Dear Sue, so sorry and angry that we had to lose yet another precious soul to this horrid disease. It was a battle well fought by a valiant knight. My prayer are with you now.
1/13/05 Confused and disoriented taken to ER and diagnosed with NSCLC,8 mets to brain and 1 to liver. Decadron helps with cognitive function
2/1,2/05 Gamma Knife to all 8 brain mets in 2 sessions.
Jeffrey is now "normal" again
2/06/05 begin chemo tacol,carboplatin
3/05/05 MRI Brain: all mets shrinking, no new mets
3/30/05 MRI Lung and Liver
4/01/05 MRI Brain: maximum shrinkage, no new mets
4/02/05 Off chemo, on Tarceva to try to get better results on liver. Primary is responding well
4/04/05 Begin planning Cyberknife for liver and lung
5/05/05 New met to brain. Scheduled Gamma Knife in 2 weeks
5/16/05 5 new mets gamma knifed
5/25/05 Scan review after 2 mths of Tarceva. No new mets but no shrinkage. Off Tarceva, on Alimta.
5/26/05 See Cyberknife surgeon
and PET scan
6/9/05 Scan results better than expected. NO activity anywhere but the 2 tumors we knew of. Liver tumor and lung tumor both showing good response to Alimta.
Cyberknife surgeon says its a GO!
06/15/05 2nd round Alimta/no side effects
7/06/05 3rd round Alimta/no side effects
7/08/05 Feeling side effects now with bouts of rage (3 days)
7/14/05 CT of liver and lung
7/25/05 2 Fiducials successfully inserted in liver. Radiologists mentions that tumor is much smaller than scan he got which was one month ago
7/27/05 Onc confirms dramatic shrinkage from Alimta in both lung and liver tumors. No chemo until after cyberknife.
08/1/05 2 fiducials implanted in liver tumor (tumor shrinkage down by 1/2 again)
8/3,4,5/05 Successful cyberknife on liver tumor
08/10/05 Alimta treatment #4
08/30/05 Clean brain scan..no mets
08/31/05 Alimta treatment #5
09/21/05 Final Alimta #6
09/28/05 Lung and Liver scan
10/12/05 Scan shows liver is NED and tumor in lung is down to 1.2 cm. doc decided to keep him on chemo and schedule Cyberknife for tumor in lung.
10/12/05 Alimta #7
10/13/05 Another follow up PET/CAT infusion scan at Mercy Hospital, Miami
11/2/05 Alimta #8
11/3/05 Brain Scan (3 month follow-up) CLEAN!
11/23/05 Liver scan clean
11//05 IMRT on host lung tumor for amonth 5 days a week
12/05 Receiving Carboplatin every Wednesday
01/03/06 Brain scan show no mets but some swelling which is causing some cognitive problems. Decadron for a week.
01/04/06 Last round of Carboplatin (only 5 rounds were prescribed)
01/11/06 Brown is new cyberknife surgeon. Yes to lung tumor removal. CAT Scan and PET scan
1/23/06 IMRT Dr. wants 6 more rounds..
2/1/06 PET Scan results no new activity anywhere
2/06/06 Lung biopsy lung collapses admitted to hospital
2/07/06 lung tumor NED
2/08/06 Fiducial placement
2/10/06 released from hospital
2/16/06 CT scan shows pneumothorax so back in hospital
2/18/06 Pneumothorax self corrected so back out of hospital
3/08/06 CT of lung (again)
3/10/06 Cyberknife of lung tumor
3/13,14/06 Cyberknife of lung tumor
5/9/06 Scans scheduled
5/17 PET scan clear
5/18 Brain MRI clear
7/20 Decadron causes 'road rage'incident
8/22 Brain Scan inconclusive
9/18 New scan shows mets (maybe)
9/19 Gamma Knife of 5 new "growths"
10/17 Brain Scan clean
10/24 Seizure while at work/in hospital
10/26 My father passed away while Jeff is still in hospital
10/27 Released from hospital
11/11 Jeff had another seizure at work
11/13 Brain scan to prepare for brain surgery
11/14 Surgery/biopsy shows no cancer in "matter" removed
11/16 Jeff released from hospital
11/24/06 Jeff back to work
12/28/06 Jeff has elective surgery to get new port for blood drawing and scan injections.
01/19/07 PET Scan (clear)
03/08/07 Brain scan (clear)
03/28/07 Lung and Liver scan (clear)
04/4/07 Oncologist (routine)
05/24/07 Colonoscopy (routine)
06/05/07 Brain scan shows evidence of necrotic growth
06/15/07 Brain PET Clear
08/20/07 Body PET Clear
11/01/07 Seizure at work due to low levels of Lamictal
01/16/08 Routine visit with Neurologist
01/20/08 Seizure at work ?? Admitted to Mount Sinai
01/21/08 Prescribed Lamictal for seizures that are a result of Gamma Knige to brain tumors 3 years ago.
06/22/08 Seizure medication increased due to additional episodes
08/19/08 Hospitalized dues to blood in vomit and urine after coming home ill from work
08/21/08 it Turned out to be minor-iriritation of the esophagus from seizure medication. Has to take a protector drug along with and that is it.
07/14/09-All is well. Jeff no longer sees the oncologist-just his primary.