon prior to surgery, after he examined PET and CT Scan results.
4/7/05 Completed 6 weeks of radiation and chemotherapy (taxol/carboplatin).
4/29/05 CT Scan.
5/21/05 PET Scan.
5/31/05 Met with surgeon, PET Scan showed nodule in left lung lit up that never lit up before.
6/9/05 Biopsy=OK nodule is scar tissue.
7/1/05 BRONCHOSCOPY,
MEDIASTINOSCOPY, THORACOTOMY SURGERY=ALL MARGINS CLEAN, 20 LYMPH NODES REMOVED. PLUS ONE RIB BONE. ALL NEGATIVE FOR CANCER.
8/9/05 & 9/1/05 ADJUVANT CHEMO. 10/4/05 1ST CT SCAN="Defined patchy density at the superior segment of the right lower lobe. Findings are most likely related to recent surgery and/or posttreatment change, however, this should be followed on subsequent studies".
1/3/06 Brain CT=Clear;Chest CT=Scar Tissue.
1/4/06 ONE YEAR SINCE DIAGNOSIS
4/1/06 Brain & Chest CT=NED. 6/13/06 XRAY=NERD.
7/1/06 ONE YEAR SINCE SURGERY.
10/25/06 CT=NED.
1/4/07 TWO YEARS SINCE DIAGNOSIS
5/3/07 CT=NED.
7/1/07 TWO YEARS SINCE SURGERY.
11/6/07 CT=NED
PLEASE continue to keep me in your prayers.WHEN PRAISES GO UP, BLESSINGS COME DOWN.[/size]
1/4/08 THREE YEARS SINCE DIAGNOSIS
3/20/08 CT=NED
6/20/08 X-RAY=NED
7/1/08 THREE YEARS SINCE SURGERY.
10/27/08 CT=NED
1/4/09 FOUR YEARS SINCE DIAGNOSIS
3/26/09 X-RAY=NED
7/1/09 FOUR YEARS SINCE SURGERY.
9/17/09 CHEST X-RAY CEA BLOOD TEST=NED
1/4/10 FIVE YEARS SINCE DIAGNOSIS
3/29/10 X-RAY=NED
10/5/10 CT=NED
4/1/11 X-RAY=NED
7/1/11 SIX YEARS SINCE SURGERY
10/10/11 X-RAY=NED
4/15/12 CT/PET=NED
4/18/13 CT=NEW 3MM NODULE FOUND ON UPPER LEFT LOBE


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 Post subject: Re: Results
PostPosted: Fri Jul 09, 2010 11:35 am 
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Joined: Sat Jan 17, 2009 1:00 pm
Posts: 1070
Location: Seattle
This is an old scan that we are all thankful for right? But I am happy to see wpoohn posting (maybe there is another update on Deb I haven't seen yet. I'll go look!)
Best for a great summer and scans in September.


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 Post subject: Re: Results
PostPosted: Fri Jul 09, 2010 5:26 pm 
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Joined: Mon Nov 10, 2008 9:37 am
Posts: 905
Location: Southern Oregon
Wonderful news!! Enjoy your summer.

_________________
3/98 Dx squamous cell NSCLC 2a at 50 yrs
4/98 Left lung removed, no chemo/rad
8/08 Persistent cough and shortness of breath, first appt. with pulmonary doc 11/4/08
11/08 X-ray and CT show tumor in right lung. PET scan confirms tumor, shows no apparent spread
12/08 CT/needle biopsy shows squamous cell NSCLC IIIB, doctors don't seem to agree if its a new cancer or recurrence - but onc believes it is a new one
12/08 Start concurrent radiation/chemo, Cisplatin/Etoposide
1/09 Chemo switched to Carbo/Taxol due to intolerance of Cisplatin
2/09 Radiation completed
3/09 Chemo completed
5/09 CT shows spot where tumor was likely/hopefully scar tissue
6/09 Begin Lucanix trial
9/09 CT scan - stable
12/07/09 CT scan - stable
3/1/10 CT scan - stable
6/1/10 CT scan - stable - begin 2nd year of trial
8/23/10 CT scan - stable
10/25/10 CT scan - stable
1/20/11 CT scan - stable
4/25/11 CT scan - stable - completed drug portion of trial, now follow-up with 3-mo scans
8/1/11 CT scan - stable
10/24/11 CT scan - stable. At my request, switching to 6 mo scans.
4/24/12 CT scan - stable.
10/30/12 CT scan - stable.
2/26/13 CT scan - stable

Avatar is with 10-mo-old grandson Ethan at Xmas


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 Post subject: Re: Results
PostPosted: Sat Jul 10, 2010 11:40 am 
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Joined: Fri Jan 30, 2009 4:41 pm
Posts: 19
Location: Ashland,OH
ts---I haven't made up an update of my own yet, but doing very well :) I have been enjoying NED since last checkup in February and I go for a ct next month....the 'scanxiety' has already started, I am paranoid about every little cough or ache.
I am also trying to figue out where to post for input of others on neurapathy after chemo ??? Something I am having problems with after returning to work and would like to know what might help before I ask the oncologist about it.
Deb

_________________
[size=85][/size]
2006---unexplained weight loss between March and August, accompanied by vomiting and diarrhea.
09/11/06--quit smoking---immediately gained all the weight back within three months
2007-2008---Doctors assume that because of my age, it is menopause causing me to have panic attacks and just not feel well
2008-2009----Doctors all think I'm a hysterical fruitcake for asking them to run more and more tests, that could explain my symptoms. Still have panic attacks and feeling that something is really bad wrong..Anemic for no apparent reason.
09/09---Colonoscopy, a couple of polyps---put on 3 year watch list
11/09/09---coughed up small amount of blood
11/11/09---chest xray shows something in RLL
11/09---CT scan shows 4.5cm mass RLL also mass in thyroid
12/09---Pet Scan Lung SUV 6.0, thyroid SUV 32
12/09--bronchoscopy clear, no cancer cells---schedule pulmonary function test--ok
01/09--tired of waiting for doctors to get back from holidays, not liking the way I am being treated or the length of time it is taking to find out what I already know
01/09--ENT does Fine Needle thyroid biopsy, suggestive of papillary thyroid cancer
01/09--ENT schedules lung biopsy for me because pulomologist and surgeon are taking too long---referred myself to Cleveland Clinic oncologist
01/09---lung biopsy
01/30/09---diagnosed with lung cancer--referred to Cleveland Clinic surgeon asap
02/04/09---met surgeon
02/11/09---pre-surgery testing
02/19/09---thoractomy. 40% of right lung removed (RLL and pt of middle lobe) staged IIB adenocarcinoma--no lymph node spread ,but one was engulfed in tumor T2N1M0
03/09--had port inserted and started chemo (20 wks Cisplatin/Navelbine)
06/14/09---unexpected death of 28 year old son interrupted chemo--- lost too much weight and, kidney function compromised---unable to have last round of cisplatin
07/09---finish Navelbine chemo--remission from lung cancer !!!
08/09---total thyroidectomy--4.5cm nodule in right lobe and 2.5 cm in left lobe
10/09---radioactive iodine
12/09/09---no thyroglobin detectable---remission from thryroid cancer!! Gaining weight unconrtollably.
02/08/10---CT and blood work (still gaining weight)
02/09/10---NED !!!
06/10/10---Endocronologist follow-up and bloodwork---all is well with the thyroid, but still gaining weight uncontrollably---change synthroid dosage
08/02/10---CT and bloodwork
08/03/10---NED !!!! (Also lost 6 pounds !!!)


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 Post subject: Re: Results
PostPosted: Fri Oct 08, 2010 2:55 am 
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Posts: 1
Waiting for a medical result seems that we are waiting for our due time. We do not know what awaits us as we feel nervous for it. The abdominal ultrasound when compared to x-rays, does not use ionizing radiation because it captures the real images in time.

Ultrasound Service Training


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