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Outrider1
PostPosted: Sun Apr 22, 2012 5:49 am 
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Location: Forests and foothills of the Ozarks, Ark.

Hello All,
A few more links for you for information.

http://www.webmd.com
This site is especially god for you drug information. It also has good info on many diseases including cancer. (Warning a lot of their articles put smoking as the number one cause of lung cancer, which is ( in my opinion) not nessesarily true of all types of lung cancer.

For a list of clinical trails go here:
http://www.cancer.gov/clinicaltrials

For more info go here:

http://www.nih.gov/
and here
http://www.navigatingcancer.com

I hope these links help in your journey.

Dawn
(Outrider1)

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http://lungevity.org/l_community/viewto ... 47&t=41979
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Petunia
PostPosted: Tue Apr 24, 2012 5:52 pm 
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Joined: Mon Mar 12, 2012 8:55 pm
Posts: 34
Thank you so much for all the info. I have used Cancergrace for some questions but at times it seems difficult to navigate around. How are you feeling? I know that you were going to a doctor's visit in April and you were going to "give 'em hell."
Update on my mom's status:
Is beginning her 3rd cycle of chemo next week and so far so good... no side effects except hair loss. Unfortunately, she has mets to her bones and she will have to start radiation. We will find out more when we go to the dr. tomorrow. She also has mets to her brain but I think the Dr.is waiting to do WBR/PCI until after he sees if the chemo is working on the tumor (I hope it is.. I can't imagine it not,) I hope that others are doing well. Sending good thoughts and prayers out to you all.
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RandyW
PostPosted: Tue Apr 24, 2012 6:29 pm 
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Location: Greensboro North Carolina
if mets to brain might Cyberknife be a possibility? something to ask about anyhow !!!

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April/03 My Wife Deborah, age 46, diagnosed adenocarcinoma NSCLC
1/20/2006 Admitted to hospital Respiratory distress
1/23/2006 Ran to the light and is waiting for us to be rejoined in the Kingdom Of Heaven Her journey is Over but mine lingers on for Now!!!
4/23/07 DEb is joined in Peace by her Puppy Dawg Daisy from Cancer
8/30/07 Got new Pup named Mocha!!

"No matter hnow much it hurts, No matter how alone you feel, Your friends will help you get through anything!!"
Scrubs!!!!Yes the comedy show!!!

The Reason I advocate
If you would like to see our family photos Click on this link!
http://deborah-wallin.memory-of.com/

My memory-of Link is good to go now if you want to see it!!
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Outrider1
PostPosted: Tue Apr 24, 2012 10:14 pm 
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Location: Forests and foothills of the Ozarks, Ark.
Petunia,
I did see him this month, it was the same ole, story, I did not
give him hell, cause I got too mad myself and was afraid of what I might say, so when I see him my next visit (in July) I am gonna stay calm and get the jump on him and talk first, and then he can have his turn.
Randy, that might be good, advice,but I don't know much about if to offer any insight there.

Dawn
(Outrider1)

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RandyW
PostPosted: Wed Apr 25, 2012 1:15 am 
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its all good Dawn! :D

_________________
April/03 My Wife Deborah, age 46, diagnosed adenocarcinoma NSCLC
1/20/2006 Admitted to hospital Respiratory distress
1/23/2006 Ran to the light and is waiting for us to be rejoined in the Kingdom Of Heaven Her journey is Over but mine lingers on for Now!!!
4/23/07 DEb is joined in Peace by her Puppy Dawg Daisy from Cancer
8/30/07 Got new Pup named Mocha!!

"No matter hnow much it hurts, No matter how alone you feel, Your friends will help you get through anything!!"
Scrubs!!!!Yes the comedy show!!!

The Reason I advocate
If you would like to see our family photos Click on this link!
http://deborah-wallin.memory-of.com/

My memory-of Link is good to go now if you want to see it!!
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Petunia
PostPosted: Wed Apr 25, 2012 11:51 am 
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Joined: Mon Mar 12, 2012 8:55 pm
Posts: 34
Thanks , I suggested that but he seems to want to do PCI. He is waiting to start that because she will be seeing another dr. for her radiation in 2 weeks. They said that they may even do radiation to the primary tumor since the bone mets are so close. Not sure how I feel about radiation to the brain. it seems like so much to do to my mom and not sure of side effects. I guess one thing at a time. The Neulasta shot really helped her though because her wbc are 10!
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RandyW
PostPosted: Wed Apr 25, 2012 12:27 pm 
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Location: Greensboro North Carolina
for cyberknife Link and info on the procedure FYI is all!

I really like this because they explain it in easy to understand terms...

http://www.orlive.com/broward-health/vi ... cyberknife

And I know people who have had it and are still NED free after several years. I think she is on scan number 5 after 3 years so far??

_________________
April/03 My Wife Deborah, age 46, diagnosed adenocarcinoma NSCLC
1/20/2006 Admitted to hospital Respiratory distress
1/23/2006 Ran to the light and is waiting for us to be rejoined in the Kingdom Of Heaven Her journey is Over but mine lingers on for Now!!!
4/23/07 DEb is joined in Peace by her Puppy Dawg Daisy from Cancer
8/30/07 Got new Pup named Mocha!!

"No matter hnow much it hurts, No matter how alone you feel, Your friends will help you get through anything!!"
Scrubs!!!!Yes the comedy show!!!

The Reason I advocate
If you would like to see our family photos Click on this link!
http://deborah-wallin.memory-of.com/

My memory-of Link is good to go now if you want to see it!!
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Alan
PostPosted: Wed Apr 25, 2012 4:16 pm 
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Joined: Mon Apr 25, 2011 2:50 pm
Posts: 218
Cyberknife saved my life but it wasn't brain, but it's done often. Gammaknife is used too.
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