Good day all.
3rd week of treatment and the radiation is getting the better part of my throat.

i have 2 more weeks of radiation and my throat is toast now very hard to eat and drink. I radaition 5 days a week in the upper chest.

Chemo so far is a walk in the park but radiation is taking it's toll on me. i still eat but getting very difficult.

_________________
9-2-10 got the news from a CT scan
9-9 Pulmonary appointment
9-10 PET scan
9-12 fired all local doc's
9-20 going to Tulsa Cancer institute of america. I hope to have answers by Friday.
9-28 Diagnose none smalll Stage 3B. Stage 3 is only due to the location of the mass. Attached to left lung and maybe the to Aorta, just a nasty place...

9-29 CT for Radiation mapping
10-1 MRI negitive
10-4 Treatment starts for 8 weeks of chemo and 15 min Radiation
11-12 completed 33 radiation treatments and 6 low does chemo's.
12-23 Started 4 treatments of full dose Chemo
1-3 chemo 2 of 4
1-26 scheduled for PT and PET scans
1-17 both scans clear we stopped chemo's 3 and 4.
3-20 clean scans
6-16 clean scans
9-26 Clean
12-19 2011 1 yr clean scans...

There you are! I saw your note on Facebook. I'm sorry the radiation is getting rough, it is a grueling regime to get through, but I have a couple of friends that had to go through that, and they are doing great now.

As for your note, there are many Board Index options for discussing your progress.

Go to the Board Index which you see on the Upper left side of the box above the title of your post called Radiation and throat. You will see many Board Index types and then sub-types under that.

You could post appropriately anything going on with you in the Discussion Forum: Lunch Cancer Survivors which is for anyone in or out of treatment that had lung cancer.

The other forum where you could post treatment updates is General Forum: General Lunch Cancer Discussion Forum

As you progress to the stage where you are getting a new CT scan or new test, you could go to the Test Time Forum: Updates.

The last one I want you to be aware of is a daily post forum in the Board Index called Off Topics: Just for Fun.. This is a good one for every day catching up with regulars here about day to day life. Check it out. It's been fun and interesting to be a part of that one.

Bottom line is this: When I come to this site, the first place I go is to the View New Posts at the top of the page. I also have my posts "Notify me when a reply is posted", so if I note you, and someone else replys to you, I get a short email just letting me know someone posted to my post or any other post that I wrote, and I can go check it out easily if I want.

Whew! That was long winded, but you just got a crash course on this website!

Judy in MI

_________________
6/07 DX NSCLC, Left Upper Lobe wedge resection: Stage 2.3/4, (2B?) Adenocarcinoma, measures 2.5x1.5x1.1cm. Involving visceral pleura but not through it. 5 rounds chemo, carboplatin and Taxol. Subsequent scans NED.

1/11 3.5 mm node found. 10/11 CT node now 8 mm, and new 6 mm node. 11/11 CT Pet shows slight uptake. 1/4/12 Biopsy - Pneumothorax complication. 1/14/12 Lobectomy of upper rt. lobe. NSCLC Adenocarcinoma in situ, nonmucinous (bronchioloalveolar carcinoma) 1.4cm involves pulmonary parenchyma.
3/14/12 Begin 4 cycles of Cisplatin/Navelbein, with Neulasta shot
4/6/12 Chemo changed to Carboplatin/Navelbine without Neulasta shot. Reduced chemo by 50% due to intolerance.
7/5/12 CT scan is clean, NED for lung cancer! There are issues with liver and stomach that will be investigated but not believed to be because of cancer. Wait and see!

*Avatar was taken 7/3/12 on our way out to see the Fireworks on a friends boat on their lake!

Mom dx SCLC 1/96, passed 10/19/96, age 62
Dad dx Brain cancer 4/87, passed 6/87, age 57
Sister dx Brain cancer 4/83, passed 12/83, age 25

LOL, ok, you can't get lunch cancer! I have no idea where that came from. Plz substitute Lung for the word Lunch. LOL

_________________
6/07 DX NSCLC, Left Upper Lobe wedge resection: Stage 2.3/4, (2B?) Adenocarcinoma, measures 2.5x1.5x1.1cm. Involving visceral pleura but not through it. 5 rounds chemo, carboplatin and Taxol. Subsequent scans NED.

1/11 3.5 mm node found. 10/11 CT node now 8 mm, and new 6 mm node. 11/11 CT Pet shows slight uptake. 1/4/12 Biopsy - Pneumothorax complication. 1/14/12 Lobectomy of upper rt. lobe. NSCLC Adenocarcinoma in situ, nonmucinous (bronchioloalveolar carcinoma) 1.4cm involves pulmonary parenchyma.
3/14/12 Begin 4 cycles of Cisplatin/Navelbein, with Neulasta shot
4/6/12 Chemo changed to Carboplatin/Navelbine without Neulasta shot. Reduced chemo by 50% due to intolerance.
7/5/12 CT scan is clean, NED for lung cancer! There are issues with liver and stomach that will be investigated but not believed to be because of cancer. Wait and see!

*Avatar was taken 7/3/12 on our way out to see the Fireworks on a friends boat on their lake!

Mom dx SCLC 1/96, passed 10/19/96, age 62
Dad dx Brain cancer 4/87, passed 6/87, age 57
Sister dx Brain cancer 4/83, passed 12/83, age 25

Judy you are awesome.
love your complete support and encouragement of us all here.

emac,
Someone on Grace just went thru radiation without throat problems - she swished and swallowed two spoons (Tablespoons?) of olive oil daily. Not sure I could do it, but you might give it a try. It will help keep your weight up!

Magic mouthwash helps some folk, have u been able to try it?

Found that 2 table spoons of raw honey worked...

Radiation is behind me now and at home until Dec 13th.

_________________
9-2-10 got the news from a CT scan
9-9 Pulmonary appointment
9-10 PET scan
9-12 fired all local doc's
9-20 going to Tulsa Cancer institute of america. I hope to have answers by Friday.
9-28 Diagnose none smalll Stage 3B. Stage 3 is only due to the location of the mass. Attached to left lung and maybe the to Aorta, just a nasty place...

9-29 CT for Radiation mapping
10-1 MRI negitive
10-4 Treatment starts for 8 weeks of chemo and 15 min Radiation
11-12 completed 33 radiation treatments and 6 low does chemo's.
12-23 Started 4 treatments of full dose Chemo
1-3 chemo 2 of 4
1-26 scheduled for PT and PET scans
1-17 both scans clear we stopped chemo's 3 and 4.
3-20 clean scans
6-16 clean scans
9-26 Clean
12-19 2011 1 yr clean scans...

Honey, sure sweeter than olive oil!

Congrats on completing radiation. Home for a week - and then? Enjoy your time and let us know how you are doing.

Best.

HI,

Glad to hear you made in through radiation. It took all that I had to be able to eat during it. I also finished up with 2nd degree burns.

Honey sounds like a good idea. They always tell you to take it with a sore throat...

Glad you are moving forward. Are you returning to work after Dec 13th? Or more Chemo yet??

Hope you are feeling better. Best of luck.

Libby

_________________
43 yr old female with a 12 yr old daughter.
May 2007 - Diagnosed with stage 3A Squamous Cell NSCLC.
5/15/07 - In hospital to have left upper lobe removed. Stage and cancer type was confirmed. Removed several lymph nodes, 2 tested positive for cancer. Home after 5 day.
5/24/07 Went to Oncologist. Did CT/PET scans (praying they got all the cancer out).
6/4/07 Got results, lymph node by main artery showed cancer. Can not remove due to location. Good news was that there was no sign so far that it spread any further than that. Set up an appointment with Radiation Specialist.
6/15/07 Receive chemo every week for 6 weeks ( Carbo & Taxol) and radiation 5 days a week for six weeks, (33 radiation treatments were planned). We stopped at 30 treatments because of 2nd degree burns on my back.
Finished radiation and chemo on 7/26/07. Was in hospital and had 3 ½ weeks off of treatments.
8/15/07 Started chemo every 3 weeks for 9 weeks with larger doses.
9/28/07 Finish final chemo. Will have scans done 11/6/07 and see Dr. for results on 11/9/07.
11/07 Received results, cancer free. Was told this was a good sign considering the stage. need to follow up every 3 months with scans.
8/09 - Now receiving CT scans every 6 months, just had one in Aug so far no signs of cancer. Made the 2 1/2 year mark. Still problems with inflamation with lungs due to radiation damage.
3/10 CT scan no sign of cancer. What a relief!
7/10 still going strong no scan for 1 yr now, next scan is March, I am nervous waiting so long but I will survive. I am a survivor.
3/11 CT Scan, No signs of cancer. Thank you God.

1 yr with clean scans and can't each of you enough. Posting and chatting on here was helpful. Still to this day i truely don't understand everything like some of you.

When I find a job, i'll throw a few bucks in the kitty, you are a great bunch!!

_________________
9-2-10 got the news from a CT scan
9-9 Pulmonary appointment
9-10 PET scan
9-12 fired all local doc's
9-20 going to Tulsa Cancer institute of america. I hope to have answers by Friday.
9-28 Diagnose none smalll Stage 3B. Stage 3 is only due to the location of the mass. Attached to left lung and maybe the to Aorta, just a nasty place...

9-29 CT for Radiation mapping
10-1 MRI negitive
10-4 Treatment starts for 8 weeks of chemo and 15 min Radiation
11-12 completed 33 radiation treatments and 6 low does chemo's.
12-23 Started 4 treatments of full dose Chemo
1-3 chemo 2 of 4
1-26 scheduled for PT and PET scans
1-17 both scans clear we stopped chemo's 3 and 4.
3-20 clean scans
6-16 clean scans
9-26 Clean
12-19 2011 1 yr clean scans...

One year - that great!! Congratulations and wishes for many many more.

Diane

_________________
3/98 Dx squamous cell NSCLC 2a at 50 yrs
4/98 Left lung removed, no chemo/rad
8/08 Persistent cough and shortness of breath, first appt. with pulmonary doc 11/4/08
11/08 X-ray and CT show tumor in right lung. PET scan confirms tumor, shows no apparent spread
12/08 CT/needle biopsy shows squamous cell NSCLC IIIB, doctors don't seem to agree if its a new cancer or recurrence - but onc believes it is a new one
12/08 Start concurrent radiation/chemo, Cisplatin/Etoposide
1/09 Chemo switched to Carbo/Taxol due to intolerance of Cisplatin
2/09 Radiation completed
3/09 Chemo completed
5/09 CT shows spot where tumor was likely/hopefully scar tissue
6/09 Begin Lucanix trial
9/09 CT scan - stable
12/07/09 CT scan - stable
3/1/10 CT scan - stable
6/1/10 CT scan - stable - begin 2nd year of trial
8/23/10 CT scan - stable
10/25/10 CT scan - stable
1/20/11 CT scan - stable
4/25/11 CT scan - stable - completed drug portion of trial, now follow-up with 3-mo scans
8/1/11 CT scan - stable
10/24/11 CT scan - stable. At my request, switching to 6 mo scans.
4/24/12 CT scan - stable.
10/30/12 CT scan - stable.
2/26/13 CT scan - stable

Avatar is with 10-mo-old grandson Ethan at Xmas

SO SO glad to read this update!!! Keep in touch. Your story will adn does inspire so many!!

Hugs
xoxo

_________________
- Katie Brown, Co-Founder of LCSC- Director of Support & Advocacy

18 yr cancer survivor.
Certified Patient Navigator
www.iamkatiebrown.com


In memory of Jessee Dewey, SCLC
December 29, 1938 - September 6, 2003
Lisa Dewey- Jan. 22, 2007
my parents are together in heaven


facebook http://www.facebook.com/lungevity

Eric,

This report is such good news. I follow you on Facebook, and am always glad to see you post here. Sounds like you are doing well. That makes me so happy!

Back to work? That's fantastic! If you find a few to throw in the kitty, that is fabulous too!

I so remember when you first came here. Glad this place helped you then. And now your positive results can help others. God is good Eric.

Judy in MI

_________________
6/07 DX NSCLC, Left Upper Lobe wedge resection: Stage 2.3/4, (2B?) Adenocarcinoma, measures 2.5x1.5x1.1cm. Involving visceral pleura but not through it. 5 rounds chemo, carboplatin and Taxol. Subsequent scans NED.

1/11 3.5 mm node found. 10/11 CT node now 8 mm, and new 6 mm node. 11/11 CT Pet shows slight uptake. 1/4/12 Biopsy - Pneumothorax complication. 1/14/12 Lobectomy of upper rt. lobe. NSCLC Adenocarcinoma in situ, nonmucinous (bronchioloalveolar carcinoma) 1.4cm involves pulmonary parenchyma.
3/14/12 Begin 4 cycles of Cisplatin/Navelbein, with Neulasta shot
4/6/12 Chemo changed to Carboplatin/Navelbine without Neulasta shot. Reduced chemo by 50% due to intolerance.
7/5/12 CT scan is clean, NED for lung cancer! There are issues with liver and stomach that will be investigated but not believed to be because of cancer. Wait and see!

*Avatar was taken 7/3/12 on our way out to see the Fireworks on a friends boat on their lake!

Mom dx SCLC 1/96, passed 10/19/96, age 62
Dad dx Brain cancer 4/87, passed 6/87, age 57
Sister dx Brain cancer 4/83, passed 12/83, age 25