This week, LUNGevity Foundation is launching a brand-new initiative called Lung Cancer Patient Gateways. The concept is to provide a “one-stop shop” of information and resources for patients and caregivers navigating a lung cancer diagnosis. We will be creating a total of six (6) Patient Gateways, broken out by lung cancer biomarker or subtype, including KRAS, EGFR, ALK, Rare Mutations and Fusions (ROS1, RET, MET, NTRK, BRAF and others), non-small cell lung cancer (NSCLC) and small cell lung cancer (SCLC).
-> Get involved
The first time I met with my representatives was in Washington, DC in 2018. It was part of a grassroots movement called Life & Breath Rally. We were each paired with another advocate and “cold called” our Congressional representatives, which basically meant we went to the Capitol and knocked on doors.
November is Lung Cancer Awareness Month, a time to educate the public about the disease, take action for and raise awareness of lung cancer, and share stories of the people living lung cancer and their families.
LUNGevity is spreading the word this Lung Cancer Awareness Month, and we hope you will join us to make a difference! There are plenty of ways to participate - check out five ideas to get you started below.
I used to think support groups were for weak people. Then, I found LUNGevity and Lung Cancer Support Community – boy, did that change my mind.
I discovered LUNGevity’s message board, Lung Cancer Support Community (LCSC), right after they found a rapidly growing nodule in my right lung. At the time, I had just retired early to be a full-time caregiver for my wife, who was in advanced stages of dementia, and I already felt mentally strained.
Breathe Deep TOGETHER, LUNGevity’s nationwide walk, is back this fall! Join the entire Breathe Deep community on November 6th to help stop lung cancer.
After their childhood friend Jordan Christie was diagnosed with stage IV non-small cell lung cancer at the age of 25, friends Kyle, Jessica, Colin, Matt, Kellie, Julie, and Mike wanted to help. They saw first-hand how difficult living with lung cancer could be. The friends knew they could have an impact by raising money to help fund the two things that helped Jordan the most: new treatments and support programs.
The day before my lung biopsy, May 18, 2020, I ran 7 miles. As I was running, I couldn’t help but think there is no way I have lung cancer. Yet, when the results of my biopsy came back, that’s exactly what I was diagnosed with: stage I adenocarcinoma non-small cell lung cancer.
It’s rare to be diagnosed as stage I; in fact, only about 18% of people are. That’s why I call it my “incidentally-noma,” a little joke as a retired nurse about my lung cancer being found completely by accident.
LUNGevity established May as Lung Cancer Hope Month to celebrate the incredible strides in research and survivorship for the lung cancer community. Each year, we have more reasons to be hopeful—more treatments are being approved, more people are being diagnosed earlier, the community of advocates is growing stronger, and many people are living longer and better with the disease.
My daughter Jillian was first diagnosed with lung cancer when she was 28 years old. She thought it was just a swollen lymph node – a residual from a cold. Her lung cancer diagnosis came while we were sitting in a drab exam room, hoping that she had thyroid cancer. It ended up being stage IV non-small cell lung cancer.
A lung cancer diagnosis can be overwhelming. Support from family and friends becomes a crucial part of navigating the disease. Equally as important to many is support and understanding from someone who has already walked the lung cancer path.
Finding someone who understands what you’re going through isn’t always easy, however. That’s why LUNGevity created the LifeLine Support Program.
We sat down with Sarah (mentor) and Pat (mentee) to learn more about their experience with LifeLine and how it has improved their lung cancer journey.